Spondylitis Association of America
Advancing and directly sponsoring spondyloarthritis research, accelerating diagnosis, supporting optimum treatment for the individual, advancing awareness, and public and health care professional education in spondyloarthritis.
Spondylitis Association of America at a glance
In short: Spondylitis Association of America gave $198K across 4 grants in 2025 (avg $49K), mostly in Colorado. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $197,850
- +24.3% vs 2024
- Grants made (2025)
- 4
- +100.0% vs 2024
- Average grant
- $49,463
- -37.9% vs 2024
- Median grant
- $31,011
- Total assets
- $7,621,545
- -5.7% vs 2024
- Primary geography
- Colorado (53% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to Spondylitis Association of America
Open Grants
1 open opportunity from Spondylitis Association of America
Who Spondylitis Association of America funds
How this funder distributes its grants
Top Recipients
Top 4 recipients in 2025
The largest 2025 recipient was University of Colorado School of Medicine ($106K). Together the top 4 received $198K.
Grant Size Distribution
17 grants across all recorded years
The most common grant size was under $50K: 12 grants of 17 (71%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 4 itemized grants.
States
Cities
How Spondylitis Association of America gives
- Giving fell 55% from 2022 to 2025. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2025, annual grant giving ranged from $30K (2023) to $437K (2022). In 2025 it made 4 grants totaling $198K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Colorado School of Medicine Aurora, CO | Licensing of Gut-Trafficked T Cells | $105,828 |
| Children's Hospital of Philadelphia Philadelphia, PA | Early Life Exposures Risk Factors | $32,022 |
| Vanderbilt University Medical Center Nashville, TN | Paras Karmacharya ECI Award | $30,000 |
| University of Washington Seattle, WA | Rachael Stoval ECI Award | $30,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $7,621,545 | $2,024,097 | $2,463,539 | $197,850 | 4 | $415,053 |
| 2024 | $8,085,006 | $2,781,548 | $2,615,783 | $159,178 | 2 | $222,916 |
| 2023 | $7,830,002 | $2,348,536 | $2,273,938 | $30,000 | 1 | $142,607 |
| 2022 | $7,928,906 | $5,570,571 | $2,773,309 | $436,878 | 8 | $60,228 |
| 2021 | $4,942,936 | $3,059,287 | $2,029,757 | $123,292 | 2 | $59,232 |
About Spondylitis Association of America
Based on IRS filings
Spondylitis Association of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Encino, CA. IRS filing data is available from 2021 through 2025. As of 2025, the organization holds $7.6M in total assets. In 2025, it awarded 4 grants totaling $198K. Net investment income was $415K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Spondylitis Association of America is led by Cassie Shafer, Chief Executive Officer on every filing since 2021; 4 of 14 officers listed in 2025 are compensated.
Officers on the 2025 filing
Cassie Shafer
Chief Executive Officer
On filings since 2021
40 hrs/week
$200K (2021) → $239K (2025)
Michael Pianin
Board Chair
On filings since 2021
2 hrs/week
No compensation reported
Jason Blackwell
Director, Brand Experience & Public Affairs
New on the 2025 filing
40 hrs/week
$105K (2025)
Arnold M. Podolsky
Director
On filings since 2021
1 hr/week
No compensation reported
Craig Gimbel
Director
On filings since 2021
1 hr/week
No compensation reported
James Rosenbaum
Director
On filings since 2021
1 hr/week
No compensation reported
Jill Miller
Director
On filings since 2021
1 hr/week
No compensation reported
John D. Reveille
Director
On filings since 2021
1 hr/week
No compensation reported
Erin Arnold
Director
On filings since 2024
1 hr/week
No compensation reported
Diann Peterson
Chief Philanthropy Officer
On filings since 2021
40 hrs/week
$109K (2021) → $136K (2025)
Richard Howard
Chief Mission Delivery Officer
Chief Mission Advancement Officer → Chief Mission Advancement, 2022
Chief Mission Advancement → Chief Mission Delivery Officer, 2023
On filings since 2021
40 hrs/week
$112K (2021) → $145K (2025)
Ellen Carroll
Secretary
On filings since 2021
2 hrs/week
No compensation reported
Eric Goldstein
Treasurer
On filings since 2021
2 hrs/week
No compensation reported
Paula Olsiewski
Vice Chair
On filings since 2021
2 hrs/week
No compensation reported
Former officers (4)
- Former: Mary Ann Poladian (2021–2024) — Director
- Former: Judy Smith (2024) — Director
- Former: Batya Bilmes Lemler (2021–2023) — Director
- Former: Pamela Weiss (2021–2023) — Director
Data from IRS Form 990 filings, 2021–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $239K, to Cassie Shafer (Chief Executive Officer). 4 officers or directors reported compensation on that filing.
Frequently asked questions about Spondylitis Association of America
How much does Spondylitis Association of America give each year?
Spondylitis Association of America gave $198K across 4 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $159K across 2 grants.
What is Spondylitis Association of America's typical grant size?
Spondylitis Association of America's median grant in 2025 was $31,011, and its average grant was $49,463, across 4 grants on its 2025 IRS Form 990.
Where does Spondylitis Association of America give grants?
Spondylitis Association of America gives mostly in Colorado: 53% of the grant dollars itemized on its 2025 IRS Form 990 went to recipients there. The next largest states were Pennsylvania (16%) and Tennessee (15%).
Does Spondylitis Association of America give general operating support?
Not in 2025: none of the 4 grants with a stated purpose on Spondylitis Association of America's 2025 IRS Form 990 were described as general or operating support.
How large is Spondylitis Association of America?
Spondylitis Association of America reported $7.6M in total assets on its 2025 IRS Form 990. Its revenue that year was $2.0M.
What is Spondylitis Association of America?
Spondylitis Association of America is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Encino, CA. It holds $7.6M in total assets as of 2025.
What is Spondylitis Association of America's EIN?
Spondylitis Association of America's EIN (Employer Identification Number) is 95-3890767. IRS Form 990 filing data is available on this page for 2021–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS October 4, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS October 14, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 17, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 30, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS October 15, 2025)
- IRS filings on file for fiscal years 2021–2025
Explore Open Grants
Browse active grant opportunities in Spondylitis Association of America's focus areas in our free grants database
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