To find specific treatment options and a cure for CACNA1A patients. (See Schedule O for full mission)
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$726K
-15.9% YoY
Annual Giving
$72K
-42.6% YoY
Grant Count
3
+50.0% YoY
Avg Grant Size
$24K
-61.7% YoY
About CACNA1A Foundation
Based on IRS filings
CACNA1A Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NORWALK, CT. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $726K in total assets. In 2024, it awarded 3 grants totaling $72K. Net investment income was $9K.
Focus Areas
Ready to take the next step with CACNA1A Foundation?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $726,400 | $863,328 | $876,537 |
| Revenue | $465,614 | $385,860 | $343,299 |
| Expenses | $540,157 | $453,703 | $403,405 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $8,897 | — | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
11 grants across all recorded years
Open Grants
1 open opportunity from CACNA1A Foundation
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include The Broad Institute ($50,000), Trustees of the University of Penn ($16,750), University of Maryland School of Me ($5,000).
| Recipient | Purpose | Amount |
|---|---|---|
| Trustees of the University of Penn Philadelphia, PA | Research | $16,750 |
| University of Maryland School of Me College Park, MD | Research | $5,000 |
| The Broad Institute Cambridge, MA | Research | $50,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Allison Buchner | Director | 5 | — |
| Hala Mirza | Director | 2 | — |
| Sarah Greathouse | Director | 5 | — |
| Deborah Ondrasik MD | Director | 5 | — |
| Michael Strupp | Director | 5 | — |
| Lisa Manaster | President | 40 | — |
| Sunitha Malepati | Vice President & Treasurer | 40 | — |
| Amy Junge | Secretary | 10 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is CACNA1A Foundation?
CACNA1A Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in NORWALK, CT. It holds $726K in total assets as of 2024.
How large is CACNA1A Foundation?
As of 2024, CACNA1A Foundation holds $726K in total assets with $466K in annual revenue. It awarded 3 grants totaling $72K in 2024.
Where does CACNA1A Foundation operate?
CACNA1A Foundation has awarded grants in Iowa, Massachusetts, Maryland, New York, Ohio, Pennsylvania.
What size grants does CACNA1A Foundation award?
In 2024, CACNA1A Foundation awarded 3 grants totaling $72K — an average of about $24K per grant, based on its IRS Form 990 filings.
What is CACNA1A Foundation's EIN?
CACNA1A Foundation's EIN (Employer Identification Number) is 84-4985747. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in CACNA1A Foundation's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Suffolk Cares Charitable Foundation
BOSTON, MA
Assets
$3.0M
Grants
71
Total Given
$3.0M
President and Fellows of Harvard College
CAMBRIDGE, MA
Assets
$74.4B
Grants
344
Total Given
$181.7M
Food Allergy Research & Education Inc
MCLEAN, VA
Assets
$33.2M
Grants
21
Total Given
$3.4M
Foundation for Innovative New Diagnostics
Assets
$51.3M
Grants
10
Total Given
$1.4M
Food Allergy Science Initiative Inc
BOSTON, MA
Assets
$7.8M
Grants
10
Total Given
$4.4M
The Desmoid Tumor Research Foundation
WOODCLIFF LAKE, NJ
Assets
$1.3M
Grants
4
Total Given
$233K
Yale University
NEW HAVEN, CT
Assets
$55.2B
Grants
344
Total Given
$137.2M
Massachusetts Institute of Technology
CAMBRIDGE, MA
Assets
$39.9B
Grants
105
Total Given
$12.7M
New York Genome Center Inc
NEW YORK, NY
Assets
$167.0M
Grants
14
Total Given
$2.1M
Westra Family Charitable Trust
MANCHESTER, MA
Assets
—
Grants
7
Total Given
$78K
Sperling Family Charitable Foundation
WAYLAND, MA
Assets
$16.1M
Grants
10
Total Given
$2.1M
Alternating Hemiplegia of Childhood Foundation Inc
SOUTHFIELD, MI
Assets
$1.7M
Grants
5
Total Given
$97K
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with CACNA1A Foundation on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities