National Niemann-Pick Disease logo

National Niemann-Pick Disease

Grantmaker Fort Atkinson, WI EIN: 35-1844264 Website

The National Niemann-Pick Disease foundation, inc. (NNPDF) is a non-profit, patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by niemann-pick disease, through education, collaboration and research.

Key facts about National Niemann-Pick Disease

EIN
35-1844264
Latest 990 filing
Form 990 filing, 2024
Total assets
$607,164

Data from IRS Form 990 filing, 2024; updated September 2026.

Financial Overview

From 2024 IRS Form 990 filing · View filing

Total Assets

$607K

+4.4% YoY

Revenue

$676K

+14.4% YoY

Net Investment Income

$6K

+31.1% YoY

Expenses

$589K

-26.0% YoY

About National Niemann-Pick Disease

Based on IRS filings

National Niemann-Pick Disease is a nonprofit organization focused on Medical Research, based in Fort Atkinson, WI. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $607K in total assets. Net investment income was $6K.

Focus Areas

Open Grants

3 open opportunities from National Niemann-Pick Disease

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

States

Cities

College Park

Giving Over Time

Total grant dollars and number of grants per year

$0$10K$20K$30K$40K0 grants2020 0 grants2021 1 grant2022 1 grant2023 0 grants2024

From 2022 to 2023, annual grant giving ranged from $23K (2023) to $40K (2022). In 2023 it made 1 grant totaling $23K.

Grant Insights

How this funder distributes its grants

Grant Size Distribution

2 grants across all recorded years

2<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

The most common grant size was under $50K: 2 grants of 2 (100%).

Giving History

Grant recipients and amounts by year

No grants recorded for 2024.

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Net Investment Income
$0$250K$500K$750K$1M2020 2021 2022 2023 2024
Metric202420232022
Total Assets$607,164$581,378$698,723
Revenue$676,224$591,177$556,671
Expenses$589,340$796,672$725,852
Net Investment Income$6,468$4,934$1,551

Data update history

When this profile's IRS filing data changed on Grantable

  1. IRS filings on file for fiscal years 2020–2024

Leadership & Key People

Officers and directors from IRS filings

National Niemann-Pick Disease is led by Joslyn Crowe, Executive Director on every filing since 2020; 1 of 17 officers listed in 2024 is compensated.

Officers on the 2024 filing

  • Joslyn Crowe

    Executive Director

    On filings since 2020

    40 hrs/week

    $126K (2020) → $106K (2024)

  • Elizabeth Heinze

    Chair

    Vice Chair → Chair, 2024

    On filings since 2023

    6 hrs/week

    No compensation reported

  • Anthony Leoni

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Chrystelle Bougault

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Meghann Ferguson

    Director

    Director → Secretary, 2022

    Secretary → Director, 2023

    On filings since 2020

    1 hr/week

    No compensation reported

  • Paul Merrigan

    Director

    On filings since 2020

    1 hr/week

    No compensation reported

  • Cara Gilmore

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Kari Lato

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Mary Frances Harmon

    Director

    On filings since 2021

    1 hr/week

    No compensation reported

  • Gail Koujaian

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Travis Obermeyer

    Director

    On filings since 2022

    1 hr/week

    No compensation reported

  • Dawn Stites

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Garland Alvey

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Kelly Lee

    Director

    New on the 2024 filing

    1 hr/week

    No compensation reported

  • Becky McGuire

    Vice Chair

    Vice Chair → Chair, 2022

    Chair → Vice Chair, 2024

    On filings since 2020

    1 hr/week

    No compensation reported

  • Mike Smith

    Treasurer

    On filings since 2020

    2 hrs/week

    No compensation reported

  • Taylor Sabky

    Secretary

    Director → Secretary, 2023

    On filings since 2022

    2 hrs/week

    No compensation reported

Former officers (5)
  • Former: Justin Hopkin (2020–2022) — Chair Emeritus
  • Former: Liz Heinze (2020–2022) — Vice Chair
  • Former: Kara Avik (2020–2021) — Director
  • Former: Missy Ward (2020–2021) — Secretary
  • Former: Anne Oconnor-Smith (2020) — Interim Treasurer

Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2024 IRS filing

Joslyn Crowe — Executive Director Thru September: $106KJoslyn CroweExecutive Director Thru…$106K

The highest reported compensation on the 2024 filing was $106K, to Joslyn Crowe (Executive Director Thru September).

Frequently asked questions about National Niemann-Pick Disease

How large is National Niemann-Pick Disease?

National Niemann-Pick Disease reported $607K in total assets on its 2024 IRS Form 990 filing. Its revenue that year was $676K.

What is National Niemann-Pick Disease?

National Niemann-Pick Disease is a nonprofit organization focused on Medical Research, based in Fort Atkinson, WI. It holds $607K in total assets as of 2024.

Where does National Niemann-Pick Disease operate?

National Niemann-Pick Disease has awarded grants in Maryland.

What is National Niemann-Pick Disease's EIN?

National Niemann-Pick Disease's EIN (Employer Identification Number) is 35-1844264. IRS Form 990 filing data is available on this page for 2020–2024.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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