Soft Bones Incthe US
To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.
Soft Bones Incthe US at a glance
In short: Soft Bones Incthe US gave $25K across 1 grant in 2024 (avg $25K), mostly in California. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $25,000
- +0.0% vs 2023
- Grants made (2024)
- 1
- +0.0% vs 2023
- Average grant
- $25,000
- +0.0% vs 2023
- Median grant
- $25,000
- Total assets
- $581,577
- +8.7% vs 2023
- Primary geography
- California (100% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
How to apply to Soft Bones Incthe US
Open Grants
1 open opportunity from Soft Bones Incthe US
Who Soft Bones Incthe US funds
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Sanford Burnham Prebys Medical Discovery Institute ($25K).
Grant Size Distribution
6 grants across all recorded years
The most common grant size was under $50K: 6 grants of 6 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2024, annual grant giving ranged from $25K (2020) to $57K (2022). In 2024 it made 1 grant totaling $25K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Sanford Burnham Prebys Medical Discovery Institute La Jolla, CA | Research | $25,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $581,577 | $526,669 | $512,217 | $25,000 | 1 | $25,565 |
| 2023 | $534,980 | $585,208 | $774,511 | $25,000 | 1 | $24,807 |
| 2022 | $718,813 | $577,885 | $571,864 | $57,328 | 3 | $4,573 |
| 2021 | $714,186 | $603,592 | $388,674 | — | — | $93 |
| 2020 | $522,379 | $506,737 | $346,345 | $25,000 | 1 | $175 |
| 2019 | $337,484 | $442,909 | $341,224 | $50,000 | 2 | $215 |
About Soft Bones Incthe US
Based on IRS filings
Soft Bones Incthe US is a public charity focused on Medical Research, based in Boonton, NJ. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $582K in total assets. In 2024, it awarded 1 grant totaling $25K. Net investment income was $26K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Soft Bones Incthe US is led by Deborah Fowler, President on every filing since 2019; 1 of 9 officers listed in 2024 is compensated.
Officers on the 2024 filing
Deborah Fowler
President
On filings since 2019
1 hr/week
No compensation reported
Adam Grenker Esq.
Director
On filings since 2019
1 hr/week
No compensation reported
Brenda Ziegler
Director
On filings since 2019
1 hr/week
No compensation reported
Rob Moskow
Director
On filings since 2023
1 hr/week
No compensation reported
Scott Nettune
Director
On filings since 2023
1 hr/week
No compensation reported
Denise M. Goodbar
Executive Di
On filings since 2023
40 hrs/week
$125K (2023) → $125K (2024)
Heidi Floyd
Secretary
On filings since 2019
1 hr/week
No compensation reported
Karen Carolonza
Vice President
On filings since 2019
1 hr/week
No compensation reported
Michelle Labruno
Treasurer
On filings since 2019
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2019–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $125K, to Denise M Goodbar (Executive Di).
Frequently asked questions about Soft Bones Incthe US
How much does Soft Bones Incthe US give each year?
Soft Bones Incthe US gave $25K across 1 grant in 2024, according to its 2024 IRS Form 990. In 2023 it gave $25K across 1 grant.
How large is Soft Bones Incthe US?
Soft Bones Incthe US reported $582K in total assets on its 2024 IRS Form 990. Its revenue that year was $527K.
What is Soft Bones Incthe US?
Soft Bones Incthe US is a public charity focused on Medical Research, based in Boonton, NJ. It holds $582K in total assets as of 2024.
Where does Soft Bones Incthe US operate?
Soft Bones Incthe US has awarded grants in California, Pennsylvania.
What is Soft Bones Incthe US's EIN?
Soft Bones Incthe US's EIN (Employer Identification Number) is 26-4619055. IRS Form 990 filing data is available on this page for 2019–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(6)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2019 (received by the IRS September 3, 2020)
- Updated Form 990 for fiscal year 2020 (received by the IRS September 10, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS May 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS September 5, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS September 9, 2025)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work Soft Bones Incthe US funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Soft Bones Incthe US's focus areas in our free grants database
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