National Down Syndrome Society
The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.
Financial Overview
From 2024 IRS Form 990-PF
Total Assets
$13.0M
-3.8% YoY
Annual Giving
$224K
Grant Count
3
Avg Grant Size
$75K
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Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $12,985,609 | $13,503,862 | $13,076,710 |
| Revenue | $4,012,682 | $3,354,289 | $3,651,955 |
| Expenses | $5,273,290 | $4,160,847 | $3,391,372 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $757,855 | $545,543 | $336,258 |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 3 recipients in 2024
Grant Size Distribution
3 grants across all recorded years
Giving History
Grant recipients and amounts by year
No grants recorded for .
Who else does National Down Syndrome Society fund?
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Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| KANDI PICKARD | President & CEO | 40 | $204,973 |
| SARA GOLDBERG | VP Strategic Dev | 40 | $93,417 |
| Carlo P Frappolli | Chairman | 1.5 | — |
| Thomas Warner | Vice President | 1.5 | — |
| Janet Eissenstat | Secretary | 1.5 | — |
| John Short | Treasurer | 1.5 | — |
| Elizabeth F Goodwin | Director | 0.7 | — |
| Kerry Sette | Director | 0.7 | — |
| John Cronin | Director | 0.7 | — |
| Misty Holmes | Director | 0.7 | — |
| Marjorie Shavers | Director | 0.7 | — |
| Mark Johnson | Director | 0.7 | — |
| Debbie Morris | Director | 0.7 | — |
| Lisa Pelham | Director | 0.7 | — |
| Thomas Santos | Director | 0.7 | — |
| Schunda Murphy | Director | 0.7 | — |
| Robert Siegel | Director | 0.7 | — |
| Candace Whiting | Director | 0.7 | — |
| Lauren Wang | Director | 0.7 | — |
| C Mitch Taylor | Director | 0.7 | — |
| Michael Kulma | Director | 0.7 | — |
| Victoria Tremonti | Director | 0.7 | — |
| Joe Joyce | Director | 0.7 | — |
| Courtney Gaines | Director | 0.7 | — |
| Ciara Siegel | Director | 0.7 | — |
| Anthony Gostkowski | Director | 0.7 | — |
Geographic Focus
Where this funder has awarded grants
Grant Distribution by State
Cities
Data last updated March 2026. Sourced from IRS Form 990-PF filings.
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