Nbia Disorders Association logo

Nbia Disorders Association

CYPRESS, TX EIN: 33-0712327 Website

In our drive to find a cure for NBIA we provide support to families educate the public and accelerate research with collaborators from around the world.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$997K

+8.6% YoY

Revenue

$241K

-54.7% YoY

Net Investment Income

$15K

+24.1% YoY

Expenses

$290K

-32.3% YoY

About Nbia Disorders Association

Based on IRS filings

Nbia Disorders Association is a nonprofit organization focused on Medical Research, based in CYPRESS, TX. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $997K in total assets. Net investment income was $15K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

4states

Cities

New HavenPhiladelphiaPortlandRochester

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$155K$311K$466K$621K201920202021202220232024
Metric202420232022
Total Assets$997,387$918,162$846,663
Revenue$241,251$532,494$276,389
Expenses$290,069$428,286$267,629
Qualifying Distributions
Net Investment Income$15,297$12,323$310
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$29K$58K$86K$115K0 grants20190 grants20201 grants20212 grants20222 grants20230 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 0 recipients in 2024

Grant Size Distribution

5 grants across all recorded years

2<$50K1$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for 2024.

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Patricia V WoodFormer President$64KAmber DentonPresident$23K

From 2024 filing

NameTitleHoursCompensation
Amber DentonPresident40$23,333
Carolyn BanikTreasurer4
Meg Talley DyerVice President2
Matthew RitzmanSecretary2
Sarah DoerrTrustee2
Jeffrey GartmanTrustee2
Vanessa SmithTrustee2
Jennifer SanchezTrustee2
Jennifer WildvankTrustee2
Dr James BourgeoisTrustee2
Patricia V WoodFormer President20$63,959

Subject Areas

Focus areas based on grantmaking activity

Frequently Asked Questions

What is Nbia Disorders Association?

Nbia Disorders Association is a nonprofit organization focused on Medical Research, based in CYPRESS, TX. It holds $997K in total assets as of 2024.

How large is Nbia Disorders Association?

As of 2024, Nbia Disorders Association holds $997K in total assets with $241K in annual revenue.

Where does Nbia Disorders Association operate?

Nbia Disorders Association has awarded grants in Connecticut, New York, Oregon, Pennsylvania.

What is Nbia Disorders Association's EIN?

Nbia Disorders Association's EIN (Employer Identification Number) is 33-0712327. IRS Form 990 filing data is available on this page for 2019–2024.

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Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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