The Chromosome 18 Registry & Research Society logo

The Chromosome 18 Registry & Research Society

Public charity · Grantmaker San Antonio, TX EIN: 74-2557551 Website

Education and research to help people with chromosome 18 abnormalities overcome the obstacles they face so that they may lead healthy and productive lives.

Key facts about The Chromosome 18 Registry & Research Society

In short: The Chromosome 18 Registry & Research Society gave $362K across 1 grant in 2025 (avg $362K), mostly in Texas. Source: 2025 IRS Form 990.

EIN
74-2557551
Latest 990 filing
Form 990, 2025
Annual giving (2025)
$362,000
Grants made (2025)
1
Average grant
$362,000
Median grant
$362,000
Total assets
$153,328
Primary geography
Texas (100% of itemized 2025 grant dollars)

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$153K

-2.1% YoY

Annual Giving

$362K

+62.7% YoY

Grant Count

1

+0.0% YoY

Avg Grant Size

$362K

+62.7% YoY

How The Chromosome 18 Registry & Research Society gives

  • Giving grew 102% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

About The Chromosome 18 Registry & Research Society

Based on IRS filings

The Chromosome 18 Registry & Research Society is a public charity, based in San Antonio, TX. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $153K in total assets. In 2025, it awarded 1 grant totaling $362K. Net investment income was $39.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

Share of the 2025 grant dollars on its one itemized grant.

States

Cities

San Antonio

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K$400K1 grant2019 1 grant2020 1 grant2021 1 grant2022 1 grant2023 1 grant2024 1 grant2025

From 2019 to 2025, annual grant giving ranged from $179K (2022) to $362K (2025). In 2025 it made 1 grant totaling $362K.

Grant Insights

How this funder distributes its grants

Top Recipients

Top recipient in 2025

UT Health Science Center: $362KUT Health Science Center$362K

The largest 2025 recipient was UT Health Science Center ($362K).

Grant Size Distribution

5 grants across all recorded years

<$50K$50–100K3$100–250K2$250–500K$500K–1M$1–5M$5M+

The most common grant size was in the $100–250K range: 3 grants of 5 (60%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
UT Health Science Center San Antonio, TXResearch$362,000

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$250K$500K$750K$1M2019 2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$153,328$156,563$147,728
Revenue$795,557$698,494$669,638
Expenses$780,659$658,107$653,232
Net Investment Income$39$50$17

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2024 (received by the IRS June 25, 2025)
  2. Updated Form 990 for fiscal year 2025 (received by the IRS March 19, 2026)
  3. Updated Form 990 for fiscal year 2019 (received by the IRS November 16, 2020)
  4. Updated Form 990 for fiscal year 2020 (received by the IRS November 15, 2021)
  5. Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
  6. Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
  7. Updated Form 990 for fiscal year 2023 (received by the IRS October 7, 2024)

Leadership & Key People

Officers and directors from IRS filings

The Chromosome 18 Registry & Research Society is led by Neale Parker, CEO on every filing since 2023; 1 of 14 officers listed in 2025 is compensated.

Officers on the 2025 filing

  • Neale Parker

    CEO

    On filings since 2023

    40 hrs/week

    $85K (2023) → $91K (2025)

  • David Aldrup

    President

    On filings since 2023

    12 hrs/week

    No compensation reported

  • Kristy Holder

    Director

    Director at Large → Director, 2023

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Tony Haney

    Director

    Director at Large → Director, 2023

    On filings since 2022

    2 hrs/week

    No compensation reported

  • Ashley George

    Director

    On filings since 2023

    2 hrs/week

    No compensation reported

  • Jesse Poggio

    Director

    On filings since 2024

    2 hrs/week

    No compensation reported

  • Lisa Gurwitz

    Director

    On filings since 2024

    2 hrs/week

    No compensation reported

  • Jaron Sheppard

    Director

    New on the 2025 filing

    2 hrs/week

    No compensation reported

  • Steve Hobby

    Director

    New on the 2025 filing

    2 hrs/week

    No compensation reported

  • Jannine Demars Cody

    Founder

    President → Founder, 2023

    On filings since 2019

    5 hrs/week

    No compensation reported

  • Liz Woodfield

    Vp-Mem Relation

    Vice President → Vp-Mem Relation, 2023

    On filings since 2019

    5 hrs/week

    No compensation reported

  • Claudia Traa

    Vp-Development

    On filings since 2023

    5 hrs/week

    No compensation reported

  • Elizabeth Shaffer

    Secretary

    Director → Secretary, 2024

    On filings since 2023

    5 hrs/week

    No compensation reported

  • Matt Miller

    Treasurer

    Director → Treasurer, 2025

    On filings since 2024

    5 hrs/week

    No compensation reported

Former officers (11)
  • Former: John Drymala (2019–2024) — Treasurer
  • Former: Keri Lamont (2022–2024) — Director
  • Former: Deborah Casey (2024) — Director
  • Former: Brad Sheppard (2020–2023) — Secretary
  • Former: Meredith Moore (2020–2023) — Director
  • Former: Carol Conner Cohen (2019–2022) — Director at Large
  • Former: Dave Aldrup (2019–2022) — Secretary
  • Former: Tom Kunkel (2019–2021) — Director at Large
  • Former: Kathy Glascock (2020–2021) — Vice President
  • Former: Christine Puckett (2019–2020) — Director at Large
  • Former: Katie Bailey (2019) — Vice President

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Neale Parker — CEO: $91KNeale ParkerCEO$91K

The highest reported compensation on the 2025 filing was $91K, to Neale Parker (CEO).

Frequently asked questions about The Chromosome 18 Registry & Research Society

How much does The Chromosome 18 Registry & Research Society give each year?

The Chromosome 18 Registry & Research Society gave $362K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $223K across 1 grant.

How large is The Chromosome 18 Registry & Research Society?

The Chromosome 18 Registry & Research Society reported $153K in total assets on its 2025 IRS Form 990. Its revenue that year was $796K.

Where does The Chromosome 18 Registry & Research Society operate?

The Chromosome 18 Registry & Research Society has awarded grants in Texas.

What is The Chromosome 18 Registry & Research Society's EIN?

The Chromosome 18 Registry & Research Society's EIN (Employer Identification Number) is 74-2557551. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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