THE ORGANIZATION IS DEDICATED TO IMPROVING THE EXPERIENCES AND OUTCOMES OF CHIARI AND SYRINGOMELIA PATIENTS BY: 1.PROVIDING ACCURATE, UP-TO-DATE, AND EASY TO UNDERSTAND INFORMATION TO PATIENTS SO THAT THEY CAN TAKE CONTROL OF THEIR HEALTH CARE AND MAKE INTELLIGENT,INFORMED DECISIONS. 2. RAISING AWARENESS AMONG FAMILY, FRIENDS, AND THE GENERAL PUBLIC SO THAT THEY CAN BETTER UNDERSTAND WHAT PATIENTS ARE GOING THROUGH AND ARE BETTER ABLE TO PROVIDE SUPPORT. 3.RAISING AWARENESS AMONG, AND PROVIDING ACCRUATE, UP-TO-DATE INFORMATION TO THE MEDICAL COMMUNITY, SO THAT ERRORS IN DIAGNOSIS AND TREATMENT ARE REDUCED. 4.SPONSORING RESEARCH TO ADVANCE THE UNDERSTANDING OF THESE CONDITIONS AND IN THE END CONQUER CHIARI.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$625K
+15.5% YoY
Annual Giving
$54K
-42.2% YoY
Grant Count
2
-33.3% YoY
Avg Grant Size
$27K
-13.3% YoY
About C & S Patient Education Foundation
Based on IRS filings
C & S Patient Education Foundation is a nonprofit organization focused on Health, based in WEXFORD, PA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $625K in total assets. In 2024, it awarded 2 grants totaling $54K. Net investment income was $20K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $625,418 | $541,359 | $535,451 |
| Revenue | $426,917 | $399,573 | $421,843 |
| Expenses | $328,277 | $390,198 | $555,960 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $19,609 | $8,328 | $1,386 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2024
Grant Size Distribution
13 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include University of Pittsburgh ($30,000), University of Akron ($24,201).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF AKRON AKRON, OH | ONGOING BUDGET FOR CONQUER CHIARI RESEARCH CENTER, ESTABLISH "CHIARI 1000", TARGETING SYRINX | $24,201 |
| UNIVERSITY OF PITTSBURGH PITTSBURGH, PA | BIOMARKERS OF CHIARI MALFORMATION | $30,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| RICHARD LABUDA | EXECUTIVE DIRECTOR, SECRET | 40 | $100,000 |
| RICHARD KUSHNER | PRESIDENT, BOARD MEMBER | 1 | — |
| DAVID LEE | VICE PRESIDENT, BOARD MEMB | 1 | — |
| MARK TOMCZAK | TREASURER, BOARD MEMBER | 1 | — |
| BLAISE NWOTCHOUANG | BOARD MEMBER | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is C & S Patient Education Foundation?
C & S Patient Education Foundation is a nonprofit organization focused on Health, based in WEXFORD, PA. It holds $625K in total assets as of 2024.
How large is C & S Patient Education Foundation?
As of 2024, C & S Patient Education Foundation holds $625K in total assets with $427K in annual revenue. It awarded 2 grants totaling $54K in 2024.
Where does C & S Patient Education Foundation operate?
C & S Patient Education Foundation has awarded grants in Massachusetts, Ohio, Pennsylvania, Wisconsin.
What size grants does C & S Patient Education Foundation award?
In 2024, C & S Patient Education Foundation awarded 2 grants totaling $54K — an average of about $27K per grant, based on its IRS Form 990 filings.
What is C & S Patient Education Foundation's EIN?
C & S Patient Education Foundation's EIN (Employer Identification Number) is 20-0904691. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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