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Nbia Disorders Association

CYPRESS, TX EIN: 33-0712327 Website

In our drive to find a cure for NBIA we provide support to families educate the public and accelerate research with collaborators from around the world.

Financial Overview

From 2024 IRS Form 990-PF · View filing

Total Assets

$997K

+8.6% YoY

Revenue

$241K

-54.7% YoY

Net Investment Income

$15K

+24.1% YoY

Expenses

$290K

-32.3% YoY

About Nbia Disorders Association

Based on IRS filings

Nbia Disorders Association is a nonprofit organization focused on Medical Research, based in CYPRESS, TX. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $997K in total assets. Net investment income was $15K.

Focus Areas

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

4states

Cities

New HavenPhiladelphiaPortlandRochester

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$155K$311K$466K$621K201920202021202220232024
Metric202420232022
Total Assets$997,387$918,162$846,663
Revenue$241,251$532,494$276,389
Expenses$290,069$428,286$267,629
Qualifying Distributions
Net Investment Income$15,297$12,323$310
Distributable Amount

Giving Over Time

Total grant dollars and number of grants per year

$0$29K$58K$86K$115K0 grants20190 grants20201 grants20212 grants20222 grants20230 grants2024

Grant Insights

How this funder distributes its grants

Top Recipients

Top 0 recipients in 2024

Grant Size Distribution

5 grants across all recorded years

2<$50K1$50–100K2$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for .

Leadership & Key People

Officers and directors from IRS filings

Compensation Overview

From 2024 IRS filing

Patricia V WoodFormer President$64KAmber DentonPresident$23K

From 2024 filing

NameTitleHoursCompensation
Amber DentonPresident40$23,333
Carolyn BanikTreasurer4
Meg Talley DyerVice President2
Matthew RitzmanSecretary2
Sarah DoerrTrustee2
Jeffrey GartmanTrustee2
Vanessa SmithTrustee2
Jennifer SanchezTrustee2
Jennifer WildvankTrustee2
Dr James BourgeoisTrustee2
Patricia V WoodFormer President20$63,959

Subject Areas

Focus areas based on grantmaking activity

Related Funders

Similar funders by location and focus area

Data last updated April 2026. Sourced from IRS Form 990-PF filings.

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