Spondylitis Association of America logo

Spondylitis Association of America

Public charity · Grantmaker Encino, CA EIN: 95-3890767 Website

Advancing and directly sponsoring spondyloarthritis research, accelerating diagnosis, supporting optimum treatment for the individual, advancing awareness, and public and health care professional education in spondyloarthritis.

Spondylitis Association of America at a glance

In short: Spondylitis Association of America gave $198K across 4 grants in 2025 (avg $49K), mostly in Colorado. Source: 2025 IRS Form 990.

Annual giving (2025)
$197,850
+24.3% vs 2024
Grants made (2025)
4
+100.0% vs 2024
Average grant
$49,463
-37.9% vs 2024
Median grant
$31,011
Total assets
$7,621,545
-5.7% vs 2024
Primary geography
Colorado (53% of itemized 2025 grant dollars)
Latest 990 filing
Form 990, 2025 View filing

Data from IRS Form 990, 2025; updated September 2026.

How to apply to Spondylitis Association of America

Who Spondylitis Association of America funds

How this funder distributes its grants

Top Recipients

Top 4 recipients in 2025

University of Colorado School of Medicine: $106KUniversity of Colorado Schoolof Medicine$106KChildren's Hospital of Philadelphia: $32KChildren's Hospital ofPhiladelphia$32KVanderbilt University Medical Center: $30KVanderbilt University MedicalCenter$30KUniversity of Washington: $30KUniversity of Washington$30K

The largest 2025 recipient was University of Colorado School of Medicine ($106K). Together the top 4 received $198K.

Grant Size Distribution

17 grants across all recorded years

12<$50K$50–100K5$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 12 grants of 17 (71%).

Geographic Focus

Where this funder awards grants

Grant Distribution by State

11states

Share of 2025 grant dollars across all 4 itemized grants.

Cities

PortlandAuroraBostonPhiladelphiaChicagoHoustonNashvilleNew YorkSeattleSomervilleSt. LouisSt. Paul

How Spondylitis Association of America gives

  • Giving fell 55% from 2022 to 2025. Method

From the foundation's IRS Form 990 filings. Methodology.

Giving History

Giving Over Time

Total grant dollars and number of grants per year

$0$200K$400K$600K2 grants2021 8 grants2022 1 grant2023 2 grants2024 4 grants2025

From 2021 to 2025, annual grant giving ranged from $30K (2023) to $437K (2022). In 2025 it made 4 grants totaling $198K.

Grants by year

Grant recipients and amounts by year

RecipientPurposeAmount
University of Colorado School of Medicine Aurora, COLicensing of Gut-Trafficked T Cells$105,828
Children's Hospital of Philadelphia Philadelphia, PAEarly Life Exposures Risk Factors$32,022
Vanderbilt University Medical Center Nashville, TNParas Karmacharya ECI Award$30,000
University of Washington Seattle, WARachael Stoval ECI Award$30,000
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Financial History

Multi-year comparison from IRS filings

Figures from IRS filings, by filing year
Filing yearTotal AssetsRevenueExpensesGrants paidGrantsNet Investment Income
2025$7,621,545$2,024,097$2,463,539$197,8504$415,053
2024$8,085,006$2,781,548$2,615,783$159,1782$222,916
2023$7,830,002$2,348,536$2,273,938$30,0001$142,607
2022$7,928,906$5,570,571$2,773,309$436,8788$60,228
2021$4,942,936$3,059,287$2,029,757$123,2922$59,232

About Spondylitis Association of America

Based on IRS filings

Spondylitis Association of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Encino, CA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $7.6M in total assets. In 2025, it awarded 4 grants totaling $198K. Net investment income was $415K.

Leadership & Key People

Officers and directors from IRS filings

Spondylitis Association of America is led by Cassie Shafer, Chief Executive Officer on every filing since 2021; 4 of 14 officers listed in 2025 are compensated.

Officers on the 2025 filing

  • Cassie Shafer

    Chief Executive Officer

    On filings since 2021

    40 hrs/week

    $200K (2021) → $239K (2025)

  • Michael Pianin

    Board Chair

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Jason Blackwell

    Director, Brand Experience & Public Affairs

    New on the 2025 filing

    40 hrs/week

    $105K (2025)

  • Arnold M. Podolsky

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Craig Gimbel

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • James Rosenbaum

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Jill Miller

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • John D. Reveille

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Erin Arnold

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Diann Peterson

    Chief Philanthropy Officer

    On filings since 2021

    40 hrs/week

    $109K (2021) → $136K (2025)

  • Richard Howard

    Chief Mission Delivery Officer

    Chief Mission Advancement Officer → Chief Mission Advancement, 2022

    Chief Mission Advancement → Chief Mission Delivery Officer, 2023

    On filings since 2021

    40 hrs/week

    $112K (2021) → $145K (2025)

  • Ellen Carroll

    Secretary

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Eric Goldstein

    Treasurer

    On filings since 2021

    2 hrs/week

    No compensation reported

  • Paula Olsiewski

    Vice Chair

    On filings since 2021

    2 hrs/week

    No compensation reported

Former officers (4)
  • Former: Mary Ann Poladian (2021–2024) — Director
  • Former: Judy Smith (2024) — Director
  • Former: Batya Bilmes Lemler (2021–2023) — Director
  • Former: Pamela Weiss (2021–2023) — Director

Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Cassie Shafer — Chief Executive Officer: $239KCassie ShaferChief Executive Officer$239KRichard Howard — Chief Mission Delivery Off: $145KRichard HowardChief Mission Delivery Off$145KDiann Peterson — Chief Philanthropy Officer: $136KDiann PetersonChief Philanthropy Officer$136KJason Blackwell — Director, Brand Experience & Public Affairs: $105KJason BlackwellDirector, Brand Experience &…$105K

The highest reported compensation on the 2025 filing was $239K, to Cassie Shafer (Chief Executive Officer). 4 officers or directors reported compensation on that filing.

Frequently asked questions about Spondylitis Association of America

How much does Spondylitis Association of America give each year?

Spondylitis Association of America gave $198K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $159K across 2 grants.

What is Spondylitis Association of America's typical grant size?

Spondylitis Association of America's median grant in 2025 was $31,011, and its average grant was $49,463, across 4 grants on its 2025 IRS Form 990.

Where does Spondylitis Association of America give grants?

Spondylitis Association of America gives mostly in Colorado: 53% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Pennsylvania (16%) and Tennessee (15%).

Does Spondylitis Association of America give general operating support?

Not in 2025: none of the 4 grants with a stated purpose on Spondylitis Association of America's 2025 IRS Form 990 were described as general or operating support.

How large is Spondylitis Association of America?

Spondylitis Association of America reported $7.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.0M.

What is Spondylitis Association of America?

Spondylitis Association of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Encino, CA. It holds $7.6M in total assets as of 2025.

What is Spondylitis Association of America's EIN?

Spondylitis Association of America's EIN (Employer Identification Number) is 95-3890767. IRS Form 990 filing data is available on this page for 2021–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

Data update history

(6)

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2021 (received by the IRS October 4, 2021)
  2. Updated Form 990 for fiscal year 2022 (received by the IRS October 14, 2022)
  3. Updated Form 990 for fiscal year 2023 (received by the IRS October 17, 2023)
  4. Updated Form 990 for fiscal year 2024 (received by the IRS September 30, 2024)
  5. Updated Form 990 for fiscal year 2025 (received by the IRS October 15, 2025)
  6. IRS filings on file for fiscal years 2021–2025

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The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open

Figures come from Spondylitis Association of America's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.

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