VHL Alliance Inc
The VHL Alliance is dedicated to research, education and support to improve awareness, diagnosis, treatment and quality of life for those affected by vhl disease.
VHL Alliance Inc at a glance
In short: VHL Alliance Inc reported $100K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.
- Grants paid (2025)
- $100,000 — reported as a total on the IRS filing, without an itemized list
- -40.0% vs 2024
- Total assets
- $2,563,651
- +10.7% vs 2024
- Revenue (2025)
- $1,175,753
- -23.5% vs 2024
- Net investment income (2025)
- $104,473
- +7.4% vs 2024
- Expenses (2025)
- $1,030,955
- +7.1% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who VHL Alliance Inc funds
How this funder distributes its grants
Grant Size Distribution
4 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 4 (75%).
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2025, annual grant giving ranged from $100K (2025) to $175K (2023). In 2025 it reported $100K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Texas Health Science Center at San Antonio San Antonio, TX | VHL Related Pheochromocytomas Study | $50,000 |
| University of Utah Salt Lake City, UT | Neurofibromin stabilization as a treatment strategy for vhl disease | $50,000 |
| University of Notre Dame Notre Dame, IN | Synthetic essentiality of trail/tnfsf10 in vhl-deficient renal cell carcinoma | $50,000 |
| MD Anderson Cancer Center Houston, TX | Immune modulation in von hippellindau disease by targeting the dna damage response network | $16,667 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $2,563,651 | $1,175,753 | $1,030,955 | $100,000 | Total only | $104,473 |
| 2024 | $2,316,168 | $1,537,754 | $962,808 | $166,667 | 4 | $97,272 |
| 2023 | $1,871,941 | $949,933 | $1,124,446 | $175,000 | Total only | $57,788 |
| 2022 | $2,201,865 | $1,073,740 | $980,202 | — | — | $3,556 |
| 2021 | $2,138,238 | $1,146,815 | $820,666 | — | — | $4,166 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About VHL Alliance Inc
Based on IRS filings
VHL Alliance Inc is a public charity focused on Health, based in Boston, MA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $2.6M in total assets. In 2025, it reported $100K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $104K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
VHL Alliance Inc is led by William Engel, Chair since 2025 (on filings since 2023); none of the 15 officers listed in 2025 report compensation.
Officers on the 2025 filing
William Engel
Chair
Director → Chair, 2025
On filings since 2023
5 hrs/week
No compensation reported
Cary Schwanitz
Director
Director → Secretary & Director, 2024
Secretary & Director → Director, 2025
On filings since 2021
5 hrs/week
No compensation reported
John Josey
Director
On filings since 2021
5 hrs/week
No compensation reported
Othon Iliopoulos MD PhD
Director
On filings since 2021
5 hrs/week
No compensation reported
Prashant Kudva
Director
On filings since 2021
5 hrs/week
No compensation reported
Rohan Nirody
Director
Director → Vice Chairperson, 2023
Vice Chairperson → Director, 2025
On filings since 2022
5 hrs/week
No compensation reported
Lee Willer Spector
Director
Director → Treasurer & Director, 2024
Treasurer & Director → Director, 2025
On filings since 2023
5 hrs/week
No compensation reported
Stacy Yates
Director
On filings since 2023
5 hrs/week
No compensation reported
Daffodil Baez
Director
On filings since 2024
5 hrs/week
No compensation reported
Daniel Batten
Director
On filings since 2024
5 hrs/week
No compensation reported
Michael Van Loon
Director
On filings since 2024
5 hrs/week
No compensation reported
Ruhee Dere
Director
New on the 2025 filing
5 hrs/week
No compensation reported
Seth Horwitz
Treasurer
Treasurer → Treasurer & Director, 2022
Treasurer & Director → Treasurer, 2025
On filings since 2021
5 hrs/week
No compensation reported
Kwame Garrett Price
Vice Chair
Director → Vice Chair, 2025
On filings since 2023
5 hrs/week
No compensation reported
Jacqueline Zarro
Secretary
Director → Secretary, 2025
On filings since 2024
5 hrs/week
No compensation reported
Former officers (12)
- Former: Connie Rath Ed (2021–2024) — Director
- Former: Stacy Lloyd MPH (2021–2024) — Chairperson
- Former: Camron King (2021–2023) — Director
- Former: Emily Billcheck (2021–2023) — Secretary & Director
- Former: Jennifer Galenkamp (2021–2023) — Director
- Former: Doug Karle (2021–2022) — Director
- Former: Ivy Xie (2021–2022) — Director
- Former: Julie Woodruff JD (2021–2022) — Director
- Former: Mark Pallansch (2021–2022) — Director
- Former: Rod Miller (2021–2022) — Director
- Former: Chandra Clark (2021) — Executive Di
- Former: Kevin Nichols (2021) — Director
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about VHL Alliance Inc
How much does VHL Alliance Inc give each year?
VHL Alliance Inc reported $100K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants. In 2024 it gave $167K across 4 grants.
How large is VHL Alliance Inc?
VHL Alliance Inc reported $2.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.2M.
What is VHL Alliance Inc?
VHL Alliance Inc is a public charity focused on Health, based in Boston, MA. It holds $2.6M in total assets as of 2025.
Where does VHL Alliance Inc operate?
VHL Alliance Inc has awarded grants in Indiana, Texas, Utah.
What is VHL Alliance Inc's EIN?
VHL Alliance Inc's EIN (Employer Identification Number) is 04-3180414. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS January 23, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS October 22, 2025)
- IRS filings on file for fiscal years 2021–2025
Live grants for the work VHL Alliance Inc funds
Health Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in VHL Alliance Inc's focus areas in our free grants database
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VHL Alliance Inc down — hundreds of funders to go?