NF1 Basic & Translational Laboratory Scholars Program Grant
Funding Amount
Up to US $145,000
Deadline
Rolling / Open
Grant Type
Foundation
Can we apply?
Check your organization against each line. Taken from the listing; confirm with the funder's guidelines.
Eligible organizations
- Work at a non-profit research-focused institution, including federal and state research institutes.
Other requirements
- website.
- Hold a PhD (or equivalent doctoral degree) in a relevant scientific field.
- Be within 5 years of your first faculty (or faculty equivalent) appointment.
- With appropriate justification, candidates at for-profit research entities will be considered.
Overview
The NF1 Basic & Translational Laboratory Scholars Program, established by the Children's Tumor Foundation, aims to cultivate the next generation of NF1 researchers. This initiative supports early-career scientists by providing essential funding and mentorship, ensuring the continuity of research in NF1. With a focus on cutaneous neurofibromas and cognitive function, the program addresses the urgent need for innovative therapies and academic leadership in the NF community, following the cessation of federal funding for related research.
Background
The Neurofibromatosis Therapeutic Acceleration Program (NTAP) was inspired by two parents whose daughter was diagnosed with NF1 in 2007. Shocked to learn that despite NF1 being one of the world’s most common rare diseases there were no medical answers or approved drug therapies, they set about to create an organization -- The Children’s Tumor Foundation (CTF) -- that would focus on two of the most devastating symptoms of NF1: plexiform and cutaneous tumors. From their own experiences, they knew the importance of leadership programs and they were committed to establishing a program to train the next generation of clinician scientists in NF1.
The foundation for NTAP was sealed when they met Dr. Jaishri Blakeley at Johns Hopkin University. Her creativity, drive and kindness were matched only by her desire to deliver therapeutic results. Together these parents, Dr. It is this vision and collaboration that continues to inspire NTAP’s work each day.
Program overview
The Neurofibromatosis (NF) community has long benefited from the essential work of discovery and translational scientists. To help cultivate the next generation of leaders in NF1 research, NTAP at Johns Hopkins University has launched the NF1 Basic and Translational Laboratory Scholars Program—an initiative designed to support outstanding early-career scientists dedicated to advancing basic and translational research in NF1.
This program was developed in direct response to the termination of funding for the CDMRP Neurofibromatosis Research Program in 2025 and the resulting pause in the NF Research Academy. While NTAP expects the program’s eventual federal reinstatement, this new initiative offers critical interim support to ensure the momentum of NF1 research continues uninterrupted—and that the field’s emerging leaders receive the mentorship and resources they need to thrive.
Program Highlights
Target Audience: Early-stage research faculty (PhD or equivalent) in their first professional appointment and establishing independent labs focusing on NF1.
Support Includes: Laboratory salary support, research expenses, travel and education expenses and comprehensive mentorship.
Collaborative Environment: Scholars will work closely with clinicians and scientific thought leaders in the field.
Focus Areas: All NF1 topics welcomed, with special emphasis on cutaneous neurofibromas and cognitive function/development.
Professional Development: Training in communication, grant writing, regulatory topics, team science, and community engagement.
Program Goals
Build a diverse community of NF1-focused scientistsAccelerate impactful NF1 basic and translational researchPrepare scholars for long-term leadership in academia, government, or industry research focused on NF1Position scholars for future funding success (e.g., R01, U01, foundation grants).
This program complements the Children’s Tumor Foundation’s Young Investigator Award and represents a critical bridge to sustain momentum in NF1 science until long-term federal support resumes. The award will consist of:
Up to $100,000 per year for laboratory personnel, inclusive of fringe benefits*
Eligibility
We've imported the main document for this grant to give you an overview. You can learn more about this opportunity by visiting the funder's website. Hold a PhD (or equivalent doctoral degree) in a relevant scientific field. Be within 5 years of your first faculty (or faculty equivalent) appointment. Work at a non-profit research-focused institution, including federal and state research institutes. With appropriate justification, candidates at for-profit research entities will be considered. Demonstrate a track record of academic and research excellence. Show a strong commitment to NF1-focused research.Have a mentorship committee, including at least one lead mentor with expertise in NF1. Secure institutional support, including: Access to appropriate facilities and administrative resourcesMentorship infrastructure and commitment to oversightWillingness to comply with all of NTAP's funding requirements.What Children's Tumor Foundation actually gave
Source: IRS Form 990 filing, 2024
- Grants in 2024
- 50
- Total given
- $4.22M
- Median grant
- $40K
- Range
- $5,095–$450K
- By dollars: Pennsylvania 13%, Massachusetts 12%, Missouri 10%. Top recipient cities: Boston, MA; Seattle, WA; Philadelphia, PA.
- 0% of grants with a stated purpose were for general or operating support.
- 28% of recipients were new grantees, not repeat recipients.
Example grants
Massachusetts General Hospital · Boston, MA
Research - contract award, yia, ddi, cra and nf clinic network
$450K
Washington University · St Louis, MO
Research - contract award and yia
$438K
The Regents of the University of California · Los Angeles, CA
Research - contract award, yia and nfcn
$336K
Sage Bionetworks · Seattle, WA
Research - contract award
$329K
National Cancer Institute · Pittsburg, PA
Research - contract award and cra
$243K
Focus Areas & Funding Uses
Fields of Work
- Science research
Categories
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