Rare Cancer Research Foundation
The Rare Cancer Research Foundation is dedicated to curing rare cancers through strategic investments and collaborations that catalyze effective research and accelerate deployment of promising therapies.
Rare Cancer Research Foundation at a glance
In short: Rare Cancer Research Foundation gave $6K across 1 grant in 2025 (avg $6K), mostly in Texas. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $5,550
- -93.2% vs 2024
- Grants made (2025)
- 1
- -50.0% vs 2024
- Average grant
- $5,550
- -86.4% vs 2024
- Median grant
- $5,550
- Total assets
- $1,358,604
- -55.6% vs 2024
- Primary geography
- Texas (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Rare Cancer Research Foundation funds
How this funder distributes its grants
Top Recipients
Top recipient in 2025
The largest 2025 recipient was The University of Texas MD Anderson ($6K).
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 2 grants of 3 (67%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of the 2025 grant dollars on its one itemized grant.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2024 to 2025, annual grant giving ranged from $6K (2025) to $82K (2024). In 2025 it made 1 grant totaling $6K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The University of Texas MD Anderson Houston, TX | Research | $5,550 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $1,358,604 | $446,172 | $1,742,257 | $5,550 | 1 | $39,817 |
| 2024 | $3,059,554 | $1,773,373 | $2,240,471 | $81,890 | 2 | $47,265 |
| 2023 | $3,033,890 | $3,503,960 | $2,167,619 | — | — | — |
| 2022 | $757,505 | $37,638 | $333,801 | — | — | — |
| 2021 | $1,051,579 | $1,072,853 | $179,015 | — | — | — |
| 2020 | $158,432 | $79,640 | $183,429 | — | — | — |
About Rare Cancer Research Foundation
Based on IRS filings
Rare Cancer Research Foundation is a public charity focused on Medical Research, based in Durham, NC. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $1.4M in total assets. In 2025, it awarded 1 grant totaling $6K. Net investment income was $40K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Rare Cancer Research Foundation is led by Virginia Spitzer, CEO on the 2025 filing; 8 of 13 officers listed in 2025 are compensated.
Officers on the 2025 filing
Virginia Spitzer
CEO
New on the 2025 filing
40 hrs/week
$18K (2025)
Barbara Van Hare
President of Pat
Director → President of Pat, 2023
On filings since 2022
40 hrs/week
$80K (2022) → $118K (2025)
Chris Heery MD
Chairman
Director → Chairman, 2024
On filings since 2022
5 hrs/week
No compensation reported
Amber Smith
Director Biobanki
Biobank Mana → Director Biobanki, 2025
On filings since 2023
40 hrs/week
$137K (2023) → $150K (2025)
Robin Kageyama
Director Data Pla
On filings since 2024
40 hrs/week
$162K (2024) → $170K (2025)
Ryan Pripstein
Director
On filings since 2023
1 hr/week
No compensation reported
Keith Laabs
Director
On filings since 2024
1 hr/week
No compensation reported
Jane Wilkinson
Director
New on the 2025 filing
1 hr/week
No compensation reported
Rishi Bagrodia
Director
New on the 2025 filing
1 hr/week
No compensation reported
Marshall Thompson
CTO
President → CTO, 2025
On filings since 2023
40 hrs/week
$189K (2023) → $176K (2025)
Benjamin David Kamphaus
Data Enginee
Technical Fe → Data Enginee, 2025
On filings since 2024
40 hrs/week
$103K (2024) → $134K (2025)
Hana Littleford
Clinical Dat
On filings since 2024
40 hrs/week
$98K (2024) → $120K (2025)
Christine Spencer
Head of Pris
New on the 2025 filing
40 hrs/week
$105K (2025)
Former officers (5)
- Former: Kathryn Kay Coleman (2024) — Prod Enginee
- Former: Susan Horrell (2024) — Director Strategi
- Former: Mark Laabs (2020–2023) — Founder & Chair
- Former: Benjamin Abram (2020–2022) — Director & T
- Former: Jyri Engestrom (2020–2021) — Director
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $176K, to Marshall Thompson (CTO). 8 officers or directors reported compensation on that filing.
Frequently asked questions about Rare Cancer Research Foundation
How much does Rare Cancer Research Foundation give each year?
Rare Cancer Research Foundation gave $6K across 1 grant in 2025, according to its 2025 IRS Form 990. In 2024 it gave $82K across 2 grants.
How large is Rare Cancer Research Foundation?
Rare Cancer Research Foundation reported $1.4M in total assets on its 2025 IRS Form 990. Its revenue that year was $446K.
What is Rare Cancer Research Foundation?
Rare Cancer Research Foundation is a public charity focused on Medical Research, based in Durham, NC. It holds $1.4M in total assets as of 2025.
Where does Rare Cancer Research Foundation operate?
Rare Cancer Research Foundation has awarded grants in Florida, North Carolina, Texas.
What is Rare Cancer Research Foundation's EIN?
Rare Cancer Research Foundation's EIN (Employer Identification Number) is 46-3405526. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2024 (received by the IRS October 29, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS June 26, 2026)
Live grants for the work Rare Cancer Research Foundation funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in Rare Cancer Research Foundation's focus areas in our free grants database
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Figures come from Rare Cancer Research Foundation's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
Rare Cancer Research Foundation down — hundreds of funders to go?