The MED13L Foundation Inc
Med13l provides support for research, advancement and raising awareness of the rare genetic disease, med13l. The objectives of med13l is to raise awareness in the local, national and international community about the rare genetic disease, med13l and to provide funding for research, development and advancement into fighting this disease. The ultimate goal is to find out more about what causes med13l and find a cure. In our endeavor to reach that goal, med13l strives to create a support system for families impacted by med13l all the while providing funding opportunities to healthcare professionals and researchers who are helping to find a cure to this rare genetic disease.
The MED13L Foundation Inc at a glance
In short: The MED13L Foundation Inc gave $292K across 4 grants in 2024 (avg $73K), mostly in California. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $292,415
- +85.9% vs 2023
- Grants made (2024)
- 4
- +0.0% vs 2023
- Average grant
- $73,104
- +85.9% vs 2023
- Median grant
- $61,492
- Total assets
- $579,971
- -21.6% vs 2023
- Primary geography
- California (56% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to The MED13L Foundation Inc
Open Grants
1 open opportunity from The MED13L Foundation Inc
Who The MED13L Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2024
The largest 2024 recipient was Transcripta Bio Inc (FKA Rarebase PBC) ($165K). Together the top 4 received $292K.
Grant Size Distribution
8 grants across all recorded years
The most common grant size was under $50K: 5 grants of 8 (63%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 4 itemized grants.
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2024, annual grant giving ranged from $157K (2023) to $292K (2024). In 2024 it made 4 grants totaling $292K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Transcripta Bio Inc (FKA Rarebase PBC) Palo Alto, CA | Biomarker discovery project and drug discovery project using rarebase (now transcripta bio) function platform | $164,650 |
| Rowan University Foundation Inc Glassboro, NJ | Understanding of the role mitochondrial dysfunction plays in the pathoogy associated with med13l syndrome mutations | $76,984 |
| Vanderbilt University Medical Center Nashville, TN | Exploring the impact of disease modifying compounds in med13l patient derive | $46,000 |
| Combined Brain Brentwood, TN | Strategic Research Plan and Biospecimen Collection | $4,781 |
Ready to take the next step with The MED13L Foundation Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $579,971 | $188,215 | $348,032 | $292,415 | 4 | $26,603 |
| 2023 | $739,788 | $608,940 | $201,203 | $157,263 | 4 | $15,732 |
| 2022 | $332,051 | $323,934 | $41,607 | — | — | — |
| 2021 | $49,724 | $99,263 | $52,772 | — | — | — |
About The MED13L Foundation Inc
Based on IRS filings
The MED13L Foundation Inc is a public charity focused on Medical Research, based in Barrington, NJ. IRS filing data is available from 2021 through 2024. As of 2024, the organization holds $580K in total assets. In 2024, it awarded 4 grants totaling $292K. Net investment income was $27K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The MED13L Foundation Inc is led by Kathleen Barry Boychuck, Chair since 2024 (on filings since 2023); none of the 7 officers listed in 2024 report compensation.
Officers on the 2024 filing
Kathleen Barry Boychuck
Chair
Treasurer → Chair, 2024
On filings since 2023
10 hrs/week
No compensation reported
Kelly Sexton
Trustee
President → Vice President, 2022
Vice President → Trustee, 2024
On filings since 2021
No compensation reported
Kim Sokorai
Trustee
Secretary → Trustee, 2023
On filings since 2022
No compensation reported
Inon Shampanier
Trustee
New on the 2024 filing
5 hrs/week
No compensation reported
Nick Seaver
Treasurer
President → Treasurer, 2024
On filings since 2022
5 hrs/week
No compensation reported
Vanessa Dias
Vice Chair
Member → Trustee, 2023
Trustee → Vice Chair, 2024
On filings since 2022
10 hrs/week
No compensation reported
Jennifer Robertson
Secretary
On filings since 2023
10 hrs/week
No compensation reported
Former officers (4)
- Former: Katie Barry Boyschuck (2022) — Treasurer
- Former: Lacey Akins (2022) — Member
- Former: Edward F. Brennan (2021) — Trustee
- Former: Ryan Sexton (2021) — Trustee
Data from IRS Form 990 filings, 2021–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about The MED13L Foundation Inc
How much does The MED13L Foundation Inc give each year?
The MED13L Foundation Inc gave $292K across 4 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $157K across 4 grants.
What is The MED13L Foundation Inc's typical grant size?
The MED13L Foundation Inc's median grant in 2024 was $61,492, and its average grant was $73,104, across 4 grants on its 2024 IRS Form 990.
Where does The MED13L Foundation Inc give grants?
The MED13L Foundation Inc gives mostly in California: 56% of the grant dollars itemized on its 2024 IRS Form 990 went to recipients there. The next largest states were New Jersey (26%) and Tennessee (17%).
Does The MED13L Foundation Inc give general operating support?
Not in 2024: none of the 4 grants with a stated purpose on The MED13L Foundation Inc's 2024 IRS Form 990 were described as general or operating support.
How large is The MED13L Foundation Inc?
The MED13L Foundation Inc reported $580K in total assets on its 2024 IRS Form 990. Its revenue that year was $188K.
What is The MED13L Foundation Inc?
The MED13L Foundation Inc is a public charity focused on Medical Research, based in Barrington, NJ. It holds $580K in total assets as of 2024.
What is The MED13L Foundation Inc's EIN?
The MED13L Foundation Inc's EIN (Employer Identification Number) is 82-2469441. IRS Form 990 filing data is available on this page for 2021–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(3)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2023 (received by the IRS November 14, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS November 12, 2025)
- IRS filings on file for fiscal years 2021–2024
Explore Open Grants
Browse active grant opportunities in The MED13L Foundation Inc's focus areas in our free grants database
Similar Funders
Funders with grantees in common
Enterprise Holdings Foundation
Saint Louis, MO
The Enterprise Holdings Foundation supports charitable and educational nonprofits in communities where Enterprise Mobility operates, focusing on health, education, arts, and disaster relief; applicants must be actively supported by an Enterprise Mobility team member, spouse, or domestic partner. Giving varies widely: it reported 9,499 grants in 2024, but its 2025 filing showed one grant of $101.4 million, so that amount is not a typical award. Applications are accepted at any time through eligible Enterprise-affiliated applicants; the Foundation does not limit giving to preselected organizations.
Assets
$594.3M
Grants
1
Total Given
$101.4M
The Labcorp Charitable Foundation
Burlington, NC
The Labcorp Charitable Foundation funds food access, healthcare and patient services for underserved communities, STEM and youth education, and medical research and screenings. Its typical giving level is unclear: reported grants range from smaller community awards to a 2025 median of $1,328,824, though that year’s filing itemizes only two grants. It supports local communities without a stated geographic eligibility area and does not accept unsolicited requests.
Assets
$19.6M
Grants
2
Total Given
$2.7M
With Foundation
San Mateo, CA
WITH Foundation has supported efforts to improve comprehensive healthcare for U.S. adults with developmental disabilities, including healthcare delivery, care coordination, advocacy, and research. Recent grants ranged from $2,000 to $760,000, with a median of $128,000; it no longer accepts unsolicited requests or offers public grant cycles, and remaining funding is limited to partners it contacts directly.
Assets
$8.0M
Grants
53
Total Given
$8.3M
Aetna Foundation Inc
Hartford, CT
Aetna Foundation supported health and wellness, access to health care, and related community needs; its 2021 grants ranged from $5,000 to $1 million, with a median of $40,000, and went to organizations across multiple states, especially in D.C. and Connecticut. Its 2021 filing was marked final, so it appears to have ended or be winding down grantmaking; that filing said there were no restrictions on who could apply and pointed applicants to its website for application materials.
Assets
—
Grants
65
Total Given
$7.2M
National Collegiate Inventors & Innovators Alliance Inc
Hadley, MA
VentureWell funds higher-education innovation and entrepreneurship, including early-stage science and engineering projects and faculty initiatives; some programs award grants to U.S. colleges and universities rather than directly to individuals or ventures. In 2025, its 69 grants ranged from $7,980 to $4 million, with a median of $25,000, and went to recipients across the United States. The profile describes application processes for specific programs but does not state whether unsolicited requests are accepted.
Assets
$89.5M
Grants
69
Total Given
$38.4M
Abraham S Ende Research Foundation
Petersburg, VA
Assets
$10K
Grants
1
Total Given
$9K
More similar funders
More Funders in New Jersey
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from The MED13L Foundation Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
The MED13L Foundation Inc down — hundreds of funders to go?