Galactosemia Foundation Research Grant Program

Galactosemia Foundation Research Grant Program

Overview: The Galactosemia Foundation provides funding for scientific and medical research related to the identification, treatment, and therapies related to classical galactosemia. The goal of this research initiative is to improve the lives of people with galactosemia.

Geographic Scope: Not specified (appears to be international)

Focus Areas:
Preferential consideration will be given to:

Premature ovarian insufficiency/failure (POI/POF)

Neurological deficits (tremors, seizures, movement disorders, etc.)

Bone health

Cognition and aging

Identification and treatment of complications related to Classic Galactosemia

Causes of variability of outcomes

Treatments or cures

Sequela of Classic Galactosemia through the lifespan

All galactosemia-related research projects will be evaluated and considered.

Eligible Project Types

Four kinds of project designs are eligible:

A. Research Projects: Rigorous systematic investigations answering research questions, including but not limited to:

Investigations of measurable outcomes in galactosemia care

Epidemiology of galactosemia

Novel treatments for galactosemia

Questions involving genetics, nutrition, diet, speech, physical and occupational therapy, and premature ovarian failure

B. Clinical Projects: Seeking to improve galactosemia care through development of tools that may augment care delivery, including but not limited to:

Development of clinical pathways

Creation of measurement tools (e.g., to assess quality of life)

C. Educational Projects: Designs or implements relevant educational programs, develops educational materials, or develops innovative educational tools for patients and the community

D. Collaborative Meetings: Funds collaborative meetings among professionals that may lead to future research projects

Grant Structure

Two-Stage Process:

Stage 1: Initial application submission (competitive)

Stage 2: By invitation only after Stage 1 review

Stage 1 submission is mandatory for Stage 2 consideration

Final award decision made by Galactosemia Foundation based on Stage 2 results

Funding Amount

Grants generally are between $10,000 and $50,000, depending upon the scope of the research, clinical, educational, or collaborative project. Grant amounts are dependent on the amount of money available in the Galactosemia Foundation Research Fund.

Grant Duration

Once awarded, the grant is for 1 year from time of receiving the awarded money.

Contact Information

Email: research@galactosemia.org

Address: Galactosemia Foundation, 350 Northern Blvd., STE 324-1079, Albany, NY 12204-1000

Research Funded to Date

The Galactosemia Foundation has awarded over $931,595 to fund galactosemia-related research since 2007.

Important Timeline (2024-2026 Cycle)

• Stage 1 submission deadline: September 30, 2024
• Stage 1 results announcement: November 15, 2024
• Stage 2 submission deadline: January 13, 2025
• Stage 2 results announcement: April 2025
• Award disbursement: May 2025