SynGAP Research Fund Incorporated
Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems.
SynGAP Research Fund Incorporated at a glance
In short: SynGAP Research Fund Incorporated gave $991K across 8 grants in 2024 (avg $124K), top state Colorado. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $990,646
- -31.4% vs 2023
- Grants made (2024)
- 8
- -46.7% vs 2023
- Average grant
- $123,831
- +28.6% vs 2023
- Median grant
- $93,349
- Total assets
- $2,800,485
- +10.6% vs 2023
- Primary geography
- Colorado (29% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to SynGAP Research Fund Incorporated
Open Grants
6 open opportunities from SynGAP Research Fund Incorporated
Johns Hopkins University mRNA Amplifier Research Grant
SynGAP Research Fund Incorporated
Amount
$130,000
Deadline
Deadline not published
McGill University Small Molecule Translational Research Grant
SynGAP Research Fund Incorporated
Amount
CAD $150,000
Deadline
Deadline not published
SynGAP Research Fund General Research Grants
SynGAP Research Fund Incorporated
Amount
Varies by project (one or two-year grants)
Deadline
Rolling (quarterly review)
Who SynGAP Research Fund Incorporated funds
How this funder distributes its grants
Top Recipients
Top 8 recipients in 2024
The largest 2024 recipient was Childrens Hospital Colorado ($289K). Together the top 8 received $991K.
Grant Size Distribution
36 grants across all recorded years
The most common grant size was in the $50–100K range: 15 grants of 36 (42%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 8 itemized grants.
States
Cities
How SynGAP Research Fund Incorporated gives
- Giving grew 117% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $158K (2020) to $1.4M (2023). In 2024 it made 8 grants totaling $991K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Childrens Hospital Colorado Aurora, CO | Scientific Research | $289,321 |
| 4M Therapeutics Inc Skillman, NJ | Scientific Research | $240,000 |
| Univesity of California SF San Francisco, CA | Scientific Research | $130,000 |
| Baylor College of Medicine Houston, TX | Scientific Research | $96,197 |
| Unravel Biosciences Inc Medford, MA | Scientific Research | $90,500 |
| University of Miami Coral Gables, FL | Scientific Research | $65,000 |
| New York University New York, NY | Scientific Research | $50,000 |
| Combined Brain Brenwood, TN | Scientific Research | $29,628 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $2,800,485 | $1,996,806 | $1,782,917 | $990,646 | 8 | $441,903 |
| 2023 | $2,531,433 | $1,859,673 | $2,151,996 | $1,444,169 | 15 | $5,602 |
| 2022 | $2,109,357 | $2,189,895 | $1,192,705 | $315,109 | 5 | $4,889 |
| 2021 | $1,187,271 | $1,357,074 | $874,679 | $455,500 | 5 | $13 |
| 2020 | $704,876 | $590,087 | $225,407 | $158,083 | 3 | — |
About SynGAP Research Fund Incorporated
Based on IRS filings
SynGAP Research Fund Incorporated is a public charity, based in San Diego, CA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.8M in total assets. In 2024, it awarded 8 grants totaling $991K. Net investment income was $442K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
SynGAP Research Fund Incorporated is led by Suzanne Jones, Chair Person on every filing since 2023; none of the 16 officers listed in 2024 report compensation.
Officers on the 2024 filing
Suzanne Jones
Chair Person
On filings since 2023
20 hrs/week
No compensation reported
J Mike Graglia
Managing Director
On filings since 2020
45 hrs/week
No compensation reported
Aaron Harding
Member
Co-Chair → Director at Large, 2021
Director at Large → Member, 2023
On filings since 2020
6 hrs/week
No compensation reported
Marta Caceres Dahiya
Member
Director at Lar → Co-Chair, 2021
Co-Chair → Member, 2023
On filings since 2020
5 hrs/week
No compensation reported
Pavel Gerovich
Member
Director at Lar → Co-Chair, 2021
Co-Chair → Member, 2023
On filings since 2020
5 hrs/week
No compensation reported
Peter Halliburton
Member
Development Director → Member, 2023
On filings since 2020
15 hrs/week
No compensation reported
Stella Tavilla
Member
Director at Large → Member, 2023
On filings since 2021
5 hrs/week
No compensation reported
Sydney Stelmaszek
Member
Patient Eng Director → Member, 2023
On filings since 2021
10 hrs/week
No compensation reported
Emily Barnes
Secretary
On filings since 2023
6 hrs/week
No compensation reported
Jess Fares
Member
On filings since 2023
5 hrs/week
No compensation reported
Julie Miles
Member
On filings since 2023
5 hrs/week
No compensation reported
Michael Langen
Treasurer
Member → Treasurer, 2024
On filings since 2023
6 hrs/week
No compensation reported
Stefanie Decker
CFO
On filings since 2023
10 hrs/week
No compensation reported
Eric Moulton
Member
New on the 2024 filing
10 hrs/week
No compensation reported
John Hill
Member
New on the 2024 filing
5 hrs/week
No compensation reported
Lindsay Wieczorek
Member
New on the 2024 filing
5 hrs/week
No compensation reported
Former officers (11)
- Former: Victoria Arteaga (2020–2023) — Treasurer
- Former: Nancy Leib Kessler (2021–2023) — Member
- Former: Melissa Foster (2023) — Member
- Former: Hans Schlecht (2020–2022) — Science Director
- Former: Olga Bothe (2020–2022) — Secretary
- Former: Rebecca Kohlhepp (2020–2022) — Treasurer
- Former: Jennifer Avery Robert (2021–2022) — Marketing Director
- Former: Virginie McNamar (2021–2022) — Director at Large
- Former: Christopher LaBleu (2020) — Director at Lar
- Former: Kali Worth (2020) — Director at Lar
- Former: Summer Slaught (2020) — Design Director
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about SynGAP Research Fund Incorporated
How much does SynGAP Research Fund Incorporated give each year?
SynGAP Research Fund Incorporated gave $991K across 8 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $1.4M across 15 grants.
What is SynGAP Research Fund Incorporated's typical grant size?
SynGAP Research Fund Incorporated's median grant in 2024 was $93,349, and its average grant was $123,831, across 8 grants on its 2024 IRS Form 990.
Where does SynGAP Research Fund Incorporated give grants?
SynGAP Research Fund Incorporated's top state is Colorado, with 29% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were New Jersey (24%) and California (13%).
Does SynGAP Research Fund Incorporated give general operating support?
Not in 2024: none of the 8 grants with a stated purpose on SynGAP Research Fund Incorporated's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "Scientific Research" (8 grants).
Who are SynGAP Research Fund Incorporated's largest grantees?
SynGAP Research Fund Incorporated's largest 2024 grantees include Childrens Hospital Colorado ($289,321), 4M Therapeutics Inc ($240,000) and Univesity of California SF ($130,000), according to its 2024 IRS Form 990. Together they received 67% of its itemized 2024 grant dollars.
How large is SynGAP Research Fund Incorporated?
SynGAP Research Fund Incorporated reported $2.8M in total assets on its 2024 IRS Form 990. Its revenue that year was $2.0M.
What is SynGAP Research Fund Incorporated's EIN?
SynGAP Research Fund Incorporated's EIN (Employer Identification Number) is 83-1200789. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 11, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS November 15, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS November 14, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS November 13, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS December 1, 2025)
- IRS filings on file for fiscal years 2020–2024
Explore Open Grants
Browse active grant opportunities in SynGAP Research Fund Incorporated's focus areas in our free grants database
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