Parent Project Muscular Dystrophy (PPMD) is a 501(c)(3) nonprofit organization headquartered in Washington, DC, dedicated to ending Duchenne muscular dystrophy. Founded in 1994, PPMD operates as the largest and most comprehensive nonprofit organization in the United States focused on finding a cure for Duchenne. The organization combines research funding, policy advocacy, care standards development, and community support to address this fatal genetic disorder that affects young men.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$12.6M
+20.4% YoY
Annual Giving
$2.5M
-0.5% YoY
Grant Count
29
+38.1% YoY
Avg Grant Size
$85K
-27.9% YoY
Mission & Focus Areas
Mission: Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
Primary Focus Areas:
Research & Therapy Development: Identifies and funds promising near- and long-term therapeutic strategies for Duchenne and Becker muscular dystrophy. Invests across the development pipeline from basic science to clinical application. Operates the Venture Pathways Program, which invests in early-stage biopharmaceutical companies developing novel treatments.
Policy & Advocacy: Raises voices in Washington to impact federal policy and regulatory conversations. Advocacy efforts have secured hundreds of millions of dollars in federal funding for Duchenne research and contributed to eight FDA approvals.
Care Standards & Access: Demands optimal care standards and ensures families have access to expert healthcare providers, cutting-edge treatments, and community support. Works to ensure access to approved therapies.
Patient Data & Registry: Maintains The Duchenne Registry, established in 2007, which is the largest patient-reported data repository for individuals living with Duchenne and Becker muscular dystrophy and carrier females. The registry strengthens understanding of the disorder and improves care.
Community Education & Support: Strengthens, unites, and educates the global Duchenne community through programs and resources.
Grantmaking
PPMD actively funds research and collaborative projects:
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Geographic Focus
Where this funder awards grants
PPMD operates nationally and internationally, with headquarters in Washington, DC. The organization works to strengthen and educate the global Duchenne community.
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
2024 Financial Data:
- Total Revenues: $14,311,761
- Total Expenses: $12,881,402
- Total Assets: $12,567,424
2023 Financial Data:
- Total Revenues: $13.9M
- Total Expenses: $12.1M
- Total Assets: $10.4M
- Total Liabilities: $635k
Staffing: 27 employees
Rating: Four-Star charity with a 100% score based on Accountability & Finance metrics.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $12,567,424 | $10,440,900 | $8,648,654 |
| Revenue | $14,311,761 | $13,881,085 | $10,753,014 |
| Expenses | $12,881,402 | $12,112,486 | $11,037,641 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $150,586 | $88,569 | $41,696 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
138 grants across all recorded years
Open Grants
3 open opportunities from The Parent Project for Muscular
CRISPR/Cas9 Technology Research Grant - UT Southwestern Medical Center
THE PARENT PROJECT FOR MUSCULAR
Amount
$250,000
Deadline
Rolling / Open
Robotics Initiative - Talem Technologies X-Ar Exoskeleton Grant
THE PARENT PROJECT FOR MUSCULAR
Amount
$70,000
Deadline
Rolling / Open
Upper Extremity Exoskeleton Research Grant - NJIT & Talem Technologies
THE PARENT PROJECT FOR MUSCULAR
Amount
$600,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Cincinnati Children's Hospital Mc ($617,000), University of Florida Foundation ($300,000), University of Rochester Medical Center ($210,000).
| Recipient | Purpose | Amount |
|---|---|---|
| ANALYSIS GROUPCTAP BOSTON, MA | RESEARCH- SUPPORT OF COLLECTIVE ANALYSIS TRAJECTORY PROJECT | $40,000 |
| ARKANSAS CHILDREN'S HOSPITAL LITTLE ROCK, AR | RESEARCH- NEWBORN SCREENING | $15,000 |
| ARKANSAS CHILDREN'S HOSPITAL LITTLE ROCK, AR | RESEARCH- DORI EHR PROGRAM | $57,603 |
| CINCINNATI CHILDREN'S HOSPITAL MC CINCINNATI, OH | RESEARCH- NEWBORN SCREENING | $25,000 |
| CINCINNATI CHILDREN'S HOSPITAL MC CINCINNATI, OH | RESEARCH- ACTION NETWORK GRANT | $617,000 |
| CRITICAL PATH TUCSON, AZ | RESEARCH - SUPPORT OF DUCHENNE REGULATORY SCIENCE CONSORTIUM | $100,000 |
| NATIONWIDE CHILDREN'S HOSPITAL COLUMBUS, OH | RESEARCH - MEETING SUPPORT | $60,000 |
| NORTHWESTERN UNIVERSITY EVANSTON, IL | RESEARCH - WELLSTONE SUPPLEMENT | $73,500 |
| NYU LANGONE HEALTH NEW YORK, NY | RESEARCH - GENE THERAPY | $200,000 |
| NEW YORK UNIVERSITY NEW YORK, NY | RESEARCH - PEDIATRIC THERAPY MEDICAL ETHICS | $100,000 |
Leadership & Key People
Leadership team and compensation from IRS filings
- Patricia Furlong — President & Founder
- Katherine Beaverson — CEO
- Nicole Herring — Volunteer Coordinator
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| GRETCHEN EGNER | BOARD CHAIRMAN | 8 | — |
| ALPA KHUSHALANI | VICE CHAIR | 8 | — |
| DAWN REZKALLA | TREASURER | 6 | — |
| DEANNE FRIAR | SECRETARY | 6 | — |
| DAVID N HOFSTEIN | EXECUTIVE COMMITTEE | 6 | — |
| SUE APKON | DIRECTOR | 2 | — |
| JEFFREY BIGELOW | DIRECTOR | 2 | — |
| MARU CHAPUR | DIRECTOR | 2 | — |
| TIMOTHY CRIPE | DIRECTOR | 2 | — |
| MICHELLE FURLONG | DIRECTOR | 2 | — |
| LANCE HESTER | DIRECTOR | 2 | — |
| SUSAN HUANG | DIRECTOR | 2 | — |
| JOHN KILLIAN | DIRECTOR | 2 | — |
| RICHARD KLEIN | DIRECTOR | 2 | — |
| SCOTT PERRIN | DIRECTOR | 2 | — |
| COLIN RENSCH | DIRECTOR | 2 | — |
| PATRICIA A FURLONG | PRESIDENT AND CEO | 40 | $370,075 |
| KAYLAN MOITOSO | CHIEF BUSINESS OFFICER | 40 | $293,650 |
| JODI WOLFF | CHIEF PROGRAM OFFICER | 40 | $194,569 |
| ANN MARTIN | VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SERV. | 40 | $176,600 |
| RACHEL SCHRADER | VICE PRESIDENT, CLINICAL CARE & EDUCATION | 40 | $174,800 |
Recent News & Activity
Recent developments and announcements
**Race to End Duchenne Program:** Celebrated its 20th anniversary in January 2025, with 185 team members participating in the Walt Disney World Marathon Weekend in Orlando, Florida.
**Research Collaborations:** PPMD joined collaborative research efforts to decode how human muscle regenerates, expanding its research portfolio beyond direct funding.
Parent Project Muscular Dystrophy Awards $250,000 to Support Clinical Research**Newborn Screening Initiative:** Awarded funding to support clinical research networks for Duchenne babies identified through newborn screening programs, indicating expansion into early detection and intervention.
Parent Project Muscular Dystrophy Awards $250,000 to Support Clinical ResearchSubject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What does The Parent Project for Muscular fund?
**Mission:** Parent Project Muscular Dystrophy fights to end Duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies. **Primary Focus Areas:** • **Research & Therapy Development:** Identifies and funds promising near- and long-term therapeutic strategies for Duchenne and Becker muscular dystrophy. Invests across the development pipeline from basic science to clinical application. Operates…
How do I apply for a grant from The Parent Project for Muscular?
PPMD actively funds research and collaborative projects: **Recent Grant Awards:** • $250,000 awarded to support a clinical research network for Duchenne babies identified by newborn screening • $500,000 (jointly with Duchenne UK) awarded to evaluate safety and tolerability of muscle progenitor cells in a Phase 1 trial • $450,000 awarded to collaborative Duchenne muscular dystrophy care projects **Funding Approach:** • Funds academic and pre-clinical research • Invests in early-stage biopharmace…
Where does The Parent Project for Muscular make grants?
PPMD operates nationally and internationally, with headquarters in Washington, DC. The organization works to strengthen and educate the global Duchenne community.
What size grants does The Parent Project for Muscular award?
In 2024, The Parent Project for Muscular awarded 29 grants totaling $2.5M — an average of about $85K per grant, based on its IRS Form 990 filings.
What is The Parent Project for Muscular's EIN?
The Parent Project for Muscular's EIN (Employer Identification Number) is 31-1405490. IRS Form 990 filing data is available on this page for 2019–2024.
Explore Open Grants
Browse active grant opportunities in The Parent Project for Muscular's focus areas in our free grants database
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Data last updated June 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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