Research Fund for Cystic Fibrosis Inc
Research Fund for Cystic Fibrosis Inc is a private foundation based in Oradell, New Jersey. Its 2025 IRS filing describes its charitable activity as contributions to charities and foundations in the field of cystic fibrosis care and research.
Research Fund for Cystic Fibrosis Inc at a glance
In short: Research Fund for Cystic Fibrosis Inc gave $1.4M across 23 grants in 2025 (avg $59K), mostly in Pennsylvania. Source: 2025 IRS Form 990-PF.
- Annual giving (2025)
- $1,357,419
- +24.5% vs 2024
- Grants made (2025)
- 23
- +109.1% vs 2024
- Average grant
- $59,018
- -40.4% vs 2024
- Median grant
- $10,000
- Total assets
- $385,651
- -50.4% vs 2024
- Primary geography
- Pennsylvania (56% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990-PF, 2025 View filing
Data from IRS Form 990-PF, 2025; updated October 2026.
How to apply to Research Fund for Cystic Fibrosis Inc
- Accepts unsolicited proposals
- No
- How to Apply
-
The foundation does not accept unsolicited requests for funds and makes contributions only to preselected charitable organizations.
- Contact
Mailing address: 455 Oradell Avenue, Oradell, NJ 07649-1711
Phone: (201) 403-5486
Application details from Grantable's research on the foundation's public materials; confirm on its website before applying.
Who Research Fund for Cystic Fibrosis Inc funds
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2025
The largest 2025 recipient was Emily's Entourage ($757K across 6 grants). Together the top 10 received $1.4M.
Grant Size Distribution
57 grants across all recorded years
The most common grant size was under $50K: 30 grants of 57 (53%).
Geographic Focus
Where this funder awards grants
In 2025, grant dollars went to recipients in Pennsylvania (56%), Washington (15%), New York (14%), Georgia (13%), and New Jersey (3%).
Grant Distribution by State
Share of 2025 grant dollars across all 23 itemized grants.
States
Cities
How Research Fund for Cystic Fibrosis Inc gives
Estimate from itemized grant lists in IRS Form 990-PF filings (2025). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2019 to 2025, annual grant giving ranged from $244K (2020) to $1.4M (2025). In 2025 it made 23 grants totaling $1.4M.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Emily's Entourage Merion Station, PA | Education and Research | $288,119 |
| Emily's Entourage Merion Station, PA | Education and Research | $253,897 |
| Breathestrong CF Tucker, GA | General Support | $171,889 |
| Alliance for Tompotika Conservation Vashon Island, WA | Education and Research | $149,920 |
| Emily's Entourage Merion Station, PA | Education and Research | $105,493 |
| Cystic Fibrosis Care New York, NY | Education and Research | $101,148 |
| Emily's Entourage Merion Station, PA | Education and Research | $100,149 |
| Cystic Fibrosis Care New York, NY | Education and Research | $61,781 |
| Alliance for Tompotika Conservation Vashon Island, WA | Education and Research | $49,385 |
| Jewish Family Service Somerville, NJ | Funds for critical programs including affordable mental health counseling, support for isolated older adults, resources people struggling with food insecurity, and programs for families with children on the autism spectrum. | $25,000 |
Ready to take the next step with Research Fund for Cystic Fibrosis Inc?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Qualifying Distributions | Net Investment Income |
|---|---|---|---|---|---|---|---|
| 2025 | $385,651 | $33,316 | $1,363,357 | $1,357,419 | 23 | $1,358,630 | $31,466 |
| 2024 | $776,772 | $78,651 | $1,095,325 | $1,090,138 | 11 | $1,092,028 | $76,901 |
| 2023 | $1,310,150 | $84,308 | $743,052 | $734,353 | 11 | $734,353 | $82,518 |
| 2022 | $1,575,841 | $84,307 | $391,279 | $363,389 | 4 | $363,389 | $56,609 |
| 2021 | $1,621,345 | $155,788 | $618,581 | $541,680 | 8 | $541,680 | $80,670 |
| 2020 | $1,852,001 | $210,300 | $294,646 | $243,855 | 4 | — | $160,120 |
| 2019 | $1,936,347 | $69,949 | $330,941 | $277,640 | 8 | — | $44,801 |
Research compiled by Grantable AI from public sources. Last updated September 2026.
Mission & Focus Areas
The foundation’s stated charitable activity is supporting charities and foundations working in cystic fibrosis care and research. One 2025 grantee, BreatheStrong CF, describes its mission as promoting cystic fibrosis awareness and advancing the well-being of people with cystic fibrosis through education, direct support, and opportunities to thrive.
Grantmaking
In 2025, the foundation reported 23 grants totaling $1,357,419. Grant amounts ranged from $100 to $288,119, with a median of $10,000. Its largest reported grants included:
Leadership & Key People
Leadership team and compensation from IRS filings
John Scaglione is listed as president on the 2025 filing.
Research Fund for Cystic Fibrosis Inc is led by John Scaglione, President on every filing since 2019 — the only officer listed, and uncompensated.
Officers on the 2025 filing
John Scaglione
President
On filings since 2019
1 hr/week
No compensation reported
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Research Fund for Cystic Fibrosis Inc
How much does Research Fund for Cystic Fibrosis Inc give each year?
Research Fund for Cystic Fibrosis Inc gave $1.4M across 23 grants in 2025, according to its 2025 IRS Form 990-PF. In 2024 it gave $1.1M across 11 grants.
What is Research Fund for Cystic Fibrosis Inc's typical grant size?
Research Fund for Cystic Fibrosis Inc's median grant in 2025 was $10,000, and its average grant was $59,018, across 23 grants on its 2025 IRS Form 990-PF.
Where does Research Fund for Cystic Fibrosis Inc give grants?
Research Fund for Cystic Fibrosis Inc gives mostly in Pennsylvania: 56% of the grant dollars itemized on its 2025 IRS Form 990-PF went to recipients there. The next largest states were Washington (15%) and New York (14%). The most frequent recipient cities were Merion Station, PA (6 grants), New York, NY (6 grants), Vashon Island, WA (2 grants) and Somerville, NJ (2 grants).
Does Research Fund for Cystic Fibrosis Inc give general operating support?
Yes: 39% of Research Fund for Cystic Fibrosis Inc's 2025 grants with a stated purpose (9 of 23) were for general or operating support, per its 2025 IRS Form 990-PF. Recurring purposes include "Education and Research" (12 grants).
Who are Research Fund for Cystic Fibrosis Inc's largest grantees?
Research Fund for Cystic Fibrosis Inc's largest 2025 grantees include Emily's Entourage ($757,293 across 6 grants), Alliance for Tompotika Conservation ($199,305 across 2 grants) and Cystic Fibrosis Care ($183,872 across 6 grants), according to its 2025 IRS Form 990-PF. Together they received 84% of its itemized 2025 grant dollars.
How large is Research Fund for Cystic Fibrosis Inc?
Research Fund for Cystic Fibrosis Inc reported $386K in total assets on its 2025 IRS Form 990-PF. Its revenue that year was $33K.
What does Research Fund for Cystic Fibrosis Inc fund?
The foundation’s stated charitable activity is supporting charities and foundations working in cystic fibrosis care and research. See mission & focus areas ↑
How do I apply for a grant from Research Fund for Cystic Fibrosis Inc?
The foundation does not accept unsolicited requests for funds and makes contributions only to preselected charitable organizations. Eligibility and process details are in the grantmaking section of this profile. See how to apply ↑
What is Research Fund for Cystic Fibrosis Inc's EIN?
Research Fund for Cystic Fibrosis Inc's EIN (Employer Identification Number) is 22-2545566. IRS Form 990 filing data is available on this page for 2019–2025.
Does Research Fund for Cystic Fibrosis Inc accept unsolicited proposals?
No, according to Grantable's research on the foundation's published guidelines. See how to apply ↑
Data last updated October 2026. Sourced from IRS Form 990-PF filings. Research dossier generated September 2026.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990-PF for fiscal year 2024 (received by the IRS April 23, 2025)
- Updated Form 990-PF for fiscal year 2025 (received by the IRS April 25, 2026)
- Added Form 990-PF for fiscal year 2019 (received by the IRS April 27, 2020)
- Updated Form 990-PF for fiscal year 2020 (received by the IRS April 20, 2021)
- Updated Form 990-PF for fiscal year 2021 (received by the IRS May 6, 2022)
- Updated Form 990-PF for fiscal year 2022 (received by the IRS April 27, 2023)
- Updated Form 990-PF for fiscal year 2023 (received by the IRS April 24, 2024)
Live grants for the work Research Fund for Cystic Fibrosis Inc funds
Medical Research Open opportunities, soonest deadline first.
- 2026 USS Translational Research Grant Up to $100,000 per year · Due October 24, 2026
- Dr. Richard A. Falls Virginia Lions Eye Institute Research Grant Up to $40,000 (yearly total budget) · Due October 25, 2026
- NSF Graduate Research Fellowship Program (GRFP) $32,000 annually plus $12,000 cost of education allowance · Due October 27, 2026
Explore Open Grants
Browse active grant opportunities in Research Fund for Cystic Fibrosis Inc's focus areas in our free grants database
Similar Funders
Funders that support many of the same organizations
Community Foundation of New Jersey
Morristown, NJ
The Community Foundation of New Jersey supports a broad range of causes, including arts, education, health, human services, and the environment, through donor-directed and other charitable funds. Its 2024 itemized grants had a median of $19,759, with awards ranging widely; its current health grant opportunity serves Morris and Somerset counties. Eligible New Jersey nonprofits may apply to specific grant opportunities, subject to each opportunity’s guidelines.
Assets
$1.0B
Grants
1,321
Total Given
$93.8M
Patagoniaorg
Ventura, CA
PATAGONIAORG funds environmental organizations and projects addressing root causes of environmental problems, including place-based protection, environmental campaigns, and broader inclusion in the movement. Its 2025 grants ranged from $5,000 to $5,174,555, with a median of $15,000, and funding was concentrated in Virginia and California, with grants also reported in Oregon and Colorado. It does not accept unsolicited requests and gives only to preselected organizations.
Assets
—
Grants
425
Total Given
$13.2M
IBM International Foundation
Armonk, NY
The IBM International Foundation funds education and workforce programs that build 21st-century and technology job skills, including initiatives for underserved students and job seekers. Its 2024 grants ranged from $10,000 to $8.48 million, with a median of $100,000, and went to organizations across several U.S. states, especially Delaware and Massachusetts. It funds only preselected organizations and does not accept unsolicited requests.
Assets
$357.7M
Grants
16
Total Given
$11.7M
Citizens Philanthropic Foundation Inc
Short Hills, NJ
The foundation funds nonprofits addressing hunger, financial empowerment, and economic and workforce development, with most giving in New York and New Jersey. In 2024, grants ranged from $500 to $500,000, with a median of $3,750. It accepts preliminary applications through its online process.
Assets
$18.7M
Grants
127
Total Given
$3.1M
National Fish and Wildlife Foundation
Washington, DC
The National Fish and Wildlife Foundation makes competitive grants for science-based projects that conserve or restore fish, wildlife, plants, and habitats; it does not fund advocacy or litigation. Its 2025 grants had a median of about $106,500, and it supports projects across all 50 states and U.S. territories. Applications are competitive and program-specific; whether pre-proposals are required varies by program.
Assets
$3.6B
Grants
1,286
Total Given
$464.4M
The Anne and Gerald Freedman Charitable
Princeton, NJ
The Anne and Gerald Freedman Charitable supports a range of charitable organizations, with the largest share of its 2026 grant dollars going to New Jersey, followed by the District of Columbia and New York. Its 197 grants ranged from $50 to $48,000, with a median of $1,000. It funds only preselected organizations and does not accept unsolicited requests.
Assets
$5.0M
Grants
197
Total Given
$668K
More similar funders
More Funders in New Jersey
Cite this profile
Grantable. (2026). Research Fund for Cystic Fibrosis Inc funder profile. GrantGraph. Retrieved October 24, 2026, from https://grantable.co/funders/research-fund-for-cystic-fibrosis-inc-morg_4e840949cce4451f93f80b1a87a9e822
BibTeX
@misc{grantable_222545566_2026,
author = {{Grantable}},
title = {{Research Fund for Cystic Fibrosis Inc funder profile}},
howpublished = {GrantGraph},
year = {2026},
url = {https://grantable.co/funders/research-fund-for-cystic-fibrosis-inc-morg_4e840949cce4451f93f80b1a87a9e822},
note = {Accessed 2026-10-24. Data licensed CC BY 4.0}
}The figures on this page are open data under CC BY 4.0: reuse them with credit to Grantable and a link. Download the data.
Figures come from Research Fund for Cystic Fibrosis Inc's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Research Fund for Cystic Fibrosis Inc down — hundreds of funders to go?