Well-Being in FTD Pilot Grant

Well-Being in FTD Pilot Grant

Funder: The Association for Frontotemporal Degeneration (AFTD)

Program Status: Active

Geographic Scope: Not specified; appears to be open internationally

Focus Areas:

Research to improve quality of life for people living with FTD

Support programs for FTD care partners and families

Well-being and caregiver support interventions

Cultural and linguistic considerations for diverse populations

Overview:
The Well-Being in FTD Pilot Grant was developed by AFTD leadership as part of the evolution of the original Pilot Grant program. This grant specifically targets research aimed at improving the quality of life and well-being of people living with FTD and their families, complementing the Pathways for Hope Pilot Grant which focuses on disease mechanism research.

Program History:
The original AFTD Pilot Grant program split into two distinct grants: the Pathways for Hope Pilot Grant and the Well-Being in FTD Pilot Grant, each serving different research priorities.

2025 Recipients:

Stephanie Grasso, PhD (University of Texas at Austin) - measuring the impact of a culturally and linguistically tailored educational program to support Latino and Hispanic caregivers of individuals with primary progressive aphasia (PPA)

Notable Previous Recipient:

Eline Bunnik, PhD (2023) - studying ethical considerations involved in having people at risk of FTD learn about predictive biomarkers or receive genetic testing

Contact: AFTD HelpLine: 1-866-507-7222 or [email protected]

Address: 2700 Horizon Drive, Suite 120, King of Prussia, PA 19406