Cadasil Association
The mission of curecadasil is to raise awareness of cadasil, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping all touched by cadasil,improving education available on cadasil and promote and support research for this rare disease
Cadasil Association at a glance
- Total assets
- $394,057
- +61.2% vs 2024
- Revenue (2025)
- $257,055
- +71.2% vs 2024
- Net investment income (2025)
- $4
- +0.0% vs 2024
- Expenses (2025)
- $107,475
- -39.3% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Cadasil Association funds
How this funder distributes its grants
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 3 grants of 3 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2024, annual grant giving ranged from $10K (2022) to $15K (2024). In 2024 it made 1 grant totaling $15K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Pennsylvania Philadelphia, PA | Rare Disease Research Bike Ride | $15,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $394,057 | $257,055 | $107,475 | — | — | $4 |
| 2024 | $244,477 | $150,106 | $177,019 | $15,000 | 1 | $4 |
| 2023 | $271,390 | $49,648 | $118,494 | $10,000 | 1 | $39 |
| 2022 | $340,236 | $256,716 | $28,900 | $10,000 | 1 | $7 |
| 2021 | — | $35,977 | $23,057 | — | — | — |
About Cadasil Association
Based on IRS filings
Cadasil Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Edina, MN. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $394K in total assets. Net investment income was $4.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Cadasil Association is led by Bertram Kasiske, President on every filing since 2022; none of the 6 officers listed in 2025 report compensation.
Officers on the 2025 filing
Bertram Kasiske
President
On filings since 2022
20 hrs/week
No compensation reported
Vinita Bahl
Trustee
On filings since 2023
5 hrs/week
No compensation reported
Kathy Siegel
Trustee
New on the 2025 filing
5 hrs/week
No compensation reported
Jane Gunther
Past President
President → Research Ofc., 2022
Research Ofc. → Past President, 2025
On filings since 2021
18 hrs/week
No compensation reported
Pedro De Lencastre
Secretary
Trustee & Secretary → Secretary, 2022
On filings since 2021
18 hrs/week
No compensation reported
Cheryl Gibson
Treasurer
New on the 2025 filing
18 hrs/week
No compensation reported
Former officers (3)
- Former: Debra Robinson (2021–2024) — Treasurer
- Former: Sandra Talbird (2021–2024) — Trustee
- Former: Bert Kasiske (2021) — Trustee
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Cadasil Association
How large is Cadasil Association?
Cadasil Association reported $394K in total assets on its 2025 IRS Form 990. Its revenue that year was $257K.
What is Cadasil Association?
Cadasil Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Edina, MN. It holds $394K in total assets as of 2025.
Where does Cadasil Association operate?
Cadasil Association has awarded grants in Pennsylvania.
What is Cadasil Association's EIN?
Cadasil Association's EIN (Employer Identification Number) is 45-5242623. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS March 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS April 30, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 14, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS May 14, 2026)
Live grants for the work Cadasil Association funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Cadasil Association's focus areas in our free grants database
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Cadasil Association down — hundreds of funders to go?