Cadasil Association
THE MISSION OF CURECADASIL IS TO RAISE AWARENESS OF CADASIL, ENSURING IT WILL BE UNIVERSALLY RECOGNIZED AND UNDERSTOOD BY THE MEDICAL COMMUNITY, ENABLING PATIENTS TO BE CORRECTLY DIAGNOSED. WE ARE DEDICATED TO HELPING ALL TOUCHED BY CADASIL,IMPROVING EDUCATION AVAILABLE ON CADASIL AND PROMOTE AND SUPPORT RESEARCH FOR THIS RARE DISEASE
Key facts about Cadasil Association
- EIN
- 45-5242623
- Latest 990 filing
- Form 990-PF, 2025
- Total assets
- $394,057
Data from IRS Form 990-PF, 2025; updated September 2026.
Next steps with Cadasil Association
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Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$394K
+61.2% YoY
Revenue
$257K
+71.2% YoY
Net Investment Income
$4
+0.0% YoY
Expenses
$107K
-39.3% YoY
About Cadasil Association
Based on IRS filings
Cadasil Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Edina, MN. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $394K in total assets. Net investment income was $4.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $394,057 | $244,477 | $271,390 |
| Revenue | $257,055 | $150,106 | $49,648 |
| Expenses | $107,475 | $177,019 | $118,494 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $4 | $4 | $39 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS March 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS April 30, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 14, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 14, 2026)
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
No officer or director reported compensation in the available filings.
From 2025 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Vinita Bahl | Trustee | 5 | — |
| Kathy Siegel | Trustee | 5 | — |
| Cheryl Gibson | Treasurer | 18 | — |
| Jane Gunther | Past Pres/SC | 18 | — |
| Bertram Kasiske | President | 20 | — |
| Pedro De Lencastre | Secretary | 18 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Cadasil Association?
Cadasil Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Edina, MN. It holds $394K in total assets as of 2025.
How large is Cadasil Association?
As of 2025, Cadasil Association holds $394K in total assets with $257K in annual revenue.
Where does Cadasil Association operate?
Cadasil Association has awarded grants in Pennsylvania.
What is Cadasil Association's EIN?
Cadasil Association's EIN (Employer Identification Number) is 45-5242623. IRS Form 990 filing data is available on this page for 2021–2025.
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.