EB Research Project Grants

EB Research Project Grants

Funder: EB Research Partnership (EBRP), a 501(c)(3) non-profit organization

Focus Area: Research projects with potential to lead directly to commercially feasible products and therapies for treating and/or curing Epidermolysis Bullosa (EB)

Geographic Scope

Global

Funding Model

Venture Philanthropy Model: EBRP employs a venture philanthropy model for all funded projects (unless specific waiver granted). The organization negotiates a financial interest in funded research. If research leads to commercially successful therapy, returns are used to fund additional EB research.

Award Period

• Initial grants awarded for 1 year
• Multi-year applications permitted with proposed timeline and milestones
• Potential for annual renewal for up to 5 years depending on initial year success and funding availability

Eligible Project Types

• Clinical trial work (strongly preferred)
• Pre-clinical work (must include detailed plan and timeline for commercialization)
• Repurposing existing drugs or products for EB (if expected to significantly impact patient quality of life)
• Localized or systemic benefit approaches
• Research-enabling tools (data collection/analysis platforms to accelerate clinical trials)

Project Selection Criteria

Research projects should:
• Be designed to result in creation of EB therapies with aim of commercialization within 1-4 years
• Prioritize approaches leading to meaningful step changes in quality of life and/or curative aims
• Include thoughts around commercial sustainability
• Not be concerned primarily with basic or open-ended research without intention to lead directly to commercially feasible EB therapies

Funding Restrictions

• Indirect costs limited to 5%
• Venture philanthropy model applies (unless waiver granted)
• Requires documentation of Humane Care and Use of Laboratory Animals and Human Subjects approvals when necessary

Compliance

• EBRP abides by Whistleblower Policy and Anti-Corruption Policy
• Evaluation by EBRP's Scientific Advisory Board (SAB)
• Final selection by EBRP's Executive Board
• Research contracts established with host institution(s) upon approval

Contact

Email: [email protected] Phone: 646-844-0902 Address: 244 Madison Ave Ste 104, New York, NY 10016