The Jain Foundation Inc
The Jain Foundation Inc is a private foundation based in Seattle, Washington. It supports research and related efforts aimed at developing treatments or a cure for dysferlinopathy, including LGMD2B, LGMDR2, and Miyoshi Myopathy.
The Jain Foundation Inc at a glance
In short: The Jain Foundation Inc gave $3.4M across 23 grants in 2024 (avg $149K), top state New York. 9% of 2024 grantees were new. Source: 2024 IRS Form 990-PF.
- Annual giving (2024)
- $3,436,865
- +3.4% vs 2023
- Grants made (2024)
- 23
- -4.2% vs 2023
- Average grant
- $149,429
- +7.9% vs 2023
- Median grant
- $121,329
- Total assets
- $51,183,246
- -8.9% vs 2023
- New grantees (estimate)
- 9% first-time grantees (2 of 23, 2024; small sample)
- Primary geography
- New York (32% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990-PF, 2024 View filing
Data from IRS Form 990-PF, 2024; updated October 2026. New grantees are estimated by matching recipient names across years (methodology).
How to apply to The Jain Foundation Inc
- How to Apply
-
The foundation reviews proposals on a rolling basis, with responses typically within 4–6 weeks. Applicants should submit a project with direct relevance to dysferlin deficiencies, following the foundation’s cover page and preferred proposal format. A full proposal should generally be 6–10 pages, excluding references, and include background, aims, methods, preliminary data, a detailed experimental timeline, and a detailed budget with justification. The foundation’s policy is not to cover indirect costs, and it requests that institutions waive them. Researchers are encouraged to submit a 1–2 page preproposal first.
- Review Cycle
- There are no submission deadlines.
- Deadline
- There are no submission deadlines.
- Contact
Application contact: Laura Rufibach
Mailing address: 9706 4Th Ave Ne Ste 101, Seattle, WA 98115
Phone: (425) 882-1492
Email: lrufibach@jain-foundation.org
Website: https://jain-foundation.org
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who The Jain Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
The largest 2024 recipient was Project 8P Foundation ($600K). Together the top 10 received $2.4M.
Grant Size Distribution
111 grants across all recorded years
The most common grant size was under $50K: 38 grants of 111 (34%).
Geographic Focus
Where this funder awards grants
The foundation says it funds researchers, organizations, and companies inside and outside the United States. Its 2024 grants included recipients in New York, Massachusetts, Maryland, North Carolina, Utah, Washington, Missouri, and other locations, as well as recipients in Australia and Canada. By grant dollars, the reported recipient-state shares included New York (32%), Massachusetts (10%), Maryland (9%), and North Carolina (7%); 21% was assigned to an unidentified state in the filing data.
Grant Distribution by State
Share of 2024 grant dollars across all 23 itemized grants.
States
Cities
Is The Jain Foundation Inc open to new grantees?
9%
first-time grantees, 2024
In 2024, 2 of 23 grantees (9%) were first-time recipients. With only 23 grantees, that is a small sample: one grantee more or less moves the share by about 4 points. First grants averaged $141K; repeat grants $150K. How we count
Medians: $141K first-time, $118K repeat.
- 87% of 2024 grantees were also funded in 2023. Method
- Giving grew 27% from 2021 to 2024. Method
- In 2024 it paid out 119% of its IRS minimum distribution (the 5% rule). Method
Estimate from itemized grant lists in IRS Form 990-PF filings (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $1.9M (2020) to $3.4M (2024). In 2024 it made 23 grants totaling $3.4M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Project 8P Foundation New York, NY | Scientific Research Grant | $600,000 |
| Mass Inst of Tech Dr Guarente Cambridge, MA | Scientific Research Grant | $331,844 |
| Univ of Maryland Dr Bloch Baltimore, MD | Scientic Research Grant | $300,452 |
| Duke Univ Dr Bursac Durham, NC | Scientific Research Grant | $248,073 |
| NY University Dr Kang New York, NY | Scientific Research Grant | $200,000 |
| Brigham Young Univ Dr Van Ry Provo, UT | Scientific Research Grant | $168,915 |
| La Trobe Univ Dr Murphy | Scientific Research Grant | $155,894 |
| Weill Cornell Medical Center Dr GRI New York, NY | Scientific Research Grant | $150,000 |
| Childrens Research Institute Dr JAI Washington, DC | Scientific Research Grant | $143,266 |
| Washington Univ Dr Weihl St. Louis, MO | Scientific Research Grant | $132,035 |
Ready to take the next step with The Jain Foundation Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Net Investment Income | Distributable Amount |
|---|---|---|---|---|---|---|---|---|
| 2024 | $51,183,246 | $384,162 | $5,388,833 | $3,436,865 | 23 | $5,310,531 | $320,861 | $4,472,800 |
| 2023 | $56,155,902 | $39,088,672 | $5,211,841 | $3,324,301 | 24 | $4,999,684 | $12,107,121 | $2,859,785 |
| 2022 | $26,504,314 | $3,316,493 | $4,168,261 | $2,687,391 | 23 | $4,125,512 | $3,297,964 | $2,497,089 |
| 2021 | $28,293,221 | $4,573,767 | $4,060,047 | $2,709,094 | 22 | $4,008,564 | $4,253,767 | $2,349,039 |
| 2020 | $29,100,433 | $2,502,806 | $3,590,463 | $1,920,013 | 19 | — | $2,490,449 | $1,945,969 |
Under IRS private-foundation payout rules, The Jain Foundation Inc reported a distributable amount of $4.5M for 2024 — the minimum it must pay out in qualifying distributions.
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The foundation’s mission is to cure muscular dystrophies caused by dysferlin protein deficiency. Its work includes funding research into disease mechanisms and prospective treatments, supporting clinical-trial readiness and patient diagnosis, and developing research tools and resources. The foundation says that proposals must have direct application to dysferlinopathy and address a need relevant to therapy development.
It funds researchers, organizations, and companies inside and outside the United States. In 2024, its grants included scientific research awards to universities and research organizations. One recipient, Project 8p Foundation, describes its own mission as empowering a community for chromosome 8p heroes and accelerating treatments; its activities include clinical care, research, an AI data-driven platform and biorepository, education, and advocacy.
Grantmaking
In 2024, the foundation reported 23 grants totaling $3,436,865. Awards ranged from $22,136 to $600,000, with a median grant of $121,329. The listed grants were for scientific research.
The largest 2024 awards included $600,000 to Project 8p Foundation; $331,844 to MIT (Dr. Guarente); $300,452 to the University of Maryland (Dr. Bloch); $248,073 to Duke University (Dr. Bursac); and $200,000 to New York University (Dr. Kang).
Leadership & Key People
Leadership team and compensation from IRS filings
The 2024 filing lists Ajit Jain and Indrima Jain as directors, Ashkay Jain as CEO, and Doug Albrecht, PhD, and Laura Rufibach as co-presidents.
The Jain Foundation Inc is led by Ashkay Jain, CEO on every filing since 2020; 3 of 5 officers listed in 2024 are compensated.
Officers on the 2024 filing
Ashkay Jain
CEO
On filings since 2020
40 hrs/week
$153K (2020) → $211K (2024)
Doug Albrecht PhD
Co-President
On filings since 2020
40 hrs/week
$167K (2020) → $203K (2024)
Laura E Rufibach
Co-President
On filings since 2020
40 hrs/week
$167K (2020) → $203K (2024)
Ajit Jain
Director
On filings since 2020
3 hrs/week
No compensation reported
Indrima Jain
Director
On filings since 2020
1 hr/week
No compensation reported
Former officers (1)
- Former: Ajay Jain (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $211K, to Ashkay Jain (CEO). 3 officers or directors reported compensation on that filing.
Frequently asked questions about The Jain Foundation Inc
How much does The Jain Foundation Inc give each year?
The Jain Foundation Inc gave $3.4M across 23 grants in 2024, according to its 2024 IRS Form 990-PF. In 2023 it gave $3.3M across 24 grants.
What is The Jain Foundation Inc's typical grant size?
The Jain Foundation Inc's median grant in 2024 was $121,329, and its average grant was $149,429, across 23 grants on its 2024 IRS Form 990-PF. Organizations receiving their first grant from The Jain Foundation Inc that year got $141K on average.
Where does The Jain Foundation Inc give grants?
The Jain Foundation Inc's top state is New York, with 32% of the grant dollars itemized on its 2024 IRS Form 990-PF. The next largest states were Massachusetts (10%) and Maryland (9%). The most frequent recipient cities were New York, NY (4 grants).
Does The Jain Foundation Inc give general operating support?
Not in 2024: none of the 23 grants with a stated purpose on The Jain Foundation Inc's 2024 IRS Form 990-PF were described as general or operating support. Recurring purposes include "Scientific Research Grant" (22 grants).
Who are The Jain Foundation Inc's largest grantees?
The Jain Foundation Inc's largest 2024 grantees include Project 8P Foundation ($600,000), Mass Inst of Tech Dr Guarente ($331,844) and Univ of Maryland Dr Bloch ($300,452), according to its 2024 IRS Form 990-PF. Together they received 36% of its itemized 2024 grant dollars.
How large is The Jain Foundation Inc?
The Jain Foundation Inc reported $51.2M in total assets on its 2024 IRS Form 990-PF. It paid out $5.3M in qualifying distributions that year, against a required minimum of $4.5M (roughly 5% of its investment assets).
What does The Jain Foundation Inc fund?
The foundation’s mission is to cure muscular dystrophies caused by dysferlin protein deficiency. Its work includes funding research into disease mechanisms and prospective treatments, supporting clinical-trial readiness and patient diagnosis, and developing research tools and resources. See mission & focus areas ↑
How do I apply for a grant from The Jain Foundation Inc?
The foundation reviews proposals on a rolling basis, with responses typically within 4–6 weeks. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is The Jain Foundation Inc's EIN?
The Jain Foundation Inc's EIN (Employer Identification Number) is 20-0284800. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated October 2026. Sourced from IRS Form 990-PF filings. Research dossier generated September 2026.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Live grants for the work The Jain Foundation Inc funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in The Jain Foundation Inc's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
EQT Foundation
Canonsburg, PA
The EQT Foundation funds community enrichment, education and workforce development, and environmental and arts-related work, prioritizing communities within EQT Corporation’s operating footprint, especially in Pennsylvania and West Virginia. Its 2024 median grant was $10,000, though awards ranged from $100 to $800,000; it invites eligible nonprofits and institutions to apply through its website.
Assets
$26.2M
Grants
367
Total Given
$6.3M
The Bryant Foundation
Richmond, VA
The Bryant Foundation supports charitable organizations, including schools and groups serving children and families, with most of its giving in Virginia and a small share in Florida. In 2025, it made 12 grants ranging from $1,000 to $112,500, with a median grant of $5,000. It funds only preselected organizations and does not accept unsolicited requests.
Assets
$3.4M
Grants
12
Total Given
$192K
The Marion Park Foundation
Missoula, MT
The Marion Park Foundation supports preselected charities working in areas including counseling and mental health, children and families, food assistance, grief support, and research. Its 2024 grants ranged from $1,000 to $9,500, with a median of $6,750, and went to organizations in multiple states, including Minnesota, California, New Jersey, Colorado, and Montana. It does not accept unsolicited funding requests.
Assets
$1.0M
Grants
10
Total Given
$67K
Fibushendricks Family Foundation
Niles, OH
The Fibushendricks Family Foundation supports a range of charitable organizations, including health and research, community and human services, education, and Jewish organizations. Its 2025 grants ranged from $1,000 to $175,000, with a median of $22,500, and most funding went to Ohio, followed by Maryland, Pennsylvania, New York, and Florida. It funds only preselected organizations and does not accept unsolicited requests.
Assets
$24.6M
Grants
30
Total Given
$1.3M
Emily J Zuckerman Foundation
Princeton, NJ
Assets
$622K
Grants
4
Total Given
$63K
Taranto Family Foundation Inc
Naples, FL
The foundation supports a range of charitable organizations, including those focused on education, hunger and homelessness, health, and social services, with grants typically around $5,000 (2025 awards ranged from $1,000 to $60,010). Its 2025 giving was concentrated in New York and Florida, with additional grants in the District of Columbia, Maryland, and New Jersey. It gives only to preselected organizations and does not accept unsolicited requests.
Assets
$7.7M
Grants
49
Total Given
$404K
More similar funders
More Funders in Washington
Cite this profile
Grantable. (2026). The Jain Foundation Inc funder profile. GrantGraph. Retrieved October 19, 2026, from https://grantable.co/funders/the-jain-foundation-inc-morg_d68b95df9f724efe9bb066ed11f20d48
BibTeX
@misc{grantable_200284800_2026,
author = {{Grantable}},
title = {{The Jain Foundation Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/the-jain-foundation-inc-morg_d68b95df9f724efe9bb066ed11f20d48},
note = {Accessed 2026-10-19. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from The Jain Foundation Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
The Jain Foundation Inc down — hundreds of funders to go?