Myositis Support and Understanding Association Inc
The mission of Myositis Support and Understanding Association Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research.
Financial Overview
From 2024 IRS Form 990-PF · View filing
Total Assets
$235K
-3.8% YoY
Annual Giving
$20K
Grant Count
1
Avg Grant Size
$20K
About Myositis Support and Understanding Association Inc
Based on IRS filings
Myositis Support and Understanding Association Inc is a nonprofit organization focused on Medical Research, based in LINCOLN, DE. IRS filing data is available from 2020 through 2024. As of 2024, the organization holds $235K in total assets. In 2024, it awarded 1 grants totaling $20K. Net investment income was $5K.
Focus Areas
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Geographic Focus
Where this funder awards grants
Grant Distribution by State
States
Cities
Financial History
Multi-year comparison from IRS filings
| Metric | 2024 | 2023 | 2022 |
|---|---|---|---|
| Total Assets | $234,940 | $244,267 | $111,437 |
| Revenue | $536,205 | $494,568 | $444,144 |
| Expenses | $509,198 | $430,096 | $479,614 |
| Qualifying Distributions | — | — | — |
| Net Investment Income | $5,332 | — | — |
| Distributable Amount | — | — | — |
Giving Over Time
Total grant dollars and number of grants per year
Grant Insights
How this funder distributes its grants
Top Recipients
Top 1 recipients in 2024
Grant Size Distribution
1 grants across all recorded years
Giving History
Grant recipients and amounts by year
Among its reported 2024 grants, the largest include BioSensics LLC ($20,000).
| Recipient | Purpose | Amount |
|---|---|---|
| BioSensics LLC Newton, MA | Monitoring Biomarker study | $20,000 |
Leadership & Key People
Officers and directors from IRS filings
Compensation Overview
From 2024 IRS filing
From 2024 filing
| Name | Title | Hours | Compensation |
|---|---|---|---|
| Lynn Wilson | President | 40 | — |
| Benita Moyers | Vice President/Secretary | 17 | — |
| Shirley Schnieders | Treasurer | 7 | — |
| Manuel Lubinus | Board Member | 19 | — |
Subject Areas
Focus areas based on grantmaking activity
Frequently Asked Questions
What is Myositis Support and Understanding Association Inc?
Myositis Support and Understanding Association Inc is a nonprofit organization focused on Medical Research, based in LINCOLN, DE. It holds $235K in total assets as of 2024.
How large is Myositis Support and Understanding Association Inc?
As of 2024, Myositis Support and Understanding Association Inc holds $235K in total assets with $536K in annual revenue. It awarded 1 grants totaling $20K in 2024.
Where does Myositis Support and Understanding Association Inc operate?
Myositis Support and Understanding Association Inc has awarded grants in Massachusetts.
What size grants does Myositis Support and Understanding Association Inc award?
In 2024, Myositis Support and Understanding Association Inc awarded 1 grants totaling $20K — an average of about $20K per grant, based on its IRS Form 990 filings.
What is Myositis Support and Understanding Association Inc's EIN?
Myositis Support and Understanding Association Inc's EIN (Employer Identification Number) is 47-4570748. IRS Form 990 filing data is available on this page for 2020–2024.
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Data last updated April 2026. Sourced from IRS Form 990-PF filings.
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