Funding Amount

Not stated

Deadline

Deadline not published

Grant Type

Foundation

Can we apply?

Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.

Geography

  • Residency: Must reside within the United States

Other requirements

  • Age: 13 years of age or older (expanded in March 2026 to include teens; previously available only to adults)
  • Diagnosis: Confirmed SMA diagnosis required
  • Applicants: Parents or guardians may assist teens with the application process

Overview

Geographic Scope: United States only

Purpose: Help individuals with SMA travel by air more safely, comfortably, and with greater peace of mind

Eligibility:

  • Age: 13 years of age or older (expanded in March 2026 to include teens; previously available only to adults)
  • Diagnosis: Confirmed SMA diagnosis required
  • Residency: Must reside within the United States
  • Applicants: Parents or guardians may assist teens with the application process

What is Included:
The Travel Support Package provides recommended assistive travel equipment:

  • Portable transfer sling
  • AirTag and holder for tracking mobility devices
  • Supportive travel pillow
  • Customizable signage materials
  • Portable inflight foot stool

Additional Resources:
Cure SMA offers complementary travel resources:

  • Travel Resources webpage
  • Downloadable travel guides
  • Air travel advocacy tools
  • Educational webinars

Program Status: Active; expanded in March 2026 to include teens

Sponsors/Funders:

  • Biogen
  • Genentech
  • Reach4Sky

Contact Information:

  • Phone: (800) 886-1762
  • Email: [email protected]
  • Address: 50 E Commerce Dr, Suite 90, Schaumburg, IL 60173

How to Apply

How to Apply

  1. Visit the Request Form: Access the Travel Support Package request form on Cure SMA's website
  2. Complete the Application: Fill out the form with required information
  3. Provide Required Information:
    • Confirmed SMA diagnosis
    • Proof of U.S. residency
    • Age confirmation (13 years or older)
  4. Submit: Submit completed form through the online portal

Assistance Available: Parents or guardians may assist teens with the application process as needed.

Additional Resources:

  • Updated age eligibility requirements are outlined in the request form
  • For more information, visit Cure SMA's website or contact them directly

What Families of Spinal Muscular Atrophy DBA Cure Sma actually gave

Source: IRS Form 990, 2025

Grants in 2025
9
Total given
$1.8M
Median grant
$230K
Range
$915–$347K
  • By dollars: New York 30%, Illinois 25%, Massachusetts 19%. Top recipient cities: Chicago, IL; Boston, MA; New York, NY.
  • 0% of grants with a stated purpose were for general or operating support.

Example grants

  • Boston Children's Hospital · Boston, MA

    Pncr network & basic research

    $347K

  • Ann & Robert H Lurie Children's Hospital of Chicago · Chicago, IL

    Pncr network & basic research

    $307K

  • Trustees of Columbia University - NYC · New York, NY

    Pncr network & basic research

    $307K

  • Leland Stanford Junior University · Stanford, CA

    Pncr network

    $253K

  • University of Rochester · Rochester, NY

    Pncr network

    $230K

IRS Form 990, 2025. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Disabled

Categories

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