National Down Syndrome Society
The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$13.0M
-3.8% YoY
Annual Giving
$224K
Grant Count
3
Avg Grant Size
$75K
About National Down Syndrome Society
Based on IRS filings
National Down Syndrome Society is a nonprofit organization, based in WASHINGTON, DC. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $13.0M in total assets. In 2024, it awarded 3 grants totaling $224K. Net investment income was $758K.
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $12,985,609 | $13,503,862 | $13,076,710 |
| Revenue | $4,012,682 | $3,354,289 | $3,651,955 |
| Expenses | $5,273,290 | $4,160,847 | $3,391,372 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $757,855 | $545,543 | $336,258 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include AdventHealth Foundation ($100,000), DSA of Central Ohio ($100,000), Fora Education ($24,200).
| Recipient | Purpose | Amount |
|---|---|---|
| AdventHealth Foundation Altamonte Springs, FL | healthcare services | $100,000 |
| DSA of Central Ohio Columbus, OH | adult literacy program | $100,000 |
| Fora Education Rochester, MN | Transition Guide | $24,200 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KANDI PICKARD | President & CEO | 40 | $204,973 |
| SARA GOLDBERG | VP Strategic Dev | 40 | $93,417 |
| Carlo P Frappolli | Chairman | 1.5 | — |
| Thomas Warner | Vice President | 1.5 | — |
| Janet Eissenstat | Secretary | 1.5 | — |
| John Short | Treasurer | 1.5 | — |
| Elizabeth F Goodwin | Director | 0.7 | — |
| Kerry Sette | Director | 0.7 | — |
| John Cronin | Director | 0.7 | — |
| Misty Holmes | Director | 0.7 | — |
| Marjorie Shavers | Director | 0.7 | — |
| Mark Johnson | Director | 0.7 | — |
| Debbie Morris | Director | 0.7 | — |
| Lisa Pelham | Director | 0.7 | — |
| Thomas Santos | Director | 0.7 | — |
| Schunda Murphy | Director | 0.7 | — |
| Robert Siegel | Director | 0.7 | — |
| Candace Whiting | Director | 0.7 | — |
| Lauren Wang | Director | 0.7 | — |
| C Mitch Taylor | Director | 0.7 | — |
| Michael Kulma | Director | 0.7 | — |
| Victoria Tremonti | Director | 0.7 | — |
| Joe Joyce | Director | 0.7 | — |
| Courtney Gaines | Director | 0.7 | — |
| Ciara Siegel | Director | 0.7 | — |
| Anthony Gostkowski | Director | 0.7 | — |
Frequently Asked Questions
How large is National Down Syndrome Society?
As of 2024, National Down Syndrome Society holds $13.0M in total assets with $4.0M in annual revenue. It awarded 3 grants totaling $224K in 2024.
Where does National Down Syndrome Society operate?
National Down Syndrome Society has awarded grants in Florida, Minnesota, Ohio.
What size grants does National Down Syndrome Society award?
In 2024, National Down Syndrome Society awarded 3 grants totaling $224K — an average of about $75K per grant, based on its IRS Form 990 filings.
What is National Down Syndrome Society's EIN?
National Down Syndrome Society's EIN (Employer Identification Number) is 13-2992567. IRS Form 990 filing data is available on this page for 2020–2024.
Explore Open Grants
Browse active grant opportunities in National Down Syndrome Society's focus areas in our free grants database
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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