Relapsing Polychondritis Awareness logo

Relapsing Polychondritis Awareness

Foundation · Grantmaker Marquette, MI EIN: 46-2458916 Website

The rp foundation's mission is to: (a) increase awareness about relapsing polychondritis; (b) provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by relapsing polychondritis, support research to advance a cure for relapsing polychondritis; (c) promote quality care for relapsing polychondritis patients; and (d) engage in such other activities in connection therewith that the board of directors may authorize, in all cases subject to the provision of section 501(c)(3) of the internal revenu code of 1986, as amended, or the corresponding provisions of any subsequent federal tax law (the "code").

Key facts about Relapsing Polychondritis Awareness

In short: Relapsing Polychondritis Awareness gave $153K across 1 grant in 2026 (avg $153K), mostly in California. Source: 2026 IRS Form 990.

EIN
46-2458916
Latest 990 filing
Form 990, 2026
Annual giving (2026)
$153,138
Grants made (2026)
1
Average grant
$153,138
Median grant
$153,138
Total assets
$744,617
Primary geography
California (100% of itemized 2026 grant dollars)

Data from IRS Form 990, 2026; updated September 2026.

Financial Overview

From 2026 IRS Form 990 · View filing

Total Assets

$745K

+0.3% YoY

Annual Giving

$153K

+22.2% YoY

Grant Count

1

-66.7% YoY

Avg Grant Size

$153K

+266.6% YoY

How Relapsing Polychondritis Awareness gives

  • Giving fell 55% from 2023 to 2026. Method

From the foundation's IRS Form 990 filings. Methodology.

About Relapsing Polychondritis Awareness

Based on IRS filings

Relapsing Polychondritis Awareness is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Marquette, MI. IRS filing data is available from 2020 through 2026. As of 2026, the organization holds $745K in total assets. In 2026, it awarded 1 grant totaling $153K. Net investment income was $16K.

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

5states

Share of all 1 itemized 2026 grant dollars.

Cities

New YorkPittsburghSan FranciscoBethesdaHouston

Giving Over Time

Total grant dollars and number of grants per year

$0$100K$200K$300K$400K0 grants20202 grants20211 grants20223 grants20231 grants20243 grants20251 grants2026

Grant Insights

How this funder distributes its grants

Top Recipients

Top 1 recipients in 2026

Trustees of the University of PA: $153KTrustees of the University ofPA$153K

Grant Size Distribution

9 grants across all recorded years

2<$50K2$50–100K5$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

RecipientPurposeAmount
TRUSTEES OF THE UNIVERSITY OF PA San Francisco, CARESEARCH$153,138

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$1M$2M$3M2020202120222023202420252026
Metric202620252024
Total Assets$744,617$742,497$386,620
Revenue$693,706$1,342,039$641,371
Expenses$691,103$986,760$881,363
Qualifying Distributions———
Net Investment Income$16,384$10,408$6,584
Distributable Amount———

Data update history

When this profile's IRS filing data changed on Grantable

  1. Updated Form 990 for fiscal year 2021 (received by the IRS December 15, 2021)
  2. Updated Form 990 for fiscal year 2022 (received by the IRS August 17, 2022)
  3. Updated Form 990 for fiscal year 2023 (received by the IRS August 7, 2023)
  4. Updated Form 990 for fiscal year 2024 (received by the IRS August 12, 2024)
  5. Updated Form 990 for fiscal year 2025 (received by the IRS August 13, 2025)
  6. Added Form 990 for fiscal year 2026 (received by the IRS August 3, 2026)

Leadership & Key People

Officers and directors from IRS filings

Relapsing Polychondritis Awareness is led by David Bammert, President on every filing since 2020; 1 of 6 officers listed in 2026 is compensated.

Officers on the 2026 filing

  • David Bammert

    President

    On filings since 2020

    30 hrs/week

    $25K (2020) → $100K (2026)

  • Neil Langberg

    Chair

    Director → Chair, 2026

    On filings since 2025

    30 hrs/week

    No compensation reported

  • Roy Medawar

    Director

    On filings since 2025

    4 hrs/week

    No compensation reported

  • Fred Antman

    Director

    New on the 2026 filing

    4 hrs/week

    No compensation reported

  • David Derosa

    Secretary

    On filings since 2020

    4 hrs/week

    No compensation reported

  • Daniel O'Brien

    Treasurer

    New on the 2026 filing

    8 hrs/week

    No compensation reported

Former officers (3)
  • Former: Nancy Linn (2020–2025) — Director & Cha
  • Former: Michael Linn (2020–2024) — Director & Vice
  • Former: Francis Sweeney (2023–2024) — Director

Data from IRS Form 990 filings, 2020–2026. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2026 IRS filing

David Bammert — President: $100KDavid BammertPresident$100K

Frequently asked questions about Relapsing Polychondritis Awareness

How much does Relapsing Polychondritis Awareness give each year?

Relapsing Polychondritis Awareness gave $153K across 1 grant in 2026, according to its 2026 IRS Form 990. In 2025 it gave $125K across 3 grants.

How large is Relapsing Polychondritis Awareness?

Relapsing Polychondritis Awareness reported $745K in total assets on its 2026 IRS Form 990. Its revenue that year was $694K.

What is Relapsing Polychondritis Awareness?

Relapsing Polychondritis Awareness is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Marquette, MI. It holds $745K in total assets as of 2026.

Where does Relapsing Polychondritis Awareness operate?

Relapsing Polychondritis Awareness has awarded grants in California, Maryland, New York, Pennsylvania, Texas.

What is Relapsing Polychondritis Awareness's EIN?

Relapsing Polychondritis Awareness's EIN (Employer Identification Number) is 46-2458916. IRS Form 990 filing data is available on this page for 2020–2026.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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