The FAMILIESCN2A Foundation Inc
The familiescn2a's mission is to improve lives of those affected by scn2a related disorders through research, public awareness, family support and patient advocacy.
The FAMILIESCN2A Foundation Inc at a glance
In short: The FAMILIESCN2A Foundation Inc gave $891K across 6 grants in 2025 (avg $148K), mostly in Illinois. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $890,562
- +23.8% vs 2024
- Grants made (2025)
- 6
- +50.0% vs 2024
- Average grant
- $148,427
- -17.4% vs 2024
- Median grant
- $62,161
- Total assets
- $3,695,761
- +2.4% vs 2024
- Primary geography
- Illinois (51% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to The FAMILIESCN2A Foundation Inc
- Next open deadline
- December 1, 2026 (Patient Assistance Grant Program)
Open Grants
5 open opportunities from The FAMILIESCN2A Foundation Inc
Accelerator Program
The FAMILIESCN2A Foundation Inc
Amount
Varies
Deadline
Deadline not published
Action Potential Grant
The FAMILIESCN2A Foundation Inc
Amount
Up to US $75,000
Deadline
Deadline not published
Patient Assistance Grant Program
The FAMILIESCN2A Foundation Inc
Amount
Unspecified (small grants)
Deadline
Expected ~December
Based on past cycles
Who The FAMILIESCN2A Foundation Inc funds
How this funder distributes its grants
Top Recipients
Top 6 recipients in 2025
The largest 2025 recipient was Purdue University ($456K). Together the top 6 received $891K.
Grant Size Distribution
31 grants across all recorded years
The most common grant size was under $50K: 18 grants of 31 (58%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 6 itemized grants.
Cities
How The FAMILIESCN2A Foundation Inc gives
- Giving grew 224% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $14K (2019) to $891K (2025). In 2025 it made 6 grants totaling $891K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Purdue University Chicago, IL | SCN2A Research | $455,695 |
| University of Iowa Iowa City, IA | SCN2A Research | $261,205 |
| The Regents of the University of California San Francisco Los Angeles, CA | SCN2A Research | $68,165 |
| The Regents of Uc Oakland, CA | SCN2A Research | $56,156 |
| University of Colorado Denver Denver, CO | SCN2A Research | $39,341 |
| Uplifting Athletes Doylestown, PA | SCN2A Research | $10,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $3,695,761 | $2,240,971 | $2,232,098 | $890,562 | 6 | $50,659 |
| 2024 | $3,609,937 | $3,082,290 | $1,617,718 | $719,173 | 4 | $22,254 |
| 2023 | $2,153,548 | $1,860,699 | $1,473,725 | $715,959 | 7 | $22,364 |
| 2022 | $1,757,650 | $1,486,870 | $990,762 | $275,050 | 8 | — |
| 2021 | $1,231,993 | $843,741 | $478,791 | $264,918 | 6 | — |
| 2020 | $827,327 | $605,287 | $437,945 | $48,336 | 2 | — |
| 2019 | $633,788 | $859,862 | $444,258 | $13,767 | 2 | — |
About The FAMILIESCN2A Foundation Inc
Based on IRS filings
The FAMILIESCN2A Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Gettysburg, PA. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $3.7M in total assets. In 2025, it awarded 6 grants totaling $891K. Net investment income was $51K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
The FAMILIESCN2A Foundation Inc is led by Jennifer Burke, Chair since 2023 (on filings since 2019); 2 of 13 officers listed in 2025 are compensated.
Officers on the 2025 filing
Jennifer Burke
Chair
Secretary → President, 2022
President → Chair, 2023
On filings since 2019
5 hrs/week
No compensation reported
Emily Park
Trustee
Director → Trustee, 2023
On filings since 2019
2 hrs/week
No compensation reported
Maura Bragg
Trustee
Director → Trustee, 2023
On filings since 2019
2 hrs/week
No compensation reported
Will Hutson
Trustee
Director → Trustee, 2023
On filings since 2019
2 hrs/week
No compensation reported
Roger Premo
Trustee
Director → Trustee, 2023
On filings since 2022
2 hrs/week
No compensation reported
Geoff Whitman
Trustee
On filings since 2024
2 hrs/week
No compensation reported
Eloise Austin
Trustee
New on the 2025 filing
2 hrs/week
No compensation reported
Carla Forbes
Board Member
Administrative Manager → Administrator Manager, 2023
Administrator Manager → Board Member, 2024
On filings since 2019
2 hrs/week
$19K (2022) → $0 (2025)
Leah Schust Myers
Executive Di
Executive Director → Executive Di, 2023
On filings since 2020
40 hrs/week
$88K (2020) → $125K (2025)
Jeffrey Cottrell
Chief Scient
New on the 2025 filing
40 hrs/week
$25K (2025)
Mery Oman
Vice Chair
Director → Vice President, 2022
Vice President → Vice Chair, 2023
On filings since 2019
2 hrs/week
No compensation reported
Michelle Lewis
Secretary
Director & Vice President → Vice President, 2020
Vice President → Secretary, 2022
On filings since 2019
2 hrs/week
No compensation reported
Michael Vasey
Treasurer
On filings since 2022
5 hrs/week
No compensation reported
Former officers (6)
- Former: Catalina Betancur (2019–2023) — Trustee
- Former: Catalina Betancur Santamaria (2020–2022) — Director
- Former: Shawn Egan (2020–2022) — Chief Scientific Officer
- Former: Amy Kozsuch (2019–2021) — Director
- Former: Mike Vasey (2019–2021) — Treasurer
- Former: Leah Schust (2019) — Executive Director
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $125K, to Leah Schust Myers (Executive Di). 2 officers or directors reported compensation on that filing.
Frequently asked questions about The FAMILIESCN2A Foundation Inc
How much does The FAMILIESCN2A Foundation Inc give each year?
The FAMILIESCN2A Foundation Inc gave $891K across 6 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $719K across 4 grants.
What is The FAMILIESCN2A Foundation Inc's typical grant size?
The FAMILIESCN2A Foundation Inc's median grant in 2025 was $62,161, and its average grant was $148,427, across 6 grants on its 2025 IRS Form 990.
Where does The FAMILIESCN2A Foundation Inc give grants?
The FAMILIESCN2A Foundation Inc gives mostly in Illinois: 51% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Iowa (29%) and California (14%).
Does The FAMILIESCN2A Foundation Inc give general operating support?
Not in 2025: none of the 6 grants with a stated purpose on The FAMILIESCN2A Foundation Inc's 2025 IRS Form 990 were described as general or operating support. Recurring purposes include "SCN2A Research" (6 grants).
Who are The FAMILIESCN2A Foundation Inc's largest grantees?
The FAMILIESCN2A Foundation Inc's largest 2025 grantees include Purdue University ($455,695), University of Iowa ($261,205) and The Regents of the University of California San Francisco ($68,165), according to its 2025 IRS Form 990. Together they received 88% of its itemized 2025 grant dollars.
How large is The FAMILIESCN2A Foundation Inc?
The FAMILIESCN2A Foundation Inc reported $3.7M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.2M.
What is The FAMILIESCN2A Foundation Inc?
The FAMILIESCN2A Foundation Inc is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Gettysburg, PA. It holds $3.7M in total assets as of 2025.
What is The FAMILIESCN2A Foundation Inc's EIN?
The FAMILIESCN2A Foundation Inc's EIN (Employer Identification Number) is 47-3169795. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(8)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2019 (received by the IRS December 4, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 5, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS May 13, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS July 1, 2026)
- IRS filings on file for fiscal years 2019–2024
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