THE VHL ALLIANCE IS DEDICATED TO RESEARCH, EDUCATION AND SUPPORT TO IMPROVE AWARENESS, DIAGNOSIS, TREATMENT AND QUALITY OF LIFE FOR THOSE AFFECTED BY VHL DISEASE.
Financial Overview
From 2025 IRS Form 990-PF · View filing
Total Assets
$2.6M
+10.7% YoY
Revenue
$1.2M
-23.5% YoY
Net Investment Income
$104K
+7.4% YoY
Expenses
$1.0M
+7.1% YoY
About Vhl Alliance Inc
Based on IRS filings
Vhl Alliance Inc is a nonprofit organization focused on Health, based in BOSTON, MA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $2.6M in total assets. Net investment income was $104K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $2,563,651 | $2,316,168 | $1,871,941 |
| Revenue | $1,175,753 | $1,537,754 | $949,933 |
| Expenses | $1,030,955 | $962,808 | $1,124,446 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $104,473 | $97,272 | $57,788 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
4 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2025 IRS filing
From 2025 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| WILLIAM ENGEL | CHAIR | 5 | — |
| KWAME GARRETT PRICE | VICE CHAIR | 5 | — |
| DAFFODIL BAEZ | DIRECTOR | 5 | — |
| STACY YATES | DIRECTOR | 5 | — |
| ROHAN NIRODY | DIRECTOR | 5 | — |
| MICHAEL VAN LOON | DIRECTOR | 5 | — |
| DANIEL BATTEN | DIRECTOR | 5 | — |
| CARY SCHWANITZ | DIRECTOR | 5 | — |
| JACQUELINE ZARRO | SECRETARY | 5 | — |
| PRASHANT KUDVA | DIRECTOR | 5 | — |
| LEE WILLER SPECTOR | DIRECTOR | 5 | — |
| OTHON ILIOPOULOS MD PHD | DIRECTOR | 5 | — |
| JOHN JOSEY | DIRECTOR | 5 | — |
| SETH HORWITZ | TREASURER | 5 | — |
| RUHEE DERE | DIRECTOR | 5 | — |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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