Pachyonychia Congenita Fund
The organization's mission is to fight for a cure for the pachyonychia congenita disease, connect and help patients, and empower research.
Pachyonychia Congenita Fund at a glance
In short: Pachyonychia Congenita Fund gave $247K across 3 grants in 2024 (avg $82K), top state Massachusetts. Source: 2024 IRS Form 990.
- Annual giving (2024)
- $246,706
- -9.2% vs 2023
- Grants made (2024)
- 3
- Average grant
- $82,235
- Median grant
- $97,500
- Total assets
- $3,007,104
- -3.9% vs 2023
- Primary geography
- Massachusetts (40% of itemized 2024 grant dollars)
- Latest 990 filing
- Form 990, 2024 View filing
Data from IRS Form 990, 2024; updated September 2026.
Who Pachyonychia Congenita Fund funds
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
The largest 2024 recipient was Massachusetts General Hospital ($99K). Together the top 3 received $247K.
Grant Size Distribution
5 grants across all recorded years
The most common grant size was in the $50–100K range: 3 grants of 5 (60%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2024 grant dollars across all 3 itemized grants.
Cities
How Pachyonychia Congenita Fund gives
- Giving grew 147% from 2021 to 2024. Method
From the foundation's IRS Form 990 filings. Methodology.
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2021 to 2024, annual grant giving ranged from $25K (2022) to $272K (2023). In 2024 it made 3 grants totaling $247K.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| Massachusetts General Hospital Boston, MA | PC Research | $99,206 |
| John Hopkins University Dept Neurosurgery Baltimore, MD | PC Research | $97,500 |
| UT Southwestern Medical Center Sponsored Programs Administration Dallas, TX | PC Research | $50,000 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $3,007,104 | $816,533 | $743,239 | $246,706 | 3 | $377,186 |
| 2023 | $3,130,275 | $490,833 | $595,549 | $271,820 | Total only | $88,610 |
| 2022 | $3,057,177 | $654,819 | $379,433 | $25,000 | 1 | $87,130 |
| 2021 | $3,157,668 | $684,886 | $341,645 | $100,000 | 1 | $172,240 |
| 2020 | $2,737,401 | $641,236 | $189,324 | — | — | $83,844 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About Pachyonychia Congenita Fund
Based on IRS filings
Pachyonychia Congenita Fund is a public charity focused on Medical Research, based in Holladay, UT. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.0M in total assets. In 2024, it awarded 3 grants totaling $247K. Net investment income was $377K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Pachyonychia Congenita Fund is led by Jack Padovano, Chair on every filing since 2020; none of the 7 officers listed in 2024 report compensation.
Officers on the 2024 filing
Jack Padovano
Chair
On filings since 2020
4 hrs/week
No compensation reported
C. David Hansen MD
Board Member
On filings since 2020
8 hrs/week
No compensation reported
James Rittle
Board Member
On filings since 2020
0.5 hrs/week
No compensation reported
Janice N. Schwartz
Executive Di
On filings since 2020
40 hrs/week
No compensation reported
Jason Hunter CPA
Treasurer
On filings since 2020
0.5 hrs/week
No compensation reported
Kay Dee Holmes
Secretary
Board Member → Secretary, 2022
On filings since 2020
0.5 hrs/week
No compensation reported
Aaron Klein
Board Member
On filings since 2022
0.5 hrs/week
No compensation reported
Former officers (1)
- Former: Barbara Feinstein (2020–2022) — Secretary
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Pachyonychia Congenita Fund
How much does Pachyonychia Congenita Fund give each year?
Pachyonychia Congenita Fund gave $247K across 3 grants in 2024, according to its 2024 IRS Form 990. In 2023 it reported $272K in grants paid.
What is Pachyonychia Congenita Fund's typical grant size?
Pachyonychia Congenita Fund's median grant in 2024 was $97,500, and its average grant was $82,235, across 3 grants on its 2024 IRS Form 990.
Where does Pachyonychia Congenita Fund give grants?
Pachyonychia Congenita Fund's top state is Massachusetts, with 40% of the grant dollars itemized on its 2024 IRS Form 990. The next largest states were Maryland (40%) and Texas (20%).
Does Pachyonychia Congenita Fund give general operating support?
Not in 2024: none of the 3 grants with a stated purpose on Pachyonychia Congenita Fund's 2024 IRS Form 990 were described as general or operating support. Recurring purposes include "PC Research" (3 grants).
How large is Pachyonychia Congenita Fund?
Pachyonychia Congenita Fund reported $3.0M in total assets on its 2024 IRS Form 990. Its revenue that year was $817K.
What is Pachyonychia Congenita Fund?
Pachyonychia Congenita Fund is a public charity focused on Medical Research, based in Holladay, UT. It holds $3.0M in total assets as of 2024.
What is Pachyonychia Congenita Fund's EIN?
Pachyonychia Congenita Fund's EIN (Employer Identification Number) is 68-0567493. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(5)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2021 (received by the IRS October 21, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS September 27, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 2, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS October 18, 2025)
- IRS filings on file for fiscal years 2020–2024
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