Spinal CSF Leak Foundation
Spinal CSF Leak Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Spokane, WA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $353K in total assets.
Spinal CSF Leak Foundation at a glance
- Total assets
- $353,170
- +2.2% vs 2024
- Revenue (2025)
- $117,854
- -33.3% vs 2024
- Expenses (2025)
- $120,953
- -21.3% vs 2024
- Latest 990 filing
- Form 990-EZ, 2025 View filing
Data from IRS Form 990-EZ, 2025; updated September 2026.
Who Spinal CSF Leak Foundation funds
How this funder distributes its grants
Grant Size Distribution
1 grant across all recorded years
The most common grant size was in the $50–100K range: 1 grant of 1 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2022 it made 1 grant totaling $50K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| UT Southwestern Medical Center Dallas, TX | Provided research grant to study disability in spinal CSF leak. | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants |
|---|---|---|---|---|---|
| 2025 | $353,170 | $117,854 | $120,953 | — | — |
| 2024 | $345,555 | $176,736 | $153,596 | — | — |
| 2023 | $319,446 | $157,715 | $126,286 | — | — |
| 2022 | $287,540 | $222,273 | $154,151 | $50,000 | 1 |
| 2021 | $218,356 | $166,203 | $100,127 | — | — |
| 2020 | $152,280 | $135,408 | $123,381 | — | — |
Leadership & Key People
Officers and directors from IRS filings
Spinal CSF Leak Foundation is led by Jennifer MacKenzie, Executive Director & Treasurer since 2025 (on filings since 2023); 2 of 9 officers listed in 2025 are compensated.
Officers on the 2025 filing
Jennifer MacKenzie
Executive Director & Treasurer
Director → Executive Director, 2024
Executive Director → Executive Director & Treasurer, 2025
On filings since 2023
20 hrs/week
$3K (2024) → $37K (2025)
Olivia Chelko
Executive Director
New on the 2025 filing
30 hrs/week
$2K (2025)
Jodi Ettenberg
President
Director → President, 2024
On filings since 2023
40 hrs/week
No compensation reported
Martha Bond
Director
Board Member → Director, 2023
On filings since 2022
5 hrs/week
No compensation reported
Jennifer Schoon PT DPT
Director
President → Treasurer, 2024
Treasurer → Director, 2025
On filings since 2023
5 hrs/week
No compensation reported
Cara Gady Church
Director
Secretary → Director, 2025
On filings since 2024
3 hrs/week
No compensation reported
Isaac Brodsky
Director
New on the 2025 filing
5 hrs/week
No compensation reported
Aubrey Bolan
Secretary
New on the 2025 filing
10 hrs/week
No compensation reported
Kyle Spawn
Vice President
New on the 2025 filing
10 hrs/week
No compensation reported
Former officers (11)
- Former: Andrea Buchanan (2020–2024) — Executive Director
- Former: Tammie Stanford (2021–2024) — Secretary
- Former: Amanda Pickard PhD (2020–2023) — Vice President
- Former: Megan Kocher (2023) — Director
- Former: Jennifer Schoon (2020–2022) — President & Treasurer
- Former: Connie Deline (2020) — Vice President
- Former: Jayne Barsic (2020) — Officer
- Former: Laura Gianni (2020) — Officer
- Former: Mary Katherine Harms (2020) — Officer
- Former: Michael Zetz (2020) — President
- Former: Rich Alfieri (2020) — Officer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $37K, to Jennifer MacKenzie (Executive Dir.). 2 officers or directors reported compensation on that filing.
Frequently asked questions about Spinal CSF Leak Foundation
How large is Spinal CSF Leak Foundation?
Spinal CSF Leak Foundation reported $353K in total assets on its 2025 IRS Form 990-EZ. Its revenue that year was $118K.
What is Spinal CSF Leak Foundation?
Spinal CSF Leak Foundation is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Spokane, WA. It holds $353K in total assets as of 2025.
Where does Spinal CSF Leak Foundation operate?
Spinal CSF Leak Foundation has awarded grants in Texas.
What is Spinal CSF Leak Foundation's EIN?
Spinal CSF Leak Foundation's EIN (Employer Identification Number) is 47-1141080. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2022 (received by the IRS December 22, 2022)
- Updated Form 990-EZ for fiscal year 2020 (received by the IRS August 27, 2020)
- Updated Form 990-EZ for fiscal year 2021 (received by the IRS August 25, 2021)
- Updated Form 990-EZ for fiscal year 2023 (received by the IRS October 4, 2023)
- Updated Form 990-EZ for fiscal year 2024 (received by the IRS May 10, 2025)
- Updated Form 990-EZ for fiscal year 2025 (received by the IRS January 25, 2026)
Live grants for the work Spinal CSF Leak Foundation funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Spinal CSF Leak Foundation's focus areas in our free grants database
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