Rare Village Foundation logo

Rare Village Foundation

MCKINNEY, TX EIN: 83-4699994 Website

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$2.0M

+20.7% YoY

Annual Giving

$3.1M

Grant Count

26

Avg Grant Size

$118K

About Rare Village Foundation

Based on IRS filings

Rare Village Foundation is a nonprofit organization focused on Medical Research, based in MCKINNEY, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 26 grants totaling $3.1M. Net investment income was $175.

Focus Areas

Ready to take the next step with Rare Village Foundation?

Geographic Focus

Where this funder awards grants

Grant Distribution by State

13states
+5 more states

Cities

AustinBeavertonBostonColchesterColumbiaColumbusDallasDanburyEl CajonEl PasoEvanstonFort CollinsFraminghamGalvestonMedfordNew YorkOakland GardensOxnardPalo AltoPhiladelphia

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$961K$2M$3M$4M20202021202220232024
Metric202420232022
Total Assets$2,029,704$1,681,476$1,202,491
Revenue$3,496,194$2,626,190$1,374,746
Expenses$3,147,966$2,147,205$1,130,788
Qualifying Distributions
Net Investment Income$175$1,100$245
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$767K$2M$2M$3M0 grants20204 grants20218 grants20220 grants202326 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 10 recipients in 2024

FOR HENRY AHC$843KANDELYN BIOSCIENCES$599KCHARLES RIVER DISCOVERY …$305KEVRLUM BIO$292KSONSHINE FOUNDATION$162KPERLARA PBC$131KUNRAVEL BIOSCIENCE$121KNORTHWESTERN UNIVERSITY$109KRAREBASETRANSCRIPTA BIO$105KUNIVERSITY OF MISSOURI$91K

Grant Size Distribution

38 grants across all recorded years

18<$50K6$50–100K8$100–250K3$250–500K2$500K–1M1$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

From 2024 filing

NameTitleHoursCompensation
GINA HANNVICE PRESIDENT SECRETARY DIRECTOR10
KASEY WOLLEBENPRESIDENT DIRECTOR10
AMY SOWELLTREASURER DIRECTOR3
AMBER FREEDDIRECTOR3

Subject Areas

Focus areas based on grantmaking activity

Related Funders

Similar funders by location and focus area

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

What could you do with Rare Village Foundation on Grantable?

  • Assess strategic fit with your organization
  • Draft a tailored letter of inquiry
  • Find open RFPs from this funder
  • Monitor for new funding opportunities