Propionic Acidemia Foundation
Finding improved treatments and a cure for propionic acidemia by funding reseach and providing information and support to families and medical professionals.
Propionic Acidemia Foundation at a glance
In short: Propionic Acidemia Foundation gave $120K across 3 grants in 2026 (avg $40K), mostly in Maryland. Source: 2026 IRS Form 990.
- Annual giving (2026)
- $119,995
- +83.9% vs 2025
- Grants made (2026)
- 3
- Average grant
- $39,998
- Median grant
- $40,000
- Total assets
- $515,969
- +2.2% vs 2025
- Primary geography
- Maryland (58% of itemized 2026 grant dollars)
- Latest 990 filing
- Form 990, 2026 View filing
Data from IRS Form 990, 2026; updated November 2026.
Who Propionic Acidemia Foundation funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2026
The largest 2026 recipient was Duke University - Office of Research Administration ($50K). Together the top 3 received $120K.
Grant Size Distribution
7 grants across all recorded years
The most common grant size was under $50K: 6 grants of 7 (86%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2026 grant dollars across all 3 itemized grants.
Cities
How Propionic Acidemia Foundation gives
- Giving grew 147% from 2023 to 2026. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2026, annual grant giving ranged from $49K (2023) to $120K (2026). In 2026 it made 3 grants totaling $120K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Duke University - Office of Research Administration Durham, NC | research on propionic acidemia | $49,995 |
| The John Hopkins University- 475 Rangos Building Baltimore, MD | research on propionic acidemia | $40,000 |
| National Human Genome Research Institute- National Institute of Health Bethesda, MD | research on propionic acidemia | $30,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2026 | $515,969 | $152,254 | $141,358 | $119,995 | 3 | $23,418 |
| 2025 | $505,073 | $142,586 | $97,999 | $65,245 | Total only | $18,406 |
| 2024 | $460,486 | $145,957 | $123,551 | $100,822 | Total only | $26,516 |
| 2023 | $438,080 | $172,394 | $190,005 | $48,566 | 1 | $6,861 |
| 2022 | $455,691 | $133,119 | $109,182 | $55,432 | 3 | $87 |
| 2021 | $431,754 | $140,142 | $176,764 | $97,466 | 3 | $650 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Propionic Acidemia Foundation
Based on IRS filings
Propionic Acidemia Foundation is a public charity focused on Medical Research, based in Deerfield, IL. IRS filing data is available from 2021 through 2026. As of 2026, the organization holds $516K in total assets. In 2026, it awarded 3 grants totaling $120K. Net investment income was $23K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Propionic Acidemia Foundation is led by Jill Chertow, President on every filing since 2025; none of the 6 officers listed in 2026 report compensation.
Officers on the 2026 filing
Jill Chertow
President
On filings since 2025
20 hrs/week
No compensation reported
Angela Waits
Secretary
On filings since 2021
2 hrs/week
No compensation reported
Brittany Smith
Treasurer
On filings since 2021
2 hrs/week
No compensation reported
Maria L Cotrina
Board Member
On filings since 2021
4 hrs/week
No compensation reported
Sue Weaver
Board Member
On filings since 2024
1 hr/week
No compensation reported
Jennifer Simmons
Board Member
On filings since 2025
1 hr/week
No compensation reported
Former officers (2)
- Former: Jill Chertow Franks (2021–2024) — President
- Former: Veronica Lopez (2023) — Board Member
Data from IRS Form 990 filings, 2021–2026. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Propionic Acidemia Foundation
How much does Propionic Acidemia Foundation give each year?
Propionic Acidemia Foundation gave $120K across 3 grants in 2026, according to its 2026 IRS Form 990. In 2025 it reported $65K in grants paid.
What is Propionic Acidemia Foundation's typical grant size?
Propionic Acidemia Foundation's median grant in 2026 was $40,000, and its average grant was $39,998, across 3 grants on its 2026 IRS Form 990.
Where does Propionic Acidemia Foundation give grants?
Propionic Acidemia Foundation gives mostly in Maryland: 58% of the grant dollars itemized on its 2026 IRS Form 990 went to recipients there. The next largest state was North Carolina (42%).
Does Propionic Acidemia Foundation give general operating support?
Not in 2026: none of the 3 grants with a stated purpose on Propionic Acidemia Foundation's 2026 IRS Form 990 were described as general or operating support. Recurring purposes include "Research on Propionic Acidemia" (3 grants).
How large is Propionic Acidemia Foundation?
Propionic Acidemia Foundation reported $516K in total assets on its 2026 IRS Form 990. Its revenue that year was $152K.
What is Propionic Acidemia Foundation?
Propionic Acidemia Foundation is a public charity focused on Medical Research, based in Deerfield, IL. It holds $516K in total assets as of 2026.
What is Propionic Acidemia Foundation's EIN?
Propionic Acidemia Foundation's EIN (Employer Identification Number) is 33-1043399. IRS Form 990 filing data is available on this page for 2021–2026.
Data last updated November 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2026 (received by the IRS September 24, 2026)
- Updated Form 990 for fiscal year 2021 (received by the IRS October 19, 2021)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 12, 2022)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 12, 2023)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 7, 2024)
- Updated Form 990 for fiscal year 2025 (received by the IRS October 28, 2025)
- IRS filings on file for fiscal years 2021–2025
Live grants for the work Propionic Acidemia Foundation funds
Medical Research Open opportunities, soonest deadline first.
- Annual Grants Up to $500,000 for translational/correlative grants; Up to $800,000 for clinical trials · Due November 15, 2026
- American Society of Pediatric Neurosurgeons Seed Grant Program $25,000 maximum for a 2-year award · Due November 15, 2026
- P.E.O. Scholar Awards (PSA) Up to $25,000 · Due November 20, 2026
Explore Open Grants
Browse active grant opportunities in Propionic Acidemia Foundation's focus areas in our free grants database
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