Rare Village Foundation

Foundation · Grantmaker McKinney, TX EIN: 83-4699994 Website

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES

Key facts about Rare Village Foundation

EIN: 83-4699994
Latest 990 filing: Form 990-PF, 2024
Annual giving (2024): $3,069,149
Grants made (2024): 26
Average grant: $118,044
Median grant: $36,514
Total assets: $2,029,704
Primary geography: Vermont (27% of itemized 2024 grant dollars)

Data from IRS Form 990-PF, 2024; updated April 2026.

Who Rare Village Foundation funds

By grant dollars, the top recipient states for Rare Village Foundation's 26 itemized 2024 grants were Vermont (27%), Ohio (20%) and Massachusetts (14%). The most frequent recipient cities were New York, NY (2 grants), Seattle, WA (2 grants) and El Paso, TX (2 grants). None of its 26 grants with a stated purpose were described as general or operating support. Recurring purposes include "Research" (26 grants).

How Rare Village Foundation gives

Giving grew 137% from 2021 to 2024. Method

From the foundation's IRS Form 990-PF filings. Methodology.

Next steps with Rare Village Foundation

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Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$2.0M

+20.7% YoY

Annual Giving

$3.1M

Grant Count

Avg Grant Size

$118K

About Rare Village Foundation

Based on IRS filings

Rare Village Foundation is a nonprofit organization focused on Medical Research, based in McKinney, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 26 grants totaling $3.1M. Net investment income was $175.

Focus Areas

Medical Research

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

Vermont $843K (27%)

Ohio $599K (20%)

Massachusetts $439K (14%)

California $343K (11%)

Texas $300K (10%)

All other $545K (18%)

Share of all 26 itemized 2024 grant dollars.

States

California Colorado Connecticut Illinois Massachusetts Missouri New York Ohio Oregon Pennsylvania Texas Vermont Washington

Cities

Palo AltoEvanstonEl PasoNew YorkPhiladelphiaSeattleAustinBeavertonBostonColchesterColumbiaColumbusDallasDanburyEl CajonFort CollinsFraminghamGalvestonMedfordOakland Gardens

Financial History

Multi-year comparison from IRS filings

Revenue

Expenses

Qualifying Distributions

Net Investment Income

Metric	2024	2023	2022
Total Assets	$2,029,704	$1,681,476	$1,202,491
Revenue	$3,496,194	$2,626,190	$1,374,746
Expenses	$3,147,966	$2,147,205	$1,130,788
Qualifying Distributions	—	—	—
Net Investment Income	$175	$1,100	$245
Distributable Amount	—	—	—

Data update history

When this profile's IRS filing data changed on Grantable

March 2, 2026 IRS filings on file for fiscal years 2020–2024

Giving Over Time

Total grant dollars and number of grants per year

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

Grant Size Distribution

38 grants across all recorded years

Giving History

Grant recipients and amounts by year

Among its reported 2024 grants, the largest recipients include For Henry Ahc ($842,626), Andelyn Biosciences ($599,152), Charles River Discovery Research ($304,722).

Recipient	Purpose	Amount
FOR HENRY AHC Colchester, VT	RESEARCH	$842,626
ANDELYN BIOSCIENCES Columbus, OH	RESEARCH	$599,152
CHARLES RIVER DISCOVERY RESEARCH Reading, MA	RESEARCH	$304,722
EVRLUM BIO Austin, TX	RESEARCH	$291,521
SONSHINE FOUNDATION New York, NY	RESEARCH	$161,526
PERLARA PBC South San Francisco, CA	RESEARCH	$130,727
UNRAVEL BIOSCIENCE Medford, MA	RESEARCH	$120,550
NORTHWESTERN UNIVERSITY Evanston, IL	RESEARCH	$109,091
RAREBASETRANSCRIPTA BIO Palo Alto, CA	RESEARCH	$105,288
UNIVERSITY OF MISSOURI Columbia, MO	RESEARCH	$91,488

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

No officer or director reported compensation in the available filings.

From 2024 IRS filing

Name	Title	Hours	Compensation
Gina Hann	Vice President Secretary Director	10	—
Kasey Wolleben	President Director	10	—
Amy Sowell	Treasurer Director	3	—
Amber Freed	Director	3	—

Subject Areas

Focus areas based on grantmaking activity

Medical Research

Frequently Asked Questions

What is Rare Village Foundation?

Rare Village Foundation is a nonprofit organization focused on Medical Research, based in McKinney, TX. It holds $2.0M in total assets as of 2024.

How large is Rare Village Foundation?

As of 2024, Rare Village Foundation holds $2.0M in total assets with $3.5M in annual revenue. It awarded 26 grants totaling $3.1M in 2024.

Where does Rare Village Foundation operate?

Rare Village Foundation has awarded grants in California, Colorado, Connecticut, Illinois, Massachusetts, Missouri, New York, Ohio, Oregon, Pennsylvania, Texas, Vermont, Washington.