National Foundation for Ectodermal
To empower and connect people touched by ectodermal dysplasias through education, support, and research.
National Foundation for Ectodermal at a glance
- Total assets
- $4,979,793
- +3.9% vs 2024
- Revenue (2025)
- $1,647,124
- +34.0% vs 2024
- Net investment income (2025)
- $460,376
- +90.7% vs 2024
- Expenses (2025)
- $1,559,531
- +29.6% vs 2024
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
How to apply to National Foundation for Ectodermal
Open Grants
1 open opportunity from National Foundation for Ectodermal
Who National Foundation for Ectodermal funds
Giving History
Giving Over Time
Total grant dollars and number of grants per year
In 2019 it made 1 grant totaling $25K.
Ready to take the next step with National Foundation for Ectodermal?
Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $4,979,793 | $1,647,124 | $1,559,531 | — | — | $460,376 |
| 2024 | $4,790,999 | $1,229,652 | $1,203,383 | — | — | $241,442 |
| 2023 | $4,529,323 | $1,161,405 | $1,079,785 | — | — | $211,660 |
| 2022 | $3,999,579 | $1,493,211 | $1,083,870 | — | — | $254,390 |
| 2021 | $4,339,643 | $1,968,542 | $885,354 | — | — | $429,476 |
| 2020 | $3,174,642 | $995,618 | $731,772 | — | — | $99,225 |
| 2019 | $2,717,658 | $1,078,711 | $849,033 | $25,000 | 1 | $136,357 |
About National Foundation for Ectodermal
Based on IRS filings
National Foundation for Ectodermal is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Fairview Heights, IL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $5.0M in total assets. Net investment income was $460K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
National Foundation for Ectodermal is led by Mary Fete, Executive Director on every filing since 2022; 1 of 12 officers listed in 2025 is compensated.
Officers on the 2025 filing
Mary Fete
Executive Director
On filings since 2022
40 hrs/week
$118K (2022) → $118K (2025)
Karl Nelsen
President
Vice President → President, 2020
On filings since 2019
5 hrs/week
No compensation reported
J. Timothy Wright Dds Ms
Director
On filings since 2019
1 hr/week
No compensation reported
Keith Throm
Director
Secretary → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Charles Richter
Director
On filings since 2023
1 hr/week
No compensation reported
Bill Wilkinson
Director
On filings since 2024
1 hr/week
No compensation reported
Soren Roe
Director
On filings since 2024
1 hr/week
No compensation reported
Jeanne Wang
Director
New on the 2025 filing
1 hr/week
No compensation reported
Richard Stratz
Treasurer
Director → Treasurer, 2025
On filings since 2019
1 hr/week
No compensation reported
Ruth G. Geismar
Ad Hoc Advisor
President → Director, 2020
Director → Ad Hoc Advisor, 2024
On filings since 2019
1 hr/week
No compensation reported
Anil Vora
Vice President
Director → Vice President, 2022
On filings since 2020
10 hrs/week
No compensation reported
Jack Kriz
Secretary
Director → Secretary, 2025
On filings since 2022
1 hr/week
No compensation reported
Former officers (5)
- Former: Krista Basile (2019–2024) — Director
- Former: Marianne Vermeer (2019–2024) — Treasurer
- Former: Roy Moffitt Jr. (2019–2024) — Director
- Former: George Barbar (2019–2022) — Director
- Former: Timothy Mickelson (2021–2022) — Director of Development
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
The highest reported compensation on the 2025 filing was $118K, to Mary Fete (Executive Director).
Frequently asked questions about National Foundation for Ectodermal
How large is National Foundation for Ectodermal?
National Foundation for Ectodermal reported $5.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.6M.
What is National Foundation for Ectodermal?
National Foundation for Ectodermal is a public charity focused on Diseases, Disorders & Medical Disciplines, based in Fairview Heights, IL. It holds $5.0M in total assets as of 2025.
Where does National Foundation for Ectodermal operate?
National Foundation for Ectodermal has awarded grants in Texas.
What is National Foundation for Ectodermal's EIN?
National Foundation for Ectodermal's EIN (Employer Identification Number) is 37-1112496. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS May 11, 2026)
- IRS filings on file for fiscal years 2019–2024
Live grants for the work National Foundation for Ectodermal funds
Diseases, Disorders & Medical Disciplines Open opportunities, soonest deadline first.
Explore Open Grants
Browse active grant opportunities in National Foundation for Ectodermal's focus areas in our free grants database
Similar Funders
Other grantmakers to research
Norn Group
San Francisco, CA
Norn Group funds ambitious, high-risk research in longevity science and aging biology, including work on age-related disease and potential therapies; its Impetus Grants offer up to $500,000 per project. Its 2025 filing lists a single grant of $243,000 to a recipient in California, but this does not establish its overall geographic scope. The profile describes an application process but does not state whether unsolicited requests are accepted.
Assets
$3.3M
Grants
1
Total Given
$243K
Pediatric Orthopaedic Society of North America
Oakbrook Terrace, IL
The Pediatric Orthopaedic Society of North America funds pediatric orthopaedic research and education, as well as initiatives in quality, safety, advocacy, and global outreach; award sizes vary, with examples ranging from microgrants of up to $2,500 to research training grants of up to $10,000, and past grants of $30,000. Its profile does not state a geographic restriction or whether it accepts unsolicited requests.
Assets
$18.6M
Grants
0
Total Given
$366K
Child Neurology Society
Roseville, MN
The Child Neurology Society is an inclusive professional organization whose mission is to promote the optimal care of children with neurological and developmental disorders by providing education, advocacy, and support for clinicians and researchers in child neurology.
Assets
$6.7M
Grants
1
Total Given
$30K
National Academy of Neuropsychology Inc
Littleton, CO
Organized and operated exclusively for educational & scientific purposes, with its primary focus on neuropsychology. Foster the development of neuropsychology through meetings, training institutes, to advance neuropsychology as a science and health profession, to promote human welfare and to generate and disseminate knowledge of brain-behavior realtionships.
Assets
$4.5M
Grants
2
Total Given
$30K
Nancy D Carmichael Trust
Chicago, IL
Assets
$4.7M
Grants
3
Total Given
$273K
The Truchard Foundation
Austin, TX
Assets
$81.8M
Grants
3
Total Given
$3.5M
More similar funders
More Funders in Illinois
The filing figures on this page are open data under CC BY 4.0. About GrantGraph Open
Figures come from National Foundation for Ectodermal's IRS filings (methodology). AI-written summaries, news items and logos are not covered by the open licence. Spot an error? Email hello@grantable.co.
National Foundation for Ectodermal down — hundreds of funders to go?