National Niemann-Pick Disease
The National Niemann-Pick Disease foundation, inc. (NNPDF) is a non-profit, patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by niemann-pick disease, through education, collaboration and research.
National Niemann-Pick Disease at a glance
- Total assets
- $607,164
- +4.4% vs 2023
- Revenue (2024)
- $676,224
- +14.4% vs 2023
- Net investment income (2024)
- $6,468
- +31.1% vs 2023
- Expenses (2024)
- $589,340
- -26.0% vs 2023
- Latest 990 filing
- Form 990 filing, 2024 View filing
Data from IRS Form 990 filing, 2024; updated September 2026.
How to apply to National Niemann-Pick Disease
Open Grants
3 open opportunities from National Niemann-Pick Disease
Edward H. Schuchman ASMD Research Fellowship
National Niemann-Pick Disease
Amount
$40,000
Deadline
Deadline not published
Peter G. Pentchev Niemann-Pick Type C Research Fellowship
National Niemann-Pick Disease
Amount
$40,000
Deadline
Deadline not published
Uplifting Athletes - Researcher Travel Program
National Niemann-Pick Disease
Amount
Varies
Deadline
Deadline not published
Who National Niemann-Pick Disease funds
How this funder distributes its grants
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 2 grants of 2 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2022 to 2023, annual grant giving ranged from $23K (2023) to $40K (2022). In 2023 it made 1 grant totaling $23K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Maryland College Park College Park, MD | NPC Research Fellowship | $22,803 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2024 | $607,164 | $676,224 | $589,340 | — | — | $6,468 |
| 2023 | $581,378 | $591,177 | $796,672 | $22,803 | 1 | $4,934 |
| 2022 | $698,723 | $556,671 | $725,852 | $40,000 | 1 | $1,551 |
| 2021 | $850,802 | $499,229 | $479,388 | — | — | $328 |
| 2020 | $799,194 | $674,861 | $675,000 | — | — | $1,511 |
About National Niemann-Pick Disease
Based on IRS filings
National Niemann-Pick Disease is a nonprofit organization focused on Medical Research, based in Fort Atkinson, WI. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $607K in total assets. Net investment income was $6K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
National Niemann-Pick Disease is led by Joslyn Crowe, Executive Director on every filing since 2020; 1 of 17 officers listed in 2024 is compensated.
Officers on the 2024 filing
Joslyn Crowe
Executive Director
On filings since 2020
40 hrs/week
$126K (2020) → $106K (2024)
Elizabeth Heinze
Chair
Vice Chair → Chair, 2024
On filings since 2023
6 hrs/week
No compensation reported
Anthony Leoni
Director
On filings since 2020
1 hr/week
No compensation reported
Chrystelle Bougault
Director
On filings since 2020
1 hr/week
No compensation reported
Meghann Ferguson
Director
Director → Secretary, 2022
Secretary → Director, 2023
On filings since 2020
1 hr/week
No compensation reported
Paul Merrigan
Director
On filings since 2020
1 hr/week
No compensation reported
Cara Gilmore
Director
On filings since 2021
1 hr/week
No compensation reported
Kari Lato
Director
On filings since 2021
1 hr/week
No compensation reported
Mary Frances Harmon
Director
On filings since 2021
1 hr/week
No compensation reported
Gail Koujaian
Director
On filings since 2022
1 hr/week
No compensation reported
Travis Obermeyer
Director
On filings since 2022
1 hr/week
No compensation reported
Dawn Stites
Director
New on the 2024 filing
1 hr/week
No compensation reported
Garland Alvey
Director
New on the 2024 filing
1 hr/week
No compensation reported
Kelly Lee
Director
New on the 2024 filing
1 hr/week
No compensation reported
Becky McGuire
Vice Chair
Vice Chair → Chair, 2022
Chair → Vice Chair, 2024
On filings since 2020
1 hr/week
No compensation reported
Mike Smith
Treasurer
On filings since 2020
2 hrs/week
No compensation reported
Taylor Sabky
Secretary
Director → Secretary, 2023
On filings since 2022
2 hrs/week
No compensation reported
Former officers (5)
- Former: Justin Hopkin (2020–2022) — Chair Emeritus
- Former: Liz Heinze (2020–2022) — Vice Chair
- Former: Kara Avik (2020–2021) — Director
- Former: Missy Ward (2020–2021) — Secretary
- Former: Anne Oconnor-Smith (2020) — Interim Treasurer
Data from IRS Form 990 filings, 2020–2024. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2024 IRS filing
The highest reported compensation on the 2024 filing was $106K, to Joslyn Crowe (Executive Director Thru September).
Frequently asked questions about National Niemann-Pick Disease
How large is National Niemann-Pick Disease?
National Niemann-Pick Disease reported $607K in total assets on its 2024 IRS Form 990 filing. Its revenue that year was $676K.
What is National Niemann-Pick Disease?
National Niemann-Pick Disease is a nonprofit organization focused on Medical Research, based in Fort Atkinson, WI. It holds $607K in total assets as of 2024.
Where does National Niemann-Pick Disease operate?
National Niemann-Pick Disease has awarded grants in Maryland.
What is National Niemann-Pick Disease's EIN?
National Niemann-Pick Disease's EIN (Employer Identification Number) is 35-1844264. IRS Form 990 filing data is available on this page for 2020–2024.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(1)
When this profile's IRS filing data changed on Grantable
- IRS filings on file for fiscal years 2020–2024
Live grants for the work National Niemann-Pick Disease funds
Medical Research Open opportunities, soonest deadline first.
- Dr. Richard A. Falls Virginia Lions Eye Institute Research Grant Up to $40,000 (yearly total budget) · Due October 25, 2026
- NSF Graduate Research Fellowship Program (GRFP) $32,000 annually plus $12,000 cost of education allowance · Due October 27, 2026
- Social, Political and Economic Inequality Grants Due October 28, 2026
Explore Open Grants
Browse active grant opportunities in National Niemann-Pick Disease's focus areas in our free grants database
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National Niemann-Pick Disease down — hundreds of funders to go?