The Chromosome 18 Registry & Research Society
Education and research to help people with chromosome 18 abnormalities overcome the obstacles they face so that they may lead healthy and productive lives.
Key facts about The Chromosome 18 Registry & Research Society
In short: The Chromosome 18 Registry & Research Society gave $362K across 1 grant in 2025 (avg $362K), mostly in Texas. Source: 2025 IRS Form 990.
- EIN
- 74-2557551
- Latest 990 filing
- Form 990, 2025
- Annual giving (2025)
- $362,000
- Grants made (2025)
- 1
- Average grant
- $362,000
- Median grant
- $362,000
- Total assets
- $153,328
- Primary geography
- Texas (100% of itemized 2025 grant dollars)
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$153K
-2.1% YoY
Annual Giving
$362K
+62.7% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$362K
+62.7% YoY
How The Chromosome 18 Registry & Research Society gives
- Giving grew 102% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
About The Chromosome 18 Registry & Research Society
Based on IRS filings
The Chromosome 18 Registry & Research Society is a public charity, based in San Antonio, TX. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $153K in total assets. In 2025, it awarded 1 grant totaling $362K. Net investment income was $39.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $179K (2022) to $362K (2025). In 2025 it made 1 grant totaling $362K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was UT Health Science Center ($362K).
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $100–250K range: 3 grants of 5 (60%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UT Health Science Center San Antonio, TX | Research | $362,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $153,328 | $156,563 | $147,728 |
| Revenue | $795,557 | $698,494 | $669,638 |
| Expenses | $780,659 | $658,107 | $653,232 |
| Net Investment Income | $39 | $50 | $17 |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS June 25, 2025)
- Updated Form 990 for fiscal year 2025 (received by the IRS March 19, 2026)
- Updated Form 990 for fiscal year 2019 (received by the IRS November 16, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 7, 2024)
Leadership & Key People
Officers and directors from IRS filings
The Chromosome 18 Registry & Research Society is led by Neale Parker, CEO on every filing since 2023; 1 of 14 officers listed in 2025 is compensated.
Officers on the 2025 filing
Neale Parker
CEO
On filings since 2023
40 hrs/week
$85K (2023) → $91K (2025)
David Aldrup
President
On filings since 2023
12 hrs/week
No compensation reported
Kristy Holder
Director
Director at Large → Director, 2023
On filings since 2022
2 hrs/week
No compensation reported
Tony Haney
Director
Director at Large → Director, 2023
On filings since 2022
2 hrs/week
No compensation reported
Ashley George
Director
On filings since 2023
2 hrs/week
No compensation reported
Jesse Poggio
Director
On filings since 2024
2 hrs/week
No compensation reported
Lisa Gurwitz
Director
On filings since 2024
2 hrs/week
No compensation reported
Jaron Sheppard
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Steve Hobby
Director
New on the 2025 filing
2 hrs/week
No compensation reported
Jannine Demars Cody
Founder
President → Founder, 2023
On filings since 2019
5 hrs/week
No compensation reported
Liz Woodfield
Vp-Mem Relation
Vice President → Vp-Mem Relation, 2023
On filings since 2019
5 hrs/week
No compensation reported
Claudia Traa
Vp-Development
On filings since 2023
5 hrs/week
No compensation reported
Elizabeth Shaffer
Secretary
Director → Secretary, 2024
On filings since 2023
5 hrs/week
No compensation reported
Matt Miller
Treasurer
Director → Treasurer, 2025
On filings since 2024
5 hrs/week
No compensation reported
Former officers (11)
- Former: John Drymala (2019–2024) — Treasurer
- Former: Keri Lamont (2022–2024) — Director
- Former: Deborah Casey (2024) — Director
- Former: Brad Sheppard (2020–2023) — Secretary
- Former: Meredith Moore (2020–2023) — Director
- Former: Carol Conner Cohen (2019–2022) — Director at Large
- Former: Dave Aldrup (2019–2022) — Secretary
- Former: Tom Kunkel (2019–2021) — Director at Large
- Former: Kathy Glascock (2020–2021) — Vice President
- Former: Christine Puckett (2019–2020) — Director at Large
- Former: Katie Bailey (2019) — Vice President
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $91K, to Neale Parker (CEO).
Frequently asked questions about The Chromosome 18 Registry & Research Society
How much does The Chromosome 18 Registry & Research Society give each year?
The Chromosome 18 Registry & Research Society gave $362K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $223K across 1 grant.
How large is The Chromosome 18 Registry & Research Society?
The Chromosome 18 Registry & Research Society reported $153K in total assets on its 2025 IRS Form 990. Its revenue that year was $796K.
Where does The Chromosome 18 Registry & Research Society operate?
The Chromosome 18 Registry & Research Society has awarded grants in Texas.
What is The Chromosome 18 Registry & Research Society's EIN?
The Chromosome 18 Registry & Research Society's EIN (Employer Identification Number) is 74-2557551. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching The Chromosome 18 Registry & Research Society by hand.
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