THE NATIONAL NIEMANN-PICK DISEASE FOUNDATION, INC. (NNPDF) IS A NON-PROFIT, PATIENT ADVOCACY AND FAMILY SUPPORT ORGANIZATION DEDICATED TO SUPPORTING AND EMPOWERING PATIENTS AND FAMILIES AFFECTED BY NIEMANN-PICK DISEASE, THROUGH EDUCATION, COLLABORATION AND RESEARCH.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$607K
+4.4% YoY
Revenue
$676K
+14.4% YoY
Net Investment Income
$6K
+31.1% YoY
Expenses
$589K
-26.0% YoY
About National Niemann-pick Disease
Based on IRS filings
National Niemann-pick Disease is a nonprofit organization focused on Medical Research, based in FORT ATKINSON, WI. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $607K in total assets. Net investment income was $6K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $607,164 | $581,378 | $698,723 |
| Revenue | $676,224 | $591,177 | $556,671 |
| Expenses | $589,340 | $796,672 | $725,852 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $6,468 | $4,934 | $1,551 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
2 grants across all recorded years
Open Grants
5 open opportunities from National Niemann-pick Disease
Edward H. Schuchman ASMD Research Fellowship
NATIONAL NIEMANN-PICK DISEASE
Amount
$40,000
Deadline
Rolling / Open
Joele Ruppert & Joseph Colton ASMD Scholarship
NATIONAL NIEMANN-PICK DISEASE
Amount
$500
Deadline
May 15, 2026
NNPDF Cora Sterling Endurance Award
NATIONAL NIEMANN-PICK DISEASE
Amount
Varies
Deadline
May 15, 2026
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| JOSLYN CROWE | EXECUTIVE DIRECTOR THRU SEPTEMBER | 40 | $105,504 |
| ELIZABETH HEINZE | CHAIR | 6 | — |
| BECKY MCGUIRE | VICE CHAIR | 1 | — |
| MIKE SMITH | TREASURER | 2 | — |
| TAYLOR SABKY | SECRETARY | 2 | — |
| ANTHONY LEONI | DIRECTOR | 1 | — |
| CARA GILMORE | DIRECTOR THRU JUNE | 1 | — |
| CHRYSTELLE BOUGAULT | DIRECTOR | 1 | — |
| DAWN STITES | DIRECTOR | 1 | — |
| GAIL KOUJAIAN | DIRECTOR | 1 | — |
| GARLAND ALVEY | DIRECTOR | 1 | — |
| KARI LATO | DIRECTOR | 1 | — |
| KELLY LEE | DIRECTOR | 1 | — |
| MARY FRANCES HARMON | DIRECTOR | 1 | — |
| MEGHANN FERGUSON | DIRECTOR | 1 | — |
| PAUL MERRIGAN | DIRECTOR | 1 | — |
| TRAVIS OBERMEYER | DIRECTOR | 1 | — |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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