Alzheimers Disease Data Initiative Inc logo

Alzheimers Disease Data Initiative Inc

Public charity · Grantmaker Kirkland, WA EIN: 85-3776266 Website

Alzheimer's Disease Data Initiative is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share data, analytical tools, and scientific findings. These partners are working together to accelerate progress towards new diagnostics, treatments, and cures for Alzheimer's disease and related dementias. Learn more atwww.alzheimersdata.org.

Key facts about Alzheimers Disease Data Initiative Inc

In short: Alzheimers Disease Data Initiative Inc gave $1.1M across 9 grants in 2024 (avg $122K), top state California. Source: 2024 IRS Form 990.

EIN
85-3776266
Latest 990 filing
Form 990, 2024
Annual giving (2024)
$1,095,289
Grants made (2024)
9
Average grant
$121,699
Median grant
$125,289
Total assets
$2,040,922
Primary geography
California (5% of itemized 2024 grant dollars)

Data from IRS Form 990, 2024; updated September 2026.

Financial Overview

From 2024 IRS Form 990 · View filing

Total Assets

$2.0M

-61.6% YoY

Annual Giving

$1.1M

-1.1% YoY

Grant Count

9

+12.5% YoY

Avg Grant Size

$122K

-12.1% YoY

How Alzheimers Disease Data Initiative Inc gives

  • Giving fell 40% from 2021 to 2024. Method

From the foundation's IRS Form 990 filings. Methodology.

About Alzheimers Disease Data Initiative Inc

Based on IRS filings

Alzheimers Disease Data Initiative Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Kirkland, WA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 9 grants totaling $1.1M. Net investment income was $137K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

8states

Share of 2024 grant dollars across all 9 itemized grants.

Cities

San FranciscoBltimoreBostonCambridgeMetairiePheonixPhoenixSaint LouisSearrleTucsonWashington

Giving Over Time

Total grant dollars and number of grants per year

$0$500K$1M$1.5M$2M0 grants2020 1 grant2021 2 grants2022 8 grants2023 9 grants2024

From 2021 to 2024, annual grant giving ranged from $856K (2022) to $1.8M (2021). In 2024 it made 9 grants totaling $1.1M.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 9 recipients in 2024

Davos Alzheimer's Collaborative (DAC): $225KDavos Alzheimer'sCollaborative (DAC)$225KGeorgia State University Research Foundation (GSU): $200KGeorgia State UniversityResearch Foundation (GSU)$200KSage Bionetworks: $195KSage Bionetworks$195KAnswer ALS: $150KAnswer ALS$150KAmerican Heart Association (AHA): $125KAmerican Heart Association(AHA)$125KAlleo Labs Corporation: $50KAlleo Labs Corporation$50KState of Maryland University of Maryland Baltimore: $50KState of Maryland Universityof Maryland Baltimore$50KUniversity of California San Francisco (UCSF): $50KUniversity of California SanFrancisco (UCSF)$50KWashington University in St Louis: $50KWashington University in StLouis$50K

The largest 2024 recipient was Davos Alzheimer's Collaborative (DAC) ($225K). Together the top 9 received $1.1M.

Grant Size Distribution

20 grants across all recorded years

<$50K9$50–100K6$100–250K3$250–500K1$500K–1M1$1–5M$5M+

The most common grant size was in the $50–100K range: 9 grants of 20 (45%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Davos Alzheimer's Collaborative (DAC) Connecting with and supporting the sharing of data from multiple sites in low-middle income countries to more accurately represent the global population$225,000
Georgia State University Research Foundation (GSU) Understanding the specific and unique challenges that investigators in other countries face when trying to make their data shareable with the larger community of researchers$200,000
Sage Bionetworks Data platform interoperability$195,000
Answer ALS Data platform interoperability$150,000
American Heart Association (AHA) Data platform interoperability$125,289
Alleo Labs Corporation San Francisco, CAGates Sr. AD Fellowship recipient award$50,000
State of Maryland University of Maryland Baltimore Gates Sr. AD Fellowship recipient award$50,000
University of California San Francisco (UCSF) Project start for GRIP Vision-Language Machine Learning (ML) Models for Brain Image Analysis$50,000
Washington University in St Louis Gates Sr. AD Fellowship recipient award$50,000

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$10M$20M$30M2020 2021 2022 2023 2024
Metric202420232022
Total Assets$2,040,922$5,319,702$3,293,505
Revenue$12,475,933$12,963,288$1,655,356
Expenses$17,043,595$11,257,774$11,164,241
Net Investment Income$136,590$42,409$4,015

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
  2. Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
  3. Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
  4. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

Alzheimers Disease Data Initiative Inc's 2024 filing lists 4 officers; none of the 4 officers listed in 2024 report compensation.

Officers on the 2024 filing

  • Niranjan Bose

    Director

    Managing Director & Director → Director, 2022

    On filings since 2020

    5 hrs/week

    No compensation reported

  • Paul Ramsey

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Hillary Bounds

    Secretary

    On filings since 2020

    10 hrs/week

    No compensation reported

  • Tony Pound

    Treasurer

    On filings since 2021

    1 hr/week

    No compensation reported

Former officers (1)
  • Former: Tetsuyuki Maruyama (2021–2023) — Executive Director

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about Alzheimers Disease Data Initiative Inc

How much does Alzheimers Disease Data Initiative Inc give each year?

Alzheimers Disease Data Initiative Inc gave $1.1M across 9 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $1.1M across 8 grants.

What is Alzheimers Disease Data Initiative Inc's typical grant size?

Alzheimers Disease Data Initiative Inc's median grant in 2024 was $125,289, and its average grant was $121,699, across 9 grants on its 2024 IRS Form 990.

Does Alzheimers Disease Data Initiative Inc give general operating support?

Not in 2024: none of the 9 grants with a stated purpose on Alzheimers Disease Data Initiative Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Data platform interoperability" (3 grants) and "Gates Sr. AD Fellowship recipient award" (3 grants).

Who are Alzheimers Disease Data Initiative Inc's largest grantees?

Alzheimers Disease Data Initiative Inc's largest 2024 grantees include Davos Alzheimer's Collaborative (DAC) ($225,000), Georgia State University Research Foundation (GSU) ($200,000) and Sage Bionetworks ($195,000), according to its 2024 IRS Form 990. Together they received 57% of its itemized 2024 grant dollars.

How large is Alzheimers Disease Data Initiative Inc?

Alzheimers Disease Data Initiative Inc reported $2.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $12.5M.

What is Alzheimers Disease Data Initiative Inc?

Alzheimers Disease Data Initiative Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Kirkland, WA. It holds $2.0M in total assets as of 2024.

Where does Alzheimers Disease Data Initiative Inc operate?

Alzheimers Disease Data Initiative Inc has awarded grants in Arizona, California, District of Columbia, Louisiana, Massachusetts, Maryland, Missouri, Washington.

What is Alzheimers Disease Data Initiative Inc's EIN?

Alzheimers Disease Data Initiative Inc's EIN (Employer Identification Number) is 85-3776266. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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