Ataxia Telangiectasia Children's Project Inc
Ataxia-telangiectasia (A-T) is a genetic disease that causes loss of muscle control and balance, cancer, lung disease, and immune system problems in children and young adults, shortening their lives. The nonprofit A-T Children's Project partners with academic and industry investigators worldwide - organizing and supporting innovative research, conferences, clinical team, data platforms, and biomarker development - to optimize disease management strategies, develop new treatments, and find a cure.
Ataxia Telangiectasia Children's Project Inc at a glance
In short: Ataxia Telangiectasia Children's Project Inc gave $805K across 5 grants in 2025 (avg $161K), mostly in North Carolina. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $805,169
- +86.9% vs 2024
- Grants made (2025)
- 5
- +0.0% vs 2024
- Average grant
- $161,034
- +86.9% vs 2024
- Median grant
- $18,000
- Total assets
- $3,075,666
- +9.7% vs 2024
- Primary geography
- North Carolina (75% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Ataxia Telangiectasia Children's Project Inc
Open Grants
2 open opportunities from Ataxia Telangiectasia Children's Project Inc
Who Ataxia Telangiectasia Children's Project Inc funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2025
The largest 2025 recipient was Duke Cancer Institute ($600K). Together the top 5 received $805K.
Grant Size Distribution
27 grants across all recorded years
The most common grant size was under $50K: 10 grants of 27 (37%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 5 itemized grants.
Cities
How Ataxia Telangiectasia Children's Project Inc gives
- Giving fell 29% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $431K (2024) to $1.1M (2022). In 2025 it made 5 grants totaling $805K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Duke Cancer Institute Durham, NC | Medical Research | $600,000 |
| The Johns Hopkins Hospital Baltimore, MD | Medical Research | $163,717 |
| Children's Hospital of Philadelphia Philadelphia, PA | Medical Research | $18,000 |
| University of Pennsylvania Philadelphia, PA | Medical Research | $13,550 |
| Quanterix Billerica, MA | Medical Research | $9,902 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $3,075,666 | $1,808,873 | $2,217,433 | $805,169 | 5 | $29,615 |
| 2024 | $2,802,981 | $2,502,362 | $1,895,973 | $430,868 | 5 | $9,223 |
| 2023 | $2,125,334 | $1,567,615 | $1,481,299 | $521,861 | 6 | $4,346 |
| 2022 | $2,011,038 | $1,739,187 | $1,713,346 | $1,141,865 | 6 | $2,462 |
| 2021 | $1,453,834 | $1,461,138 | $1,326,098 | $688,123 | 5 | $1,914 |
About Ataxia Telangiectasia Children's Project Inc
Based on IRS filings
Ataxia Telangiectasia Children's Project Inc is a public charity focused on Science & Technology, based in Coconut Creek, FL. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $3.1M in total assets. In 2025, it awarded 5 grants totaling $805K. Net investment income was $30K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Ataxia Telangiectasia Children's Project Inc is led by Jennifer Thornton, Executive Director & Director on every filing since 2021; 1 of 10 officers listed in 2025 is compensated.
Officers on the 2025 filing
Jennifer Thornton
Executive Director & Director
On filings since 2021
50 hrs/week
$156K (2021) → $221K (2025)
Bradley A Margus
President
On filings since 2021
20 hrs/week
No compensation reported
David Veldink
Director
On filings since 2021
1 hr/week
No compensation reported
Douglas Weckstein
Director
On filings since 2021
1 hr/week
No compensation reported
Elizabeth Hughes
Director
On filings since 2021
2 hrs/week
No compensation reported
John Feeley
Director
On filings since 2021
1 hr/week
No compensation reported
Robert Middlebrook
Director
On filings since 2021
1 hr/week
No compensation reported
Amy Madison
Vice President
On filings since 2021
1 hr/week
No compensation reported
Gregory Jehlik
Secretary
On filings since 2021
1 hr/week
No compensation reported
Timothy Rahall
Treasurer
On filings since 2021
3 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $221K, to Jennifer Thornton (Executive Director/Director).
Frequently asked questions about Ataxia Telangiectasia Children's Project Inc
How much does Ataxia Telangiectasia Children's Project Inc give each year?
Ataxia Telangiectasia Children's Project Inc gave $805K across 5 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $431K across 5 grants.
What is Ataxia Telangiectasia Children's Project Inc's typical grant size?
Ataxia Telangiectasia Children's Project Inc's median grant in 2025 was $18,000, and its average grant was $161,034, across 5 grants on its 2025 IRS Form 990.
Where does Ataxia Telangiectasia Children's Project Inc give grants?
Ataxia Telangiectasia Children's Project Inc gives mostly in North Carolina: 75% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest state was Maryland (20%). The most frequent recipient cities were Philadelphia, PA (2 grants).
Does Ataxia Telangiectasia Children's Project Inc give general operating support?
Not in 2025: none of the 5 grants with a stated purpose on Ataxia Telangiectasia Children's Project Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "Medical Research" (5 grants).
Who are Ataxia Telangiectasia Children's Project Inc's largest grantees?
Ataxia Telangiectasia Children's Project Inc's largest 2025 grantees include Duke Cancer Institute ($600,000), The Johns Hopkins Hospital ($163,717) and Children's Hospital of Philadelphia ($18,000), according to its 2025 IRS Form 990. Together they received 97% of its itemized 2025 grant dollars.
How large is Ataxia Telangiectasia Children's Project Inc?
Ataxia Telangiectasia Children's Project Inc reported $3.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.8M.
What is Ataxia Telangiectasia Children's Project Inc?
Ataxia Telangiectasia Children's Project Inc is a public charity focused on Science & Technology, based in Coconut Creek, FL. It holds $3.1M in total assets as of 2025.
What is Ataxia Telangiectasia Children's Project Inc's EIN?
Ataxia Telangiectasia Children's Project Inc's EIN (Employer Identification Number) is 65-0427215. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS April 12, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS January 18, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS March 1, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS April 15, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS March 26, 2026)
- IRS filings on file for fiscal years 2021–2025
Live grants for the work Ataxia Telangiectasia Children's Project Inc funds
Science & Technology Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Ataxia Telangiectasia Children's Project Inc's focus areas in our free grants database
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