Ataxia Telangiectasia Children's Project Inc logo

Ataxia Telangiectasia Children's Project Inc

Public charity · Grantmaker Coconut Creek, FL EIN: 65-0427215 Website

Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease, and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms, and biomarker development - to optimize disease management strategies, develop new treatments, and find a cure.

Key facts about Ataxia Telangiectasia Children's Project Inc

In short: Ataxia Telangiectasia Children's Project Inc gave $805K across 5 grants in 2025 (avg $161K), mostly in North Carolina. Source: 2025 IRS Form 990.

EIN
65-0427215
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$805,169
Grants made (2025)
5
Average grant
$161,034
Median grant
$18,000
Total assets
$3,075,666
Primary geography
North Carolina (75% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$3.1M

+9.7% YoY

Annual Giving

$805K

+86.9% YoY

Grant Count

5

+0.0% YoY

Avg Grant Size

$161K

+86.9% YoY

How Ataxia Telangiectasia Children's Project Inc gives

  • Giving fell 29% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

About Ataxia Telangiectasia Children's Project Inc

Based on IRS filings

Ataxia Telangiectasia Children's Project Inc is a public charity focused on Science & Technology, based in Coconut Creek, FL. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $3.1M in total assets. In 2025, it awarded 5 grants totaling $805K. Net investment income was $30K.

Open Grants

2 open opportunities from Ataxia Telangiectasia Children's Project Inc

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

6states

Share of 2025 grant dollars across all 5 itemized grants.

Cities

BaltimoreBostonPhiladelphiaCambridgeSanta ClaraBillericaWilmingtonBethesdaDurhamMenlo ParkNew York

Giving Over Time

Total grant dollars and number of grants per year

$0$500K$1M$1.5M5 grants2021 6 grants2022 6 grants2023 5 grants2024 5 grants2025

From 2021 to 2025, annual grant giving ranged from $431K (2024) to $1.1M (2022). In 2025 it made 5 grants totaling $805K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 5 recipients in 2025

Duke Cancer Institute: $600KDuke Cancer Institute$600KThe Johns Hopkins Hospital: $164KThe Johns Hopkins Hospital$164KChildren's Hospital of Philadelphia: $18KChildren's Hospital ofPhiladelphia$18KUniversity of Pennsylvania: $14KUniversity of Pennsylvania$14KQuanterix: $10KQuanterix$10K

The largest 2025 recipient was Duke Cancer Institute ($600K). Together the top 5 received $805K.

Grant Size Distribution

27 grants across all recorded years

10<$50K3$50–100K10$100–250K3$250–500K1$500K–1M$1–5M$5M+

The most common grant size was under $50K: 10 grants of 27 (37%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Duke Cancer Institute Durham, NCMedical Research$600,000
The Johns Hopkins Hospital Baltimore, MDMedical Research$163,717
Children's Hospital of Philadelphia Philadelphia, PAMedical Research$18,000
University of Pennsylvania Philadelphia, PAMedical Research$13,550
Quanterix Billerica, MAMedical Research$9,902

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$1M$2M$3M2021 2022 2023 2024 2025
Metric202520242023
Total Assets$3,075,666$2,802,981$2,125,334
Revenue$1,808,873$2,502,362$1,567,615
Expenses$2,217,433$1,895,973$1,481,299
Net Investment Income$29,615$9,223$4,346

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2021 (received by the IRS April 12, 2022)
  2. Updated Form 990 for fiscal year 2022 (received by the IRS January 18, 2023)
  3. Updated Form 990 for fiscal year 2023 (received by the IRS March 1, 2024)
  4. Updated Form 990 for fiscal year 2024 (received by the IRS April 15, 2025)
  5. Updated Form 990 for fiscal year 2025 (received by the IRS March 26, 2026)
  6. IRS filings on file for fiscal years 2021–2025

Leadership & Key People

Officers and directors from IRS filings

Ataxia Telangiectasia Children's Project Inc is led by Jennifer Thornton, Executive Director & Director on every filing since 2021; 1 of 10 officers listed in 2025 is compensated.

Officers on the 2025 filing

  • Jennifer Thornton

    Executive Director & Director

    On filings since 2021

    50 hrs/week

    $156K (2021) → $221K (2025)

  • Bradley A Margus

    President

    On filings since 2021

    20 hrs/week

    No compensation reported

  • David Veldink

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Douglas Weckstein

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Elizabeth Hughes

    Director

    On filings since 2021

    2 hrs/week

    No compensation reported

  • John Feeley

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Robert Middlebrook

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Amy Madison

    Vice President

    On filings since 2021

    1 hr/week

    No compensation reported

  • Gregory Jehlik

    Secretary

    On filings since 2021

    1 hr/week

    No compensation reported

  • Timothy Rahall

    Treasurer

    On filings since 2021

    3 hrs/week

    No compensation reported

Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Jennifer Thornton — Executive Director/Director: $221KJennifer ThorntonExecutive Director/Director$221K

The highest reported compensation on the 2025 filing was $221K, to Jennifer Thornton (Executive Director/Director).

Frequently asked questions about Ataxia Telangiectasia Children's Project Inc

How much does Ataxia Telangiectasia Children's Project Inc give each year?

Ataxia Telangiectasia Children's Project Inc gave $805K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $431K across 5 grants.

What is Ataxia Telangiectasia Children's Project Inc's typical grant size?

Ataxia Telangiectasia Children's Project Inc's median grant in 2025 was $18,000, and its average grant was $161,034, across 5 grants on its 2025 IRS Form 990.

Where does Ataxia Telangiectasia Children's Project Inc give grants?

Ataxia Telangiectasia Children's Project Inc gives mostly in North Carolina: 75% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest state was Maryland (20%). The most frequent recipient cities were Philadelphia, PA (2 grants).

Does Ataxia Telangiectasia Children's Project Inc give general operating support?

Not in 2025: none of the 5 grants with a stated purpose on Ataxia Telangiectasia Children's Project Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Medical Research" (5 grants).

Who are Ataxia Telangiectasia Children's Project Inc's largest grantees?

Ataxia Telangiectasia Children's Project Inc's largest 2025 grantees include Duke Cancer Institute ($600,000), The Johns Hopkins Hospital ($163,717) and Children's Hospital of Philadelphia ($18,000), according to its 2025 IRS Form 990. Together they received 97% of its itemized 2025 grant dollars.

How large is Ataxia Telangiectasia Children's Project Inc?

Ataxia Telangiectasia Children's Project Inc reported $3.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.8M.

What is Ataxia Telangiectasia Children's Project Inc?

Ataxia Telangiectasia Children's Project Inc is a public charity focused on Science & Technology, based in Coconut Creek, FL. It holds $3.1M in total assets as of 2025.

What is Ataxia Telangiectasia Children's Project Inc's EIN?

Ataxia Telangiectasia Children's Project Inc's EIN (Employer Identification Number) is 65-0427215. IRS Form 990 filing data is available on this page for 2021–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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