IS Hope Award
Funding Amount
Not stated
Deadline
Deadline not published
Grant Type
Foundation
Deadline history & next window
- Cycle
- Annual
- Next expected
- October 20, 2027
- Tracked since
- April 2026
Deadlines typically fall in: October
From the program guidelines: “Nominations due by October 20 (annual deadline)”
Overview
Focus Area: Recognition award for families affected by infantile spasms
Purpose: Honors a family who has demonstrated courage in the face of their child's diagnosis of infantile spasms and has used their experience to help generate awareness of IS and educate other parents facing this condition.
Geographic Scope: Not specified
Eligibility: Families affected by infantile spasms who have contributed to awareness and education efforts
Background: Part of Infantile Spasms Awareness Week (December 1-7) recognition program. Nominations are accepted from the community.
How to Apply
Application Process
- Submit nomination form
- Nominations due by October 20 (annual deadline)
- Recipients announced November 7
Required Materials:
- Nomination submission with details about family's contributions to awareness and education
Note: Specific application URL and detailed form requirements not provided in source material.
What Child Neurology Education and Research Foundation actually gave
Source: IRS Form 990, 2024
- Grants in 2024
- 18
- Total given
- $231K
- Median grant
- $13K
- Range
- $6,000–$25K
- By dollars: Massachusetts 17%, Missouri 14%, New York 11%. Top recipient cities: Boston, MA; Louisville, KY; St. Louis, MO.
- 0% of grants with a stated purpose were for general or operating support.
- 89% of recipients were new grantees, not repeat recipients.
Example grants
University of Louisville Research Foundation Inc · Louisville, KY
2023 Quality Improvement Grants Continued - $25000
$25K
Washington University · St Louis, MO
2024 Swaiman Scholarship - $6000; 2024 Quality Improvement Transition of Care Grant -…
$19K
St Marys Hospital for Children · Bayside, NY
2024 Quality Improvement Transition of Care Grant - $13000
$13K
Regents of the University of Colorado Anschutz Medical Campus · Aurora, CO
2024 Quality Improvement Transition of Care Grant - $13000
$13K
Childserve Foundation Inc · Johnston, IA
2024 Quality Improvement Care Coordination Grant - $13000
$13K
Focus Areas & Funding Uses
Fields of Work
- Developmental disabilities
Categories
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