National Foundation for Ectodermal logo

National Foundation for Ectodermal

Foundation · Grantmaker Fairview Heights, IL EIN: 37-1112496 Website

To empower and connect people touched by ectodermal dysplasias through education, support, and research.

Key facts about National Foundation for Ectodermal

EIN
37-1112496
Latest 990 filing
Form 990, 2025
Total assets
$4,979,793

Data from IRS Form 990, 2025; updated September 2026.

Financial Overview

From 2025 IRS Form 990 · View filing

Total Assets

$5.0M

+3.9% YoY

Revenue

$1.6M

+34.0% YoY

Net Investment Income

$460K

+90.7% YoY

Expenses

$1.6M

+29.6% YoY

About National Foundation for Ectodermal

Based on IRS filings

National Foundation for Ectodermal is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Fairview Heights, IL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $5.0M in total assets. Net investment income was $460K.

Open Grants

1 open opportunity from National Foundation for Ectodermal

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Geographic Focus

Where this funder awards grants

Grant Distribution by State

1state

States

Cities

Houston

Giving Over Time

Total grant dollars and number of grants per year

$0$10K$20K$30K1 grants20190 grants20200 grants20210 grants20220 grants20230 grants20240 grants2025

Grant Insights

How this funder distributes its grants

Top Recipients

Top 0 recipients in 2025

Grant Size Distribution

0 grants across all recorded years

<$50K$50–100K$100–250K$250–500K$500K–1M$1–5M$5M+

Giving History

Grant recipients and amounts by year

No grants recorded for 2025.

Financial History

Multi-year comparison from IRS filings

Revenue
Expenses
Qualifying Distributions
Net Investment Income
$0$1M$2M$3M2019202020212022202320242025
Metric202520242023
Total Assets$4,979,793$4,790,999$4,529,323
Revenue$1,647,124$1,229,652$1,161,405
Expenses$1,559,531$1,203,383$1,079,785
Qualifying Distributions———
Net Investment Income$460,376$241,442$211,660
Distributable Amount———

Data update history

When this profile's IRS filing data changed on Grantable

  1. Added Form 990 for fiscal year 2025 (received by the IRS May 11, 2026)
  2. IRS filings on file for fiscal years 2019–2024

Leadership & Key People

Officers and directors from IRS filings

National Foundation for Ectodermal is led by Mary Fete, Executive Director on every filing since 2022; 1 of 12 officers listed in 2025 is compensated.

Officers on the 2025 filing

  • Mary Fete

    Executive Director

    On filings since 2022

    40 hrs/week

    $118K (2022) → $118K (2025)

  • Karl Nelsen

    President

    Vice President → President, 2020

    On filings since 2019

    5 hrs/week

    No compensation reported

  • J. Timothy Wright Dds Ms

    Director

    On filings since 2019

    1 hr/week

    No compensation reported

  • Keith Throm

    Director

    Secretary → Director, 2025

    On filings since 2019

    1 hr/week

    No compensation reported

  • Charles Richter

    Director

    On filings since 2023

    1 hr/week

    No compensation reported

  • Bill Wilkinson

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Soren Roe

    Director

    On filings since 2024

    1 hr/week

    No compensation reported

  • Jeanne Wang

    Director

    New on the 2025 filing

    1 hr/week

    No compensation reported

  • Richard Stratz

    Treasurer

    Director → Treasurer, 2025

    On filings since 2019

    1 hr/week

    No compensation reported

  • Ruth G. Geismar

    Ad Hoc Advisor

    President → Director, 2020

    Director → Ad Hoc Advisor, 2024

    On filings since 2019

    1 hr/week

    No compensation reported

  • Anil Vora

    Vice President

    Director → Vice President, 2022

    On filings since 2020

    10 hrs/week

    No compensation reported

  • Jack Kriz

    Secretary

    Director → Secretary, 2025

    On filings since 2022

    1 hr/week

    No compensation reported

Former officers (5)
  • Former: Krista Basile (2019–2024) — Director
  • Former: Marianne Vermeer (2019–2024) — Treasurer
  • Former: Roy Moffitt Jr. (2019–2024) — Director
  • Former: George Barbar (2019–2022) — Director
  • Former: Timothy Mickelson (2021–2022) — Director of Development

Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.

Compensation Overview

From 2025 IRS filing

Mary Fete — Executive Director: $118KMary FeteExecutive Director$118K

Frequently asked questions about National Foundation for Ectodermal

How large is National Foundation for Ectodermal?

National Foundation for Ectodermal reported $5.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.6M.

What is National Foundation for Ectodermal?

National Foundation for Ectodermal is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Fairview Heights, IL. It holds $5.0M in total assets as of 2025.

Where does National Foundation for Ectodermal operate?

National Foundation for Ectodermal has awarded grants in Texas.

What is National Foundation for Ectodermal's EIN?

National Foundation for Ectodermal's EIN (Employer Identification Number) is 37-1112496. IRS Form 990 filing data is available on this page for 2019–2025.

Data last updated September 2026. Sourced from IRS Form 990 filings.

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