LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
Key facts about ALS Northwest
In short: ALS Northwest gave $198K across 3 grants in 2025 (avg $66K), mostly in California. Source: 2025 IRS Form 990 filing.
- EIN
- 68-0516066
- Latest 990 filing
- Form 990 filing, 2025
- Annual giving (2025)
- $198,000
- Grants made (2025)
- 3
- Average grant
- $66,000
- Median grant
- $30,000
- Total assets
- $4,335,042
- Primary geography
- California (76% of itemized 2025 grant dollars)
Data from IRS Form 990 filing, 2025; updated September 2026.
Quick answers about ALS Northwest
How much does ALS Northwest give each year?
ALS Northwest gave $198K across 3 grants in 2025, according to its 2025 IRS Form 990 filing.
What is ALS Northwest's typical grant size?
ALS Northwest's median grant in 2025 was $30,000, and its average grant was $66,000, across 3 grants on its 2025 IRS Form 990 filing.
Where does ALS Northwest give grants?
ALS Northwest gives mostly in California: 76% of the grant dollars itemized on its 2025 IRS Form 990 filing went to recipients there. The next largest state was Oregon (24%). The most frequent recipient cities were Portland, OR (2 grants).
Does ALS Northwest give general operating support?
Not in 2025: none of the 3 grants with a stated purpose on ALS Northwest's 2025 IRS Form 990 filing were described as general or operating support.
How ALS Northwest gives
- Giving fell 81% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Next steps with ALS Northwest
- How to evaluate ALS Northwest as a funder
Our grant prospecting guide: read the 990-PF, check fit, and decide whether to apply.
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Financial Overview
From 2025 IRS Form 990 filing · View filing
Total Assets
$4.3M
-4.5% YoY
Annual Giving
$198K
Grant Count
3
Avg Grant Size
$66K
About ALS Northwest
Based on IRS filings
ALS Northwest is a nonprofit organization focused on Health, based in Portland, OR. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $4.3M in total assets. In 2025, it awarded 3 grants totaling $198K. Net investment income was $103K.
Focus Areas
Ready to take the next step with ALS Northwest?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 3 itemized 2025 grant dollars.
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $4,335,042 | $4,539,265 | $4,982,342 |
| Revenue | $2,724,273 | $2,382,801 | $3,729,208 |
| Expenses | $3,051,371 | $2,925,550 | $3,120,040 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $102,739 | $97,493 | $63,602 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2021–2025
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2025
Grant Size Distribution
13 grants across all recorded years
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| ALS NETWORK Woodland Hills, CA | RESEARCH | $150,000 |
| OHSU Portland, OR | RESEARCH | $30,000 |
| PROVIDENCE ST VINCENT Portland, OR | BRAIN/SPINE INSTITUTE | $18,000 |
Leadership & Key People
Officers and directors from IRS filings
ALS Northwest is led by Cassy Adams, Executive Director on the 2025 filing; 3 of 21 officers listed in 2025 are compensated.
Officers on the 2025 filing
Cassy Adams
Executive Director
New on the 2025 filing
40 hrs/week
$115K (2025)
Jason Drucker
President
Executive Director → Vice President, 2023
Vice President → President, 2025
On filings since 2021
2 hrs/week
No compensation reported
Amy Easton
Development Director
New on the 2025 filing
40 hrs/week
$102K (2025)
Ian McHone
Director
On filings since 2021
2 hrs/week
No compensation reported
Kim Goslin
Director
On filings since 2021
2 hrs/week
No compensation reported
Lou Libby
Director
On filings since 2021
2 hrs/week
No compensation reported
Mark Turnbull
Director
On filings since 2021
2 hrs/week
No compensation reported
Rocky Dallum
Director
Vice President → Director, 2025
On filings since 2021
2 hrs/week
No compensation reported
Tom Holt
Director
Past President → Director, 2024
On filings since 2021
2 hrs/week
No compensation reported
Jerry Catlin
Director
On filings since 2024
2 hrs/week
No compensation reported
Katie Curtis
Director
On filings since 2024
2 hrs/week
No compensation reported
Ken Fink
Director
On filings since 2024
2 hrs/week
No compensation reported
Mark Duin
Director
On filings since 2024
2 hrs/week
No compensation reported
Whitney Parnell
Director
On filings since 2024
2 hrs/week
No compensation reported
Jim Lobdell
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Mark Doar
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Lance Christian
Past Executive Director
Executive Director → Past Executive Director, 2025
On filings since 2021
40 hrs/week
$115K (2021) → $185K (2025)
Amy Frazey
Past President
President → Past President, 2025
On filings since 2021
2 hrs/week
No compensation reported
Arturo Gonzalez
Vice President
Director → Vice President, 2025
On filings since 2021
2 hrs/week
No compensation reported
Doug McClure
Secretary
Director → Secretary, 2025
On filings since 2021
2 hrs/week
No compensation reported
Katherine Hart
Treasurer
On filings since 2021
2 hrs/week
No compensation reported
Former officers (8)
- Former: Alan Teo (2021–2024) — Director
- Former: Diana Hendrickson (2021–2024) — Director
- Former: James Lobdell (2021–2024) — Director
- Former: Joe Gross (2021–2024) — Director
- Former: Kevin Wright (2021–2024) — Secretary
- Former: Nick Olney (2024) — Director
- Former: Kenneth Fink (2021–2023) — Director
- Former: Mark Shirts (2021–2022) — Director
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is ALS Northwest?
ALS Northwest is a nonprofit organization focused on Health, based in Portland, OR. It holds $4.3M in total assets as of 2025.
How large is ALS Northwest?
As of 2025, ALS Northwest holds $4.3M in total assets with $2.7M in annual revenue. It awarded 3 grants totaling $198K in 2025.
What is ALS Northwest's EIN?
ALS Northwest's EIN (Employer Identification Number) is 68-0516066. IRS Form 990 filing data is available on this page for 2021–2025.
Explore Open Grants
Browse active grant opportunities in ALS Northwest's focus areas in our free grants database
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Data last updated September 2026. Sourced from IRS Form 990 filings.