Alternating Hemiplegia of Childhood Foundation Inc
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.
Alternating Hemiplegia of Childhood Foundation Inc at a glance
In short: Alternating Hemiplegia of Childhood Foundation Inc gave $97K across 5 grants in 2025 (avg $19K), top state Illinois. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $96,975
- +720.3% vs 2024
- Grants made (2025)
- 5
- +400.0% vs 2024
- Average grant
- $19,395
- +64.1% vs 2024
- Median grant
- $16,830
- Total assets
- $1,698,825
- +10.5% vs 2024
- Primary geography
- Illinois (36% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Alternating Hemiplegia of Childhood Foundation Inc
Open Grants
5 open opportunities from Alternating Hemiplegia of Childhood Foundation Inc
AHCF Initiate Award
Alternating Hemiplegia of Childhood Foundation Inc
Amount
Varies
Deadline
Deadline not published
AHCF Innovate Award
Alternating Hemiplegia of Childhood Foundation Inc
Amount
Varies
Deadline
Deadline not published
AHCF Inquire Award
Alternating Hemiplegia of Childhood Foundation Inc
Amount
Varies
Deadline
Deadline not published
Who Alternating Hemiplegia of Childhood Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Northwestern University ($35K). Together the top 5 received $97K.
Grant Size Distribution
11 grants across all recorded years
The most common grant size was under $50K: 7 grants of 11 (64%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 5 itemized grants.
Cities
How Alternating Hemiplegia of Childhood Foundation Inc gives
- Giving held roughly steady from 2022 to 2025 (+11%). Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $12K (2024) to $352K (2021). In 2025 it made 5 grants totaling $97K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Northwestern University Chicago, IL | Fellowship | $35,000 |
| Brown University Providence, RI | Medical Research | $22,411 |
| iXCells Biotechnologies San Diego, CA | Medical Research | $16,830 |
| Jackson Laboratories Bar Harbor, ME | Medical Research | $11,509 |
| Somalogic Operating Company Boulder, CO | Medical Research | $11,225 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,698,825 | $283,334 | $200,994 | $96,975 | 5 | $83,143 |
| 2024 | $1,537,672 | $323,263 | $220,502 | $11,822 | 1 | $38,367 |
| 2023 | $1,359,089 | $349,997 | $198,796 | $31,488 | Total only | $41,428 |
| 2022 | $1,183,214 | $797,734 | $141,168 | $87,166 | 2 | $38,570 |
| 2021 | $709,389 | $514,076 | $404,013 | $351,835 | 3 | $7,946 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Alternating Hemiplegia of Childhood Foundation Inc
Based on IRS filings
Alternating Hemiplegia of Childhood Foundation Inc is a public charity focused on Medical Research, based in Southfield, MI. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $1.7M in total assets. In 2025, it awarded 5 grants totaling $97K. Net investment income was $83K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Alternating Hemiplegia of Childhood Foundation Inc is led by Vicky Platt, President since 2024 (on filings since 2021); none of the 10 officers listed in 2025 report compensation.
Officers on the 2025 filing
Vicky Platt
President
Secretary → Vice President of Research, 2022
Vice President of Research → President, 2024
On filings since 2021
4 hrs/week
No compensation reported
Bill Gerber
Director
On filings since 2021
1 hr/week
No compensation reported
Lynn Egan
Director
Director → Vice President of Education & Family Support, 2022
Vice President of Education & Family Support → Director, 2024
On filings since 2021
1 hr/week
No compensation reported
Sharon Ciccodicola
Director
On filings since 2021
1 hr/week
No compensation reported
Kathy Sharo
Director
On filings since 2024
1 hr/week
No compensation reported
Mollie Erpenbeck
Director
On filings since 2024
1 hr/week
No compensation reported
Adalberto Duarte
Director
New on the 2025 filing
1 hr/week
No compensation reported
Cate Cohen
Secretary
Director → Secretary, 2024
On filings since 2021
4 hrs/week
No compensation reported
Gene Andrasco
Treasurer
On filings since 2021
4 hrs/week
No compensation reported
Heather Gates
Vice President of Education & Family Support
Director → Vice President of Education & Family Support, 2024
On filings since 2021
4 hrs/week
No compensation reported
Former officers (8)
- Former: April Hawk (2021–2023) — Vice President of Education & Family Support
- Former: Joshua Marszalek (2021–2023) — President
- Former: Kate Byrne (2021–2023) — Director
- Former: Katelyn Wilson (2022–2023) — Director
- Former: Stephen Henderson (2022–2023) — Secretary
- Former: Renee Hodes (2021–2022) — Director
- Former: Meredith Schalick (2021) — Vice President
- Former: Shannon Berta (2021) — Director
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Alternating Hemiplegia of Childhood Foundation Inc
How much does Alternating Hemiplegia of Childhood Foundation Inc give each year?
Alternating Hemiplegia of Childhood Foundation Inc gave $97K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $12K across 1 grant.
What is Alternating Hemiplegia of Childhood Foundation Inc's typical grant size?
Alternating Hemiplegia of Childhood Foundation Inc's median grant in 2025 was $16,830, and its average grant was $19,395, across 5 grants on its 2025 IRS Form 990.
Where does Alternating Hemiplegia of Childhood Foundation Inc give grants?
Alternating Hemiplegia of Childhood Foundation Inc's top state is Illinois, with 36% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Rhode Island (23%) and California (17%).
Does Alternating Hemiplegia of Childhood Foundation Inc give general operating support?
Not in 2025: none of the 5 grants with a stated purpose on Alternating Hemiplegia of Childhood Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Medical Research" (4 grants).
Who are Alternating Hemiplegia of Childhood Foundation Inc's largest grantees?
Alternating Hemiplegia of Childhood Foundation Inc's largest 2025 grantees include Northwestern University ($35,000), Brown University ($22,411) and iXCells Biotechnologies ($16,830), according to its 2025 IRS Form 990. Together they received 77% of its itemized 2025 grant dollars.
How large is Alternating Hemiplegia of Childhood Foundation Inc?
Alternating Hemiplegia of Childhood Foundation Inc reported $1.7M in total assets on its 2025 IRS Form 990. Its revenue that year was $283K.
What is Alternating Hemiplegia of Childhood Foundation Inc?
Alternating Hemiplegia of Childhood Foundation Inc is a public charity focused on Medical Research, based in Southfield, MI. It holds $1.7M in total assets as of 2025.
What is Alternating Hemiplegia of Childhood Foundation Inc's EIN?
Alternating Hemiplegia of Childhood Foundation Inc's EIN (Employer Identification Number) is 38-3225425. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS June 5, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 6, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 10, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS October 30, 2025)
- IRS filings on file for fiscal years 2021–2025
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