The Parent Project for Muscular Dystrophy Research Inc logo

Upper Extremity Exoskeleton Research Grant - NJIT & Talem Technologies

The Parent Project for Muscular Dystrophy Research Inc

Funding Amount

$600,000

Deadline

Deadline not published

Grant Type

Foundation

Deadline history & next window

Cycle
One-time opportunity
Tracked since
April 2026

Source: the cycle recorded on this listing. Confirm dates with the funder.

Can we apply?

Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.

Other requirements

  • United States
  • Non-ambulatory members of the Duchenne community eligible for participation in research study
  • Competitive award to research institutions and companies

Overview

Focus Area: Robotic exoskeleton development and clinical research for Duchenne muscular dystrophy

Background

This grant represents the next phase of PPMD's Robotics Initiative, funding a partnership between the New Jersey Institute of Technology (NJIT) and Talem Technologies. The project builds on successful collaboration between biomedical engineers who have tested technology, worked with the Duchenne community, and refined the technology based on community feedback.

Project Description

The upper-extremity exoskeleton developed by Talem Technologies was further refined in collaboration with biomedical engineers at NJIT to accept modular robotic assistance technology. This is the first of its kind to provide intuitive robotic guidance controls and motorized assistance to people with Duchenne, allowing them to continue to use their arms as their muscles weaken.

Technology Features:

  • Uses admittance control, a robotic control paradigm where the motion of the robot is controlled by the magnitude and direction of force applied by the user's arm
  • Minimizes friction and inertia compared to passive arm supports
  • Provides precise compensation against gravity
  • Reduces exertion necessary to move a limb, particularly vertically
  • Wheelchair-mountable passive arm supports provided initially
  • Modular upgrade to partially motorize arm support after several months

Community Involvement

The exoskeleton development is driven by families with Duchenne. Zach Smith has been a key innovator on this technology, along with more than a dozen young men who provided counsel and guidance to product developers and engineers.

Eligibility

  • Non-ambulatory members of the Duchenne community eligible for participation in research study
  • Competitive award to research institutions and companies

Contact Information

  • Phone: 1-800-714-5437
  • Email: info@parentprojectmd.org
  • Address: 1012 14th Street, NW, Suite 500, Washington, DC 20005
  • Website: parentprojectmd.org

How to Apply

How to Participate in Research

If you are a non-ambulatory member of the Duchenne community, you may be eligible to participate in this research effort.

Steps to Participate:

  1. Click the link provided on PPMD's website to learn more about participation in the next phase of this trial
  2. Contact PPMD for more information about enrollment and eligibility requirements

Contact PPMD:

  • Phone: 1-800-714-5437
  • Email: info@parentprojectmd.org

What The Parent Project for Muscular Dystrophy Research Inc actually gave

Source: IRS Form 990, 2025

Grants in 2025
22
Total given
$1.35M
Median grant
$27K
Range
$7,500–$300K
  • By dollars: Florida 42%, Ohio 14%, Massachusetts 11%. Top recipient cities: Gainesville, FL; Columbus, OH; Boston, MA.
  • 0% of grants with a stated purpose were for general or operating support.
  • 24% of recipients were new grantees, not repeat recipients.

Example grants

  • University of Florida Foundation · Gainesville, FL

    Research- preclinical therapeutic assessment lab

    $300K

  • University of Florida Board of Trustees · Gainesville, FL

    Research- wellstone supplement

    $200K

  • Ohio State University · Columbus, OH

    Research- patient preference

    $135K

  • Critical Path · Tucson, AZ

    Research- support of duchenne regulatory science consortium

    $100K

  • The General Hospital Corp DBS Massachusetts General Hospital · Boston, MA

    Research- fellowship

    $100K

IRS Form 990, 2025. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Science research
  • Disabled

Categories

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