PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES, AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; (CONTINUED IN SCH O) EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$60.1M
+11.4% YoY
Annual Giving
$1.5M
-38.7% YoY
Grant Count
6
-40.0% YoY
Avg Grant Size
$258K
+2.1% YoY
About The Association for Frontotemporal
Based on IRS filings
The Association for Frontotemporal is a nonprofit organization focused on Medical Research, based in KING OF PRUSSIA, PA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $60.1M in total assets. In 2025, it awarded 6 grants totaling $1.5M. Net investment income was $1.9M.
Focus Areas
Ready to take the next step with The Association for Frontotemporal?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $60,143,025 | $53,971,673 | $47,470,345 |
| Revenue | $14,420,554 | $13,139,120 | $8,537,416 |
| Expenses | $11,559,795 | $11,526,939 | $9,663,807 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $1,935,108 | $899,785 | $-35,633 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
Grant Size Distribution
43 grants across all recorded years
Open Grants
6 open opportunities from The Association for Frontotemporal
Accelerating Drug Discovery Grant
THE ASSOCIATION FOR FRONTOTEMPORAL
Amount
Varies
Deadline
Rolling / Open
AFTD Holloway Fellowships
THE ASSOCIATION FOR FRONTOTEMPORAL
Amount
Varies
Deadline
Rolling / Open
Clinical Research Training Scholarship in FTD
THE ASSOCIATION FOR FRONTOTEMPORAL
Amount
Varies
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2025 grants, the largest include Alzheimer's Drug Discovery Foundation ($700,000), The Ftd Disorders Registry ($287,374), Washington University in St Louis ($230,000).
| Recipient | Purpose | Amount |
|---|---|---|
| ALZHEIMER'S DRUG DISCOVERY FOUNDATION NEW YORK, NY | ADDF/AFTD DRUG DISCOVERY PROGRAM AND TREAT TREATFTD THERAPEUTIC INITIATIVE | $700,000 |
| AMERICAN BRAIN FOUNDATION MINNEAPOLIS, MN | CLINICAL RESEARCH SCHOLARSHIPS | $100,000 |
| THE FTD DISORDERS REGISTRY KING OF PRUSSIA, PA | FTD PATIENT REGISTRY | $287,374 |
| WASHINGTON UNIVERSITY IN ST LOUIS ST LOUIS, MO | PATHWAYS FOR HOPE PILOT GRANT | $230,000 |
| UNIVERSITY OF TEXAS AT AUSTIN AUSTIN, TX | WELL-BEING IN FTD PILOT GRANT | $109,994 |
| STANFORD UNIVERSITY STANFORD, CA | HOLLOWAY POSTDOCTORAL FELLOWSHIP | $120,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| RITA CHOULA | CHAIR | 4 | — |
| GAIL ANDERSON | VICE CHAIR | 4 | — |
| VALERIE SNOW | SECRETARY | 4 | — |
| JULIE KELLY | TREASURER | 4 | — |
| HALIMA AMJAD | DIRECTOR | 3 | — |
| KYLE BIRMINGHAM | DIRECTOR | 3 | — |
| HELEN-ANN COMSTOCK | DIRECTOR | 3 | — |
| JOE ESPOSITO | DIRECTOR (EFF 5/3/25) | 2 | — |
| JILL GOLDMAN | DIRECTOR | 2 | — |
| KRISTIN HOLLOWAY | DIRECTOR | 2 | — |
| SHOSHANA KRILOW | DIRECTOR | 3 | — |
| JOSEPH MARQUEZ | DIRECTOR | 2 | — |
| LENN MARQUEZ | DIRECTOR (EFF 5/3/25) | 3 | — |
| KATHY MELE | DIRECTOR | 3 | — |
| DON NEWHOUSE | DIRECTOR | 2 | — |
| GIRISH PATANGAY | DIRECTOR (EFF 5/3/25) | 3 | — |
| DAVID PFEIFER | DIRECTOR (EFF 5/3/25) | 3 | — |
| KRISTIN SCHNEEMAN | DIRECTOR | 3 | — |
| MARG SUTHERLAND | DIRECTOR | 2 | — |
| ABRAR TANVEER | DIRECTOR | 2 | — |
| KIM TORRES | DIRECTOR | 2 | — |
| JARY LARSEN | DIRECTOR (THRU 5/4/25) | 4 | — |
| SUSAN L-J DICKINSON | CHIEF EXECUTIVE OFFICER | 36 | $320,026 |
| MITCH APPLESON | CHIEF OPERATING OFFICER | 38 | $255,015 |
| PENNY DACKS | SR DIRECTOR OF SCIENTIFIC INITIATIVES | 30 | $226,491 |
| SHARON DENNY | SR DIRECTOR OF PROGRAMS | 40 | $174,174 |
| PETER WITZLEB | DIRECTOR OF IT | 40 | $168,866 |
| SHANA DODGE | DIRECTOR OF RESEARCH ENGAGEMENT | 40 | $152,910 |
| PHILLIP JOHN WEICHEL | SR DIRECTOR OF ADVANCEMENT | 40 | $157,933 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Association for Frontotemporal?
The Association for Frontotemporal is a nonprofit organization focused on Medical Research, based in KING OF PRUSSIA, PA. It holds $60.1M in total assets as of 2025.
How large is The Association for Frontotemporal?
As of 2025, The Association for Frontotemporal holds $60.1M in total assets with $14.4M in annual revenue. It awarded 6 grants totaling $1.5M in 2025.
Where does The Association for Frontotemporal operate?
The Association for Frontotemporal has awarded grants in California, Georgia, Massachusetts, Maryland, Michigan, Minnesota, Missouri, New York, Ohio, Oregon, Pennsylvania, Texas.
What size grants does The Association for Frontotemporal award?
In 2025, The Association for Frontotemporal awarded 6 grants totaling $1.5M — an average of about $258K per grant, based on its IRS Form 990 filings.
What is The Association for Frontotemporal's EIN?
The Association for Frontotemporal's EIN (Employer Identification Number) is 41-2073220. IRS Form 990 filing data is available on this page for 2021–2025.
Explore Open Grants
Browse active grant opportunities in The Association for Frontotemporal's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
National Philanthropic Trust
JENKINTOWN, PA
Assets
$42.2B
Grants
18,583
Total Given
$5.1B
Morgan Stanley Global Impact Funding Trust Inc
INDIANAPOLIS, IN
Assets
$9.1B
Grants
19,253
Total Given
$1.2B
Amyotrophic Lateral Sclerosis Assn
ARLINGTON, VA
Assets
$107.2M
Grants
143
Total Given
$8.4M
Alzheimer's Disease & Related Disorders
CHICAGO, IL
Assets
$523.7M
Grants
79
Total Given
$73.3M
Johns Hopkins University
BALTIMORE, MD
Assets
$23.0B
Grants
757
Total Given
$467.3M
American Heart Association Inc
DALLAS, TX
Assets
$1.9B
Grants
794
Total Given
$227.6M
Vanguard Charitable Endowment Program
SOUTHEASTERN, PA
Assets
$22.2B
Grants
24,269
Total Given
$3.0B
Bristol-myers Squibb Foundation Inc
PRINCETON, NJ
Assets
$83.3M
Grants
144
Total Given
$67.7M
The Michael J Fox Foundation
NEW YORK, NY
Assets
$439.0M
Grants
142
Total Given
$240.2M
Trustees of Tufts College
MEDFORD, MA
Assets
$4.7B
Grants
139
Total Given
$26.6M
Northwestern University
EVANSTON, IL
Assets
$19.2B
Grants
375
Total Given
$122.4M
Kpmg Us Foundation Inc
MONTVALE, NJ
Assets
$13.2M
Grants
369
Total Given
$25.3M
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with The Association for Frontotemporal on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities
Go from researching The Association for Frontotemporal to a real strategy.