National Foundation for Ectodermal
TO EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS THROUGH EDUCATION, SUPPORT, AND RESEARCH.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$4.8M
+5.8% YoY
Revenue
$1.2M
+5.9% YoY
Net Investment Income
$241K
+14.1% YoY
Expenses
$1.2M
+11.4% YoY
About National Foundation for Ectodermal
Based on IRS filings
National Foundation for Ectodermal is a nonprofit organization focused on Diseases, Disorders & Medical Disciplines, based in FAIRVIEW HEIGHTS, IL. IRS filing data is available from 2019 through 2024. As of 2024, the organization holds $4.8M in total assets. Net investment income was $241K.
Focus Areas
Ready to take the next step with National Foundation for Ectodermal?
Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $4,790,999 | $4,529,323 | $3,999,579 |
| Revenue | $1,229,652 | $1,161,405 | $1,493,211 |
| Expenses | $1,203,383 | $1,079,785 | $1,083,870 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $241,442 | $211,660 | $254,390 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 0 recipients in 2024
Grant Size Distribution
0 grants across all recorded years
Open Grants
1 open opportunity from National Foundation for Ectodermal
Giving History
Grant recipients and amounts by year
No grants recorded for .
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KARL NELSEN | PRESIDENT | 5 | — |
| CHARLES RICHTER | DIRECTOR | 1 | — |
| KEITH THROM | SECRETARY | 1 | — |
| RICHARD STRATZ | DIRECTOR | 1 | — |
| KRISTA BASILE | DIRECTOR | 1 | — |
| ROY MOFFITT JR | DIRECTOR | 1 | — |
| MARIANNE VERMEER | TREASURER | 1 | — |
| J TIMOTHY WRIGHT DDS MS | DIRECTOR | 1 | — |
| ANIL VORA | VICE PRESIDENT | 10 | — |
| RUTH GEISMAR | AD HOC ADVISOR | 1 | — |
| JACK KRIZ | DIRECTOR | 1 | — |
| SOREN ROE | DIRECTOR | 1 | — |
| BILL WILKINSON | DIRECTOR | 1 | — |
| MARY FETE | EXECUTIVE DIRECTOR | 40 | $128,350 |
Subject Areas
Focus areas based on grantmaking activity
Data last updated April 2026. Sourced from IRS Form 990-PF filings.
What could you do with National Foundation for Ectodermal on Grantable?
- Assess strategic fit with your organization
- Draft a tailored letter of inquiry
- Find open RFPs from this funder
- Monitor for new funding opportunities