Myositis Support and Understanding Association Inc
The mission of Myositis Support and Understanding Association Inc is to improve the lives of and empower those fighting myositis through education, support, awareness, advocacy, patient financial assistance and access to research.
Myositis Support and Understanding Association Inc at a glance
In short: Myositis Support and Understanding Association Inc gave $40K across 2 grants in 2025 (avg $20K), mostly in Texas. Source: 2025 IRS Form 990.
- Annual giving (2025)
- $40,425
- +102.1% vs 2024
- Grants made (2025)
- 2
- +100.0% vs 2024
- Average grant
- $20,213
- +1.1% vs 2024
- Median grant
- $20,213
- Total assets
- $216,988
- -7.6% vs 2024
- Primary geography
- Texas (100% of itemized 2025 grant dollars)
- Latest 990 filing
- Form 990, 2025 View filing
Data from IRS Form 990, 2025; updated September 2026.
Who Myositis Support and Understanding Association Inc funds
How this funder distributes its grants
Top Recipients
Top 2 recipients in 2025
The largest 2025 recipient was The University of Texas at Tyler ($25K). Together the top 2 received $40K.
Grant Size Distribution
3 grants across all recorded years
The most common grant size was under $50K: 3 grants of 3 (100%).
Geographic Focus
Where this funder awards grants
Grant Distribution by State
Share of 2025 grant dollars across all 2 itemized grants.
States
Cities
Giving History
Giving Over Time
Total grant dollars and number of grants per year
From 2024 to 2025, annual grant giving ranged from $20K (2024) to $40K (2025). In 2025 it made 2 grants totaling $40K.
Grants by year
Grant recipients and amounts by year
| Recipient | Purpose | Amount |
|---|---|---|
| The University of Texas at Tyler Tyler, TX | Research project on Fall Prevention in the IBM Myositis Community | $25,000 |
| Speech Swallowing and Neurological Rehabilitation PLLC Tyler, TX | Respiratory muscle strength training for dysphasia | $15,425 |
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Financial History
Multi-year comparison from IRS filings
| Filing year | Total Assets | Revenue | Expenses | Grants paid | Grants | Net Investment Income |
|---|---|---|---|---|---|---|
| 2025 | $216,988 | $440,756 | $461,269 | $40,425 | 2 | $4,269 |
| 2024 | $234,940 | $536,205 | $509,198 | $20,000 | 1 | $5,332 |
| 2023 | $244,267 | $494,568 | $430,096 | — | — | — |
| 2022 | $111,437 | $444,144 | $479,614 | — | — | — |
| 2021 | $146,907 | $163,385 | $131,879 | — | — | — |
| 2020 | $115,401 | $115,106 | $93,659 | — | — | — |
About Myositis Support and Understanding Association Inc
Based on IRS filings
Myositis Support and Understanding Association Inc is a public charity focused on Medical Research, based in Lincoln, DE. IRS filing data is available from 2020 through 2025. As of 2025, the organization holds $217K in total assets. In 2025, it awarded 2 grants totaling $40K. Net investment income was $4K.
Focus Areas
Leadership & Key People
Officers and directors from IRS filings
Myositis Support and Understanding Association Inc is led by Lynn Wilson, President since 2023 (on filings since 2020); none of the 6 officers listed in 2025 report compensation.
Officers on the 2025 filing
Lynn Wilson
President
Vice President → President, 2023
On filings since 2020
40 hrs/week
No compensation reported
Manuel Lubinus
Board Member
Board Member → Chief Science Officer, 2022
Chief Science Officer → Board Member, 2024
On filings since 2021
19 hrs/week
No compensation reported
Shirley Schnieders
Treasurer
On filings since 2022
7 hrs/week
No compensation reported
Marlene Jansen
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Mohammed Harris
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Randy Berry
Board Member
New on the 2025 filing
1 hr/week
No compensation reported
Former officers (8)
- Former: Benita Moyers (2021–2024) — Vice President & Secretary
- Former: Lauren Landman (2023) — Board Member
- Former: Shirley Schneiders (2023) — Treasurer
- Former: Jerry Williams (2020–2022) — President
- Former: Caitlin Ray (2020–2021) — Board Member
- Former: Mary Arnold (2020–2021) — Secretary
- Former: Penny Bundy (2020–2021) — Treasurer
- Former: Jim Doiron (2020) — Secretary
Data from IRS Form 990 filings, 2020–2025. "On filings since" is the earliest filing we hold that lists the person; hours are average hours per week as reported.
Frequently asked questions about Myositis Support and Understanding Association Inc
How much does Myositis Support and Understanding Association Inc give each year?
Myositis Support and Understanding Association Inc gave $40K across 2 grants in 2025, according to its 2025 IRS Form 990. In 2024 it gave $20K across 1 grant.
How large is Myositis Support and Understanding Association Inc?
Myositis Support and Understanding Association Inc reported $217K in total assets on its 2025 IRS Form 990. Its revenue that year was $441K.
What is Myositis Support and Understanding Association Inc?
Myositis Support and Understanding Association Inc is a public charity focused on Medical Research, based in Lincoln, DE. It holds $217K in total assets as of 2025.
Where does Myositis Support and Understanding Association Inc operate?
Myositis Support and Understanding Association Inc has awarded grants in Massachusetts, Texas.
What is Myositis Support and Understanding Association Inc's EIN?
Myositis Support and Understanding Association Inc's EIN (Employer Identification Number) is 47-4570748. IRS Form 990 filing data is available on this page for 2020–2025.
Data last updated September 2026. Sourced from IRS Form 990 filings.
Data update history
(2)
When this profile's IRS filing data changed on Grantable
- Added Form 990 for fiscal year 2025 (received by the IRS July 21, 2026)
- IRS filings on file for fiscal years 2020–2024
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