C & S Patient Education Foundation
THE ORGANIZATION IS DEDICATED TO IMPROVING THE EXPERIENCES AND OUTCOMES OF CHIARI AND SYRINGOMELIA PATIENTS BY: 1.PROVIDING ACCURATE, UP-TO-DATE, AND EASY TO UNDERSTAND INFORMATION TO PATIENTS SO THAT THEY CAN TAKE CONTROL OF THEIR HEALTH CARE AND MAKE INTELLIGENT,INFORMED DECISIONS. 2. RAISING AWARENESS AMONG FAMILY, FRIENDS, AND THE GENERAL PUBLIC SO THAT THEY CAN BETTER UNDERSTAND WHAT PATIENTS ARE GOING THROUGH AND ARE BETTER ABLE TO PROVIDE SUPPORT. 3.RAISING AWARENESS AMONG, AND PROVIDING ACCRUATE, UP-TO-DATE INFORMATION TO THE MEDICAL COMMUNITY, SO THAT ERRORS IN DIAGNOSIS AND TREATMENT ARE REDUCED. 4.SPONSORING RESEARCH TO ADVANCE THE UNDERSTANDING OF THESE CONDITIONS AND IN THE END CONQUER CHIARI.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$625K
+15.5% YoY
Annual Giving
$54K
-42.2% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$27K
-13.3% YoY
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $625,418 | $541,359 | $535,451 |
| Revenue | $426,917 | $399,573 | $421,843 |
| Expenses | $328,277 | $390,198 | $555,960 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $19,609 | $8,328 | $1,386 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
13 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does C & S Patient Education Foundation fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| RICHARD LABUDA | EXECUTIVE DIRECTOR, SECRET | 40 | $100,000 |
| RICHARD KUSHNER | PRESIDENT, BOARD MEMBER | 1 | — |
| DAVID LEE | VICE PRESIDENT, BOARD MEMB | 1 | — |
| MARK TOMCZAK | TREASURER, BOARD MEMBER | 1 | — |
| BLAISE NWOTCHOUANG | BOARD MEMBER | 1 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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