Travel Support Package
Funding Amount
Not stated
Deadline
Deadline not published
Grant Type
Foundation
Can we apply?
Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.
Geography
- Residency: Must reside within the United States
Other requirements
- Age: 13 years of age or older (expanded in March 2026 to include teens; previously available only to adults)
- Diagnosis: Confirmed SMA diagnosis required
- Applicants: Parents or guardians may assist teens with the application process
Overview
Geographic Scope: United States only
Purpose: Help individuals with SMA travel by air more safely, comfortably, and with greater peace of mind
Eligibility:
- Age: 13 years of age or older (expanded in March 2026 to include teens; previously available only to adults)
- Diagnosis: Confirmed SMA diagnosis required
- Residency: Must reside within the United States
- Applicants: Parents or guardians may assist teens with the application process
What is Included:
The Travel Support Package provides recommended assistive travel equipment:
- Portable transfer sling
- AirTag and holder for tracking mobility devices
- Supportive travel pillow
- Customizable signage materials
- Portable inflight foot stool
Additional Resources:
Cure SMA offers complementary travel resources:
- Travel Resources webpage
- Downloadable travel guides
- Air travel advocacy tools
- Educational webinars
Program Status: Active; expanded in March 2026 to include teens
Sponsors/Funders:
- Biogen
- Genentech
- Reach4Sky
Contact Information:
- Phone: (800) 886-1762
- Email: [email protected]
- Address: 50 E Commerce Dr, Suite 90, Schaumburg, IL 60173
How to Apply
How to Apply
- Visit the Request Form: Access the Travel Support Package request form on Cure SMA's website
- Complete the Application: Fill out the form with required information
- Provide Required Information:
- Confirmed SMA diagnosis
- Proof of U.S. residency
- Age confirmation (13 years or older)
- Submit: Submit completed form through the online portal
Assistance Available: Parents or guardians may assist teens with the application process as needed.
Additional Resources:
- Updated age eligibility requirements are outlined in the request form
- For more information, visit Cure SMA's website or contact them directly
What Families of Spinal Muscular Atrophy DBA Cure Sma actually gave
Source: IRS Form 990, 2025
- Grants in 2025
- 9
- Total given
- $1.8M
- Median grant
- $230K
- Range
- $915–$347K
- By dollars: New York 30%, Illinois 25%, Massachusetts 19%. Top recipient cities: Chicago, IL; Boston, MA; New York, NY.
- 0% of grants with a stated purpose were for general or operating support.
Example grants
Boston Children's Hospital · Boston, MA
Pncr network & basic research
$347K
Ann & Robert H Lurie Children's Hospital of Chicago · Chicago, IL
Pncr network & basic research
$307K
Trustees of Columbia University - NYC · New York, NY
Pncr network & basic research
$307K
Leland Stanford Junior University · Stanford, CA
Pncr network
$253K
University of Rochester · Rochester, NY
Pncr network
$230K
Focus Areas & Funding Uses
Fields of Work
- Disabled
Categories
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