Alternating Hemiplegia of Childhood Foundation Inc logo

Alternating Hemiplegia of Childhood Foundation Inc

SOUTHFIELD, MI EIN: 38-3225425 Website

Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.

Financial Overview

From 2025 IRS Form 990-PF · View filing

Total Assets

$1.7M

+10.5% YoY

Annual Giving

$97K

+720.3% YoY

Grant Count

5

+400.0% YoY

Avg Grant Size

$19K

+64.1% YoY

About Alternating Hemiplegia of Childhood Foundation Inc

Based on IRS filings

Alternating Hemiplegia of Childhood Foundation Inc is a nonprofit organization focused on Medical Research, based in SOUTHFIELD, MI. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $1.7M in total assets. In 2025, it awarded 5 grants totaling $97K. Net investment income was $83K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

6states

Cities

Bar HarborBostonBoulderCambridgeChicagoProvidenceSan Diego

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$219K$439K$658K$878K20212022202320242025
Metric202520242023
Total Assets$1,698,825$1,537,672$1,359,089
Revenue$283,334$323,263$349,997
Expenses$200,994$220,502$198,796
Qualifying Distributions
Net Investment Income$83,143$38,367$41,428
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$88K$176K$264K$352K3 grants20212 grants20220 grants20231 grants20245 grants2025

Grant Insights

How this funder distributes its grants

Top Recipients

Top 5 recipients in 2025

Northwestern University$35KBrown University$22KiXCells Biotechnologies$17KJackson Laboratories$12KSomalogic Operating Comp…$11K

Grant Size Distribution

11 grants across all recorded years

7<$50K2$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Open Grants

4 open opportunities from Alternating Hemiplegia of Childhood Foundation Inc

Show all 4 →

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2025 IRS filing

From 2025 filing

NameTitleHoursCompensation
Lynn EganDirector1
Kathy SharoDirector1
Mollie ErpenbeckDirector1
Sharon CiccodicolaDirector1
Bill GerberDirector1
Adalberto DuarteDirector1
Vicky PlattPresident4
Gene AndrascoTreasurer4
Heather GatesVice-President of Education & Family Support4
Cate CohenSecretary4

Subject Areas

Focus areas based on grantmaking activity

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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