Adult Congenital Heart Association
TO EMPOWER THE CONGENITAL HEART DISEASE (CHD) COMMUNITY BY ADVANCING ACCESS TO RESOURCES AND SPECIALIZED CARE THAT IMPROVE PATIENT-CENTERED OUTCOMES.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$1.8M
-11.9% YoY
Annual Giving
$70K
+7.7% YoY
Grant Count
3
+0.0% YoY
Avg Grant Size
$23K
+7.7% YoY
About Adult Congenital Heart Association
Based on IRS filings
Adult Congenital Heart Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in MEDIA, PA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $1.8M in total assets. In 2024, it awarded 3 grants totaling $70K. Net investment income was $61K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $1,790,426 | $2,033,233 | $1,503,657 |
| Revenue | $1,958,729 | $2,407,696 | $1,698,174 |
| Expenses | $2,328,629 | $1,990,356 | $2,007,489 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $61,017 | $27,716 | $-43,818 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
18 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Icahn School of Medicine at Mount Sinai ($25,000), Dartmouth Hitchcock Medical Center ($25,000), University of California San Francisco ($20,000).
| Recipient | Purpose | Amount |
|---|---|---|
| ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI NEW YORK, NY | INVESTIGATING THE GENES INVOLVED IN PULMONARY ARTERIAL HYPERTENSION IN CHD CONTINUATION OF PRIOR YEAR GRANT WORK | $25,000 |
| DARTMOUTH HITCHCOCK MEDICAL CENTER LEBANON, NH | GRANT FUNDING FOR PROJECT TITLED: PSYCHOLOGICAL TRAUMA AND POST-TRAUMATIC STRESS DISORDER IN ADULTS WITH CONGENITAL HEART DISEASE: "WHAT IS THE SCOPE OF THE PROBLEM?" | $25,000 |
| UNIVERSITY OF CALIFORNIA SAN FRANCISCO SAN FRANCISCO, CA | UNDERSTANDING PERIPARTUM ARRHYTHMIA IN WOMEN WITH CONGENITAL HEART DISEASE. | $20,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JAMES RUPPEL MD MS | CHAIR | 2 | — |
| STEPHEN BACK | VICE CHAIR | 2 | — |
| WILLIAM BROWNE | TREASURER | 2 | — |
| WILLIAM CAUSEY | SECRETARY | 2 | — |
| BINTA BAUDY | BOARD MEMBER | 2 | — |
| CHAD CHASE | BOARD MEMBER | 2 | — |
| JENNIFER CORTES | BOARD MEMBER | 2 | — |
| JONATHAN CRAMER MD | BOARD MEMBER | 2 | — |
| NICOLE JUNG | BOARD MEMBER | 2 | — |
| YULI KIM MD | BOARD MEMBER | 2 | — |
| RICHARD KRASUSKI MD | BOARD MEMBER | 2 | — |
| MATT MARTINHO | BOARD MEMBER | 2 | — |
| CLAUDIA NORMAN | BOARD MEMBER | 2 | — |
| MEREDITH RAHN-OAKES | BOARD MEMBER | 2 | — |
| KRISTI RYAN | BOARD MEMBER | 2 | — |
| TIM SINGLETARY | BOARD MEMBER | 2 | — |
| ANNE STAPLETON-REILLY | BOARD MEMBER | 2 | — |
| ERIN WALSH-BEGUIN | BOARD MEMBER | 2 | — |
| CYNTHIA FELIX JEFFERS | BOARD MEMBER UNTIL 12/9/24 | 2 | — |
| JOANNE NICHOLS | BOARD MEMBER UNTIL 8/30/2024 | 2 | — |
| MARY JANE EAZER | SECRETARY UNTIL 9/30/24 | 2 | — |
| MARK ROEDER | PRESIDENT AND CEO | 50 | $171,963 |
| JENNIFER HOCKENHULL | DIRECTOR OF FINANCE | 40 | $127,961 |
| DANIELLE HILE | SR. DIRECTOR OF MEDICAL AFFAIRS | 40 | $116,166 |
| KERRY WEVODAU | DIRECTOR OF WALK FOR 1 IN 100 | 40 | $104,868 |
| JANINE GUGLIELMINO | DIR. OF PATIENT RESOURCES & ADVOCACY | 40 | $100,960 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Adult Congenital Heart Association?
Adult Congenital Heart Association is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in MEDIA, PA. It holds $1.8M in total assets as of 2024.
How large is Adult Congenital Heart Association?
As of 2024, Adult Congenital Heart Association holds $1.8M in total assets with $2.0M in annual revenue. It awarded 3 grants totaling $70K in 2024.
Where does Adult Congenital Heart Association operate?
Adult Congenital Heart Association has awarded grants in California, District of Columbia, Iowa, Massachusetts, North Carolina, New Hampshire, New York, Ohio, Pennsylvania, Tennessee, Texas, Wisconsin.
What size grants does Adult Congenital Heart Association award?
In 2024, Adult Congenital Heart Association awarded 3 grants totaling $70K — an average of about $23K per grant, based on its IRS Form 990 filings.
What is Adult Congenital Heart Association's EIN?
Adult Congenital Heart Association's EIN (Employer Identification Number) is 04-3447959. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Adult Congenital Heart Association's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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