Funding Amount

$1,000

Deadline

Deadline not published

Grant Type

Foundation

Deadline history & next window

Cycle
Annual
Tracked since
April 2026

Source: the cycle recorded on this listing. Confirm dates with the funder.

Overview

Funder: Child Neurology Foundation with support from Infantile Spasms Action Network (ISAN) partners

Focus Area: Family support for infantile spasms

Purpose: Assists families living with infantile spasms by offsetting expenses that may only be partially covered by insurance or not covered at all.

Geographic Scope: Not specified

Eligibility: Families living with infantile spasms

Approved Uses:

  • Durable medical equipment
  • Assistive technology
  • Therapy services
  • Respite care
  • Other insurance-uncovered expenses

Background: Introduced in 2018 by CNF with support from ISAN partners to expand family support opportunities beyond the Harnett Grant.

How to Apply

Application Process

  1. Submit application form
  2. Deadline: November 9 (annual)
  3. Winners selected at random from eligible applications
  4. Selected families notified in advance of Infantile Spasms Awareness Week (December 1-7)

Required Materials:

  • Application demonstrating family status with infantile spasms
  • Description of intended use of grant funds

Note: Specific application URL not provided in source material.

What Child Neurology Education and Research Foundation actually gave

Source: IRS Form 990, 2024

Grants in 2024
18
Total given
$231K
Median grant
$13K
Range
$6,000–$25K
  • By dollars: Massachusetts 17%, Missouri 14%, New York 11%. Top recipient cities: Boston, MA; Louisville, KY; St. Louis, MO.
  • 0% of grants with a stated purpose were for general or operating support.
  • 89% of recipients were new grantees, not repeat recipients.

Example grants

  • University of Louisville Research Foundation Inc · Louisville, KY

    2023 Quality Improvement Grants Continued - $25000

    $25K

  • Washington University · St Louis, MO

    2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant -…

    $19K

  • St Marys Hospital for Children · Bayside, NY

    2024 Quality Improvement Transition of Care Grant - $13000

    $13K

  • Regents of the University of Colorado Anschutz Medical Campus · Aurora, CO

    2024 Quality Improvement Transition of Care Grant - $13000

    $13K

  • Childserve Foundation Inc · Johnston, IA

    2024 Quality Improvement Care Coordination Grant - $13000

    $13K

IRS Form 990, 2024. Amounts as reported by the funder. Full 990 history →

Focus Areas & Funding Uses

Fields of Work

  • Hardship

Categories

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