American Society of Human Genetics logo

American Society of Human Genetics

Public charity · Grantmaker Rockville, MD EIN: 52-1419397 Website
HealthDiseases and conditionsGenetic conditions and birth defects

To advance human genetics and genomics in science, health, and society, through excellence in research, education, and advocacy.

American Society of Human Genetics at a glance

In short: American Society of Human Genetics reported $37K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.

Grants paid (2025)
$37,100 — reported as a total on the IRS filing, without an itemized list
-1.6% vs 2024
Total assets
$26,191,672
+7.7% vs 2024
Revenue (2025)
$10,714,126
-3.8% vs 2024
Net investment income (2025)
$925,450
-41.0% vs 2024
Expenses (2025)
$10,015,198
+4.7% vs 2024
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated September 2026.

How to apply to American Society of Human Genetics

Who American Society of Human Genetics funds

How this funder distributes its grants

Grant Size Distribution

1 grant across all recorded years

1<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 1 grant of 1 (100%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

2states

Cities

BethesdaWashington

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$50K$100K$150K1 grant2019 1 grant2020 1 grant2021 Total only2022 Total only2023 Total only2024 Total only2025

From 2019 to 2025, annual grant giving ranged from $5K (2019) to $127K (2023). In 2025 it reported $37K in grants paid, as a total without an itemized list.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
National Academies of Science Washington, DCSupport for the nasem's roundtable on genomics and precision health$15,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$26,191,672$10,714,126$10,015,198$37,100Total only$925,450
2024$24,313,673$11,141,932$9,564,689$37,700Total only$1,567,262
2023$22,513,818$9,569,295$9,680,357$126,688Total only$1,596,327
2022$21,022,392$6,905,083$7,161,618$44,793Total only$783,589
2021$24,149,284$8,094,459$6,900,174$15,0001$587,038
2020$21,541,292$9,170,667$7,956,827$5,0001$1,186,730
2019$21,246,261$9,572,840$7,608,259$5,0001$2,019,243

"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.

About American Society of Human Genetics

Based on IRS filings

American Society of Human Genetics is a public charity focused on Health, based in Rockville, MD. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $26.2M in total assets. In 2025, it reported $37K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $925K.

Focus Areas

HealthDiseases and conditionsGenetic conditions and birth defects

Leadership & Key People

Officers and directors from IRS filings

American Society of Human Genetics is led by Amanda Perl, CEO on the 2025 filing; 10 of 29 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Amanda Perl

    CEO

    New on the 2025 filing

    37.5 hrs/week

    $388K (2025)

  • Sarah A. Tishkoff

    President

    Director → President, 2025

    On filings since 2019

    2 hrs/week

    No compensation reported

  • Bruce Korf

    Director & Journal Editor

    Journal Editor → Director & Journal Editor, 2024

    On filings since 2019

    20 hrs/week

    $55K (2019) → $66K (2025)

  • Carrie Morin

    Director Membership & Industry

    Director of Meeting → Director Membership & Industry Eng., 2023

    Director Membership & Industry Eng. → Director Membership & Industry, 2024

    On filings since 2020

    37.5 hrs/week

    $104K (2020) → $154K (2025)

  • Sara Gladden

    Director & Scientific Publications

    Director of Scientific Publications → Direcot of Scientific Publications, 2023

    Direcot of Scientific Publications → Director & Scientific Publications, 2024

    On filings since 2021

    37.5 hrs/week

    $115K (2021) → $138K (2025)

  • Chazeman Jackson

    Senior Director of Dei

    On filings since 2022

    37.5 hrs/week

    $154K (2022) → $184K (2025)

  • Megan Mitzelfelt

    Director Advancement & Data Strategy

    On filings since 2023

    37.5 hrs/week

    $106K (2023) → $148K (2025)

  • Katie Belsky

    Senior Director of Strat. Content & Sci. Program

    New on the 2025 filing

    37.5 hrs/week

    $139K (2025)

  • Valentina Nlemadim

    Director of Finance

    New on the 2025 filing

    37.5 hrs/week

    $154K (2025)

  • Chris Gunter

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Ophir Klein

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Wendy Uhlmann

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Yvonne Bombard

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Christine Eng

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Joseph Gleeson

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Krystal Tsosie

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Rebecca Meyer-Schuman

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Scott Williams

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Beth Sullivan

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Chester Brown

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Melinda Aldrich

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Marie Ternieden

    Chief Operating Officer

    On filings since 2024

    37.5 hrs/week

    $159K (2024) → $244K (2025)

  • Kristen Lewis

    Associate Director & Fellowships

    New on the 2025 filing

    37.5 hrs/week

    $108K (2025)

  • Bruce D. Gelb

    Past President

    President-Elect → President, 2024

    President → Past President, 2025

    On filings since 2019

    1 hr/week

    No compensation reported

  • Susan A. Slaugenhaupt

    President-Elect

    Treasurer-Elect → Treasurer, 2023

    Treasurer → President-Elect, 2025

    On filings since 2019

    1 hr/week

    No compensation reported

  • Heather Mefford

    Secretary

    Director → Secretary, 2023

    On filings since 2022

    1 hr/week

    No compensation reported

  • Brendan Lee

    Past President

    President → Past President, 2024

    On filings since 2023

    1 hr/week

    No compensation reported

  • Digna Velez-Edwards

    Treasurer-Elect

    Director → Treasurer-Elect, 2025

    On filings since 2023

    1 hr/week

    No compensation reported

  • Wendy Chung

    Treasurer

    Treasurer-Elect → Treasurer, 2024

    On filings since 2023

    1 hr/week

    No compensation reported

Former officers (44)
  • Former: Mona V. Miller (2019–2024) — CEO
  • Former: Pauline Minhinnett (2019–2024) — Former COO
  • Former: Kara Flynn (2021–2024) — Senior Director Public Eng., Comms & Mktg
  • Former: Alissa Ortman (2022–2024) — Director Digital Learning & Prof. Development
  • Former: Digna Velez Edwards (2024) — Director
  • Former: Sara Tiskoff (2024) — President-Elect
  • Former: Sue Slaugenhaupt (2024) — Past Treasurer
  • Former: Charles N. Rotimi (2019–2023) — Past President
  • Former: Derek Scholes (2019–2023) — Senior Director of Policy
  • Former: Kiran Musunuru (2022–2023) — Director
  • Former: Claudia Gonzaga-Jauregui (2023) — Director
  • Former: Ebony Shah-Williams (2023) — Director
  • Former: Joe Gleeson (2023) — Director
  • Former: Shelley Renn (2023) — Director of Meetings
  • Former: Donna M. Martin (2019–2022) — Secretary
  • Former: Gail P. Jarvik (2019–2022) — President
  • Former: Anthony Wynshaw-Boris (2020–2022) — Past President
  • Former: Charmaine Royal (2020–2022) — Director
  • Former: Dana C. Crawford (2020–2022) — Director
  • Former: Eimear Kenny (2020–2022) — Director
  • Former: John V. Moran (2020–2022) — Director
  • Former: Robin L. Bennett (2020–2022) — Director
  • Former: Soma Das (2020–2022) — Director
  • Former: Claudia Gonzaga Jauregui (2022) — Director
  • Former: Colin Djieudogoue (2022) — Senior Manager, Accounting & Administrator
  • Former: Ebony Shah Williams (2022) — Director
  • Former: Kanika Pulliam (2022) — Director, Career Program & Workforce Div.
  • Former: Francis A. Balser (2019–2021) — Chief Financial Officer
  • Former: Katrina Ab Goddard (2019–2021) — Director
  • Former: Kelly E. Ventura (2019–2021) — Senior Director of Membership
  • Former: Neil A. Hanchard (2019–2021) — Director
  • Former: Yimang Chen (2019–2021) — Senior Manager, It & Data
  • Former: Leslie G. Biesecker (2020–2021) — Past President
  • Former: Sarah Ratzel (2021) — Director of Scientific Publications
  • Former: Zach Nevin (2021) — Director
  • Former: David L. Nelson (2019–2020) — Past President
  • Former: Nalini Padmanabhan (2019–2020) — Director - Communications
  • Former: Nancy B. Spinner (2019–2020) — Director
  • Former: Sharon Plon (2019–2020) — Director
  • Former: Zachary S. Nevin (2019–2020) — Director
  • Former: Geoffrey M. Duyk (2019) — Treasurer
  • Former: Les Biesecker (2019) — President-Elect
  • Former: Nancy J. Cox (2019) — Past President
  • Former: Nicholas Katsanis (2019) — Director

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Amanda Perl — CEO (From 5/14/2024): $388KAmanda PerlCEO (From 5/14/2024)$388KMarie Ternieden — Chief Operating Officer: $244KMarie TerniedenChief Operating Officer$244KChazeman Jackson — Sr. DIR. of DEI: $184KChazeman JacksonSr. DIR. of DEI$184KValentina Nlemadim — Director of Finance: $154KValentina NlemadimDirector of Finance$154KCarrie Morin — DIR. Membership & Industry: $154KCarrie MorinDIR. Membership & Industry$154KMegan Mitzelfelt — DIR. Advancement & Data Strategy: $148KMegan MitzelfeltDIR. Advancement & Data Strategy$148KKatie Belsky — Sr. DIR. of Strat. Content & SCI. Prog.: $139KKatie BelskySr. DIR. of Strat. Content &…$139KSara Gladden — Director, Scientific Publications: $138KSara GladdenDirector, Scientific…$138KKristen Lewis — Associate Director, Fellowships: $108KKristen LewisAssociate Director, Fellowships$108KBruce Korf — Director & Journal Editor: $66KBruce KorfDirector & Journal Editor$66K

The highest reported compensation on the 2025 filing was $388K, to Amanda Perl (CEO (From 5/14/2024)). 10 officers or directors reported compensation on that filing.

Frequently asked questions about American Society of Human Genetics

How much does American Society of Human Genetics give each year?

American Society of Human Genetics reported $37K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants. In 2024 it reported $38K in grants paid.

How large is American Society of Human Genetics?

American Society of Human Genetics reported $26.2M in total assets on its 2025 IRS Form 990. Its revenue that year was $10.7M.

What is American Society of Human Genetics?

American Society of Human Genetics is a public charity focused on Health, based in Rockville, MD. It holds $26.2M in total assets as of 2025.

Where does American Society of Human Genetics operate?

American Society of Human Genetics has awarded grants in District of Columbia, Maryland.

What is American Society of Human Genetics's EIN?

American Society of Human Genetics's EIN (Employer Identification Number) is 52-1419397. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(8)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2020 (received by the IRS May 10, 2021)
  2. Updated Form 990 for fiscal year 2021 (received by the IRS May 12, 2022)
  3. Added Form 990 for fiscal year 2019 (received by the IRS June 11, 2020)
  4. Updated Form 990 for fiscal year 2022 (received by the IRS May 8, 2023)
  5. Updated Form 990 for fiscal year 2023 (received by the IRS March 1, 2024)
  6. Updated Form 990 for fiscal year 2024 (received by the IRS April 20, 2025)
  7. Added Form 990 for fiscal year 2025 (received by the IRS May 14, 2026)
  8. IRS filings on file for fiscal years 2020–2024

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from American Society of Human Genetics's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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