The Jain Foundation Inc
The Jain Foundation Inc is a 501(c)(3) private foundation based in Seattle, Washington, established in March 2006. The organization is classified as a Private Grantmaking Foundation (NTEE code T20) focused on nerve, muscle, and bone diseases. The foundation takes a hands-on approach to funding, closely monitoring the progress of every project it supports through quarterly conference calls with researchers and site visits.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$51.2M
-8.9% YoY
Annual Giving
$3.4M
+3.4% YoY
Grant Count
23
-4.2% YoY
Avg Grant Size
$149K
+7.9% YoY
Under IRS private-foundation payout rules, The Jain Foundation Inc reported a distributable amount of $4.5M for 2024 — the minimum it must pay out in qualifying distributions.
Mission & Focus Areas
The Jain Foundation's mission is to cure muscular dystrophies caused by dysferlin protein deficiency. These dystrophies are collectively termed dysferlinopathy and include:
- Limb-girdle muscular dystrophy type 2B (LGMD2B)
- Miyoshi muscular dystrophy 1 (MMD1)
The foundation's focused strategy includes:
- Funding and actively monitoring scientific research projects in key pathways toward a cure
- Providing financial and logistical support to promising drug candidates to accelerate them to clinical trials
- Funding clinical trials and studies
- Encouraging collaboration among scientists
- Educating LGMD2B/Miyoshi patients about their disease and helping with diagnosis (including funding dysferlin protein and gene mutational analysis)
The foundation notes that resulting scientific advances and collaborations have broader impact on human health through their relevance to other muscle disorders, degenerative diseases, and normal aging.
Grantmaking
The foundation provides research funding in the areas of muscular dystrophy, health, and medical research.
Review Cycle
are provided by the foundation. Foundations without stipulated deadlines are best approached directly for more information. Some foundations have continuous intake of proposals.
How to Apply
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
As of December 2023:
- Total Assets: $56,155,902
- Total Revenue: $39,088,975
- Total Giving: $3,324,301
- Total Expenses: $5,211,841
As of December 2024:
- Total Assets: $51.2 million
- Revenue: $384,000
- Expenses: $5.39 million
The foundation is ranked 9,205 among the top 10,000 US foundations by assets and ranked 205 among top foundations by assets in Washington State.
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $51,183,246 | $56,155,902 | $26,504,314 |
| Revenue | $384,162 | $39,088,672 | $3,316,493 |
| Expenses | $5,388,833 | $5,211,841 | $4,168,261 |
| Qualifying Distributions | $5,310,531 | $4,999,684 | $4,125,512 |
| Net Investment Income | $320,861 | $12,107,121 | $3,297,964 |
| Distributable Amount | $4,472,800 | $2,859,785 | $2,497,089 |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
111 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Project 8p Foundation ($600,000), Mass Inst of Tech Dr Guarente ($331,844), Univ of Maryland Dr Bloch ($300,452).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIV OF BRITISH COLUMBIA DR BERNATC | SCIENTIFIC RESEARCH GRANT | $129,295 |
| UNIV OF MARYLAND DR BLOCH BALTIMORE, MD | SCIENTIC RESEARCH GRANT | $300,452 |
| DUKE UNIV DR BURSAC DURHAM, NC | SCIENTIFIC RESEARCH GRANT | $248,073 |
| CAMDND DR GAITONDE DR DASTUR | SCIENTIFIC RESEARCH GRANT | $27,648 |
| UNIVERSIDAD MAYOR DR CARDENAS | SCIENTIFIC RESEARCH GRANT | $22,136 |
| ROCKEFELLER UNIV DR CHAIT DR ROUT NEW YORK, NY | SCIENTIFIC RESEARCH GRANT | $45,320 |
| CHILDRENS RESEARCH INSTITUTE DR JAI WASHINGTON, DC | SCIENTIFIC RESEARCH GRANT | $143,266 |
| NY UNIVERSITY DR KANG NEW YORK, NY | SCIENTIFIC RESEARCH GRANT | $200,000 |
| UNIV OF QUEENSLAND DR LAUNIKONIS | SCIENTIFIC RESEARCH GRANT | $121,329 |
| SANFORD BURNHAM PREBYS INST DR PURI LA JOLLA, CA | SCIENTIFIC RESEARCH GRANT | $99,561 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| AJIT JAIN | Director | 3 | — |
| INDRIMA JAIN | Director | 1 | — |
| ASHKAY JAIN | CEO | 40 | $211,003 |
| DOUG ALBRECHT PHD | CO-PRESIDENT | 40 | $202,782 |
| LAURA RUFIBACH | CO-PRESIDENT | 40 | $202,782 |
Recent News & Activity
Recent developments and announcements
The Jain Foundation provided $1.1 million in funding to Kinea Bio to advance a novel gene therapy for dysferlinopathy, a rare neuromuscular disease. This commitment supports Kinea Bio's development efforts in collaboration with Solid Biosciences' Capsid License technology.
Kinea Bio Receives Up To $1.1M Commitment From Jain FoundationThe foundation has also sponsored research at Harvard Stem Cell Institute (HSCI) focused on rare forms of muscular dystrophy.
Jain Foundation sponsors HSCI research of rare forms of muscular dystrophySubject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What does The Jain Foundation Inc fund?
The Jain Foundation's mission is to cure muscular dystrophies caused by dysferlin protein deficiency. These dystrophies are collectively termed dysferlinopathy and include: • Limb-girdle muscular dystrophy type 2B (LGMD2B) • Miyoshi muscular dystrophy 1 (MMD1) The foundation's focused strategy includes: • Funding and actively monitoring scientific research projects in key pathways toward a cure • Providing financial and logistical support to promising drug candidates to accelerate them to clini…
How do I apply for a grant from The Jain Foundation Inc?
The foundation provides research funding in the areas of muscular dystrophy, health, and medical research. **Recent Activity:** • In 2023, the foundation continued working with contract research organizations (CROs) as an integral part of its therapy development program, investing $94,763 in these partnerships. CROs provide specialized knowledge and infrastructure focused on drug discovery, including robotics and large compound libraries. • The foundation provided $1.1 million in funding to Kin…
What size grants does The Jain Foundation Inc award?
In 2024, The Jain Foundation Inc awarded 23 grants totaling $3.4M — an average of about $149K per grant, based on its IRS Form 990 filings.
How much is The Jain Foundation Inc required to give away each year?
Private foundations must generally distribute about 5% of their assets annually. For 2024, The Jain Foundation Inc reported a distributable amount of $4.5M on its IRS Form 990-PF — the minimum it must pay out in qualifying distributions.
What is The Jain Foundation Inc's EIN?
The Jain Foundation Inc's EIN (Employer Identification Number) is 20-0284800. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated June 2026. Sourced from IRS Form 990-PF filings. Research dossier generated April 2026.
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