Research Fund for Cystic Fibrosis Inc

Private foundation · Grantmaker Oradell, NJ EIN: 22-2545566

Research Fund for Cystic Fibrosis Inc is a private foundation based in Oradell, New Jersey. Its 2025 IRS filing describes its charitable activity as contributions to charities and foundations in the field of cystic fibrosis care and research.

Key facts about Research Fund for Cystic Fibrosis Inc

In short: Research Fund for Cystic Fibrosis Inc gave $1.4M across 23 grants in 2025 (avg $59K), mostly in Pennsylvania. Source: 2025 IRS Form 990-PF.

EIN
22-2545566
Latest 990 filing
Form 990-PF, 2025
Annual giving (2025)
$1,357,419
Grants made (2025)
23
Average grant
$59,018
Median grant
$10,000
Total assets
$385,651
Primary geography
Pennsylvania (56% of itemized 2025 grant dollars)
Accepts unsolicited proposals
No
How to apply
The foundation does not accept unsolicited requests for funds and makes contributions only to preselected charitable organizations. Full details ↓

Data from IRS Form 990-PF, 2025; updated September 2026. Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.

Financial Overview

From 2025 IRS Form 990-PF · View filing

Total Assets

$386K

-50.4% YoY

Annual Giving

$1.4M

+24.5% YoY

Grant Count

23

+109.1% YoY

Avg Grant Size

$59K

-40.4% YoY

How Research Fund for Cystic Fibrosis Inc gives

  • 30% of 2025 grantees were also funded in 2024. Method
  • Giving grew 274% from 2022 to 2025. Method

Estimate from itemized grant lists in IRS Form 990-PF filings (2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.

Research compiled by Grantable AI from public sources. Last updated September 2026.

Mission & Focus Areas

The foundation’s stated charitable activity is supporting charities and foundations working in cystic fibrosis care and research. One 2025 grantee, BreatheStrong CF, describes its mission as promoting cystic fibrosis awareness and advancing the well-being of people with cystic fibrosis through education, direct support, and opportunities to thrive.

Grantmaking

In 2025, the foundation reported 23 grants totaling $1,357,419. Grant amounts ranged from $100 to $288,119, with a median of $10,000. Its largest reported grants included:

How to Apply

The foundation does not accept unsolicited requests for funds and makes contributions only to preselected charitable organizations.

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Geographic Focus

Where this funder awards grants

In 2025, grant dollars went to recipients in Pennsylvania (56%), Washington (15%), New York (14%), Georgia (13%), and New Jersey (3%).

Grant Distribution by State

11states

Share of 2025 grant dollars across all 23 itemized grants.

Cities

New YorkMerion StationMiamiVashon IslandNewarkTuckerWayneBronxHackensackParamusRyeSanta BarbaraSomervilleBostonHaleiwaManasquanMiddletonSouthamptonTampaTeaneck

Giving Over Time

Total grant dollars and number of grants per year

$0$500K$1M$1.5M8 grants2019 4 grants2020 8 grants2021 4 grants2022 11 grants2023 11 grants2024 23 grants2025

From 2019 to 2025, annual grant giving ranged from $244K (2020) to $1.4M (2025). In 2025 it made 23 grants totaling $1.4M.

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2025

Emily's Entourage: $757K across 6 grantsEmily's Entourage$757K · 6 grantsAlliance for Tompotika Conservation: $199K across 2 grantsAlliance for TompotikaConservation$199K · 2 grantsCystic Fibrosis Care: $184K across 6 grantsCystic Fibrosis Care$184K · 6 grantsBreathestrong CF: $172KBreathestrong CF$172KJewish Family Service: $27K across 2 grantsJewish Family Service$27K · 2 grantsHackensack River Keeper: $11K across 2 grantsHackensack River Keeper$11K · 2 grantsTempa General Hospital: $5KTempa General Hospital$5KBenedictine Life Foundation of Wisconsin Inc: $1KBenedictine Life Foundation ofWisconsin Inc$1KCystic Fibrosis Foundation: $1KCystic Fibrosis Foundation$1KNJ STFA Foundation: $100NJ STFA Foundation$100

The largest 2025 recipient was Emily's Entourage ($757K across 6 grants). Together the top 10 received $1.4M.

Grant Size Distribution

57 grants across all recorded years

30<$50K11$50–100K10$100–250K5$250–500K1$500K–1M$1–5M$5M+

The most common grant size was under $50K: 30 grants of 57 (53%).

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
Emily's Entourage Merion Station, PAEducation and Research$288,119
Emily's Entourage Merion Station, PAEducation and Research$253,897
Breathestrong CF Tucker, GAGeneral Support$171,889
Alliance for Tompotika Conservation Vashon Island, WAEducation and Research$149,920
Emily's Entourage Merion Station, PAEducation and Research$105,493
Cystic Fibrosis Care New York, NYEducation and Research$101,148
Emily's Entourage Merion Station, PAEducation and Research$100,149
Cystic Fibrosis Care New York, NYEducation and Research$61,781
Alliance for Tompotika Conservation Vashon Island, WAEducation and Research$49,385
Jewish Family Service Somerville, NJFunds for critical programs including affordable mental health counseling, support for isolated older adults, resources people struggling with food insecurity, and programs for families with children on the autism spectrum.$25,000

Financial History

Multi-year comparison from IRS filings

Filing year Assets Revenue Expenses Grants
2025 $385,651 $33,316 $1,363,357 $1,357,419
2024 $776,772 $78,651 $1,095,325 $1,090,138
2023 $1,310,150 $84,308 $743,052 $734,353
Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$500K$1M$1.5M2019 2020 2021 2022 2023 2024 2025
Metric202520242023
Total Assets$385,651$776,772$1,310,150
Revenue$33,316$78,651$84,308
Expenses$1,363,357$1,095,325$743,052
Qualifying Distributions$1,358,630$1,092,028$734,353
Net Investment Income$31,466$76,901$82,518

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990-PF for fiscal year 2024 (received by the IRS April 23, 2025)
  2. Updated Form 990-PF for fiscal year 2025 (received by the IRS April 25, 2026)
  3. Added Form 990-PF for fiscal year 2019 (received by the IRS April 27, 2020)
  4. Updated Form 990-PF for fiscal year 2020 (received by the IRS April 20, 2021)
  5. Updated Form 990-PF for fiscal year 2021 (received by the IRS May 6, 2022)
  6. Updated Form 990-PF for fiscal year 2022 (received by the IRS April 27, 2023)
  7. Updated Form 990-PF for fiscal year 2023 (received by the IRS April 24, 2024)

Leadership & Key People

Leadership team and compensation from IRS filings

John Scaglione is listed as president on the 2025 filing.

Research Fund for Cystic Fibrosis Inc is led by John Scaglione, President on every filing since 2019 — the only officer listed, and uncompensated.

Officers on the 2025 filing

  • John Scaglione

    President

    On filings since 2019

    1 hr/week

    No compensation reported

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Contact

Mailing address: 455 Oradell Avenue, Oradell, NJ 07649-1711
Phone: (201) 403-5486

Frequently asked questions about Research Fund for Cystic Fibrosis Inc

How much does Research Fund for Cystic Fibrosis Inc give each year?

Research Fund for Cystic Fibrosis Inc gave $1.4M across 23 grants in 2025, according to its 2025 IRS Form 990-PF. In 2024 it gave $1.1M across 11 grants.

What is Research Fund for Cystic Fibrosis Inc's typical grant size?

Research Fund for Cystic Fibrosis Inc's median grant in 2025 was $10,000, and its average grant was $59,018, across 23 grants on its 2025 IRS Form 990-PF.

Where does Research Fund for Cystic Fibrosis Inc give grants?

Research Fund for Cystic Fibrosis Inc gives mostly in Pennsylvania: 56% of the grant dollars itemized on its 2025 IRS Form 990-PF went to recipients there. The next largest states were Washington (15%) and New York (14%). The most frequent recipient cities were Merion Station, PA (6 grants), New York, NY (6 grants), Vashon Island, WA (2 grants) and Somerville, NJ (2 grants).

Does Research Fund for Cystic Fibrosis Inc give general operating support?

Yes: 39% of Research Fund for Cystic Fibrosis Inc's 2025 grants with a stated purpose (9 of 23) were for general or operating support, per its 2025 IRS Form 990-PF. Recurring purposes include "Education and Research" (12 grants).

Who are Research Fund for Cystic Fibrosis Inc's largest grantees?

Research Fund for Cystic Fibrosis Inc's largest 2025 grantees include Emily's Entourage ($757,293 across 6 grants), Alliance for Tompotika Conservation ($199,305 across 2 grants) and Cystic Fibrosis Care ($183,872 across 6 grants), according to its 2025 IRS Form 990-PF. Together they received 84% of its itemized 2025 grant dollars.

How large is Research Fund for Cystic Fibrosis Inc?

Research Fund for Cystic Fibrosis Inc reported $386K in total assets on its 2025 IRS Form 990-PF. Its revenue that year was $33K.

What does Research Fund for Cystic Fibrosis Inc fund?

The foundation’s stated charitable activity is supporting charities and foundations working in cystic fibrosis care and research. See mission & focus areas ↑

How do I apply for a grant from Research Fund for Cystic Fibrosis Inc?

The foundation does not accept unsolicited requests for funds and makes contributions only to preselected charitable organizations. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑

What is Research Fund for Cystic Fibrosis Inc's EIN?

Research Fund for Cystic Fibrosis Inc's EIN (Employer Identification Number) is 22-2545566. IRS Form 990 filing data is available on this page for 2019–2025.

Does Research Fund for Cystic Fibrosis Inc accept unsolicited proposals?

No, according to Grantable's research on the foundation's published guidelines. See how to apply ↑

Data last updated September 2026. Sourced from IRS Form 990-PF filings. Research dossier generated September 2026.

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