Porphyrias Fund Grant

Porphyrias Fund Grant

Status: ACTIVE
Funder: Healthwell Foundation
Amount: Up to US $4,000
Last Updated: February 07, 2026

Summary

The Porphyrias Fund, managed by the HealthWell Foundation, aims to alleviate financial burdens for underinsured patients suffering from porphyrias, a group of eight disorders characterized by the accumulation of porphyrins in the body. The fund assists with prescription drug copays and insurance premiums, offering up to $4,000 in financial aid. Established to ensure no patient lacks necessary treatment due to costs, the foundation has awarded over $1.2 billion since 2004, supporting more than 1.1 million patients.

Overview

Note: If we do not have a fund that currently covers your diagnosis, please check back as we frequently open and reopen programs as funding becomes available. The Foundation is able to help patients receiving treatment for indications for which we currently have an open fund. What We Do Our Mission: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. The HealthWell Foundation is a leading independent non-profit dedicated to improving access to health care for America’s underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses. In 2025, we awarded more than $1.1 billion in grants through our Disease Funds, and since 2004 we have helped more than 1,390,000 patients afford essential treatments and medications. HealthWell is recognized as one of America’s most efficient charities — 100 percent of every dollar donated goes directly to patient grants and services.We provide financial assistance to help with: Prescription copaysHealth insurance premiums, deductibles and coinsurancePediatric treatment costsTravel costsBehavioral health services Our Vision: To ensure that no patient goes without health care because they cannot afford it. Porphyrias About Porphyrias Porphyria is not a single disease but a group of at least eight disorders that differ considerably from each other. A common feature in all porphyrias is the accumulation in the body of porphyrins or porphyrin precursors. Although these are normal body chemicals, they normally do not accumulate. Precisely which of these chemicals builds up depends on the type of porphyria. The symptoms and treatment vary significantly from one type of Porphyria to the next. Fund Definition Assistance with the prescription drugs and biologics used in the treatment of porphyrias. Grant Utilization HealthWell estimates that patients use an average of $2,800 during their 12-month grant period for this disease area. Assistance Type Prescription Drug CopayInsurance premium (Medicare Part B only) Maximum Award Level $4,000 Pharmacy Card Fund Yes Minimum Copay Reimbursement Amount None Minimum Premium Reimbursement Amount None Treatments Covered Chloroquine PhosphateColchicineDeferoxamineGivlaariGivosiranPanhematinScenesse

Eligibility

You can learn more about this opportunity by visiting the funder's website. Household Income Limit500% of the Federal Poverty Level(adjusted for household size and high cost of living areas)Do I Qualify?HealthWell bases eligibility on an individual’s medical, financial and insurance situation. To qualify for HealthWell’s assistance, applicants must meet the following eligibility requirements:You are being treated for Porphyrias.We can only assist with medications that have been prescribed to treat the disease/covered diagnosis. You will be asked to provide the Foundation with the patient’s diagnosis, which must be verified by a physician, nurse practitioner, or physician assistant’s signature. The patient must receive treatment in the United States.You have insurance and it covers your medication.To qualify for copayment assistance from HealthWell, you must have some form of health insurance (private insurance, Medicare, Medicaid, TriCare, etc.) that covers part of the cost of your treatment. Please note that in order to qualify for premium assistance through this fund, you must have Medicare Part B.Your income falls within our guidelines.HealthWell assists individuals with incomes up to 300-500% of the Federal Poverty Level.The Foundation also considers the number in a household and cost of living in a particular city or state. If you believe you qualify for assistance, you may begin the application process here.You are receiving treatment in the United States.Please note that you will be asked to provide a Social Security Number in order to create a grant. This information is gathered to eliminate duplicate applications and is kept secure and confidential.

Ineligibility

The Foundation will refer patients without prescription insurance to other programs, such as manufacturer patient assistance programs.