To build awareness of the disease of hypophosphatasia by providing educational materials, a support network, a sharing of information regarding research and treatment options to people diagnosed with hypophosphatasia, their families, and to the treating doctors.
Key facts about Soft Bones Incthe US
In short: Soft Bones Incthe US gave $25K across 1 grant in 2024 (avg $25K), mostly in California. Source: 2024 IRS Form 990 filing.
- EIN
- 26-4619055
- Latest 990 filing
- Form 990 filing, 2024
- Annual giving (2024)
- $25,000
- Grants made (2024)
- 1
- Average grant
- $25,000
- Median grant
- $25,000
- Total assets
- $581,577
- Primary geography
- California (100% of itemized 2024 grant dollars)
Data from IRS Form 990 filing, 2024; updated September 2026.
Financial Overview
From 2024 IRS Form 990 filing · View filing
Total Assets
$582K
+8.7% YoY
Annual Giving
$25K
+0.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$25K
+0.0% YoY
About Soft Bones Incthe US
Based on IRS filings
Soft Bones Incthe US is a nonprofit organization focused on Medical Research, based in Boonton, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $582K in total assets. In 2024, it awarded 1 grant totaling $25K. Net investment income was $26K.
Focus Areas
Open Grants
1 open opportunity from Soft Bones Incthe US
Ready to take the next step with Soft Bones Incthe US?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2024 grant dollars on its one itemized grant.
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
From 2023 to 2024, annual grant giving ranged from $25K (2023) to $25K (2024). In 2024 it made 1 grant totaling $25K.
Grant Insights
How this funder distributes its grants
Top Recipients
Top recipient in 2024
The largest 2024 recipient was Sanford Burnham Prebys Medical ($25K).
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 2 grants of 2 (100%).
Giving History
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Sanford Burnham Prebys Medical La Jolla, CA | Research | $25,000 |
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $581,577 | $534,980 | $718,813 |
| Revenue | $526,669 | $585,208 | $577,885 |
| Expenses | $512,217 | $774,511 | $571,864 |
| Net Investment Income | $25,565 | $24,807 | $4,573 |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Leadership & Key People
Officers and directors from IRS filings
Soft Bones Incthe US is led by Deborah Fowler, President on every filing since 2020; 1 of 9 officers listed in 2024 is compensated.
Officers on the 2024 filing
Deborah Fowler
President
On filings since 2020
1 hr/week
No compensation reported
Adam Grenker Esq.
Director
On filings since 2020
1 hr/week
No compensation reported
Brenda Ziegler
Director
On filings since 2020
1 hr/week
No compensation reported
Rob Moskow
Director
On filings since 2023
1 hr/week
No compensation reported
Scott Nettune
Director
On filings since 2023
1 hr/week
No compensation reported
Denise M. Goodbar
Executive Di
On filings since 2023
40 hrs/week
$125K (2023) → $125K (2024)
Heidi Floyd
Secretary
On filings since 2020
1 hr/week
No compensation reported
Karen Carolonza
Vice President
On filings since 2020
1 hr/week
No compensation reported
Michelle Labruno
Treasurer
On filings since 2020
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $125K, to Denise M Goodbar (Executive Di).
Frequently asked questions about Soft Bones Incthe US
How much does Soft Bones Incthe US give each year?
Soft Bones Incthe US gave $25K across 1 grant in 2024, according to its 2024 IRS Form 990 filing. In 2023 it gave $25K across 1 grant.
How large is Soft Bones Incthe US?
Soft Bones Incthe US reported $582K in total assets on its 2024 IRS Form 990 filing. Its revenue that year was $527K.
What is Soft Bones Incthe US?
Soft Bones Incthe US is a nonprofit organization focused on Medical Research, based in Boonton, NJ. It holds $582K in total assets as of 2024.
Where does Soft Bones Incthe US operate?
Soft Bones Incthe US has awarded grants in California, Pennsylvania.
What is Soft Bones Incthe US's EIN?
Soft Bones Incthe US's EIN (Employer Identification Number) is 26-4619055. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Here's the math on researching Soft Bones Incthe US by hand.
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