The Wiedemann-Steiner Syndrome Foundation
The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by wss.
The Wiedemann-Steiner Syndrome Foundation at a glance
In short: The Wiedemann-Steiner Syndrome Foundation reported $2K in grants paid in 2024 (a total; its filing lists no individual grants). Source: 2024 IRS Form 990.
- Grants paid (2024)
- $2,176 — reported as a total on the IRS filing, without an itemized list
- -63.7% vs 2023
- Total assets
- $1,023,103
- +18.9% vs 2023
- Revenue (2024)
- $274,353
- +16.4% vs 2023
- Net investment income (2024)
- $34,636
- +193.1% vs 2023
- Expenses (2024)
- $112,857
- +408.9% vs 2023
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated October 2026.
How to apply to The Wiedemann-Steiner Syndrome Foundation
Open Grants
1 open opportunity from The Wiedemann-Steiner Syndrome Foundation
Who The Wiedemann-Steiner Syndrome Foundation funds
How this funder distributes its grants
Grant Size Distribution
1 grant across all recorded years
The most common grant size was under $50K: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $2K (2024) to $100K (2020). In 2024 it reported $2K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Kennedy Krieger Institute Baltimore, MD | Research Grant | $6,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $1,023,103 | $274,353 | $112,857 | $2,176 | Total only | $34,636 |
| 2023 | $860,323 | $235,716 | $22,177 | $6,000 | 1 | $11,817 |
| 2022 | $647,196 | $227,816 | $125,225 | $52,000 | Total only | $758 |
| 2021 | $544,697 | $187,945 | $72,337 | $50,000 | Total only | $78 |
| 2020 | $428,855 | $141,797 | $128,954 | $100,000 | Total only | $589 |
| 2019 | $417,288 | $195,131 | $66,682 | — | — | $762 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About The Wiedemann-Steiner Syndrome Foundation
Based on IRS filings
The Wiedemann-Steiner Syndrome Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sacramento, CA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $1.0M in total assets. In 2024, it reported $2K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $35K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The Wiedemann-Steiner Syndrome Foundation is led by Libby Woolford, President on every filing since 2019; none of the 9 officers listed in 2024 report compensation.
Officers on the 2024 filing
Libby Woolford
President
On filings since 2019
12 hrs/week
No compensation reported
Christina O'Keeffe
Board Member
Treasurer → Board Member, 2020
On filings since 2019
9 hrs/week
No compensation reported
Diego Mahecha
Board Member
Board Member → Treasurer, 2020
Treasurer → Board Member, 2022
On filings since 2019
No compensation reported
Kim Lagravinese
Board Member
On filings since 2019
3 hrs/week
No compensation reported
Thor Misko
Secretary
Board Member → Secretary, 2020
On filings since 2019
4 hrs/week
No compensation reported
Annabel Corbett
Board Member
On filings since 2021
3.5 hrs/week
No compensation reported
Drew Schaefer
Treasurer
Board Member → Treasurer, 2022
On filings since 2021
5 hrs/week
No compensation reported
Krystal Thurman
Board Member
On filings since 2021
6 hrs/week
No compensation reported
Alexandra Gillett
Board Member
New on the 2024 filing
3 hrs/week
No compensation reported
Former officers (2)
- Former: Jacob Cummings (2019–2021) — Board Member · Filing note: Thru 33121
- Former: Kirsten Stuart (2019–2020) — Secretary · Filing note: Resigned
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about The Wiedemann-Steiner Syndrome Foundation
How much does The Wiedemann-Steiner Syndrome Foundation give each year?
The Wiedemann-Steiner Syndrome Foundation reported $2K in grants paid in 2024 on its 2024 IRS Form 990, as a total without an itemized list of grants. In 2023 it gave $6K across 1 grant.
How large is The Wiedemann-Steiner Syndrome Foundation?
The Wiedemann-Steiner Syndrome Foundation reported $1.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $274K.
What is The Wiedemann-Steiner Syndrome Foundation?
The Wiedemann-Steiner Syndrome Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sacramento, CA. It holds $1.0M in total assets as of 2024.
Where does The Wiedemann-Steiner Syndrome Foundation operate?
The Wiedemann-Steiner Syndrome Foundation has awarded grants in Maryland.
What is The Wiedemann-Steiner Syndrome Foundation's EIN?
The Wiedemann-Steiner Syndrome Foundation's EIN (Employer Identification Number) is 81-1260031. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated October 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS August 14, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS August 9, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 31, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS August 24, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS June 10, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 5, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work The Wiedemann-Steiner Syndrome Foundation funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in The Wiedemann-Steiner Syndrome Foundation's focus areas in our free grants database
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Figures come from The Wiedemann-Steiner Syndrome Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
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