THE DESMOID TUMOR RESEARCH FOUNDATION (DTRF) EMPOWERS AND UNITES EVERYONE COMMITTED TO FINDING ANSWERS FOR THE DESMOID TUMOR COMMUNITY.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.3M
+23.4% YoY
Revenue
$793K
+137.6% YoY
Net Investment Income
$45K
-26.8% YoY
Expenses
$591K
-16.5% YoY
About The Desmoid Tumor Research Foundation
Based on IRS filings
The Desmoid Tumor Research Foundation is a nonprofit organization focused on Medical Research, based in WOODCLIFF LAKE, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.3M in total assets. Net investment income was $45K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,277,054 | $1,034,489 | $1,439,427 |
| Revenue | $792,998 | $333,727 | $993,749 |
| Expenses | $590,934 | $707,649 | $712,927 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $44,683 | $61,045 | $4,908 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
4 grants across all recorded years
Open Grants
1 open opportunity from The Desmoid Tumor Research Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for 2024.
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| BARARA ANN SELLINGER | DIRECTOR | 2 | — |
| STEVE WHITING | DIRECTOR | 2 | — |
| NICOLE DEICHERT | DIRECTOR | 2 | — |
| MARIA CROCITTO | DIRECTOR | 2 | — |
| JERROLD MARCH | DIRECTOR | 2 | — |
| RACHEL SITTA | DIRECTOR | 2 | — |
| MARLENE PORTNOY | CHAIR | 2 | — |
| JEANNE WHITING | PRESIDENT/FORMER EXECUTIVE DIRECT | 20 | $6,875 |
| TOM ALLEN | DIRECTOR | 2 | — |
| DJ CONNER | TREASURER | 4 | — |
| YATING WONG | DIRECTOR | 2 | — |
| LYNNE HERNANDEZ | EXECUTIVE DIRECTOR | 40 | $95,000 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Desmoid Tumor Research Foundation?
The Desmoid Tumor Research Foundation is a nonprofit organization focused on Medical Research, based in WOODCLIFF LAKE, NJ. It holds $1.3M in total assets as of 2024.
How large is The Desmoid Tumor Research Foundation?
As of 2024, The Desmoid Tumor Research Foundation holds $1.3M in total assets with $793K in annual revenue.
Where does The Desmoid Tumor Research Foundation operate?
The Desmoid Tumor Research Foundation has awarded grants in California, Massachusetts, Pennsylvania.
What is The Desmoid Tumor Research Foundation's EIN?
The Desmoid Tumor Research Foundation's EIN (Employer Identification Number) is 61-1493017. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in The Desmoid Tumor Research Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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