TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$582K
+8.7% YoY
Annual Giving
$25K
+0.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$25K
+0.0% YoY
About Soft Bones Incthe Us
Based on IRS filings
Soft Bones Incthe Us is a nonprofit organization focused on Medical Research, based in BOONTON, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $582K in total assets. In 2024, it awarded 1 grants totaling $25K. Net investment income was $26K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $581,577 | $534,980 | $718,813 |
| Revenue | $526,669 | $585,208 | $577,885 |
| Expenses | $512,217 | $774,511 | $571,864 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $25,565 | $24,807 | $4,573 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Open Grants
1 open opportunity from Soft Bones Incthe Us
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DEBORAH FOWLER | PRESIDENT | 1 | — |
| KAREN CAROLONZA | VICE PRESIDE | 1 | — |
| MICHELLE LABRUNO | TREASURER | 1 | — |
| HEIDI FLOYD | SECRETARY | 1 | — |
| ADAM GRENKER ESQ | DIRECTOR | 1 | — |
| SCOTT NETTUNE | DIRECTOR | 1 | — |
| DR BRENDA ZIEGLER | DIRECTOR | 1 | — |
| ROB MOSKOW | DIRECTOR | 1 | — |
| DENISE M GOODBAR | EXECUTIVE DI | 40 | $125,000 |
Subject Areas
Focus areas based on grantmaking activity
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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