Rubinstein-Taybi Syndrome Childrens Foundation
Rubinstein-Taybi Syndrome Childrens Foundation is a private foundation, based in Hingham, MA. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $151K in total assets. In 2025, it awarded 1 grant totaling $2K. Net investment income was $5K.
Rubinstein-Taybi Syndrome Childrens Foundation at a glance
In short: Rubinstein-Taybi Syndrome Childrens Foundation gave $2K across 1 grant in 2025 (avg $2K), mostly in Maryland. Source: 2025 IRS Form 990-PF.
- Annual giving (2025)
- $1,850
- -97.5% vs 2024
- Grants made (2025)
- 1
- -50.0% vs 2024
- Average grant
- $1,850
- -94.9% vs 2024
- Median grant
- $1,850
- Total assets
- $150,785
- +14.3% vs 2024
- Primary geography
- Maryland (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990-PF, 2025 View filing
Data from IRS Form 990-PF, 2025; updated September 2026.
Who Rubinstein-Taybi Syndrome Childrens Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was Northeast Family Medical Conference ($2K).
Grant Size Distribution
5 grants across all recorded years
The most common grant size was under $50K: 4 grants of 5 (80%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
How Rubinstein-Taybi Syndrome Childrens Foundation gives
- Giving grew 51% from 2022 to 2025. Method
- In 2025 it paid out 27% of its IRS minimum distribution (the 5% rule). Foundations have until the end of the next year to meet it. Method
From the foundation's IRS Form 990-PF filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2025, annual grant giving ranged from $1K (2023) to $73K (2024). In 2025 it made 1 grant totaling $2K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Northeast Family Medical Conference Nottingham, MD | Grant is to fund the cost of the Northeast Family RTS medical conference a gather of families of RTS children and physicians focused on caring for RTS kids and researchers studying RTS. | $1,850 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Net Investment Income | Distributable Amount |
|---|---|---|---|---|---|---|---|---|
| 2025 | $150,785 | $20,769 | $1,944 | $1,850 | 1 | $1,850 | $5,046 | $6,847 |
| 2024 | $131,960 | $11,492 | $73,568 | $73,083 | 2 | $73,083 | $6,750 | $1,730 |
| 2023 | $194,036 | $3,923 | $1,086 | $1,000 | 1 | $1,000 | $3,606 | — |
| 2022 | $191,199 | $1,928 | $1,307 | $1,223 | 1 | $1,223 | $283 | — |
| 2021 | $190,578 | $572 | $47 | — | — | — | $284 | $14 |
| 2020 | $190,053 | $863 | $52 | — | — | — | $402 | $37 |
Under IRS private-foundation payout rules, Rubinstein-Taybi Syndrome Childrens Foundation reported a distributable amount of $7K for 2025 — the minimum it must pay out in qualifying distributions.
Leadership & Key People
Officers and directors from IRS filings
Rubinstein-Taybi Syndrome Childrens Foundation's 2025 filing lists 2 officers; none of the 2 officers listed in 2025 report compensation.
Officers on the 2025 filing
Dana M Palmer Donnelly
Trustee
On filings since 2020
0.5 hrs/week
No compensation reported
Jeffrey J Donnelly
Trustee
On filings since 2020
5 hrs/week
No compensation reported
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Rubinstein-Taybi Syndrome Childrens Foundation
How much does Rubinstein-Taybi Syndrome Childrens Foundation give each year?
Rubinstein-Taybi Syndrome Childrens Foundation gave $2K across 1 grant in 2025, according to its 2025 IRS Form 990-PF. In 2024 it gave $73K across 2 grants.
How large is Rubinstein-Taybi Syndrome Childrens Foundation?
Rubinstein-Taybi Syndrome Childrens Foundation reported $151K in total assets on its 2025 IRS Form 990-PF. It paid out $2K in qualifying distributions that year, against a required minimum of $7K (roughly 5% of its investment assets). Falling short in one year is not a violation: foundations have until the end of the next year to meet the minimum.
Where does Rubinstein-Taybi Syndrome Childrens Foundation operate?
Rubinstein-Taybi Syndrome Childrens Foundation has awarded grants in Maryland.
What is Rubinstein-Taybi Syndrome Childrens Foundation's EIN?
Rubinstein-Taybi Syndrome Childrens Foundation's EIN (Employer Identification Number) is 27-6801984. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990-PF filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990-PF for fiscal year 2020 (received by the IRS April 28, 2021)
- Updated Form 990-PF for fiscal year 2021 (received by the IRS April 4, 2022)
- Updated Form 990-PF for fiscal year 2022 (received by the IRS April 11, 2023)
- Updated Form 990-PF for fiscal year 2023 (received by the IRS April 1, 2024)
- Updated Form 990-PF for fiscal year 2024 (received by the IRS April 6, 2025)
- Updated Form 990-PF for fiscal year 2025 (received by the IRS March 14, 2026)
- IRS filings on file for fiscal years 2020–2025
Live grants for the work Rubinstein-Taybi Syndrome Childrens Foundation funds
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