National Niemann-Pick Disease Foundation Inc
The National Niemann-Pick Disease Foundation, inc. (NNPDF) is a non-profit, patient advocacy and family support organization dedicated to supporting and empowering patients and families affected by niemann-pick disease, through education, collaboration and research.
National Niemann-Pick Disease Foundation Inc at a glance
In short: National Niemann-Pick Disease Foundation Inc reported $8K in grants paid in 2025 (a total; its filing lists no individual grants). Source: 2025 IRS Form 990.
- Grants paid (2025)
- $7,978 — reported as a total on the IRS filing, without an itemized list
- +4949.4% vs 2024
- Total assets
- $981,265
- +61.6% vs 2024
- Revenue (2025)
- $929,337
- +37.4% vs 2024
- Net investment income (2025)
- $18,168
- +180.9% vs 2024
- Expenses (2025)
- $553,122
- -6.1% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated November 2026.
How to apply to National Niemann-Pick Disease Foundation Inc
Open Grants
3 open opportunities from National Niemann-Pick Disease Foundation Inc
Edward H. Schuchman ASMD Research Fellowship
National Niemann-Pick Disease Foundation Inc
Amount
$40,000
Deadline
Deadline not published
Peter G. Pentchev Niemann-Pick Type C Research Fellowship
National Niemann-Pick Disease Foundation Inc
Amount
$40,000
Deadline
Deadline not published
Uplifting Athletes - Researcher Travel Program
National Niemann-Pick Disease Foundation Inc
Amount
Varies
Deadline
Deadline not published
Who National Niemann-Pick Disease Foundation Inc funds
How this funder distributes its grants
Grant Size Distribution
2 grants across all recorded years
The most common grant size was under $50K: 2 grants of 2 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2020 to 2025, annual grant giving ranged from $158 (2024) to $82K (2020). In 2025 it reported $8K in grants paid, as a total without an itemized list.
Hatched bars: grants paid as reported on the IRS filing, which lists no individual grants for that year.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| University of Maryland College Park College Park, MD | NPC Research Fellowship | $22,803 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $981,265 | $929,337 | $553,122 | $7,978 | Total only | $18,168 |
| 2024 | $607,164 | $676,224 | $589,340 | $158 | Total only | $6,468 |
| 2023 | $581,378 | $591,177 | $796,672 | $22,803 | 1 | $4,934 |
| 2022 | $698,723 | $556,671 | $725,852 | $40,000 | 1 | $1,551 |
| 2021 | $850,802 | $499,229 | $479,388 | $12,179 | Total only | $328 |
| 2020 | $799,194 | $674,861 | $675,000 | $82,000 | Total only | $1,511 |
"Total only": grants paid as reported on the IRS filing, which lists no individual grants for that year.
About National Niemann-Pick Disease Foundation Inc
Based on IRS filings
National Niemann-Pick Disease Foundation Inc is a public charity focused on Medical Research, based in Fort Atkinson, WI. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $981K in total assets. In 2025, it reported $8K in grants paid as a total on its IRS filing, without an itemized list. Net investment income was $18K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
National Niemann-Pick Disease Foundation Inc is led by Shante Antrom, Interim Executive Director on the 2025 filing; 1 of 17 officers listed in 2025 is compensated.
Officers on the 2025 filing
Shante Antrom
Interim Executive Director
New on the 2025 filing
40 hrs/week
$28K (2025)
Saira Sultan
Executive Director
New on the 2025 filing
40 hrs/week
No compensation reported
Elizabeth Heinze
Chair
Vice Chair → Chair, 2024
On filings since 2023
20 hrs/week
No compensation reported
Anthony Leoni
Director
On filings since 2020
1 hr/week
No compensation reported
Meghann Ferguson
Director
Director → Secretary, 2022
Secretary → Director, 2023
On filings since 2020
1 hr/week
No compensation reported
Paul Merrigan
Director
On filings since 2020
1 hr/week
No compensation reported
Kari Lato
Director
On filings since 2021
1 hr/week
No compensation reported
Mary Frances Harmon
Director
On filings since 2021
1 hr/week
No compensation reported
Gail Koujaian
Director
On filings since 2022
1 hr/week
No compensation reported
Travis Obermeyer
Director
On filings since 2022
1 hr/week
No compensation reported
Dawn Stites
Director
On filings since 2024
1 hr/week
No compensation reported
Garland Alvey
Director
On filings since 2024
1 hr/week
No compensation reported
Kelly Lee
Director
On filings since 2024
1 hr/week
No compensation reported
Deborah Cho
Director
New on the 2025 filing
1 hr/week
No compensation reported
Becky McGuire
Vice Chair
Vice Chair → Chair, 2022
Chair → Vice Chair, 2024
On filings since 2020
1 hr/week
No compensation reported
Mike Smith
Treasurer
On filings since 2020
2 hrs/week
No compensation reported
Taylor Sabky
Secretary & Vice Chair
Director → Secretary, 2023
Secretary → Secretary & Vice Chair, 2025
On filings since 2022
5 hrs/week
No compensation reported
Former officers (8)
- Former: Chrystelle Bougault (2020–2024) — Director
- Former: Joslyn Crowe (2020–2024) — Executive Director
- Former: Cara Gilmore (2021–2024) — Director
- Former: Justin Hopkin (2020–2022) — Chair Emeritus
- Former: Liz Heinze (2020–2022) — Vice Chair
- Former: Kara Avik (2020–2021) — Director
- Former: Missy Ward (2020–2021) — Secretary
- Former: Anne Oconnor-Smith (2020) — Interim Treasurer
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $28K, to Shante Antrom (Interim Executive Director (From November)).
Frequently asked questions about National Niemann-Pick Disease Foundation Inc
How much does National Niemann-Pick Disease Foundation Inc give each year?
National Niemann-Pick Disease Foundation Inc reported $8K in grants paid in 2025 on its 2025 IRS Form 990, as a total without an itemized list of grants. In 2024 it reported $158 in grants paid.
How large is National Niemann-Pick Disease Foundation Inc?
National Niemann-Pick Disease Foundation Inc reported $981K in total assets on its 2025 IRS Form 990. Its revenue that year was $929K.
What is National Niemann-Pick Disease Foundation Inc?
National Niemann-Pick Disease Foundation Inc is a public charity focused on Medical Research, based in Fort Atkinson, WI. It holds $981K in total assets as of 2025.
Where does National Niemann-Pick Disease Foundation Inc operate?
National Niemann-Pick Disease Foundation Inc has awarded grants in Maryland.
What is National Niemann-Pick Disease Foundation Inc's EIN?
National Niemann-Pick Disease Foundation Inc's EIN (Employer Identification Number) is 35-1844264. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated November 2026. Sourced from IRS Form 990 filings.
Data update history
(7)
When this profile's IRS filing data changed on Grantable
- Updated Form 990 for fiscal year 2020 (received by the IRS November 1, 2021)
- Updated Form 990 for fiscal year 2021 (received by the IRS May 10, 2022)
- Updated Form 990 for fiscal year 2022 (received by the IRS June 15, 2023)
- Updated Form 990 for fiscal year 2023 (received by the IRS October 4, 2024)
- Updated Form 990 for fiscal year 2024 (received by the IRS June 16, 2025)
- Added Form 990 for fiscal year 2025 (received by the IRS August 31, 2026)
- IRS filings on file for fiscal years 2020–2024
Live grants for the work National Niemann-Pick Disease Foundation Inc funds
Medical Research Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in National Niemann-Pick Disease Foundation Inc's focus areas in our free grants database
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