The Association for Frontotemporal logo

The Association for Frontotemporal

KING OF PRUSSIA, PA EIN: 41-2073220 Website

PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.

Financial Overview

From 2025 IRS Form 990-PF · View filing

Total Assets

$60.1M

+11.4% YoY

Annual Giving

$1.5M

-38.7% YoY

Grant Count

6

-40.0% YoY

Avg Grant Size

$258K

+2.1% YoY

About The Association for Frontotemporal

Based on IRS filings

The Association for Frontotemporal is a nonprofit organization focused on Medical Research, based in KING OF PRUSSIA, PA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $60.1M in total assets. In 2025, it awarded 6 grants totaling $1.5M. Net investment income was $1.9M.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

12states
+4 more states

Cities

ANN ARBORATLANTAAUSTINBERKELEYBETHESDABOSTONBURNSVILLECLEVELANDDALLASFORT WORTHKING OF PRUSSIALOS ANGELESMINNEAPOLISNEW YORKNEWTONNORTH BETHESDAPITTSBURGHPORTLANDRENSSELAERSAN DIEGO

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$8M$16M$24M$31M20212022202320242025
Metric202520242023
Total Assets$60,143,025$53,971,673$47,470,345
Revenue$14,420,554$13,139,120$8,537,416
Expenses$11,559,795$11,526,939$9,663,807
Qualifying Distributions
Net Investment Income$1,935,108$899,785$-35,633
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$848K$2M$3M$3M10 grants202110 grants20227 grants202310 grants20246 grants2025

Grant Insights

How this funder distributes its grants

Top Recipients

Top 6 recipients in 2025

ALZHEIMER'S DRUG DISCOVE…$700KTHE FTD DISORDERS REGISTRY$287KWASHINGTON UNIVERSITY IN…$230KSTANFORD UNIVERSITY$120KUNIVERSITY OF TEXAS AT A…$110KAMERICAN BRAIN FOUNDATION$100K

Grant Size Distribution

43 grants across all recorded years

2<$50K8$50–100K20$100–250K6$250–500K5$500K–1M2$1–5M$5M+

Open Grants

6 open opportunities from The Association for Frontotemporal

Show all 6 →

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2025 IRS filing

SUSAN L-J DICKINSONCHIEF EXECUTIVE OFFICER$320KMITCH APPLESONCHIEF OPERATING OFFICER$255KPENNY DACKSSR DIRECTOR OF SCIENTIFIC IN…$226KSHARON DENNYSR DIRECTOR OF PROGRAMS$174KPETER WITZLEBDIRECTOR OF IT$169KPHILLIP JOHN WEICHELSR DIRECTOR OF ADVANCEMENT$158KSHANA DODGEDIRECTOR OF RESEARCH ENGAGEM…$153K

From 2025 filing

NameTitleHoursCompensation
RITA CHOULACHAIR4
GAIL ANDERSONVICE CHAIR4
VALERIE SNOWSECRETARY4
JULIE KELLYTREASURER4
HALIMA AMJADDIRECTOR3
KYLE BIRMINGHAMDIRECTOR3
HELEN-ANN COMSTOCKDIRECTOR3
JOE ESPOSITODIRECTOR (EFF 5/3/25)2
JILL GOLDMANDIRECTOR2
KRISTIN HOLLOWAYDIRECTOR2
SHOSHANA KRILOWDIRECTOR3
JOSEPH MARQUEZDIRECTOR2
LENN MARQUEZDIRECTOR (EFF 5/3/25)3
KATHY MELEDIRECTOR3
DON NEWHOUSEDIRECTOR2
GIRISH PATANGAYDIRECTOR (EFF 5/3/25)3
DAVID PFEIFERDIRECTOR (EFF 5/3/25)3
KRISTIN SCHNEEMANDIRECTOR3
MARG SUTHERLANDDIRECTOR2
ABRAR TANVEERDIRECTOR2
KIM TORRESDIRECTOR2
JARY LARSENDIRECTOR (THRU 5/4/25)4
SUSAN L-J DICKINSONCHIEF EXECUTIVE OFFICER36$320,026
MITCH APPLESONCHIEF OPERATING OFFICER38$255,015
PENNY DACKSSR DIRECTOR OF SCIENTIFIC INITIATIVES30$226,491
SHARON DENNYSR DIRECTOR OF PROGRAMS40$174,174
PETER WITZLEBDIRECTOR OF IT40$168,866
SHANA DODGEDIRECTOR OF RESEARCH ENGAGEMENT40$152,910
PHILLIP JOHN WEICHELSR DIRECTOR OF ADVANCEMENT40$157,933

Subject Areas

Focus areas based on grantmaking activity

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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