Pachyonychia Congenita Fund
THE ORGANIZATION'S MISSION IS TO FIGHT FOR A CURE FOR THE PACHYONYCHIA CONGENITA DISEASE, CONNECT AND HELP PATIENTS, AND EMPOWER RESEARCH.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$3.0M
-3.9% YoY
Annual Giving
$247K
Grant Count
3
Avg Grant Size
$82K
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,007,104 | $3,130,275 | $3,057,177 |
| Revenue | $816,533 | $490,833 | $654,819 |
| Expenses | $743,239 | $595,549 | $379,433 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $377,186 | $88,610 | $87,130 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
5 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does Pachyonychia Congenita Fund fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JANICE N SCHWARTZ | EXECUTIVE DI | 40 | — |
| JACK PADOVANO | CHAIR | 4 | — |
| KAY DEE HOLMES | SECRETARY | 0.5 | — |
| JASON HUNTER CPA | TREASURER | 0.5 | — |
| C DAVID HANSEN MD | BOARD MEMBER | 8 | — |
| JAMES RITTLE | BOARD MEMBER | 0.5 | — |
| AARON KLEIN | BOARD MEMBER | 0.5 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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