MED13L PROVIDES SUPPORT FOR RESEARCH, ADVANCEMENT AND RAISING AWARENESS OF THE RARE GENETIC DISEASE, MED13L. THE OBJECTIVES OF MED13L IS TO RAISE AWARENESS IN THE LOCAL, NATIONAL AND INTERNATIONAL COMMUNITY ABOUT THE RARE GENETIC DISEASE, MED13L AND TO PROVIDE FUNDING FOR RESEARCH, DEVELOPMENT AND ADVANCEMENT INTO FIGHTING THIS DISEASE. THE ULTIMATE GOAL IS TO FIND OUT MORE ABOUT WHAT CAUSES MED13L AND FIND A CURE. IN OUR ENDEAVOR TO REACH THAT GOAL, MED13L STRIVES TO CREATE A SUPPORT SYSTEM FOR FAMILIES IMPACTED BY MED13L ALL THE WHILE PROVIDING FUNDING OPPORTUNITIES TO HEALTHCARE PROFESSIONALS AND RESEARCHERS WHO ARE HELPING TO FIND A CURE TO THIS RARE GENETIC DISEASE.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$580K
-21.6% YoY
Annual Giving
$292K
+85.9% YoY
Grant Count
4
+0.0% YoY
Avg Grant Size
$73K
+85.9% YoY
About The Med13l Foundation Inc
Based on IRS filings
The Med13l Foundation Inc is a nonprofit organization focused on Medical Research, based in BARRINGTON, NJ. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $580K in total assets. In 2024, it awarded 4 grants totaling $292K. Net investment income was $27K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $579,971 | $739,788 | $332,051 |
| Revenue | $188,215 | $608,940 | $323,934 |
| Expenses | $348,032 | $201,203 | $41,607 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $26,603 | $15,732 | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
Grant Size Distribution
8 grants across all recorded years
Open Grants
1 open opportunity from The Med13l Foundation Inc
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Transcripta Bio Inc (fka Rarebase Pbc) ($164,650), Rowan University Foundation Inc ($76,984), Vanderbilt University Medical Center ($46,000).
| Recipient | Purpose | Amount |
|---|---|---|
| COMBINED BRAIN BRENTWOOD, TN | STRATEGIC RESEARCH PLAN AND BIOSPECIMEN COLLECTION | $4,781 |
| TRANSCRIPTA BIO INC (FKA RAREBASE PBC) PALO ALTO, CA | BIOMARKER DISCOVERY PROJECT AND DRUG DISCOVERY PROJECT USING RAREBASE (NOW TRANSCRIPTA BIO) FUNCTION PLATFORM | $164,650 |
| VANDERBILT UNIVERSITY MEDICAL CENTER NASHVILLE, TN | EXPLORING THE IMPACT OF DISEASE MODIFYING COMPOUNDS IN MED13L PATIENT DERIVE | $46,000 |
| ROWAN UNIVERSITY FOUNDATION INC GLASSBORO, NJ | UNDERSTANDING OF THE ROLE MITOCHONDRIAL DYSFUNCTION PLAYS IN THE PATHOOGY ASSOCIATED WITH MED13L SYNDROME MUTATIONS | $76,984 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| NICK SEAVER | TREASURER | 5 | — |
| KATHLEEN BARRY BOYCHUCK | CHAIR | 10 | — |
| VANESSA DIAS | VICE CHAIR | 10 | — |
| JENNIFER ROBERTSON | SECRETARY | 10 | — |
| INON SHAMPANIER | TRUSTEE AS OF SEPT 2024 | 5 | — |
| KELLY SEXTON | TRUSTEE UNTIL SEPT 2024 | — | — |
| KIM SOKORAI | TRUSTEE UNTIL SEPT 2024 | — | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is The Med13l Foundation Inc?
The Med13l Foundation Inc is a nonprofit organization focused on Medical Research, based in BARRINGTON, NJ. It holds $580K in total assets as of 2024.
How large is The Med13l Foundation Inc?
As of 2024, The Med13l Foundation Inc holds $580K in total assets with $188K in annual revenue. It awarded 4 grants totaling $292K in 2024.
Where does The Med13l Foundation Inc operate?
The Med13l Foundation Inc has awarded grants in California, Iowa, New Jersey, Tennessee.
What size grants does The Med13l Foundation Inc award?
In 2024, The Med13l Foundation Inc awarded 4 grants totaling $292K — an average of about $73K per grant, based on its IRS Form 990 filings.
What is The Med13l Foundation Inc's EIN?
The Med13l Foundation Inc's EIN (Employer Identification Number) is 82-2469441. IRS Form 990 filing data is available on this page for 2021–2024.
Explore Open Grants
Browse active grant opportunities in The Med13l Foundation Inc's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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