TO BUILD AWARENESS OF THE DISEASE OF HYPOPHOSPHATASIA BY PROVIDING EDUCATIONAL MATERIALS, A SUPPORT NETWORK, A SHARING OF INFORMATION REGARDING RESEARCH AND TREATMENT OPTIONS TO PEOPLE DIAGNOSED WITH HYPOPHOSPHATASIA, THEIR FAMILIES, AND TO THE TREATING DOCTORS.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$582K
+8.7% YoY
Annual Giving
$25K
+0.0% YoY
Grant Count
1
+0.0% YoY
Avg Grant Size
$25K
+0.0% YoY
About Soft Bones Incthe Us
Based on IRS filings
Soft Bones Incthe Us is a nonprofit organization focused on Medical Research, based in BOONTON, NJ. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $582K in total assets. In 2024, it awarded 1 grants totaling $25K. Net investment income was $26K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $581,577 | $534,980 | $718,813 |
| Revenue | $526,669 | $585,208 | $577,885 |
| Expenses | $512,217 | $774,511 | $571,864 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $25,565 | $24,807 | $4,573 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Open Grants
1 open opportunity from Soft Bones Incthe Us
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include Sanford Burnham Prebys Medical ($25,000).
| Recipient | Purpose | Amount |
|---|---|---|
| SANFORD BURNHAM PREBYS MEDICAL LA JOLLA, CA | RESEARCH | $25,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| DEBORAH FOWLER | PRESIDENT | 1 | — |
| KAREN CAROLONZA | VICE PRESIDE | 1 | — |
| MICHELLE LABRUNO | TREASURER | 1 | — |
| HEIDI FLOYD | SECRETARY | 1 | — |
| ADAM GRENKER ESQ | DIRECTOR | 1 | — |
| SCOTT NETTUNE | DIRECTOR | 1 | — |
| DR BRENDA ZIEGLER | DIRECTOR | 1 | — |
| ROB MOSKOW | DIRECTOR | 1 | — |
| DENISE M GOODBAR | EXECUTIVE DI | 40 | $125,000 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Soft Bones Incthe Us?
Soft Bones Incthe Us is a nonprofit organization focused on Medical Research, based in BOONTON, NJ. It holds $582K in total assets as of 2024.
How large is Soft Bones Incthe Us?
As of 2024, Soft Bones Incthe Us holds $582K in total assets with $527K in annual revenue. It awarded 1 grants totaling $25K in 2024.
Where does Soft Bones Incthe Us operate?
Soft Bones Incthe Us has awarded grants in California, Pennsylvania.
What size grants does Soft Bones Incthe Us award?
In 2024, Soft Bones Incthe Us awarded 1 grants totaling $25K — an average of about $25K per grant, based on its IRS Form 990 filings.
What is Soft Bones Incthe Us's EIN?
Soft Bones Incthe Us's EIN (Employer Identification Number) is 26-4619055. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Soft Bones Incthe Us's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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