Together Strong NPC Foundation
Together Strong NPC Foundation is a private foundation, based in Wilmington, DE. IRS filing data is available from 2019 through 2022. In 2022, it awarded 5 grants totaling $638K. Net investment income was $4K.
Together Strong NPC Foundation at a glance
In short: Together Strong NPC Foundation gave $638K across 5 grants in 2022 (avg $128K), mostly in Illinois. Source: 2022 IRS Form 990-PF.
- Annual giving (2022)
- $638,177
- -20.0% vs 2021
- Grants made (2022)
- 5
- +0.0% vs 2021
- Average grant
- $127,635
- -20.0% vs 2021
- Median grant
- $75,000
- Primary geography
- Illinois (50% of itemized 2022 grant dollars)
- Latest 990 filing
- Form 990-PF, 2022 View filing
Data from IRS Form 990-PF, 2022; updated September 2026.
Who Together Strong NPC Foundation funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2022
The largest 2022 recipient was The Board of Trustees of the University of Illinoi ($322K). Together the top 4 received $638K.
Grant Size Distribution
20 grants across all recorded years
The most common grant size was in the $50–100K range: 7 grants of 20 (35%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2022 grant dollars across all 5 itemized grants.
Cities
How Together Strong NPC Foundation gives
- Giving held roughly steady from 2019 to 2022 (−14%). Method
- In 2022 it paid out well above its IRS minimum distribution (the 5% rule). Method
From the foundation's IRS Form 990-PF filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2022, annual grant giving ranged from $638K (2022) to $840K (2020). In 2022 it made 5 grants totaling $638K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The Board of Trustees of the University of Illinoi Urbana, IL | Biochemical Markers of NPC and Clinical Correlates fund | $321,750 |
| Eunice Kennedy Shriver National Institute of Child Bethesda, MD | Genomic and Phenotypic database for Niemann-Pick Disease, type C | $182,500 |
| Eunice Kennedy Shriver National Institute of Child Bethesda, MD | General & Unrestricted | $75,000 |
| Roma TRE University | General & Unrestricted | $43,283 |
| Ara Parseghian Medical Research Foundation Tucson, AZ | General & Unrestricted | $15,644 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Net Investment Income | Distributable Amount |
|---|---|---|---|---|---|---|---|---|
| 2022 | — | $4,223 | $652,346 | $638,177 | 5 | $652,345 | $4,222 | $2,859 |
| 2021 | $648,123 | $24,204 | $884,282 | $797,950 | 5 | $883,682 | $24,204 | $56,735 |
| 2020 | $1,508,201 | $13,541 | $953,517 | $839,950 | 6 | — | $13,391 | $101,751 |
| 2019 | $2,448,177 | $51,486 | $849,501 | $738,417 | 4 | — | $51,336 | $137,687 |
Under IRS private-foundation payout rules, Together Strong NPC Foundation reported a distributable amount of $3K for 2022 — the minimum it must pay out in qualifying distributions.
Leadership & Key People
Officers and directors from IRS filings
Together Strong NPC Foundation is led by Ellen Klein, Director & President on every filing since 2019; 1 of 5 officers listed in 2022 is compensated.
Officers on the 2022 filing
Ellen Klein
Director & President
On filings since 2019
8 hrs/week
$50K (2019) → $0 (2022)
Joe Kennedy
Director, Secretary & Treasurer
On filings since 2019
8 hrs/week
$30K (2019) → $4K (2022)
Doug Berns
Director
On filings since 2019
1 hr/week
No compensation reported
Frank Pfrieger
Director
On filings since 2019
1 hr/week
No compensation reported
Steven Silber
Director
On filings since 2019
1 hr/week
No compensation reported
Former officers (2)
- Former: Jayne Gershkowitz (2019–2020) — Director
- Former: Olaf Bodamer (2019–2020) — Director
Data from IRS Form 990 filings, 2019–2022. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2022 IRS filing
The highest reported compensation on the 2022 filing was $4K, to Joe Kennedy (Dir, Sec, Treas).
Frequently asked questions about Together Strong NPC Foundation
How much does Together Strong NPC Foundation give each year?
Together Strong NPC Foundation gave $638K across 5 grants in 2022, according to its 2022 IRS Form 990-PF. In 2021 it gave $798K across 5 grants.
What is Together Strong NPC Foundation's typical grant size?
Together Strong NPC Foundation's median grant in 2022 was $75,000, and its average grant was $127,635, across 5 grants on its 2022 IRS Form 990-PF.
Where does Together Strong NPC Foundation give grants?
Together Strong NPC Foundation gives mostly in Illinois: 50% of the grant dollars itemized on its 2022 IRS Form 990-PF went to recipients there. The next largest state was Maryland (40%). The most frequent recipient cities were Bethesda, MD (2 grants).
Does Together Strong NPC Foundation give general operating support?
Yes: 60% of Together Strong NPC Foundation's 2022 grants with a stated purpose (3 of 5) were for general or operating support, per its 2022 IRS Form 990-PF.
Who are Together Strong NPC Foundation's largest grantees?
Together Strong NPC Foundation's largest 2022 grantees include The Board of Trustees of the University of Illinoi ($321,750), Eunice Kennedy Shriver National Institute of Child ($257,500 across 2 grants) and Roma TRE University ($43,283), according to its 2022 IRS Form 990-PF. Together they received 98% of its itemized 2022 grant dollars.
How much is Together Strong NPC Foundation required to give away each year?
Private foundations must generally distribute about 5% of their assets annually. For 2022, Together Strong NPC Foundation reported a distributable amount of $3K on its IRS Form 990-PF — the minimum it must pay out in qualifying distributions.
What is Together Strong NPC Foundation's EIN?
Together Strong NPC Foundation's EIN (Employer Identification Number) is 82-1913775. IRS Form 990 filing data is available on this page for 2019–2022.
Data last updated September 2026. Sourced from IRS Form 990-PF filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Added Form 990-PF for fiscal year 2019 (received by the IRS July 2, 2020)
- IRS filings on file for fiscal years 2020–2022
Live grants for the work Together Strong NPC Foundation funds
Philanthropy, Voluntarism & Grantmaking Open opportunities, soonest deadline first.
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