THE DESMOID TUMOR RESEARCH FOUNDATION (DTRF) EMPOWERS AND UNITES EVERYONE COMMITTED TO FINDING ANSWERS FOR THE DESMOID TUMOR COMMUNITY.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.3M
+23.4% YoY
Revenue
$793K
+137.6% YoY
Net Investment Income
$45K
-26.8% YoY
Expenses
$591K
-16.5% YoY
About The Desmoid Tumor Research Foundation
Based on IRS filings
The Desmoid Tumor Research Foundation is a nonprofit organization focused on Medical Research, based in WOODCLIFF LAKE, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.3M in total assets. Net investment income was $45K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,277,054 | $1,034,489 | $1,439,427 |
| Revenue | $792,998 | $333,727 | $993,749 |
| Expenses | $590,934 | $707,649 | $712,927 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $44,683 | $61,045 | $4,908 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
4 grants across all recorded years
Open Grants
1 open opportunity from The Desmoid Tumor Research Foundation
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| BARARA ANN SELLINGER | DIRECTOR | 2 | — |
| STEVE WHITING | DIRECTOR | 2 | — |
| NICOLE DEICHERT | DIRECTOR | 2 | — |
| MARIA CROCITTO | DIRECTOR | 2 | — |
| JERROLD MARCH | DIRECTOR | 2 | — |
| RACHEL SITTA | DIRECTOR | 2 | — |
| MARLENE PORTNOY | CHAIR | 2 | — |
| JEANNE WHITING | PRESIDENT/FORMER EXECUTIVE DIRECT | 20 | $6,875 |
| TOM ALLEN | DIRECTOR | 2 | — |
| DJ CONNER | TREASURER | 4 | — |
| YATING WONG | DIRECTOR | 2 | — |
| LYNNE HERNANDEZ | EXECUTIVE DIRECTOR | 40 | $95,000 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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