Autism Speaks Inc logo

Autism Speaks Inc

Public charity · Grantmaker Washington, DC EIN: 20-2329938 Website

Autism Speaks Inc. is a public charity based in Washington, DC. It supports research, services, advocacy and other work intended to improve quality of life for autistic people and their families throughout the lifespan.

Autism Speaks Inc at a glance

In short: Autism Speaks Inc gave $961K across 21 grants in 2025 (avg $46K), top state California. 10% of 2025 grantees were new. Source: 2025 IRS Form 990.

Annual giving (2025)
$961,459
-71.0% vs 2024
Grants made (2025)
21
-32.3% vs 2024
Average grant
$45,784
-57.2% vs 2024
Median grant
$30,000
Total assets
$29,672,783
-16.0% vs 2024
New grantees (estimate)
10% first-time grantees (2 of 21, 2025; small sample)
Primary geography
California (31% of itemized 2025 grant dollars)
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).

How to apply to Autism Speaks Inc

Contact

Mailing address: 50 F Street Nw 360, Washington, DC 20001
Phone: (646) 385-8500
Website: https://autismspeaks.org

Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.

Who Autism Speaks Inc funds

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2025

The Board of Trustees of the Leland Stanford Junior University: $238KThe Board of Trustees of theLeland Stanford Junior…$238KRutgers the State University of NJ: $100KRutgers the State Universityof NJ$100KThe Research Institute at Nationwide Children's Hospital: $92KThe Research Institute atNationwide Children's Hospital$92KSouthwest Autism Research & Resource Center: $63KSouthwest Autism Research &Resource Center$63KThe Children's Hospital of Philadelphia: $58KThe Children's Hospital ofPhiladelphia$58KUniversity of Nebraska Board of Regents: $48KUniversity of Nebraska Boardof Regents$48KThe Scripps Research: $37KThe Scripps Research$37KCincinnati Children's Hospital Medical Center: $36KCincinnati Children's HospitalMedical Center$36KSeattle Children's Hospital: $35KSeattle Children's Hospital$35KPrisma Health-Upstate: $30KPrisma Health-Upstate$30K

The largest 2025 recipient was The Board of Trustees of the Leland Stanford Junior University ($238K). Together the top 10 received $736K.

Grant Size Distribution

155 grants across all recorded years

65<$50K32$50–100K48$100–250K10$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 65 grants of 155 (42%).

Geographic Focus

Where this funder awards grants

The 2025 grant dollars were distributed across recipient states, led by California (31%), Ohio (16%), New Jersey (10%), New York (8%) and Arizona (7%). The organization’s research grant search describes science awards as available worldwide and services and support awards as available in the United States and Canada.

Grant Distribution by State

22states

Share of 2025 grant dollars across all 21 itemized grants.

Cities

ColumbusAtlantaBostonLos AngelesCincinnatiColumbiaPhoenixIrvinePhiladelphiaRochesterClevelandGreenvilleOmahaPittsburghCharlottesvilleHoustonMadisonNashvilleNew YorkAlbany

Is Autism Speaks Inc open to new grantees?

10%

first-time grantees, 2025

In 2025, 2 of 21 grantees (10%) were first-time recipients. With only 21 grantees, that is a small sample: one grantee more or less moves the share by about 5 points. First grants averaged $31K; repeat grants $47K. How we count

Medians: $31K first-time, $30K repeat.

  • 76% of 2025 grantees were also funded in 2024. Method
  • Giving fell 69% from 2022 to 2025. Method

Estimate from itemized grant lists in IRS Form 990 filings (2020–2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$2M$4M$6M20 grants2020 31 grants2021 36 grants2022 36 grants2023 31 grants2024 21 grants2025

From 2020 to 2025, annual grant giving ranged from $961K (2025) to $4.7M (2023). In 2025 it made 21 grants totaling $961K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
The Board of Trustees of the Leland Stanford Junior University Redfwood City, CAScience Grant$238,365
Rutgers the State University of NJ Piscataway, NJScience Grant$99,999
The Research Institute at Nationwide Children's Hospital Columbus, OHScience Grant$91,716
Southwest Autism Research & Resource Center Phoenix, AZScience Grant$62,846
The Children's Hospital of Philadelphia Philadelphia, PAScience Grant$57,517
University of Nebraska Board of Regents Omaha, NEScience Grant$47,673
The Scripps Research La Jolla, CAScience Grant$37,000
Cincinnati Children's Hospital Medical Center Cincinnati, OHScience Grant$35,708
Seattle Children's Hospital Seattle, WAScience Grant$34,700
Prisma Health-Upstate Greenville, SCScience Grant$30,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$29,672,783$28,799,237$34,172,414$961,45921$900,106
2024$35,344,611$34,985,535$40,745,638$3,314,01331$1,304,005
2023$41,380,468$36,262,685$42,911,083$4,725,10436$636,469
2022$47,834,408$46,771,653$44,122,642$3,100,59036$5,958
2021$48,207,079$42,083,296$41,166,504$2,270,50431$26,981
2020$46,226,879$53,701,450$48,144,682$2,696,64220$398,856

Research compiled by Grantable AI from public sources. Last updated September 2026.

Mission & Focus Areas

Autism Speaks’ mission is to create an inclusive world for all individuals with autism throughout their lifespan. Its stated priorities include access to reliable information and services; research and innovation to improve quality of life; advocacy and collaboration with service providers; solutions for adult quality-of-life needs, including transition, employment, housing, health and wellness; and diversity, equity, access and inclusion.

Its research priorities for 2024–2026 include understanding aging and autism, improving wellbeing for autistic people and families facing severe or challenging behaviors and special health care needs, and advancing service delivery across the lifespan. The organization says it emphasizes implementation science and collaboration with the autistic community in research.

The grants listed in the 2025 filing include science grants and a services and supports grant. Grantee organizations describe a range of missions: the University of Rochester says it provides higher education, research and charitable patient care; Prisma Health-Upstate says its mission is to inspire health and serve with compassion; Children’s Healthcare of Atlanta says it aims to make children better today and healthier tomorrow; and Baylor College of Medicine says it advances human health through patient care, research, education and community services.

Grantmaking

In filing year 2025, Autism Speaks reported 21 grants totaling $961,459. Grant amounts ranged from $5,708 to $238,365, with a median of $30,000. The largest awards included $238,365 to the Board of Trustees of the Leland Stanford Junior University for a science grant, $99,999 to Rutgers University for a science grant, and $91,716 to the Research Institute at Nationwide Children’s Hospital for a science grant. Other listed awards included $62,846 to Southwest Autism Research & Resource Center for a science grant, $57,517 to the Children’s Hospital of Philadelphia for a science grant, and $30,000 to Tarrant County College District for a services and supports grant.

The organization’s website describes a predoctoral fellowship for autistic scientists, with a 2026–2027 solicitation offering $40,000 per year for two years. The published cycle called for a letter of intent, recommendations and a full application; its stated deadlines of August 4, September 8 and September 23, 2026 have passed. For science grants, the organization’s filing says grantees must submit a fully executed agreement, ethics approval and a research timeline before the first payment, and financial and progress reports during the award. Services and supports grantees must submit a fully executed agreement and program timeline, followed by financial and narrative reports at the end of the grant term.

The Local Impact Grant program has supported community programs offering social and educational experiences. Program information describes awards of up to $5,000 for nonprofit 501(c)(3) organizations and an emphasis on deliverables that benefit the broader autism community. The program information also says the community grants program was being reimagined, with an updated program expected to be shared in 2025.

Leadership & Key People

Leadership team and compensation from IRS filings

The 2025 filing lists Brian L. Harper as chair; Adrian M. Jones, Jamie T. Richardson and Jacquelyn Nance as vice chairmen; and Curtis Arledge as secretary/treasurer. Directors listed include Judy Benardete, Tom Bernard, Scott R. Carpenter, Jennifer Caserta and Laurie Chern.

Autism Speaks Inc is led by Keith Wargo, President & CEO on every filing since 2022; 11 of 39 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Keith Wargo

    President & CEO

    On filings since 2022

    40 hrs/week

    $109K (2022) → $415K (2025)

  • Brian L. Harper

    Chair

    Director → Chair, 2021

    On filings since 2020

    1 hr/week

    No compensation reported

  • David Sitcovsky

    Senior Director Policy & Govt Affairs

    New on the 2025 filing

    40 hrs/week

    $187K (2025)

  • Dean Hartley

    Senior Director Genetic Disc. & Trans. Sci.

    New on the 2025 filing

    40 hrs/week

    $198K (2025)

  • Adam Frazier

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Aidan Kehoe

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Barry R. Feirstein

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Cheryl Vitali

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Herbert Pardes

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Jennifer Caserta

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Kevin J. Murray

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Matthew Higgins

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Scott R. Carpenter

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Stephen Shore

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Steven P. Stanbrook

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Stuart Savitz

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Tim Jones

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Tom Bernard

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Darren Goode

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Jennifer Seidel

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Subriana Pierce

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • William O'Connor

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Tom Frazier

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Judy Benardete

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Laurie Chern

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Robert Schwenkel

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • William Giles

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Andy Shih

    Chief Science Officer

    Senior Vice President Public Health & Inclusion → Chief Science Officer, 2022

    On filings since 2020

    40 hrs/week

    $246K (2020) → $309K (2025)

  • Jennifer S. Podoll

    Senior Vice President & Const. Engagement

    Senior Vice President & Constituent Engagement → Senior Vice President & Const. Engagement, 2025

    On filings since 2020

    40 hrs/week

    $204K (2020) → $163K (2025)

  • Lynn S. Happel

    Senior Vice President, It & Data Support

    On filings since 2020

    40 hrs/week

    $211K (2020) → $227K (2025)

  • Joseph Vanyo

    Chief Operating Officer

    COO → Chief Operating Officer, 2022

    On filings since 2021

    40 hrs/week

    $255K (2021) → $347K (2025)

  • Kelli Seely

    Chief Marketing Officer

    On filings since 2023

    40 hrs/week

    $208K (2023) → $320K (2025)

  • Jacqlyn Nedvin

    Vice President, People & Culture

    On filings since 2024

    40 hrs/week

    $225K (2024) → $219K (2025)

  • Ryan Silver

    Vice President, Finance & Facilities

    On filings since 2024

    40 hrs/week

    $200K (2024) → $200K (2025)

  • Bryan Klopack

    Chief Growth Officer

    New on the 2025 filing

    40 hrs/week

    $265K (2025)

  • Adrian M. Jones

    Vice Chairman

    Director → Vice Chairman, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Curtis Arledge

    Secretary & Treasurer

    Director → Secretary & Treasurer, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Jacquelyn Nance

    Vice Chairman

    Director → Vice Chairman, 2024

    On filings since 2020

    1 hr/week

    No compensation reported

  • Jamie T. Richardson

    Vice Chairman

    Director → Vice Chairman, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

Former officers (21)
  • Former: Stuart Spielman (2020–2024) — Senior Vice President & Advocacy
  • Former: Claudine Larocque (2023–2024) — Vice President, Individual & Foundation Relations
  • Former: Angela Geiger (2020–2023) — Former CEO & President
  • Former: Donna S. Murray (2020–2023) — Vice President & Head Cl. Prgm
  • Former: Melanie Akins (2020–2023) — Vice President & Corp. Initiatives
  • Former: Bob Schwenkel (2023) — Director
  • Former: Billy Mann (2020–2022) — Director
  • Former: Chuck Saftler (2020–2022) — Director
  • Former: Dan Schulman (2020–2022) — Director
  • Former: Joseph T. Coyle MD (2020–2022) — Director
  • Former: Lisa Gerbasi (2020–2022) — Strategic Initiatives & Innova
  • Former: Lisa Yang (2020–2022) — Director
  • Former: Dan Tarman (2020–2021) — Director
  • Former: Anne Marie Forbes (2020) — Chief Field Ofr
  • Former: Brian Kelly (2020) — Chair
  • Former: Dee Ocleppo Hilfiger (2020) — Director
  • Former: Henson Orser (2020) — Director
  • Former: Jane Hadley (2020) — Vice President & Controller
  • Former: Karen Robinson (2020) — CFO
  • Former: Thomas Frazier (2020) — Chief Science Officer
  • Former: Tommy Hilfiger (2020) — Director

Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Keith Wargo — President/CEO: $415KKeith WargoPresident/CEO$415KJoseph Vanyo — Chief Operating Officer: $347KJoseph VanyoChief Operating Officer$347KKelli Seely — Chief Marketing Officer: $320KKelli SeelyChief Marketing Officer$320KAndy Shih — Chief Science Officer: $309KAndy ShihChief Science Officer$309KBryan Klopack — Chief Growth Officer: $265KBryan KlopackChief Growth Officer$265KLynn S Happel — SVP, It & Data Support: $227KLynn S HappelSVP, It & Data Support$227KJacqlyn Nedvin — VP, People and Culture: $219KJacqlyn NedvinVP, People and Culture$219KRyan Silver — VP, Finance and Facilities: $200KRyan SilverVP, Finance and Facilities$200KDean Hartley — Sr. DIR. Genetic Disc. & Trans. SCI.: $198KDean HartleySr. DIR. Genetic Disc. & Trans.…$198KDavid Sitcovsky — Sr. DIR. Policy & Govt Affairs: $187KDavid SitcovskySr. DIR. Policy & Govt Affairs$187KJennifer S Podoll — SVP, Const. Engagement (Thru 05/2024): $163KJennifer S PodollSVP, Const. Engagement (Thru…$163K

The highest reported compensation on the 2025 filing was $415K, to Keith Wargo (President/CEO). 11 officers or directors reported compensation on that filing.

Frequently asked questions about Autism Speaks Inc

How much does Autism Speaks Inc give each year?

Autism Speaks Inc gave $961K across 21 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $3.3M across 31 grants.

What is Autism Speaks Inc's typical grant size?

Autism Speaks Inc's median grant in 2025 was $30,000, and its average grant was $45,784, across 21 grants on its 2025 IRS Form 990. Organizations receiving their first grant from Autism Speaks Inc that year got $31K on average.

Where does Autism Speaks Inc give grants?

Autism Speaks Inc's top state is California, with 31% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Ohio (16%) and New Jersey (10%).

Does Autism Speaks Inc give general operating support?

Not in 2025: none of the 21 grants with a stated purpose on Autism Speaks Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Science Grant" (20 grants).

Who are Autism Speaks Inc's largest grantees?

Autism Speaks Inc's largest 2025 grantees include The Board of Trustees of the Leland Stanford Junior University ($238,365), Rutgers the State University of NJ ($99,999) and The Research Institute at Nationwide Children's Hospital ($91,716), according to its 2025 IRS Form 990. Together they received 45% of its itemized 2025 grant dollars.

How large is Autism Speaks Inc?

Autism Speaks Inc reported $29.7M in total assets on its 2025 IRS Form 990. Its revenue that year was $28.8M.

What does Autism Speaks Inc fund?

Autism Speaks’ mission is to create an inclusive world for all individuals with autism throughout their lifespan. See mission & focus areas ↑

How do I apply for a grant from Autism Speaks Inc?

Autism Speaks Inc has no public application process in the sources Grantable reviewed. Check autismspeaks.org for current guidelines, or contact the foundation directly before submitting a request.

What is Autism Speaks Inc's EIN?

Autism Speaks Inc's EIN (Employer Identification Number) is 20-2329938. IRS Form 990 filing data is available on this page for 2020–2025.

Data last updated October 2026. Sourced from IRS Form 990 filings. Research dossier generated September 2026.

Data update history

(7)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2023 (received by the IRS January 24, 2024)
  2. Updated Form 990 for fiscal year 2024 (received by the IRS February 5, 2025)
  3. Updated Form 990 for fiscal year 2025 (received by the IRS February 5, 2026)
  4. Updated Form 990 for fiscal year 2020 (received by the IRS March 26, 2021)
  5. Updated Form 990 for fiscal year 2021 (received by the IRS December 16, 2021)
  6. Updated Form 990 for fiscal year 2022 (received by the IRS January 5, 2023)
  7. IRS filings on file for fiscal years 2020–2025

Live grants for the work Autism Speaks Inc funds

Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.

Explore Open Grants

Browse active grant opportunities in Autism Speaks Inc's focus areas in our free grants database

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Cite this profile

Grantable. (2026). Autism Speaks Inc funder profile. GrantGraph. Retrieved October 17, 2026, from https://grantable.co/funders/autism-speaks-inc-morg_c32a0c364c324361bb93331654a8074d

BibTeX
@misc{grantable_202329938_2026,
  author       = {{Grantable}},
  title        = {{Autism Speaks Inc funder profile}},
  howpublished = {GrantGraph},
  year         = {2026},
  url          = {https://grantable.co/funders/autism-speaks-inc-morg_c32a0c364c324361bb93331654a8074d},
  note         = {Accessed 2026-10-17. Data licensed CC BY 4.0}
}

The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.

Figures come from Autism Speaks Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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