Alternating Hemiplegia of Childhood Foundation Inc
Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$1.7M
+10.5% YoY
Annual Giving
$97K
+720.3% YoY
Grant Count
5
+400.0% YoY
Avg Grant Size
$19K
+64.1% YoY
About Alternating Hemiplegia of Childhood Foundation Inc
Based on IRS filings
Alternating Hemiplegia of Childhood Foundation Inc is a nonprofit organization focused on Medical Research, based in SOUTHFIELD, MI. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $1.7M in total assets. In 2025, it awarded 5 grants totaling $97K. Net investment income was $83K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $1,698,825 | $1,537,672 | $1,359,089 |
| Revenue | $283,334 | $323,263 | $349,997 |
| Expenses | $200,994 | $220,502 | $198,796 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $83,143 | $38,367 | $41,428 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
Grant Size Distribution
11 grants across all recorded years
Open Grants
4 open opportunities from Alternating Hemiplegia of Childhood Foundation Inc
AHCF Initiate Award
ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
AHCF Innovate Award
ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
AHCF Inquire Award
ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include Northwestern University ($35,000), Brown University ($22,411), iXCells Biotechnologies ($16,830).
| Recipient | Purpose | Amount |
|---|---|---|
| Northwestern University Chicago, IL | Fellowship | $35,000 |
| Brown University Providence, RI | Medical Research | $22,411 |
| iXCells Biotechnologies San Diego, CA | Medical Research | $16,830 |
| Jackson Laboratories Bar Harbor, ME | Medical Research | $11,509 |
| Somalogic Operating Company Boulder, CO | Medical Research | $11,225 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Lynn Egan | Director | 1 | — |
| Kathy Sharo | Director | 1 | — |
| Mollie Erpenbeck | Director | 1 | — |
| Sharon Ciccodicola | Director | 1 | — |
| Bill Gerber | Director | 1 | — |
| Adalberto Duarte | Director | 1 | — |
| Vicky Platt | President | 4 | — |
| Gene Andrasco | Treasurer | 4 | — |
| Heather Gates | Vice-President of Education & Family Support | 4 | — |
| Cate Cohen | Secretary | 4 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Alternating Hemiplegia of Childhood Foundation Inc?
Alternating Hemiplegia of Childhood Foundation Inc is a nonprofit organization focused on Medical Research, based in SOUTHFIELD, MI. It holds $1.7M in total assets as of 2025.
How large is Alternating Hemiplegia of Childhood Foundation Inc?
As of 2025, Alternating Hemiplegia of Childhood Foundation Inc holds $1.7M in total assets with $283K in annual revenue. It awarded 5 grants totaling $97K in 2025.
Where does Alternating Hemiplegia of Childhood Foundation Inc operate?
Alternating Hemiplegia of Childhood Foundation Inc has awarded grants in California, Colorado, Illinois, Massachusetts, Maine, Rhode Island.
What size grants does Alternating Hemiplegia of Childhood Foundation Inc award?
In 2025, Alternating Hemiplegia of Childhood Foundation Inc awarded 5 grants totaling $97K — an average of about $19K per grant, based on its IRS Form 990 filings.
What is Alternating Hemiplegia of Childhood Foundation Inc's EIN?
Alternating Hemiplegia of Childhood Foundation Inc's EIN (Employer Identification Number) is 38-3225425. IRS Form 990 filing data is available on this page for 2021–2025.
Explore Open Grants
Browse active grant opportunities in Alternating Hemiplegia of Childhood Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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