TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$2.0M
+20.7% YoY
Annual Giving
$3.1M
Grant Count
26
Avg Grant Size
$118K
About Rare Village Foundation
Based on IRS filings
Rare Village Foundation is a nonprofit organization focused on Medical Research, based in MCKINNEY, TX. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $2.0M in total assets. In 2024, it awarded 26 grants totaling $3.1M. Net investment income was $175.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $2,029,704 | $1,681,476 | $1,202,491 |
| Revenue | $3,496,194 | $2,626,190 | $1,374,746 |
| Expenses | $3,147,966 | $2,147,205 | $1,130,788 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $175 | $1,100 | $245 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
38 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include For Henry Ahc ($842,626), Andelyn Biosciences ($599,152), Charles River Discovery Research ($304,722).
| Recipient | Purpose | Amount |
|---|---|---|
| CANOPY LIFE SCIENCES DANBURY, CT | RESEARCH | $11,238 |
| CHARLES RIVER DISCOVERY RESEARCH Reading, MA | RESEARCH | $304,722 |
| PERLARA PBC South San Francisco, CA | RESEARCH | $130,727 |
| BOSTON CHILDRENS HOSPITAL Boston, MA | RESEARCH | $10,000 |
| EVRLUM BIO Austin, TX | RESEARCH | $291,521 |
| LA JOLLA LABS El Cajon, CA | RESEARCH | $75,831 |
| ANDELYN BIOSCIENCES COLUMBUS, OH | RESEARCH | $599,152 |
| ST JOHN REGIONAL HOSPITAL OXNARD, CA | RESEARCH | $3,980 |
| UNRAVEL BIOSCIENCE Medford, MA | RESEARCH | $120,550 |
| CTNNB1 FOUNDATION | RESEARCH | $11,153 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| GINA HANN | VICE PRESIDENT SECRETARY DIRECTOR | 10 | — |
| KASEY WOLLEBEN | PRESIDENT DIRECTOR | 10 | — |
| AMY SOWELL | TREASURER DIRECTOR | 3 | — |
| AMBER FREED | DIRECTOR | 3 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Rare Village Foundation?
Rare Village Foundation is a nonprofit organization focused on Medical Research, based in MCKINNEY, TX. It holds $2.0M in total assets as of 2024.
How large is Rare Village Foundation?
As of 2024, Rare Village Foundation holds $2.0M in total assets with $3.5M in annual revenue. It awarded 26 grants totaling $3.1M in 2024.
Where does Rare Village Foundation operate?
Rare Village Foundation has awarded grants in California, Colorado, Connecticut, Illinois, Massachusetts, Missouri, New York, Ohio, Oregon, Pennsylvania, Texas, Vermont, Washington.
What size grants does Rare Village Foundation award?
In 2024, Rare Village Foundation awarded 26 grants totaling $3.1M — an average of about $118K per grant, based on its IRS Form 990 filings.
What is Rare Village Foundation's EIN?
Rare Village Foundation's EIN (Employer Identification Number) is 83-4699994. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Rare Village Foundation's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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