PCD KS Foundation
To provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health, and ultimately a cure for primary ciliary dyskinesia (PCD).
PCD KS Foundation at a glance
In short: PCD KS Foundation gave $52K across 5 grants in 2024 (avg $10K), top state Indiana. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $51,730
- -74.1% vs 2023
- Grants made (2024)
- 5
- +150.0% vs 2023
- Average grant
- $10,346
- -89.7% vs 2023
- Median grant
- $10,000
- Total assets
- $3,595,466
- +10.0% vs 2023
- Primary geography
- Indiana (48% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who PCD KS Foundation funds
How this funder distributes its grants
Top Recipients
Top 5 recipients in 2024
The largest 2024 recipient was Indiana University Research ($15K). Together the top 5 received $52K.
Grant Size Distribution
11 grants across all recorded years
The most common grant size was under $50K: 8 grants of 11 (73%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 5 itemized grants.
Cities
How PCD KS Foundation gives
- Giving fell 83% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2024, annual grant giving ranged from $20K (2020) to $305K (2021). In 2024 it made 5 grants totaling $52K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Indiana University Research Bloomington, IN | Registry Suppport | $15,000 |
| Uscf Foundation San Francisco, CA | Clinical Support | $10,000 |
| Riley Childrens Health Indianapolis, IN | Clincal Development | $10,000 |
| Columbia University New York, NY | Clincial Development | $10,000 |
| Gordon Research Conference | Research Grant | $6,730 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $3,595,466 | $1,994,370 | $1,650,828 | $51,730 | 5 | $98,023 |
| 2023 | $3,268,548 | $895,288 | $1,054,601 | $200,000 | 2 | $27,862 |
| 2022 | $3,346,050 | $1,109,263 | $827,296 | $50,032 | 2 | $4,976 |
| 2021 | $3,186,526 | $2,011,124 | $843,231 | $304,957 | 1 | $693 |
| 2020 | $1,752,401 | $716,594 | $325,345 | $20,000 | 1 | $407 |
About PCD KS Foundation
Based on IRS filings
PCD KS Foundation is a public charity focused on Medical Research, based in Bloomington, MN. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.6M in total assets. In 2024, it awarded 5 grants totaling $52K. Net investment income was $98K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
PCD KS Foundation is led by Michele Manion, Executive Director & President since 2021 (on filings since 2020); 1 of 7 officers listed in 2024 is compensated.
Officers on the 2024 filing
Michele Manion
Executive Director & President
Executive Director → Executive Director & President, 2021
On filings since 2020
40 hrs/week
$112K (2020) → $185K (2024)
Bill Anton
Chair
Vice Chair → Chair, 2021
On filings since 2020
5 hrs/week
No compensation reported
Amy Kovler
Director
Chair & Treasurer → Director, 2021
On filings since 2020
2 hrs/week
No compensation reported
Carrie Willis
Director
Director & Vice President → Director, 2021
On filings since 2020
1 hr/week
No compensation reported
Margaret Leigh
Director
On filings since 2020
5 hrs/week
No compensation reported
Tori Eastvold
Director
On filings since 2020
1 hr/week
No compensation reported
Gary Joyner
Vice Chair
Chair Emeritus → Vice Chair, 2021
On filings since 2020
2 hrs/week
No compensation reported
Former officers (1)
- Former: Lynn Ehrne (2020–2023) — Director & Secretary
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $185K, to Michele Manion (Exec DIR, PR).
Frequently asked questions about PCD KS Foundation
How much does PCD KS Foundation give each year?
PCD KS Foundation gave $52K across 5 grants in 2024, according to its 2024 IRS Form 990. In 2023 it gave $200K across 2 grants.
What is PCD KS Foundation's typical grant size?
PCD KS Foundation's median grant in 2024 was $10,000, and its average grant was $10,346, across 5 grants on its 2024 IRS Form 990.
Where does PCD KS Foundation give grants?
PCD KS Foundation's top state is Indiana, with 48% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were California (19%) and New York (19%).
Does PCD KS Foundation give general operating support?
Not in 2024: none of the 5 grants with a stated purpose on PCD KS Foundation's 2024 IRS Form 990 were described as general or operating support.
Who are PCD KS Foundation's largest grantees?
PCD KS Foundation's largest 2024 grantees include Indiana University Research ($15,000), Uscf Foundation ($10,000) and Riley Childrens Health ($10,000), according to its 2024 IRS Form 990. Together they received 68% of its itemized 2024 grant dollars.
How large is PCD KS Foundation?
PCD KS Foundation reported $3.6M in total assets on its 2024 IRS Form 990. Its revenue that year was $2.0M.
What is PCD KS Foundation?
PCD KS Foundation is a public charity focused on Medical Research, based in Bloomington, MN. It holds $3.6M in total assets as of 2024.
What is PCD KS Foundation's EIN?
PCD KS Foundation's EIN (Employer Identification Number) is 20-0543474. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
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