Spinal CSF Leak Foundation
Spinal CSF Leak Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Spokane, WA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $353K in total assets.
Key facts about Spinal CSF Leak Foundation
- EIN
- 47-1141080
- Latest 990 filing
- Form 990-EZ, 2025
- Total assets
- $353,170
Data from IRS Form 990-EZ, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990-EZ · View filing
Total Assets
$353K
+2.2% YoY
Revenue
$118K
-33.3% YoY
Net Investment Income
—
Expenses
$121K
-21.3% YoY
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
1 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $353,170 | $345,555 | $319,446 |
| Revenue | $117,854 | $176,736 | $157,715 |
| Expenses | $120,953 | $153,596 | $126,286 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | — | — | — |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- Updated Form 990-EZ for fiscal year 2020 (received by the IRS August 27, 2020)
- Updated Form 990-EZ for fiscal year 2021 (received by the IRS August 25, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS December 22, 2022)
- Updated Form 990-EZ for fiscal year 2023 (received by the IRS October 4, 2023)
- Updated Form 990-EZ for fiscal year 2024 (received by the IRS May 10, 2025)
- Updated Form 990-EZ for fiscal year 2025 (received by the IRS January 25, 2026)
Leadership & Key People
Officers and directors from IRS filings
Spinal CSF Leak Foundation is led by Jennifer MacKenzie, Executive Director & Treasurer since 2025 (on filings since 2023); 2 of 9 officers listed in 2025 are compensated.
Officers on the 2025 filing
Jennifer MacKenzie
Executive Director & Treasurer
Director → Executive Director, 2024
Executive Director → Executive Director & Treasurer, 2025
On filings since 2023
20 hrs/week
$3K (2024) → $37K (2025)
Olivia Chelko
Executive Director
New on the 2025 filing
30 hrs/week
$2K (2025)
Jodi Ettenberg
President
Director → President, 2024
On filings since 2023
40 hrs/week
No compensation reported
Martha Bond
Director
Board Member → Director, 2023
On filings since 2022
5 hrs/week
No compensation reported
Jennifer Schoon PT DPT
Director
President → Treasurer, 2024
Treasurer → Director, 2025
On filings since 2023
5 hrs/week
No compensation reported
Cara Gady Church
Director
Secretary → Director, 2025
On filings since 2024
3 hrs/week
No compensation reported
Isaac Brodsky
Director
New on the 2025 filing
5 hrs/week
No compensation reported
Aubrey Bolan
Secretary
New on the 2025 filing
10 hrs/week
No compensation reported
Kyle Spawn
Vice President
New on the 2025 filing
10 hrs/week
No compensation reported
Former officers (11)
- Former: Andrea Buchanan (2020–2024) — Executive Director
- Former: Tammie Stanford (2021–2024) — Secretary
- Former: Amanda Pickard PhD (2020–2023) — Vice President
- Former: Megan Kocher (2023) — Director
- Former: Jennifer Schoon (2020–2022) — President & Treasurer
- Former: Connie Deline (2020) — Vice President
- Former: Jayne Barsic (2020) — Officer
- Former: Laura Gianni (2020) — Officer
- Former: Mary Katherine Harms (2020) — Officer
- Former: Michael Zetz (2020) — President
- Former: Rich Alfieri (2020) — Officer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
Frequently asked questions about Spinal CSF Leak Foundation
How large is Spinal CSF Leak Foundation?
Spinal CSF Leak Foundation reported $353K in total assets on its 2025 IRS Form 990-EZ. Its revenue that year was $118K.
What is Spinal CSF Leak Foundation?
Spinal CSF Leak Foundation is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Spokane, WA. It holds $353K in total assets as of 2025.
Where does Spinal CSF Leak Foundation operate?
Spinal CSF Leak Foundation has awarded grants in Texas.
What is Spinal CSF Leak Foundation's EIN?
Spinal CSF Leak Foundation's EIN (Employer Identification Number) is 47-1141080. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
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