Congenital Sucrase-Isomaltase Deficiency Fund Grant

Congenital Sucrase-Isomaltase Deficiency Fund Grant

Status: ACTIVE
Funder: Healthwell Foundation
Amount: Up to US $10,000
Last Updated: February 07, 2026

Summary

The Congenital Sucrase-Isomaltase Deficiency Fund, managed by the HealthWell Foundation, aims to alleviate financial burdens for underinsured patients suffering from this genetic disorder. By providing assistance with prescription drugs and treatment costs, the fund ensures that vital medications are accessible, allowing patients to manage their condition effectively. In 2024, the Foundation is expected to award over $1.2 billion in grants, showcasing its commitment to enhancing healthcare access for those in need.

Overview

Note: If we do not have a fund that currently covers your diagnosis, please check back as we frequently open and reopen programs as funding becomes available. The Foundation is able to help patients receiving treatment for indications for which we currently have an open fund. What We Do Our Mission: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. The HealthWell Foundation is a leading independent non-profit dedicated to improving access to health care for America’s underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses. In 2025, we awarded more than $1.1 billion in grants through our Disease Funds, and since 2004 we have helped more than 1,390,000 patients afford essential treatments and medications. HealthWell is recognized as one of America’s most efficient charities — 100 percent of every dollar donated goes directly to patient grants and services. We provide financial assistance to help with: Prescription copaysHealth insurance premiums, deductibles and coinsurancePediatric treatment costsTravel costsBehavioral health services Our Vision: To ensure that no patient goes without health care because they cannot afford it. Congenital Sucrase-Isomaltase Deficiency About Congenital Sucrase-Isomaltase Deficiency Congenital sucrase-isomaltase deficiency (CSID) is a genetic disorder that affects a person’s ability to digest certain sugars. People with this condition cannot break down the sugars sucrose and maltose, and other compounds made from simple sugar molecules (carbohydrates), which can cause diarrhea, abdominal pain, and other symptoms. Sucrose (a sugar found in fruits, and also known as table sugar) and maltose (the sugar found in grains) are called disaccharides because they are made of two simple sugars. Disaccharides are broken down into simple sugars during digestion. Fund Definition Assistance with the prescription drugs and biologics used in the treatment and management of congenital sucrase-isomaltase deficiency. Grant Utilization HealthWell estimates that patients use an average of $3,000 during their 12-month grant period for this disease area. Assistance Type Prescription Drug CopayInsurance premium (Medicare Part B only) Maximum Award Level $10,000 Pharmacy Card Fund Yes Minimum Copay Reimbursement Amount None Minimum Premium Reimbursement Amount None Treatments Covered Anti-diarrhealsEsomeprazole MagnesiumGas And Bloating TreatmentsMalabsorption TreatmentsNexiumSacrosidaseStomach Ache TreatmentsSucraid

Eligibility

You can learn more about this opportunity by visiting the funder's website. Do I Qualify?HealthWell bases eligibility on an individual’s medical, financial and insurance situation. To qualify for HealthWell’s assistance, applicants must meet the following eligibility requirements:You are being treated for Congenital Sucrase-Isomaltase Deficiency.We can only assist with medications that have been prescribed to treat the disease/covered diagnosis. You will be asked to provide the Foundation with the patient’s diagnosis, which must be verified by a physician, nurse practitioner, or physician assistant’s signature. The patient must receive treatment in the United States.You have insurance and it covers your medication.To qualify for copayment assistance from HealthWell, you must have some form of health insurance (private insurance, Medicare, Medicaid, TriCare, etc.) that covers part of the cost of your treatment. Please note that in order to qualify for premium assistance through this fund, you must have Medicare Part B. Your income falls within our guidelines.HealthWell assists individuals with incomes up to 300-500% of the Federal Poverty Level.Household Income Limit 500% of the Federal Poverty Level(adjusted for household size and high cost of living areas)The Foundation also considers the number in a household and cost of living in a particular city or state. If you believe you qualify for assistance, you may begin the application process here.You are receiving treatment in the United States.Please note that you will be asked to provide a Social Security Number in order to create a grant. This information is gathered to eliminate duplicate applications and is kept secure and confidential.

Ineligibility

The Foundation will refer patients without prescription insurance to other programs, such as manufacturer patient assistance programs.