ALS Northwest
Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with als (lou gehrigs disease) and their families to live fuller lives by providing them with compassionate care and support.
ALS Northwest at a glance
In short: ALS Northwest gave $241K across 3 grants in 2026 (avg $80K), mostly in California. Source: 2026 IRS Form 990.
- Annual giving (2026)
- $240,937
- +21.7% vs 2025
- Grants made (2026)
- 3
- +0.0% vs 2025
- Average grant
- $80,312
- +21.7% vs 2025
- Median grant
- $72,937
- Total assets
- $4,393,568
- +1.4% vs 2025
- Primary geography
- California (62% of itemized 2026 grant dollars)
- Latest 990 filing
- Form 990, 2026 View filing
Data from IRS Form 990, 2026; updated September 2026.
Who ALS Northwest funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2026
The largest 2026 recipient was ALS Network ($150K). Together the top 3 received $241K.
Grant Size Distribution
16 grants across all recorded years
The most common grant size was under $50K: 10 grants of 16 (63%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2026 grant dollars across all 3 itemized grants.
States
Cities
How ALS Northwest gives
- Giving grew 190% from 2023 to 2026. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2026, annual grant giving ranged from $83K (2023) to $1.1M (2022). In 2026 it made 3 grants totaling $241K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| ALS Network Woodland Hills, CA | Research | $150,000 |
| ALS United Beaverton, OR | Research | $72,937 |
| Providence St Vincent Portland, OR | Research | $18,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2026 | $4,393,568 | $2,781,584 | $3,012,212 | $240,937 | 3 | $84,396 |
| 2025 | $4,335,042 | $2,724,273 | $3,051,371 | $198,000 | 3 | $102,739 |
| 2024 | $4,539,265 | $2,382,801 | $2,925,550 | $133,000 | 3 | $97,493 |
| 2023 | $4,982,342 | $3,729,208 | $3,120,040 | $83,000 | 3 | $63,602 |
| 2022 | $3,939,845 | $4,368,601 | $2,957,335 | $1,057,800 | 4 | $32,068 |
| 2021 | $2,610,290 | $2,541,270 | $2,035,185 | $230,000 | 3 | $1,733 |
About ALS Northwest
Based on IRS filings
ALS Northwest is a public charity focused on Health, based in Portland, OR. IRS filing data is available from 2021 through 2026. As of 2026, the organization holds $4.4M in total assets. In 2026, it awarded 3 grants totaling $241K. Net investment income was $84K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
ALS Northwest is led by Cassy Adams, Executive Director on every filing since 2025; 2 of 23 officers listed in 2026 are compensated.
Officers on the 2026 filing
Cassy Adams
Executive Director
On filings since 2025
40 hrs/week
$115K (2025) → $139K (2026)
Jason Drucker
President
Executive Director → Vice President, 2023
Vice President → President, 2025
On filings since 2021
2 hrs/week
No compensation reported
Amy Easton
Development Director
On filings since 2025
40 hrs/week
$102K (2025) → $104K (2026)
Ian McHone
Director
On filings since 2021
2 hrs/week
No compensation reported
Lou Libby
Director
On filings since 2021
2 hrs/week
No compensation reported
Mark Turnbull
Director
On filings since 2021
2 hrs/week
No compensation reported
Tom Holt
Director
Past President → Director, 2024
On filings since 2021
2 hrs/week
No compensation reported
Katie Curtis
Director
On filings since 2024
2 hrs/week
No compensation reported
Ken Fink
Director
On filings since 2024
2 hrs/week
No compensation reported
Mark Duin
Director
On filings since 2024
2 hrs/week
No compensation reported
Nick Olney
Director
On filings since 2024
2 hrs/week
No compensation reported
Whitney Parnell
Director
On filings since 2024
2 hrs/week
No compensation reported
Mark Doar
Director
On filings since 2025
2 hrs/week
No compensation reported
Elizabeth Garvin
Director
New on the 2026 filing
2 hrs/week
No compensation reported
Mark Foat
Director
New on the 2026 filing
2 hrs/week
No compensation reported
Noona Leavell
Director
New on the 2026 filing
2 hrs/week
No compensation reported
Olivia Mackenzie
Director
New on the 2026 filing
2 hrs/week
No compensation reported
Paula Foat
Director
New on the 2026 filing
2 hrs/week
No compensation reported
Amy Frazey
Past President
President → Past President, 2025
On filings since 2021
2 hrs/week
No compensation reported
Arturo Gonzalez
Past Vice President
Director → Vice President, 2025
Vice President → Past Vice President, 2026
On filings since 2021
2 hrs/week
No compensation reported
Doug McClure
Secretary
Director → Secretary, 2025
On filings since 2021
2 hrs/week
No compensation reported
Rocky Dallum
Vice President
Vice President → Director, 2025
Director → Vice President, 2026
On filings since 2021
2 hrs/week
No compensation reported
Jerry Catlin
Treasurer
Director → Treasurer, 2026
On filings since 2024
2 hrs/week
No compensation reported
Former officers (11)
- Former: Katherine Hart (2021–2025) — Treasurer
- Former: Kim Goslin (2021–2025) — Director
- Former: Lance Christian (2021–2025) — Past Executive Director
- Former: Jim Lobdell (2025) — Director
- Former: Alan Teo (2021–2024) — Director
- Former: Diana Hendrickson (2021–2024) — Director
- Former: James Lobdell (2021–2024) — Director
- Former: Joe Gross (2021–2024) — Director
- Former: Kevin Wright (2021–2024) — Secretary
- Former: Kenneth Fink (2021–2023) — Director
- Former: Mark Shirts (2021–2022) — Director
Data from IRS Form 990 filings, 2021–2026. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2026 IRS filing
The highest reported compensation on the 2026 filing was $139K, to Cassy Adams (Executive Dir.). 2 officers or directors reported compensation on that filing.
Frequently asked questions about ALS Northwest
How much does ALS Northwest give each year?
ALS Northwest gave $241K across 3 grants in 2026, according to its 2026 IRS Form 990. In 2025 it gave $198K across 3 grants.
What is ALS Northwest's typical grant size?
ALS Northwest's median grant in 2026 was $72,937, and its average grant was $80,312, across 3 grants on its 2026 IRS Form 990.
Where does ALS Northwest give grants?
ALS Northwest gives mostly in California: 62% of the grant dollars itemized on its 2026 IRS Form 990 went to recipients there. The next largest state was Oregon (38%).
Does ALS Northwest give general operating support?
Not in 2026: none of the 3 grants with a stated purpose on ALS Northwest's 2026 IRS Form 990 were described as general or operating support. Recurring purposes include "Research" (3 grants).
How large is ALS Northwest?
ALS Northwest reported $4.4M in total assets on its 2026 IRS Form 990. Its revenue that year was $2.8M.
What is ALS Northwest?
ALS Northwest is a public charity focused on Health, based in Portland, OR. It holds $4.4M in total assets as of 2026.
What is ALS Northwest's EIN?
ALS Northwest's EIN (Employer Identification Number) is 68-0516066. IRS Form 990 filing data is available on this page for 2021–2026.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS July 20, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 11, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS July 17, 2023)
- Updated Form 990 for fiscal year 2025 (received by the IRS July 10, 2025)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 22, 2024)
- Added Form 990 for fiscal year 2026 (received by the IRS July 9, 2026)
- IRS filings on file for fiscal years 2021–2025
Live grants for the work ALS Northwest funds
Health Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in ALS Northwest's focus areas in our free grants database
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Figures come from ALS Northwest's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
ALS Northwest down — hundreds of funders to go?