Alzheimers Disease Data Initiative Inc
Alzheimer's Disease Data Initiative is a coalition of leading academic, advocacy, government, industry, and philanthropy organizations that recognizes the need for dementia researchers to find easier ways to share data, analytical tools, and scientific findings. These partners are working together to accelerate progress towards new diagnostics, treatments, and cures for Alzheimer's disease and related dementias. Learn more atwww.alzheimersdata.org.
Alzheimers Disease Data Initiative Inc at a glance
In short: Alzheimers Disease Data Initiative Inc gave $1.1M across 9 grants in 2024 (avg $122K), top state California. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $1,095,289
- -1.1% vs 2023
- Grants made (2024)
- 9
- +12.5% vs 2023
- Average grant
- $121,699
- -12.1% vs 2023
- Median grant
- $125,289
- Total assets
- $2,040,922
- -61.6% vs 2023
- Primary geography
- California (5% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Alzheimers Disease Data Initiative Inc funds
How this funder distributes its grants
Top Recipients
Top 9 recipients in 2024
The largest 2024 recipient was Davos Alzheimer's Collaborative (DAC) ($225K). Together the top 9 received $1.1M.
Grant Size Distribution
20 grants across all recorded years
The most common grant size was in the $50–100K range: 9 grants of 20 (45%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 9 itemized grants.
Cities
How Alzheimers Disease Data Initiative Inc gives
- Giving fell 40% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2024, annual grant giving ranged from $856K (2022) to $1.8M (2021). In 2024 it made 9 grants totaling $1.1M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Davos Alzheimer's Collaborative (DAC) | Connecting with and supporting the sharing of data from multiple sites in low-middle income countries to more accurately represent the global population | $225,000 |
| Georgia State University Research Foundation (GSU) | Understanding the specific and unique challenges that investigators in other countries face when trying to make their data shareable with the larger community of researchers | $200,000 |
| Sage Bionetworks | Data platform interoperability | $195,000 |
| Answer ALS | Data platform interoperability | $150,000 |
| American Heart Association (AHA) | Data platform interoperability | $125,289 |
| Alleo Labs Corporation San Francisco, CA | Gates Sr. AD Fellowship recipient award | $50,000 |
| State of Maryland University of Maryland Baltimore | Gates Sr. AD Fellowship recipient award | $50,000 |
| University of California San Francisco (UCSF) | Project start for GRIP Vision-Language Machine Learning (ML) Models for Brain Image Analysis | $50,000 |
| Washington University in St Louis | Gates Sr. AD Fellowship recipient award | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,040,922 | $12,475,933 | $17,043,595 | $1,095,289 | 9 | $136,590 |
| 2023 | $5,319,702 | $12,963,288 | $11,257,774 | $1,107,269 | 8 | $42,409 |
| 2022 | $3,293,505 | $1,655,356 | $11,164,241 | $855,500 | 2 | $4,015 |
| 2021 | $13,154,573 | $21,365,464 | $9,167,852 | $1,833,822 | 1 | $47,069 |
About Alzheimers Disease Data Initiative Inc
Based on IRS filings
Alzheimers Disease Data Initiative Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Kirkland, WA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 9 grants totaling $1.1M. Net investment income was $137K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Alzheimers Disease Data Initiative Inc's 2024 filing lists 4 officers; none of the 4 officers listed in 2024 report compensation.
Officers on the 2024 filing
Niranjan Bose
Director
Managing Director & Director → Director, 2022
On filings since 2020
5 hrs/week
No compensation reported
Paul Ramsey
Director
On filings since 2020
1 hr/week
No compensation reported
Hillary Bounds
Secretary
On filings since 2020
10 hrs/week
No compensation reported
Tony Pound
Treasurer
On filings since 2021
1 hr/week
No compensation reported
Former officers (1)
- Former: Tetsuyuki Maruyama (2021–2023) — Executive Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Alzheimers Disease Data Initiative Inc
How much does Alzheimers Disease Data Initiative Inc give each year?
Alzheimers Disease Data Initiative Inc gave $1.1M across 9 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $1.1M across 8 grants.
What is Alzheimers Disease Data Initiative Inc's typical grant size?
Alzheimers Disease Data Initiative Inc's median grant in 2024 was $125,289, and its average grant was $121,699, across 9 grants on its 2024 IRS Form 990.
Does Alzheimers Disease Data Initiative Inc give general operating support?
Not in 2024: none of the 9 grants with a stated purpose on Alzheimers Disease Data Initiative Inc's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Data platform interoperability" (3 grants) and "Gates Sr. AD Fellowship recipient award" (3 grants).
Who are Alzheimers Disease Data Initiative Inc's largest grantees?
Alzheimers Disease Data Initiative Inc's largest 2024 grantees include Davos Alzheimer's Collaborative (DAC) ($225,000), Georgia State University Research Foundation (GSU) ($200,000) and Sage Bionetworks ($195,000), according to its 2024 IRS Form 990. Together they received 57% of its itemized 2024 grant dollars.
How large is Alzheimers Disease Data Initiative Inc?
Alzheimers Disease Data Initiative Inc reported $2.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $12.5M.
What is Alzheimers Disease Data Initiative Inc?
Alzheimers Disease Data Initiative Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Kirkland, WA. It holds $2.0M in total assets as of 2024.
Where does Alzheimers Disease Data Initiative Inc operate?
Alzheimers Disease Data Initiative Inc has awarded grants in Arizona, California, District of Columbia, Louisiana, Massachusetts, Maryland, Missouri, Washington.
What is Alzheimers Disease Data Initiative Inc's EIN?
Alzheimers Disease Data Initiative Inc's EIN (Employer Identification Number) is 85-3776266. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(4)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 15, 2024)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Alzheimers Disease Data Initiative Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
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