Amyotrophic Lateral Sclerosis Fund Grant

Amyotrophic Lateral Sclerosis Fund Grant

Status: ACTIVE
Funder: Healthwell Foundation
Amount: Up to US $15,000
Last Updated: August 13, 2025

Summary

The Amyotrophic Lateral Sclerosis Fund, managed by HealthWell Foundation, aims to alleviate financial barriers for underinsured patients battling ALS, a progressive neurodegenerative disease. The fund provides financial assistance for prescription copays, insurance premiums, and related healthcare expenses, ensuring patients can access vital treatments. With an average grant utilization of $3,000 over twelve months, the fund exemplifies HealthWell's commitment to ensuring no patient is denied necessary healthcare due to cost. Since 2004, HealthWell has awarded over $1.2 billion in grants, supporting more than 1.1 million patients.

Overview

Note: If we do not have a fund that currently covers your diagnosis, please check back as we frequently open and reopen programs as funding becomes available. The Foundation is able to help patients receiving treatment for indications for which we currently have an open fund. What We Do Our Mission: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. The HealthWell Foundation is a leading independent non-profit dedicated to improving access to health care for America’s underinsured. When health insurance is not enough, we fill the gap by assisting with copays, premiums, deductibles and out-of-pocket expenses. In 2024, we awarded more than $1.2 billion in grants through our Disease Funds, and since 2004 we have helped more than 1,100,000 patients afford essential treatments and medications. HealthWell is recognized as one of America’s most efficient charities — 100 percent of every dollar donated goes directly to patient grants and services. We provide financial assistance to help with: Prescription copaysHealth insurance premiums, deductibles and coinsurancePediatric treatment costsTravel costsBehavioral health services Our Vision: To ensure that no patient goes without health care because they cannot afford it. Amyotrophic Lateral Sclerosis About Amyotrophic Lateral Sclerosis (ALS) ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. The motor nerves affected by ALS are the motor neurons that provide voluntary movements and muscle control. Onset of the disease typically occurs in people between the ages of 40 and 70. There are two different types of ALS: sporadic and familial. Familial ALS is inherited, while sporadic ALS can affect anyone. Sporadic ALS is the most common form of ALS, accounting for 90 to 95 percent of all cases. ALS is approximately 20 percent more common in men than women. There is no cure for ALS. Fund Definition Assistance with the prescription drugs and biologics used in the treatment amyotrophic lateral sclerosis. Grant Utilization HealthWell estimates that patients use an average of $3,000 during their 12-month grant period for this disease area. Assistance Type Prescription Drug CopayInsurance premium (Medicare Part B only) Maximum Award Level $15,000 Pharmacy Card Fund Yes Minimum Copay Reimbursement Amount None Minimum Premium Reimbursement Amount None Treatments Covered BotoxCuvposaEdaravoneElavilExservanGabapentinGlycopyrrolateIncrelexNuedextaQalsodyRadicavaRecombinantRilutekRiluzoleTiglutik

Eligibility

You can learn more about this opportunity by visiting the funder's website. Do I Qualify?HealthWell bases eligibility on an individual’s medical, financial and insurance situation. To qualify for HealthWell’s assistance, applicants must meet the following eligibility requirements:You are being treated for Amyotrophic Lateral Sclerosis.We can only assist with medications that have been prescribed to treat the disease/covered diagnosis. You will be asked to provide the Foundation with the patient’s diagnosis, which must be verified by a physician, nurse practitioner, or physician assistant’s signature. The patient must receive treatment in the United States.You have insurance and it covers your medication.To qualify for copayment assistance from HealthWell, you must have some form of health insurance (private insurance, Medicare, Medicaid, TriCare, etc.) that covers part of the cost of your treatment. Please note that in order to qualify for premium assistance through this fund, you must have Medicare Part B.Your income falls within our guidelines.HealthWell assists individuals with incomes up to 300-500% of the Federal Poverty Level.The Foundation also considers the number in a household and cost of living in a particular city or state. If you believe you qualify for assistance, you may begin the application process here.You are receiving treatment in the United States.Please note that you will be asked to provide a Social Security Number in order to create a grant. This information is gathered to eliminate duplicate applications and is kept secure and confidential.For our Amyotrophic Lateral Sclerosis Fund, patients may apply for replenishment within 12 months subject to availability of funds.

Ineligibility

The Foundation will refer patients without prescription insurance to other programs, such as manufacturer patient assistance programs.