Adult Congenital Heart Association
To empower the congenital heart disease (CHD) community by advancing access to resources and specialized care that improve patient-centered outcomes.
Adult Congenital Heart Association at a glance
In short: Adult Congenital Heart Association gave $85K across 4 grants in 2025 (avg $21K), top state California. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $85,000
- +21.4% vs 2024
- Grants made (2025)
- 4
- +33.3% vs 2024
- Average grant
- $21,250
- -8.9% vs 2024
- Median grant
- $20,000
- Total assets
- $2,080,624
- +16.2% vs 2024
- Primary geography
- California (47% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Adult Congenital Heart Association funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
The largest 2025 recipient was University of Washington ($25K). Together the top 4 received $85K.
Grant Size Distribution
20 grants across all recorded years
The most common grant size was under $50K: 20 grants of 20 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 4 itemized grants.
States
Cities
How Adult Congenital Heart Association gives
- Giving grew 21% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $65K (2023) to $125K (2021). In 2025 it made 4 grants totaling $85K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Washington Seattle, WA | Resilience assessment of hospitalized adults with congenital heart disease | $25,000 |
| The Regents of the University of California - UCSF San Francisco, CA | Telehealth-based cardiac rehabilitation in adults with fontan circulation: a prospective pilot study | $20,000 |
| Cincinnati Children's Hospital Medical Center Cincinnati, OH | Deep learning electrocardiography and cardiopulmonary exercise testing to advance prevision care of adults with congenital heart disease | $20,000 |
| The Board of Trustees of the Leland Stanford Junior University Redwood City, CA | Molecular and functional signatures of exercise response in adult congenital heart disease: linking omics, phenotypes, and the heart-brain axis | $20,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $2,080,624 | $1,858,947 | $1,831,576 | $85,000 | 4 | $24,164 |
| 2024 | $1,790,426 | $1,958,729 | $2,328,629 | $70,000 | 3 | $61,017 |
| 2023 | $2,033,233 | $2,407,696 | $1,990,356 | $65,000 | 3 | $27,716 |
| 2022 | $1,503,657 | $1,698,174 | $2,007,489 | $70,000 | 4 | $-43,818 |
| 2021 | $1,775,522 | $2,125,476 | $1,648,260 | $125,000 | 6 | $113,674 |
| 2020 | $1,619,228 | $1,671,115 | $1,755,654 | $112,500 | 2 | $10,581 |
About Adult Congenital Heart Association
Based on IRS filings
Adult Congenital Heart Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Columbia, MD. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $2.1M in total assets. In 2025, it awarded 4 grants totaling $85K. Net investment income was $24K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Adult Congenital Heart Association is led by Mark Roeder, President & CEO on every filing since 2020; 2 of 20 officers listed in 2025 are compensated.
Officers on the 2025 filing
Mark Roeder
President & CEO
On filings since 2020
50 hrs/week
$173K (2020) → $169K (2025)
Stephen Back
Chair
Board Member → Vice Chair, 2024
Vice Chair → Chair, 2025
On filings since 2021
2 hrs/week
No compensation reported
Danielle Hile
Senior Director of Medical Affairs
Senior Director of Mission Delivery → Senior Director of Medical Affairs, 2023
On filings since 2022
40 hrs/week
$104K (2022) → $116K (2025)
James Ruppel Md Ms
Immediate Past Chair
Vice Chair → Chair, 2023
Chair → Immediate Past Chair, 2025
On filings since 2021
2 hrs/week
No compensation reported
William Causey
Vice Chair
Board Member → Secretary, 2024
Secretary → Vice Chair, 2025
On filings since 2022
2 hrs/week
No compensation reported
Anne Stapleton-Reilly
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Claudia Norman
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Matt Martinho
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Nicole Jung
Secretary
Board Member → Secretary, 2025
On filings since 2023
2 hrs/week
No compensation reported
William Browne
Treasurer
Board Member → Treasurer, 2024
On filings since 2023
2 hrs/week
No compensation reported
Yuli Kim
Board Member
On filings since 2023
2 hrs/week
No compensation reported
Chad Chase
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Erin Walsh-Beguin
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Jonathan Cramer MD
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Meredith Rahn-Oakes
Board Member
On filings since 2024
2 hrs/week
No compensation reported
Danijel Brener
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Lindsay Altimare
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Melissa Gardner-Lomax
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Tiffany Hackett-Stuart
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Todd Crippin
Board Member
New on the 2025 filing
2 hrs/week
No compensation reported
Former officers (32)
- Former: Joanne Nichols (2020–2024) — Board Member
- Former: Richard Krasuski MD (2021–2024) — Board Member
- Former: Binta Baudy (2022–2024) — Board Member
- Former: Jennifer Hockenhull (2022–2024) — Director of Finance
- Former: Kristi Ryan (2022–2024) — Board Member
- Former: Jennifer Cortes (2023–2024) — Board Member
- Former: Mary Jane Eazer (2023–2024) — Secretary
- Former: Cynthia Felix Jeffers (2024) — Board Member
- Former: Janine Guglielmino (2024) — Director of Patient Resources & Advocacy
- Former: Kerry Wevodau (2024) — Director of Walk for in
- Former: Tim Singletary (2024) — Board Member
- Former: Aliza Marlin (2020–2023) — Vice Chair
- Former: Arwa Saidi MD (2020–2023) — Board Member
- Former: Jeff Ishida (2020–2023) — Board Member
- Former: Susan Timmins (2020–2023) — Secretary & Clerk
- Former: Tom Wix (2020–2023) — Treasurer
- Former: Mindy Beyer (2021–2023) — Board Member
- Former: Beth Coimbra (2020–2022) — Director of Fin.-
- Former: Jamil Aboulhosn MD (2020–2022) — Board Member
- Former: Web Browne (2020–2022) — Board Member
- Former: Michael Landzberg MD (2021–2022) — Board Member
- Former: Neema Khatri (2021–2022) — Board Member
- Former: Cindy Huie (2020–2021) — Board Member
- Former: Heather Abbott (2020–2021) — Board Member
- Former: Michael Pernick (2020–2021) — Board Member
- Former: Ronnie Altman (2020–2021) — Board Member
- Former: Barry Meil (2020) — Board Member
- Former: Georgia Kriehbel (2020) — Director of Development
- Former: James Ruppel (2020) — Board Member
- Former: Nicholas Pottebaum (2020) — Treasurer
- Former: Paul Schmidt (2020) — Board Member
- Former: Tony Garvy (2020) — Board Member · Filing note: Resigned sept 2020
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $169K, to Mark Roeder (President and CEO). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Adult Congenital Heart Association
How much does Adult Congenital Heart Association give each year?
Adult Congenital Heart Association gave $85K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $70K across 3 grants.
What is Adult Congenital Heart Association's typical grant size?
Adult Congenital Heart Association's median grant in 2025 was $20,000, and its average grant was $21,250, across 4 grants on its 2025 IRS Form 990.
Where does Adult Congenital Heart Association give grants?
Adult Congenital Heart Association's top state is California, with 47% of the grant dollars itemized on its 2025 IRS Form 990. The next largest states were Washington (29%) and Ohio (24%).
Does Adult Congenital Heart Association give general operating support?
Not in 2025: none of the 4 grants with a stated purpose on Adult Congenital Heart Association's 2025 IRS Form 990 were described as general or operating support.
How large is Adult Congenital Heart Association?
Adult Congenital Heart Association reported $2.1M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.9M.
What is Adult Congenital Heart Association?
Adult Congenital Heart Association is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Columbia, MD. It holds $2.1M in total assets as of 2025.
What is Adult Congenital Heart Association's EIN?
Adult Congenital Heart Association's EIN (Employer Identification Number) is 04-3447959. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS July 28, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS August 19, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS July 17, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 18, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS July 2, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 5, 2026)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in Adult Congenital Heart Association's focus areas in our free grants database
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