Organization for Autism Research
TO FUND RESEARCH AND EDUCATE INDIVIDUALS AND THE GENERAL PUBLIC ABOUT AUTISM BY PROVIDING EVIDENCE-BASED INFORMATION DRAWN FROM RESEARCH IN VARIOUS FORMS AND FORUMS: WEBINARS, OUTREACH, PRINTED MATERIALS, WEBSITE, ELECTRONIC FORUMS, SOCIAL MEDIA, AND A MONTHLY E-NEWSLETTER.
Key facts about Organization for Autism Research
- EIN
- 54-2062167
- Latest 990 filing
- Form 990-PF, 2024
- Annual giving (2024)
- $317,881
- Grants made (2024)
- 18
- Average grant
- $17,660
- Median grant
- $14,998
- New grantees (estimate)
- 56% first-time grantees (10 of 18, 2024)
- Total assets
- $3,869,084
- Primary geography
- Nebraska (16% of itemized 2024 grant dollars)
Data from IRS Form 990-PF, 2024; updated September 2026. New grantees are estimated by matching recipient names across years (methodology).
Who Organization for Autism Research funds
By grant dollars, the top recipient states for Organization for Autism Research's 18 itemized 2024 grants were Nebraska (16%), Virginia (16%) and California (9%). None of its 18 grants with a stated purpose were described as general or operating support. Recurring purposes include "Research" (13 grants) and "Information" (5 grants).
Is Organization for Autism Research open to new grantees?
56%
first-time grantees, 2024
In 2024, 10 of 18 grantees (56%) were first-time recipients. First grants averaged $18K; repeat grants $17K. How we count
Medians: $15K first-time, $14K repeat.
Estimate from itemized IRS Form 990-PF grant lists (2020–2024). Recipient names are matched across years, so a renamed or misspelled grantee can look new; grants to individuals are left out. Methodology.
Next steps with Organization for Autism Research
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Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$3.9M
-5.9% YoY
Annual Giving
$318K
+6.2% YoY
Grant Count
18
+5.9% YoY
Avg Grant Size
$18K
+0.3% YoY
About Organization for Autism Research
Based on IRS filings
Organization for Autism Research is a nonprofit organization focused on Medical Research, based in Arlington, VA. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $3.9M in total assets. In 2024, it awarded 18 grants totaling $318K. Net investment income was $89K.
Focus Areas
Ready to take the next step with Organization for Autism Research?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of all 18 itemized 2024 grant dollars.
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $3,869,084 | $4,110,656 | $3,594,970 |
| Revenue | $2,323,210 | $2,819,297 | $2,296,713 |
| Expenses | $2,467,346 | $2,188,510 | $1,786,537 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $88,988 | $66,905 | $13,948 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 10 recipients in 2024
Grant Size Distribution
69 grants across all recorded years
Open Grants
4 open opportunities from Organization for Autism Research
OAR Applied Research Competition Grant
Organization for Autism Research
Amount
Up to US $50,000
Deadline
Rolling / Open
OAR Community Grant
Organization for Autism Research
Amount
US $1,000 - US $15,000
Deadline
Rolling / Open
OAR Graduate Research Grant Competition
Organization for Autism Research
Amount
Up to US $2,000
Deadline
Rolling / Open
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest recipients include University of Nebraska Medical Center ($50,000), Virginia Commonwealth University ($50,000), University of Colorado ($25,000).
| Recipient | Purpose | Amount |
|---|---|---|
| UNIVERSITY OF NEBRASKA MEDICAL CENTER Omaha, NE | RESEARCH | $50,000 |
| VIRGINIA COMMONWEALTH UNIVERSITY Richmond, VA | RESEARCH | $50,000 |
| UNIVERSITY OF COLORADO Denver, CO | RESEARCH | $25,000 |
| UNIVERSITY OF NORTH CAROLINA CHAPEL HILL Chapel Hill, NC | RESEARCH | $25,000 |
| UNIVERSITY OF ALABAMA Tuscaloosa, AL | RESEARCH | $15,859 |
| RESEARCH FOUNDATION OF CUNY FOR New York, NY | RESEARCH | $15,000 |
| TULANE SCHOOL OF SOCIAL WORK Dallas, TX | RESEARCH | $15,000 |
| UNIVERSITY OF MASSACHUSETTS - BOSTON Boston, MA | RESEARCH | $15,000 |
| UNIVERSITY OF WASHINGTON Seattle, WA | RESEARCH | $15,000 |
| CSU FULLERTON Fullerton, CA | RESEARCH | $14,995 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 IRS filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Kristen Essex | Executive Director, Secretary | 60 | $135,000 |
| James M Sack | Chairman | 4 | — |
| Lori Lapin Jones | Vice Chairman | 1 | — |
| Marie Johnson | Treasurer | 1 | — |
| Liz Cavaliere | Director | 1 | — |
| Roberto Datorre | Director | 1 | — |
| William Donlon | Director (Until 6/14/2024) | 1 | — |
| Peter Gerhardt | Chair, Scientific Council | 1 | — |
| Lisa Hussman | Director | 1 | — |
| Gregory Smith | Director | 1 | — |
| Cathy Schwallie Farmer | Director | 1 | — |
| Stephen Shore | Community Representative | 1 | — |
| Joseph Thomas | Director | 1 | — |
| Michael Kotowski | Director | 1 | — |
| Christopher Demay | Director (From 5/2/2024) | 1 | — |
| Kimberly Ha | Sr. Director, Research and Programs | 40 | $111,000 |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Organization for Autism Research?
Organization for Autism Research is a nonprofit organization focused on Medical Research, based in Arlington, VA. It holds $3.9M in total assets as of 2024.
How large is Organization for Autism Research?
As of 2024, Organization for Autism Research holds $3.9M in total assets with $2.3M in annual revenue. It awarded 18 grants totaling $318K in 2024.
Where does Organization for Autism Research operate?
Organization for Autism Research has awarded grants in Alabama, Arizona, California, Colorado, District of Columbia, Delaware, Florida, Georgia, Illinois, Indiana, Louisiana, Massachusetts, Maryland, North Carolina, Nebraska, New Jersey, Nevada, New York, Pennsylvania, Rhode Island, Texas, Virginia, Vermont, Washington, Wyoming.
What size grants does Organization for Autism Research award?
In 2024, Organization for Autism Research awarded 18 grants totaling $318K — an average of about $18K per grant, based on its IRS Form 990 filings.
What is Organization for Autism Research's EIN?
Organization for Autism Research's EIN (Employer Identification Number) is 54-2062167. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in Organization for Autism Research's focus areas in our free grants database
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Data last updated September 2026. Sourced from IRS Form 990-PF filings.