The Wiedemann-Steiner Syndrome Foundation logo

The Wiedemann-Steiner Syndrome Foundation

Public charity · Grantmaker Sacramento, CA EIN: 81-1260031 Website

The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by wss.

Key facts about The Wiedemann-Steiner Syndrome Foundation

In short: The Wiedemann-Steiner Syndrome Foundation reported $2K in grants paid in 2024 (a total; its filing lists no individual grants). Source: 2024 IRS Form 990.

EIN
81-1260031
Latest 990 filing
Form 990, 2024
Grants paid (2024)
$2,176 — reported as a total on the IRS filing, without an itemized list
Total assets
$1,023,103

Data from IRS Form 990, 2024; updated October 2026.

Financial Overview

From 2024 IRS Form 990 · View filing

Total Assets

$1.0M

+18.9% YoY

Grants Paid (reported total)

$2K

-63.7% YoY

Revenue

$274K

+16.4% YoY

Net Investment Income

$35K

+193.1% YoY

About The Wiedemann-Steiner Syndrome Foundation

Based on IRS filings

The Wiedemann-Steiner Syndrome Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sacramento, CA. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $1.0M in total assets. In 2024, it reported $2K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $35K.

Open Grants

1 open opportunity from The Wiedemann-Steiner Syndrome Foundation

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

States

Cities

Baltimore

Giving Over Time

Total grant dollars and number of grants per year

$0$25K$50K$75K$100K0 grants2019 Total only2020 Total only2021 Total only2022 1 grant2023 Total only2024

From 2020 to 2024, annual grant giving ranged from $2K (2024) to $100K (2020). In 2024 it reported $2K in grants paid, as a total without an itemized list.

Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.

Grant Insights

How this funder distributes its grants

Grant Size Distribution

1 grant across all recorded years

1<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 1 grant of 1 (100%).

Giving History

Grant recipients and amounts by year

No grants recorded for 2024.

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$100K$200K$300K$400K2019 2020 2021 2022 2023 2024
Metric202420232022
Total Assets$1,023,103$860,323$647,196
Revenue$274,353$235,716$227,816
Expenses$112,857$22,177$125,225
Net Investment Income$34,636$11,817$758

Data update history

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2019 (received by the IRS August 14, 2020)
  2. Updated Form 990 for fiscal year 2020 (received by the IRS August 9, 2021)
  3. Updated Form 990 for fiscal year 2021 (received by the IRS May 31, 2022)
  4. Updated Form 990 for fiscal year 2022 (received by the IRS August 24, 2023)
  5. Updated Form 990 for fiscal year 2023 (received by the IRS June 10, 2024)
  6. Updated Form 990 for fiscal year 2024 (received by the IRS September 5, 2025)
  7. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

The Wiedemann-Steiner Syndrome Foundation is led by Libby Woolford, President on every filing since 2019; none of the 9 officers listed in 2024 report compensation.

Officers on the 2024 filing

  • Libby Woolford

    President

    On filings since 2019

    12 hrs/week

    No compensation reported

  • Christina O'Keeffe

    Board Member

    Treasurer → Board Member, 2020

    On filings since 2019

    9 hrs/week

    No compensation reported

  • Diego Mahecha

    Board Member

    Board Member → Treasurer, 2020

    Treasurer → Board Member, 2022

    On filings since 2019

    No compensation reported

  • Kim Lagravinese

    Board Member

    On filings since 2019

    3 hrs/week

    No compensation reported

  • Thor Misko

    Secretary

    Board Member → Secretary, 2020

    On filings since 2019

    4 hrs/week

    No compensation reported

  • Annabel Corbett

    Board Member

    On filings since 2021

    3.5 hrs/week

    No compensation reported

  • Drew Schaefer

    Treasurer

    Board Member → Treasurer, 2022

    On filings since 2021

    5 hrs/week

    No compensation reported

  • Krystal Thurman

    Board Member

    On filings since 2021

    6 hrs/week

    No compensation reported

  • Alexandra Gillett

    Board Member

    New on the 2024 filing

    3 hrs/week

    No compensation reported

Former officers (2)
  • Former: Jacob Cummings (2019–2021) — Board Member · Filing note: Thru 33121
  • Former: Kirsten Stuart (2019–2020) — Secretary · Filing note: Resigned

Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Frequently asked questions about The Wiedemann-Steiner Syndrome Foundation

How much does The Wiedemann-Steiner Syndrome Foundation give each year?

The Wiedemann-Steiner Syndrome Foundation reported $2K in grants paid in 2024 on its 2024 IRS Form 990, as a total without an itemized list of grants. In 2023 it gave $6K across 1 grant.

How large is The Wiedemann-Steiner Syndrome Foundation?

The Wiedemann-Steiner Syndrome Foundation reported $1.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $274K.

What is The Wiedemann-Steiner Syndrome Foundation?

The Wiedemann-Steiner Syndrome Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Sacramento, CA. It holds $1.0M in total assets as of 2024.

Where does The Wiedemann-Steiner Syndrome Foundation operate?

The Wiedemann-Steiner Syndrome Foundation has awarded grants in Maryland.

What is The Wiedemann-Steiner Syndrome Foundation's EIN?

The Wiedemann-Steiner Syndrome Foundation's EIN (Employer Identification Number) is 81-1260031. IRS Form 990 filing data is available on this page for 2019–2024.

Data last updated October 2026. Sourced from IRS Form 990 filings.

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