National Foundation for Ectodermal
To empower and connect people touched by ectodermal dysplasias through education, support, and research.
Key facts about National Foundation for Ectodermal
- EIN
- 37-1112496
- Latest 990 filing
- Form 990, 2025
- Total assets
- $4,979,793
Data from IRS Form 990, 2025; updated September 2026.
Financial Overview
From 2025 IRS Form 990 · View filing
Total Assets
$5.0M
+3.9% YoY
Revenue
$1.6M
+34.0% YoY
Net Investment Income
$460K
+90.7% YoY
Expenses
$1.6M
+29.6% YoY
About National Foundation for Ectodermal
Based on IRS filings
National Foundation for Ectodermal is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Fairview Heights, IL. IRS filing data is available from 2019 through 2025. As of 2025, the organization holds $5.0M in total assets. Net investment income was $460K.
Focus Areas
Open Grants
1 open opportunity from National Foundation for Ectodermal
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2025
Grant Size Distribution
0 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for 2025.
Financial History
Multi-year comparison from IRS filings
| Metric | 2025 | 2024 | 2023 |
|---|---|---|---|
| Total Assets | $4,979,793 | $4,790,999 | $4,529,323 |
| Revenue | $1,647,124 | $1,229,652 | $1,161,405 |
| Expenses | $1,559,531 | $1,203,383 | $1,079,785 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $460,376 | $241,442 | $211,660 |
| Distributable Amount | — | — | — |
Data update history
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS May 11, 2026)
- IRS filings on file for fiscal years 2019–2024
Leadership & Key People
Officers and directors from IRS filings
National Foundation for Ectodermal is led by Mary Fete, Executive Director on every filing since 2022; 1 of 12 officers listed in 2025 is compensated.
Officers on the 2025 filing
Mary Fete
Executive Director
On filings since 2022
40 hrs/week
$118K (2022) → $118K (2025)
Karl Nelsen
President
Vice President → President, 2020
On filings since 2019
5 hrs/week
No compensation reported
J. Timothy Wright Dds Ms
Director
On filings since 2019
1 hr/week
No compensation reported
Keith Throm
Director
Secretary → Director, 2025
On filings since 2019
1 hr/week
No compensation reported
Charles Richter
Director
On filings since 2023
1 hr/week
No compensation reported
Bill Wilkinson
Director
On filings since 2024
1 hr/week
No compensation reported
Soren Roe
Director
On filings since 2024
1 hr/week
No compensation reported
Jeanne Wang
Director
New on the 2025 filing
1 hr/week
No compensation reported
Richard Stratz
Treasurer
Director → Treasurer, 2025
On filings since 2019
1 hr/week
No compensation reported
Ruth G. Geismar
Ad Hoc Advisor
President → Director, 2020
Director → Ad Hoc Advisor, 2024
On filings since 2019
1 hr/week
No compensation reported
Anil Vora
Vice President
Director → Vice President, 2022
On filings since 2020
10 hrs/week
No compensation reported
Jack Kriz
Secretary
Director → Secretary, 2025
On filings since 2022
1 hr/week
No compensation reported
Former officers (5)
- Former: Krista Basile (2019–2024) — Director
- Former: Marianne Vermeer (2019–2024) — Treasurer
- Former: Roy Moffitt Jr. (2019–2024) — Director
- Former: George Barbar (2019–2022) — Director
- Former: Timothy Mickelson (2021–2022) — Director of Development
Data from IRS Form 990 filings, 2019–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Compensation Overview
From 2025 IRS filing
Frequently asked questions about National Foundation for Ectodermal
How large is National Foundation for Ectodermal?
National Foundation for Ectodermal reported $5.0M in total assets on its 2025 IRS Form 990. Its revenue that year was $1.6M.
What is National Foundation for Ectodermal?
National Foundation for Ectodermal is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in Fairview Heights, IL. It holds $5.0M in total assets as of 2025.
Where does National Foundation for Ectodermal operate?
National Foundation for Ectodermal has awarded grants in Texas.
What is National Foundation for Ectodermal's EIN?
National Foundation for Ectodermal's EIN (Employer Identification Number) is 37-1112496. IRS Form 990 filing data is available on this page for 2019–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
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